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BBQ and Sporting Activities Day

NewslineSUMMER 2017

Birds of Paradise Theatre CompanySIS New HoursWheelieChix-Chic

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16 06

02 Welcome

03 News: Glasgow Caledonian University. Team of the Year. Royal Garden Party. 25th Anniversary.

04 News: Gold MedalistsHonoured by the Queen

05 News: SIS New Hours

06 Birds of Paradise Theatre Company

08 Member Profile: Craig McRonald

10 Sport: Scottish Curling Team Skip

12 BBQ and Sporting Activities Day

16 WheelieChix-Chic

18 The disABILITY to Cruise

19 Welfare Advice

20 Bullen Healthcare and me!

21 Thank You to Our Fundraisers

23 Classified Advertising

ContentsSummer 2017

01

All enquiries and applications to our address at:Spinal Injuries ScotlandFullarton Court (Unit C)11 Drumhead PlaceCambuslang Investment ParkGlasgow, G32 8EY

Tel: 0141 427 7686 Freephone Line: 0800 0132 305Email: [email protected]

SIS is a company registered in Scotland byguarantee and recognised as a charity.Scottish Charity No: SC015405. ISSN 1363-6723

Any opinions expressed in the SIS Newsline arethose of the person writing and not necessarilyshared. Articles from Newsline are available ondisc or in large print on request.

Spinal Unit Visit TimesSpinal Injuries Scotland staff and volunteersare in the spinal unit every Monday andThursday from 1.00pm to 1.30pm in the dayroom and from 1.30pm to 3.00pm on theward. Anyone wishing to speak to any of our staff or volunteers outwith these timesplease call our Freephone Line 0800 0132305 to arrange a spinal unit visit at GlasgowQENSIU.

Legal and Welfare Advice ServicesIf you are concerned about legal or welfare issues, please call the office on ourFreephone Line 0800 0132 305 and we will put you in touch with our advisors.

Freephone Line 0800 0132 305If you need someone to talk to, use theabove number for enquiries great and small.If no-one is available then please leave yourname and number with your message andsomeone will get back to you as soon aspossible.

Honorary PresidentHRH The Princess Royal

PatronsPaul WarwickHarry BrownTracey Brown

Board of DirectorsLinda Bamford (Chair)Kevin ConlonJennifer AllanMaureen MorrisonIan WilsonWoody WhittickPatricia Clay-MacKinnon

In the OfficeGeneral ManagerRoslyn Scholarios

Peer Support AdviserLaura Torrance

Peer Support CoordinatorHugh Savage

Cover Photo: BBQ and Sporting Activities Day 2017

Editorial: Spinal Injuries Scotland and Clear Design (North)

Design: Clear Design (North)Tel. 07971 182736 www.cleardesignnorth.co.uk

www.facebook.com/spinalinjuriesscotland twitter.com/sisonlineorg www.youtube.com/spinalinjuriesscot

The arrival of summer with brighter daysand warmer weather means enjoyingoutdoor life and sporting activities.

The annual Spinal Injuries ScotlandBarbecue and Sporting Activities Dayat Castle Semplewas a resoundingsuccess. Over 150 people enjoyed a rangeof activities including sailing, kayaking,canoeing, powerboating, hand biking andcheeseburger demolition. See the greatphotographs on pages 12, 13 and 14.

If you are thinking about going to thetheatre, find out about the innovative andexciting Birds of Paradise Theatre Companyon pages 6 and 7. It’s definitely worth a visit.

We hope you enjoy reading this issue of Newslineand please get in touch with any thoughts or ideasfor your magazine.

Happy reading!

02

Newsline Summer 2017

The Editorial Team

Welcome

Changes to NewslineThere are some big changes coming to Newsline very soon. Steven, a SIS peer support volunteer,is now on board to help shape these changes and track down fresh, exciting new content.

Steven had an accident 10 years ago, resulting in loss of movement from the neck down and requiring aventilator to breathe. He has been a volunteer with SISfor 18 months. Steven exemplifies how rewarding life can be after a very severe spinal cord injury. Everyone at Newsline would like to welcome him to the team.

Royal Garden PartyPictured, resplendent in kilt and sporran, is AlexFindlay, one of the SIS peer support volunteers,proud to represent Spinal Injuries Scotland atthe Royal Garden Party at Holyrood Palace on the 4th July, 2017. Alex, previously present at theCeremony of the Keys, has become the unofficialSIS royal watcher!

Thank you so much!Pictured here with the three Spinal InjuriesScotland volunteers are Christine and Bill, seniorfigures from Glasgow Caledonian University whocame along to the SIS offices in Cambuslang topresent a glass trophy to Andy, Jamie and Kevin.

The three SIS men had supported over a dozennursing recruitment events at the university bydescribing to an audience of nursing applicantstheir own patient and outpatient experiences as they recovered from their spinal injuries.

The reactions from the audiences on the dayreflected the profound and very real impact thatAndy, Kevin and Jamie made on hundreds ofwould-be nurses. All of them spoke eloquentlyand honestly about what it takes to be a goodnurse. And all of them were shameless in milkingthe (albeit fully deserved) applause they got from the hundreds of people they spoke with.

