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Beyond Right and Wrong How mediation could help resolve contested decisions in paediatric palliative care Sarah Barclay Cardiff, July 2010

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Beyond “Right” And “Wrong”: Plenary presentation by Sarah Barclay to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

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Page 1: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Beyond Right and Wrong

How mediation could help resolve contested decisions in paediatric palliative care

Sarah BarclayCardiff, July 2010

Page 2: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

What are the ethical dilemmas?

Page 3: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010
Page 4: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Decision Making

Page 5: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010
Page 6: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

What is the court being asked to decide?

Page 7: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

‘Judges are given the appalling task of weighing up issues of immense sensitivity on which they have received little training – medicine, parental love, ethics and often religion’

Marcel BerlinsThe Guardian 23 March 2009

Page 8: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

What isMedical conflict?

Page 9: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010
Page 10: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

‘Court battle over hospital that wants to let baby die’

26 September 2004

Page 11: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

‘I’m hoping for a miracle,’ says Charlotte’s father.

2 October 2004

Page 12: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

‘I can really think of little that would be worse than for a child to be intubated and die in the course of futile treatment, or, worse still, in the course of futile treatment while futile legal proceedings were on foot’

Mr Justice Hedley

Page 13: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

The Baby OT case

Parents ‘deeply distressed’ by court ruling to switch off life-support for their boy

21 March 2009

Page 14: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

The Baby OT case

Parents may sue hospital over right-to-die battle

23 March 2009

Page 15: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

The Story Of Child B

Page 16: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Mediation

An alternative solution

Page 17: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Mediation

A flexible process conducted confidentially in which:

• A neutral person actively assists the parties in working towards a negotiated agreement of a dispute or difference

• The parties are in ultimate control of the decision to settle and the terms of resolution

Page 18: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Mediation

Two types:

•Evaluative•Facilitative/Transformative

Page 19: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Mediation in the medical arena

‘This plaque is dedicated to the memory of children and pre-viable babies who died and from whom organs were wrongly retained in former times. This dedication acknowledges the role of parents in bringing about appropriate change’

Memorial plaque, Alder Hey

Page 20: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

‘There are potential advantages to using mediation in disputes about critical care decisions in neonatal medicine…’

Page 21: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

A new approach

Litigation MediationAdversarial ConsensualInflexible Flexible

Backward-looking Forward-lookingExternally imposed

judgmentMutually agreed solution

Time-consuming Relatively quickVery costly Relatively cheap

Page 22: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

A cheat’s guide to ethical principles

• Beneficence • Non-malfeasance • Autonomy • Justice

Page 23: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

So:

What is it?How would it work?

Page 24: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

• Facilitated discussion• Formal mediation • An option even after legal action starts• Training in effective communication

Page 25: Beyond “Right” And “Wrong”: Plenary presentation to the 5th International Conference on Paediatric Palliative Care, Cardiff 2010

Thank you for listening:

Please get in touch• [email protected]• 07802-783184• www.medicalmediation.org.uk