casey, a child with down syndrome
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Casey, a child with DownSyndrome
She Man And Nadi George
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What is Down Syndrome?
Also called Trisomy 21 Extra genetic material causes a delay in the way a child
develops physically and mentally. First described in 1887 by John Langdon Down. 1959 - extra chromosome identified as the cause.
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Levels of Down Syndrome
Three Levels: Mild, Moderate and Severe.Diagnosis does not depend on severity, but rather combination.
Most cases fall within the mild or moderate category.
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Challenges Faced by Children withDown Syndrome
Motor Skill Development Some Physical Signs: - Flat appearing face
- Small head - Flat bridge of the nose - Small mouth - Small, outwardly rotated eyes - Shorter than normal height Delayed Brain Development:
- Mild-to-moderate - Difficulties linking memories to time
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Cont'd- Challenges Faced by Children with
Down Syndrome
Speech and Communication- difficulty being understood by others.
Health Problems Social Challenges Over-dependence on caregivers
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Cures and Treatments of Down Syndrome
No hope for a cure
Prevention is also not possible
Treatments are aimed at related complications, such as:o heart diseaseo thyroid diseaseo vision problemso hearing problemso stomach and bowel problems
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Therapies for Children withDown Syndrome
Aimed at improving physical and cognitive development
Early intervention programs: therapies and exercises that focus on
motor skills and speech
Types of therapy:o Physicalo Occupationalo Speech
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What about the experience of Casey's Parents?
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Grieving and Adjustment period
Seeking out supports
Advocating for their child (becoming
experts)
Taking time to just be a family
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Services Offered by MDSS: Visiting Parents Program
(new parents meeting with volunteer parents)
Labour of Love: New Parent Packages Family Get-togethers (eg. Goldeyes Games)
(informal way for parents to meet other parents)
Resource Library (available to anyone)
Information Nights on various topics
Annual See Me Beautiful Conference
- for parents & educators
School Talks
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Recap
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Each child has uniquecharacteristics and should
be treated as an individual.
A child is a child first.