Congratulations to all of them, a credit tothemselves and the human spirit and greatambassadors for Spinal Injuries Scotland.

Team of the year!SIS in action.Pictured above is the new publicity in the spinalinjuries unit in the Queen Elizabeth UniversityHospital for the peer support service offered everyweekday by volunteers and staff from Spinal InjuriesScotland. This is a great credit to everyone involved,especially the volunteers, many of whom face realchallenges themselves in coming along to helppeople in the unit come to terms with their injuries. More information on page 5.

Forthcoming Attraction! The Spinal Injuries Unit at the Queen ElizabethUniversity Hospital is currently planning its 25thAnniversary celebrations with support from SpinalInjuries Scotland. It’s provisionally planned for the 5th September 2017, so watch our website andFacebook and Twitter page for all the details. There could be an invitation coming your way!

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News•News•Ne03

News•News•••04

Gold Medallists Honoured by the QueenEveryone at Spinal Injuries Scotland is delighted to congratulate Karen Darke, Jo Butterfield andGordon Reid. All three were included the 2017 New Year Honours list after winning gold medals at the 2016 Paralympics in Rio de Janeiro. The Queen presented them with their MBE's this summer at a ceremony in Edinburgh.

Spinal Injuries Scotland member Karen Darkereceived her MBE for services to sport, particularlycycling and triathlon after speeding to gold in Brazil.The hand cyclist was fastest in the H1-3 time trialand told the BBC it was a "great honour" to receivethe MBE. She also paid tribute to all the people who have helped her along the road to her incredibleachievement. Look out for a special feature interviewwith Karen in our next edition. A great story, not tobe missed!

Another member of Spinal Injuries Scotland,Jo Butterfield was also at The Palace ofHolyroodhouse to be honoured by the Queen. Jo, already European and world champion, set a new world record in Rio in the F51 Club Throw. She received her MBE for services to field athleticsand can be seen defending her world championshiptitle in London this summer. Jo featured in the Spring2015 edition of Newsline and her fascinating story is

well worth a read. Archived editions of Newslineare available to read on the Spinal Injuries Scotlandwebsite.

The third Scottish Paralympian to receive an MBE was tennis star Gordon Reid. 2016 was anoutstanding year for Gordon. It began with himwinning his first grand slam singles title, theAustralian Open. Later in the year, he added anothergrand slam title to the trophy cabinet by taking thesingles championship at Wimbledon. The year was topped off with an incredible gold medal atthe Paralympics in Brazil. A very proud Gordoncelebrated receiving his MBE for services towheelchair tennis along with his parents and tenniscoach. He told the BBC they were the people whohave "helped me get here the most out of anyone.”

Karen, Jo and Gordon are leading the way in theirindividual sports. They are also a huge inspiration to anyone with a spinal cord injury who is keen totake up sport. For the three to be honoured withMBE's after winning gold medals in Brazil shows what can still be achieved after an injury. If anyone is interested in taking up sport but is unsure whereto start, get in touch with us at [email protected] we will point you in the right direction. Takeinspiration from our three Paralympian's, you neverknow what you can achieve until you give it a go!

Remember to look out for more from Karen Darkein our next edition.


Karen DarkeJo Butterfield

Gordon Reid

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News•News•••05

New Unit Times – Staff and Peer Support Volunteers

Our staff will be in the day roomevery weekday to offer support,advice or information.

Feel free to come and talk withus any time – we are all here tohelp in any way we can.

Our Peer Support Volunteers (pictured above), will be in the day room and also visiting thewards every weekday. All of our peer supportvolunteers have sustained a spinal injury, andare here to assist you and your family andfriends, with their experience and knowledge of all aspects of living with a spinal injury.

Spinal Injuries Scotland works together withBACKUP Trust and Aspire to support peopleand their families and friends, coming to termswith a spinal injury. We will be happy to referyou to our partner organisations for their helpand support.

SIS Staff times in the day room:Monday Tuesday Wednesday Thursday Friday9am-5pm 9am-5pm 9am-5pm 12.45pm-5pm 12.45pm-5pm

SIS Peer Support Volunteers times in the day room / on the rehab ward:Monday Tuesday Wednesday Thursday Friday1pm-4pm 1pm-4pm 1pm-4pm 1pm-4pm 1pm-4pm

Alex Findlay Andy Nisbet Andy Richardson Graeme Quinn Hugh Savage Jamie Ward Keira Procter

Kevin Mackin Laura Torrance Mary Ballantyne Mike Thomas Steven Mcghee Tony Kane Walter Richardson

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Named after their first production, an adaptation ofRonald Laing’s Sweet Bird of Paradise, Birds of ParadiseTheatre Company (BOP) was established in 1989. At this time, many protested against the inadequaciesof the Chronically Sick and Disabled Persons Act (1970),where it was still lawful to be refused entry to atheatre because you were disabled. Through acombination of direct action and political pressurefrom the Employer’s Forum on Disability, theConservative Government introduced the DisabilityDiscrimination Act (1995). This legislation did takesteps to make the UK a more inclusive and accessibleplace. It was in this atmosphere of fighting fordisability equality that plans for Birds of ParadiseTheatre Companywere hatched.

BOP, along with other companies was redefining the way disabled people were perceived on stage. BOP wanted to improve equality in the arts for disabledpeople by creating opportunities for disabled actors on main stages throughout Scotland. No longer shouldtheir presence be associated with community theatre or amateur drama. They were now demonstrating toaudiences and fellow artists that not only were theretalented disabled performers, but that these individualshad rich and valuable experiences to share with people.

“[BOPs] first major stage debut took place in 1990during the Glasgow City of Culture celebrations… This was probably the first time many Scottish audienceshad viewed work that challenged the aesthetics oftheatre-making while at the same time challengingtheir own prejudices and perceptions…”

Angela Hogg, Senior Drama Officer, Scottish Arts Council

BOP used the arts to raise awareness in audiences:Awareness about the lack of disabled people in thearts; of the different experiences faced by disabledpeople; awareness, in some cases of their ownignorance about disability.

“I brought only one idea. The play must have strong parts for as many disabled actors as possible, so should be set in a world where the able-bodied were a pitiable minority… I needed to know the everydayembarrassments of being disabled so that my ablebodied hero could suffer these also.”

Alasdair Gray, Playwright, Working Legs, 1998

Alasdair’s ambition to give disabled actors strong, wellwritten parts is still a sentiment held today. Historically,disabled characters were predominantly portrayed asweak, villainous or “the other” (Richard III, Quasimodo).Even though these characters were far from flattering,the chance of a disabled actor being given the part was low.

An important part of BOP’s approach is to ensure theirwork portrays strong, assertive and likeable disabledcharacters that subvert the stereotypes. Laura, Amy Conachan’s character in Wendy Hoose (2014),is unabashed about her disability – it is Jake - the loveinterest - who is initially awkward, bashful and insecure.

BOP’s work, however isn’t only about disability. Their work contains layered, nuanced stories thatappeal to both the disabled and non-disabled. BOP’scharacters demonstrate the similarities between thedisabled and non-disabled, often emphasised by usingintegrated casts. Crazy Jane (2015) is a play about alady with a mental health condition who goes to workat the Moulin Rouge but the deeper themes - insecurity,abuse, self discovery are emotions everyone can relate to.

BOP is recognised as one of Scotland’s mostinnovative and exciting companies. This credibilityis supported by good reviews in the press and also bythe calibre of companies wanting to work with them.

Birds of Paradise Theatre Company

Above: Crazy Jane

In recent years disabled peoplehave been stigmatised as a drain onresources and disability motivatedhate crimes have soared. Theatreand the arts can play a key role indemystifying the disabilitystereotype. After Wendy Hoose, Amy Conachan made the leap intotelevision and now plays CourtneyCampbell in Hollyoaks (Channel 4),one of the few disabled actors toregularly appear on TV. Havingdisabled people in the public eyeis one key way of changingperspectives on disability.

First and foremost BOP is a theatrecompany and they take great pridein the creative work they produce.Blanche & Butch opens in September(Tron Theatre, Glasgow - thentouring) and Tin Soldier, a Christmasshow for young people and families,in December (Studio @ FestivalTheatre, Edinburgh). While theyprimarily want audiences to beentertained, they recognise theresponsibility they have to supportdisabled artists and audiences alike.Resources such as audio descriptionand British Sign Language areembedded in the fabric of theirproduction.

They also support others throughtraining organisations and providingvaluable resources like the AccessScottish Theatre Guide. By providingsupport to disabled artists, in theform of development opportunities,they have given more disabledartists access to the skills andknowledge they require to makework, to explore disability throughtheir own lens and help to providemore opportunities for audiences to engage with work by disabledartists. This dual approach ofcreating theatre for/with disabledpeople and by supporting disabledaudiences and artists to engage inthe industry, is integral to theirapproach to improving disabilityequality in the arts in the presentand into the future.

Wendy Hoosewas made in co-production with RandomAccomplice, and was so successful it toured for threeconsecutive years across the UK and Spain, including a run at Edinburgh Festival Fringe; Crazy Jane was scored byScottish hip-hop duo Hector Bizerk - the soundtrack wenton to be nominated for Scottish Album of the Year 2016;Purposeless Movements (2016) was made in co-productionwith international arts space Tramway, was nominated for“Best Ensemble Production 2016” and “Best Director 2016”at the Critics Awards for Theatre in Scotland (CATS) andfeatured Colin Young from Call the Midwife (BBC).

Wendy Hooseby Johnny McKnight

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A spinal cord injury can be a life changingexperience. For many people, getting back towork is a massive step towards regaining a sense of control. Reaching this goal is often a longstruggle requiring hard work, determination and a willingness to accept help along the way.

Spinal Injuries Scotland member Craig McRonald'sstory is an inspiring example of someone refusingto let his disability take away his independence.

Craig, 27, was involved in a car accident 9 years ago, causing damage at T6 level and resulting inparalysis from his lower ribs down. At the time ofthe accident Craig was completing an apprenticeshipin fabrication and living with his parents and sisteron a farm in Aberdeen. Craig spent six months afterthe accident in what is now the Queen ElizabethUniversity Hospital, Glasgow.

Throughout his time in hospital, Craig never gave up hope of getting back to work. Despite having his bad days, and admitting he still does, he toldNewsline how he "always kept a positive attitude.That's just the kind of person I am." This attitude was encouraged by the team of nurses,physiotherapists and occupational therapists in the spinal unit. He also had great support from his family, friends and strangers who helped along the way.

Craig returned home to start the process ofrebuilding his life. Having grown up on the farm Craig saw that a possible route back to employmentcould be his experience of using farm machinery. The first obstacle to overcome was transferring inand out of a digger. After that, he had to developsome way of controlling the machine.

Craig was two years into his fabricationapprenticeship and as his Dad had also worked infabrication, they had many of the skills to designcustomised systems. He commented: "Growing upon a farm, if something wasn't available you reallyneeded to make it.” That is exactly how they created a hoist for transferring to and from the digger. Craig told Newsline, "there is nothing on the marketthat you can buy off the shelf", so he got in touch with a local mechanic with experience of fitting handcontrols. Craig said: "We managed to use all differentparts from different systems to create a control thatcould operate the plant machinery.”

This adaptation was exactly what Craig had beenwaiting for. He got his qualification for the digger and picked up small jobs. He also found companiesto help with work experience until an opportunitycame along.

We are delighted to say that Craig now haspermanent employment. He got his qualificationand a job opportunity came along. His companyoffered to pay for more qualifications if Craigadapted the machinery he would be operating.

Adaptionsfor a New Life

Member Profile:Craig McRonald

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This has been a long and challengingprocess for Craig but he doesn’t thinkthat should discourage others fromdoing the same. He told us: ”It has taken time to find paidemployment but it is worth it in the end. I would say don’t be discouraged if itdoesn't happen straight away.”

We’ve been inspired by Craig’s strengthof character. He’s also benefited fromhelp from so many people. Finishing ourconversation, we wanted to know howimportant he thinks a strong supportnetwork is. We think Craig's answer iswise advice for all of us: "I would say to people who have had anaccident that they should always ask forhelp. There is a mutual understandingand people want to pass on theirexperience and knowledge. Don't beafraid to reach out and ask for the helpthat you need. There is always supportthere if you want it. People will offer youhelp if you ask for it and there is nothingto be embarrassed about.”

Everyone at Newsline would like tothank Craig for sharing his story withus. If you have questions about gettingback to work or any other goal, pleaseask (Spinal Injuries Scotland).

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Sport•Sport•••

Aileen Neilson – ScottishCurling Team SkipWith a grandfather and uncle both representingScotland in curling it is no surprise that AileenNeilson was destined to follow in their footsteps.However, this primary teacher turned full-timeathlete has had more knockbacks than most.

Aileen suffered a spinal tumour when she was two-and-a-half years old but after successfultreatment, led a very active early life. She went to Wester Overton Primary School and StrathavenAcademy and was very active in all types of sport but due to the earlier surgery and radiotherapy her legs gradually deteriorated from about the age of 18 and she was unable to participate in sport.

It wasn’t until 2004 that the opportunity cameabout to try curling again. She took her class fromschool on a trip to the local ice rink for them to trycurling and the coach asked if she had a wheelchairbecause they had started a wheelchair curling club.This allowed Aileen to get back on the ice and shewas delighted to be participating rather then justwatching. In 2005, she suffered a DVT (deep veinthrombosis) and that was when her legs lost the last of their power and she started using a wheelchairpermanently. This came as a relief for Aileen, whohad struggled for so long on elbow crutches, and itgave her a new lease of life and found she could doso much more using a wheelchair.

In 2005 she watched the Scottish Team winthe Gold medal at Braehead Arena in the WorldWheelchair Curling Championships. This was whenshe realized she would like to be winning the medalsand not just watching and began training in her spare time.

This hard work and dedication paid off and in 2007 Aileen was selected to play for Scotland and the team won a bronze medal at the WorldChampionships in Sweden. She represented inScotland in 2008 and 2009 then in 2010 wasselected for team GB at her first Paralympic Winter Games in Vancouver.

In 2011, Aileen was again selected for the ScottishTeam for theWorld Championships but this time as skip (captain), the first time a female had beenchosen for the role. They headed to Prague in theCzech Republic and came back victorious with a silver medal.

2014 was a hugely successful year as Aileen skipped the team to a Bronze medal in theParalympic Games in Sochi, Russia, which was seen on television stations all around the world.

In February 2017, the Scottish team returned fromthe World Championshipswith a Bronze medal,securing the GB team a place at the ParalympicWinter Games in Pyeong Chang in South Korea nextyear. The squad is busy training and competing withthe hope of getting back on the podium next March.

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BBQ &SportingActivities Day2017 We

dnesday

28th Ju

ne

2017

The annual Spinal Injuries Scotland Barbecue and Activities Day was held at the Castle SempleVisitor Centre on Wednesday the 28th June. For once the weather turned up in a reasonablemood with a good blow for the sailboats. Over 150people turned up, with a shuttle bus ferrying manypatients and a host of staff from the spinal injuriesunit. The fabulous SIS volunteers turned up en masse too, along with our friends and partnersfrom Digby Brown and Bullen Healthcare, so wewere set for a great day!

Activities on what was, in every sense, a taster day ranged from sailing, kayaking, canoeing,powerboating, hand biking and cheeseburgerdemolition, this last one for the hungry butfainthearted!

The powerboatingwas as popular as ever witheveryone, allowing people to sit in their ownwheelchair if they needed to, but still experience the adrenaline rush of speed and spray!

The windy day lent itself to folk whizzing about theloch on the boats provided, and the exhilaration wasclear on the faces of those coming back to shore.And even if many a hairdo had to be reassembledafterwards, it was clearly worth it!

The kayaking catered for the more intrepid andindependent with the added security of a floatingdevice that prevented capsizing. See the photos ofpeople with gritted teeth determination to have theirkayak and beat it! (Apologies for that pun! –Ed)

The variety of hand bikes for use meant an endlessparade of cyclists lapping the track and simplyenjoying the wind in their hair, as they propelledthemselves around the track with an enthusiasm and energy that made the rest of us pedestrians feel tired just watching them!

Continued on page 14

Activities on what was, in every sense, a taster day,ranged from sailing, kayaking, canoeing, powerboating,hand biking and cheeseburger demolition...

All in all, a great day, agreat warm and friendlyatmosphere and peoplegiven access to wind, waterand the joy of movement.

The variety of hand bikes foruse meant an endless paradeof cyclists lapping the track...

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Inside, away from the blur of activities, were a number of information stands.As well as the SIS stand and the stands for our friends and partnersfrom Digby Brown and Bullen Healthcare, there were a variety of stalls ranging from arts and crafts, home-made cakes and tablet and even a nailtechnician! Every one of the stall holders made a generous donation to the work of SIS!

The barbecue, generously provided by our friendsfrom Digby Brown, enjoyed a general popularity with many a sharpened appetite satisfied by theexcellent burgers, sausages and salad on offer. On the grounds of personal safety we decided toforego the barbecue, such was the anticipated rush.Our thanks to all the fantastic SIS peer supportvolunteerswho had turned up selflessly to supportthe day. We hope they know we appreciateeverything they do!

All in all, a great day, a great warm and friendlyatmosphere and people given access to wind, waterand the joy of movement. Spinal Injuries Scotlandwould like to thank everyone who came along andeveryone involved in supporting the day!

PS. For those who loved the new experience of sailing,kayaking or hand-biking, the charity has a smallamount of money available to allow you to furtheryour interest by facilitating and funding someindividual or group lessons at Castle Semple in yourfavourite activity. Get in touch via our peer supportersor our office for details. You know you want to!

Come and Stay at Clober Farm

The ground floor of this Grade C-listed property in Milngavie was bequeathed to Spinal InjuriesScotland. It forms part of a 280-year-oldfarmhouse which includes an extensive garden.

We identified huge potential in the property andconverted it for use as accessible accommodation for those with spinal cord injuries and their families.

From concept to reality, the property has beenconceived to be truly accessible, whilst still beinga modern and comfortable family home.

The extension houses the living area along with the adaptable kitchen. There are three bedroomswhich can provide accommodation for family or carers, two of which are wheelchair accessibleand one has an ensuite wetroom. There is amodern and accessible bathroom facility.

Hire Clober Farm for ameeting, training course or conference or stay for longer.

Perfect if you are comingto Glasgow for a hospitalappointment, a shortbreak or a longer stay.

Please get in touch with Spinal Injuries Scotland on 0141 427 7686 or 0800 0132 305Email: [email protected]

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A Fashionable Choice

WheelieChix-ChicFunctional, effective, comfortable and practical. All words commonly used to describe clothing that has been designed specifically for wheelchair users. What about FASHIONABLE?

Online searches will offer an endless choice of the former but finding anything trendy is near impossible. One woman helping to changethat is Louisa Summerfield. She is the creator and Managing Director of wheelieChix-chic.com, a fashion label dedicated to giving women theoption of style combined with the practical needs of a wheelchair user. Newsline had the chance to ask Louisa some questions and find out more about WheelieChix-Chic.

What motivated you to start a fashion rangedesigned specifically for wheelchair users?

I did see a huge gap in the market as there seemed tobe a lot of “functional” clothing available that was sohideous even my grandmother wouldn't have worn it.I wanted functionality and fashion combined, I wantedto add some style and sexiness to what we wear, mymotto has always been – everybody stares at you whenyou’re in a wheelchair so give them something good to stare at.

I know wheelchair users can get frustrated choosingbetween fashionable clothes that do not fit properlyor choosing to have no style and no personality. Do you find it strange that more designers have not recognised a gap in the market?

I don’t think it’s strange I’ve been in this business nowfor 10 years albeit on and off and I’ve realised that it is a very complicated process as there are so manydisabilities and you can’t cater for all, what people can do is just shop around for styles they know works for them. It is a niche market so for mainstreamdesigners there’s no profit in it.

What design features do you incorporate to makeyour product more suitable for wheelchair users?

There are many disabilities and in one outfit you willnever please all of us, so from the start I decided myproducts would only be for a regular “normal” body size and shape, so we don’t cater for very small peopleor amputees. The most important feature was that ourclothing is for those sitting down.

As a wheelchair user myself I was aware of howimportant upper body detail is, when you are talking to someone it is your face, bust, body and arms peoplewill focus on, so therefore I’ve incorporated interestednecklines, I have sleeves that are interesting and yet at the same time are either 3/4 length so wheeling iseasier and cuffs don’t get muddy or ruined in the wheels.

We have skirts and trousers higher at the back andslightly lower at the front, for some fastenings we have magnets and poppers instead of tricky buttons.Wider necklines or deep zips.

Fabric is also very important, those that have lostsensation in their lower limbs enjoy the sensual feel of silk or soft fabrics, some people like a fabric withstretch in it.

In the 10 years since you launched WheelieChix-Chic what changes, if any, have you noticed in theindustry towards clothing for wheelchair users?

We launched in 2007 during London Fashion Weekwith many journalists from around the world. It was anexciting time but it was extremely costly, as the BritishFashion Council didn’t want to know, so I had to financeit all myself. It was a constant battle facing rejectionfrom the BFC, like they’d never heard of disabled peopleand the word “fashion” going together. Since then I haveseen disabled models on the catwalk in all the majorfashion cities which is great, but I feel it’s a token effortand the clothing is still the same. There are disabledmodels BUT they are wearing regular clothing inmainstream fashion, they just offer the novelty value on a catwalk.

There has been some press coverage recentlyhighlighting the use of wheelchair users as modelsin mainstream fashion. Do you see a place formodels with disabilities on the catwalk?

Yes, I do and I’m pleased this is happening as it’s abouttime. I do think they’re often thrown is as the noveltyvalue, but if that one disabled model makes people situp and think for a minute, then it can’t be a bad thing.

Do you have any tips for how wheelchair userscan make the best choices in terms of style whenbuying from mainstream fashion?

Firstly look at my website, but yes I do have lots of tipsand most of them are very straightforward. One: knowyour body shape. Secondly: always think about upperbody detail, look for wide openings on tops and dressesor deep zips; think about your sleeves, short sleeves are great but in colder months look for 3/4 length orsleeves you can turn up. Finally: don’t be scared bypattern and colour. Wearing the right outfit gives youan air of confidence, you need to feel like a woman besensual, sexy, sassy, feminine and elegant. Don’t everlet your wheelchair be the star, you need to be the onethat shines.

What is your vision for the future of WheelieChix-Chic?

I’m always on the hunt for good designs, ourcollections will be small, but on trend and to the point.I’d like to expand by adding well-chosen accessoriesand maybe even include style and make-up advice.

With sponsorship, I’d love to do a big charity fashionshow with invitations to designers who can handle the challenge.

Many thanks to Louisa for giving hertime to Newsline and for continuingto offer a fashionable choice for femalewheelchair users. Don't forget to check out the complete range at www.wheelieChix-chic.com where members of Spinal Injuries Scotland can enjoy an EXCLUSIVE 15% OFF all items using the code SIS2017 at checkout.

BELOW (L-R): Issey trousers with Sonia Jacket,Issey trousers back, Issey trousers front.

BELOW: LouisaSummerfield

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The disABILITYto Cruise

Accessible folding

shower seat

Lowered sink

& shelves

A cruise holiday can be a fantastic way for peoplewith disabilities, and their families, to enjoy arelaxing holiday.

There are a few considerations to be made, butcruise holidays are just as accessible for those with disabilities as they are for the able-bodied.

Firstly transportation to your cruise terminal ofchoice can be approached in the normal way for the wheelchair user. Just remember that if youintend to leave your car in secure parking, likeairports, costs can be quite high.

On arrival at your terminal you go through a similarcheck-in procedure to that of an airport, handingover your luggage to a stevedore for delivery to yourcabin, and making sure the boarding card you’regiven is always at hand. This is your access key notonly for your cabin but for all the facilities on board,so don’t lose it!

Once on board, your cabin will have differentfacilities according to type. They range from thesimplest type of accommodation, the ‘Inside’ cabinwhich has no window, to the ‘Suite’ which can borderon the palatial, with balconies and ‘duplex’ levels.

Whatever you choose, make sure your cabin has‘accessible’ features when you book. This will giveyou essential features such as lowered heights forsinks, toilets seats, light switches and detachableshower head.

Depending on the ship, you will have a vast choiceof areas to explore. These will include dining areasof various types, entertainment venues, swimmingpools and jacuzzis, retail outlets, Purser’s desk andmedical facilities should you require them.

As in a land-based hotel 24-hour room service isavailable for those who wish to dine in their cabinand the menus are usually the same as those in themain restaurants.

Whatever activity you opt for, facilities aboard shipare usually top notch. These can range from retailtherapy in the various shops through to therapy inthe form of a massage or manicure or pedicure in theonboard spa.Watching a movie on the top deck canbe thoroughly enjoyable if your ship has an outdoorscreen. Warm blankets and complimentary popcornare usually provided!

Going ashore at ports of call and exploring thedifferent ports and their surrounding areas isusually the main interest for those on a cruise.People with disabilities normally access the port ofcall by going ashore on the tender craft. Sometimes,however that port may have difficult access such assteep or narrow steps so it’s important that you doyour homework before booking.

Hopefully this information will help you go on andget out there. Book a cruise, see the world, or atleast part of it!

Extracted from ‘The disAbility to Cruise’ by Douglas Smith.www.thedisabilitytocruise.com

Atrium deck Movies underthe stars

Welfare:Carer’s Allowance

19

What is Carer’s Allowance? Carer’s Allowance is the main benefit for carers. It is paid at £62.70 a week (2017/18 rate). You do not have to have paid National Insurancecontributions to qualify for Carer’s Allowance. It is not a means tested benefit based on you and your partner’s income and savings. However,there is a limit on how much you can earn and still be entitled to claim Carer’s Allowance.

Carer’s Allowance is taxable. However, carers will only have to pay tax if they have other sources of taxable income such as an occupational pension or earnings. Carer’s Allowance on its own is belowthe threshold for paying tax.

Who can claim Carer’s Allowance?Not every carer can get Carer’s Allowance. You maybe eligible if you meet all the following conditions:

• You look after someone who gets a qualifyingdisability benefit such as Disability Living Allowance(middle or high rate), Personal IndependencePayment (Daily Living component), AttendanceAllowance or Constant Attendance Allowance.

• You look after that person for at least 35 hours a week.

• You are aged 16 or over.

• You are not in full-time education.

• You earn £116 a week (after deductions) or less.

• You satisfy UK residence and presence conditions.

If you meet the above conditions but already receivecertain earnings replacement benefits (includingState Retirement Pension), then the amount of Carer’sAllowance you may be entitled to will be affected.

When to claim If you claim Carer’s Allowance within three monthsof the person you care for getting a decision abouttheir Disability Living Allowance (DLA), AttendanceAllowance (AA) or Personal Independence Payment(PIP), Carer’s Allowance will be paid from the datethese benefits were awarded (as long as you meetthe conditions for the whole period).

If your claim is made after this you should tell DWP on your claim form if you want your claim to be backdated. Claims can only be backdated 3 months and you must have met all of theconditions for the whole period.

Carer PremiumIf you qualify for Carer’s Allowance and you arereceiving a means tested benefit you will be entitledto a carer premium added to that benefit. (If you arereceiving Pension Credit this premium is called a CarerAddition and in Universal Credit it is called a CarerElement). To claim this premium you should tell thedepartment paying your benefit that you have beenawarded Carer’s Allowance. If you cannot receiveCarer’s Allowance because you already have anotherearnings replacement benefit you will be told youhave ‘underlying entitlement’ to Carer’s Allowance.This ‘underlying entitlement’ also qualifies you for a carer premium.

Protecting your National Insurance recordYour National Insurance record is used to work out your entitlement to some state benefits, e.g. State Retirement Pension or contribution basedEmployment and Support Allowance. If you have totake a break from working to look after someone you may be worried about what will happen to yourNational Insurance record and any future pension.When you receive Carer’s Allowance you areautomatically awarded a National Insurance creditwhich will protect your record. Credits can also counttowards Bereavement Benefits for your spouse or civilpartner. Carers who do not receive Carer’s Allowanceneed to claim the Carer’s Credit by contacting theCarer’s Allowance Unit.

If you get Carer’s Allowance you do not need toclaim Carer’s Credit as your pension is alreadyprotected.

Jacqueline LangeWelfare Rights AdviserDigby Brown Solicitors

20

A member’s view of the service from our partners,Bullen Healthcare.

Bullen are a family run healthcare business inLiverpool with over 150 year’s experience.

After attending a 2 day workshop at BullenHealthcare I got back in touch with Spinal InjuriesScotland, because I wanted to let all other membersknow about my experience of using Bullen.

I can personally highly recommend them.In Liverpool, everything is done on the same site; call centre, pharmacy, warehouse. Everything wasreally organised. I spoke to them about a changeI needed to my delivery when I was there and it was sorted out immediately! From managing director to warehouse worker, everyone mucks in.

I have been using Bullen’s home delivery service for the last 3 years and they have been terrific!

After 17 years of ‘pharmacy frustration’ (it’s a realcondition – look it up!), and constantly wondering,‘Will my prescription be right this time?!’, I got intouch with Bullen and I wasn't disappointed.

When you join, Bullen allocate you a personaladvisor who handles all of your orders. It’s alwaysthe same person and they are always friendly and responsive and chat away to you. It’s all part of the service.

Every 3 weeks my personal advisor contacts meto see what medication I need to order. They thencontact my doctor for a prescription and I receive it the following week. It's delivered to your door by Parcelforce. I also receive a text message fromParcelforce to say my delivery will be that day.

I can honestly say that it’s a world of a difference.And I just wanted to let you know too. No morerunning down to the doctors at last minute or picking up from the chemist. You can rely on Bullen.

They’re also really supportive partners to thecharity so by helping yourself the way I did, you’realso helping the charity, and other people with aspinal injury.

Don’t just take my word for it – check out the advertfor Bullen in this magazine and give them a try.

BullenHealthcare and me!


Kevin Mackin

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SkydiveMexico

Ruth Furneaux’s father was hit by a car whilst cycling homefrom work, nearly 8 years ago.He suffered severe injuries tohis spinal cord, which left himparalysed from the neck down.Spinal Injuries Scotland offereda lot of help and support duringhis 10 months in the spinalinjuries unit in Glasgow. Theyregularly visited Ruth’s fatherand other patients, giving them hope and helping themadapt to life in a wheelchair.

This meant a lot to Ruth and her father. Ruth and a fewfriends decided to do a skydivewhilst on holiday in Playa DelCarmen, Mexico, leading themto raise money for the charity.

Ruth commented: “We decidedthat Spinal Injuries Scotland wasa great cause and very close toour hearts. Sadly my family andI lost my dad suddenly just weeksbefore the holiday which gave useven more determination to dothe jump and raise as much aspossible. Our target was just£250 yet we managed to raise£760!”

EdinburghHalf MarathonLisa Sandilands ran the Edinburgh Half Marathon on 28th May,raising money for Spinal Injuries Scotland. Completing it in 2 hours 26 minutes. This was Lisa’s second half marathon, and she persuaded her partner to join her.

In 2013, Lisa suffered a spinal injury in a road traffic accident.She fractured her spine in two places and underwent surgeryto place metalwork in her spine to heal. After a couple of years,Lisa had the metalwork removed. Lisa said: “I have been luckyenough to recover and be able to continue my life as normal, butI know how my life was turned upside down for the short period.I wanted to make sure I could help those who are not lucky enoughto heal so quickly, or at all. I would happily continue to fundraise for SIS as it’s such a fantastic charity!”

<<

FundraisingFundraising & Donations

Thanks to all of

you who have be

en

hard at work fund

raising

for our charity. W

e are

always so delight

ed to hear

your stories so p

lease keep

up the good work

your

efforts are hugely

appreciated.

<<

22

Thank YouFundraising & Donations

Thanks to all ofyou who have beenhard at work fundraisingfor our charity. We arealways so delighted to hearyour stories so please keepup the good work yourefforts are hugelyappreciated.

Thank you to Arnold ClarkAutomobiles Ltd , who donated£1000 to Spinal Injuries Scotland.Pictured above is John Clark,Director of Arnold Clark,presenting the cheque to LauraTorrance, SIS Peer Support Advisor.

<<A big shout out to Glasgow Happy FacesLisa Brennanwho was facepainting at Lilias Day in Kilbarchan and had the SISfundraising bucket out and raised £83.15.

Lisa explained why she did the fundraising:“My mum is paralysed after a car accident in the Highlands over 10 years ago onChristmas Day. She spent 6 months in theSouthern General Hospital Glasgow, whereshe received excellent care. And is still intouch with Helena from the hospital.”

We would like

to thank Graeme

Beeston for his

generous donati

on

from his stay at

Clober Farm.


John said: “We are delighted to be supporting Spinal InjuriesScotland with a £1000 donation.These funds will be used tofacilitate fundraising activitiessuch as monthly quiz and socialnights which help to provideenjoyment for patients duringtheir stay in the Spinal Unitwithin Queen ElizabethUniversity Hospital. In additionto this, our donation will alsohelp to fund Christmas gift bagsfor patients spending time thereover the Christmas period.”

23

Holiday Classifieds from SIA’s forward magazine

HOLIDAY ACCOMMODATION

FRANCECOLLIOURE, SOUTH OF FRANCE

Ground-floor, two bedroom apartment, sleeps four/six. Levelaccess throughout. Designed specifically for people with spinalcord injury. Ensuite bathrooms, air-conditioning, full heating.Height-adjustable beds, pressure-relieving mattresses.Separate upstairs apartment available for family or friends. www.origincare.co.uk click on L’Origine or call Nathalie on 00 33 632 56 61 75

BRITTANY, FRANCE

Spacious wheelchair accessible holiday accommodation close to the North Brittany coast. Sleeps up to 8 people with 3 bedrooms and 2 bathrooms. Accessible ground floor doublebedroom with large ensuite wheel-in shower room. Profilingbed, hoist and shower chair can be provided on demand.Another bathroom, and two further bedrooms upstairs.Situated in tranquil countryside, 20 mins drive to beautifulbeaches. Within easy reach of ferry ports. Pets welcome. For details contact Clara and Martin Cronin on +33 296 47 17 86. Email: [email protected] www.gites-en-tregor.com


SPAINALCOSSEBRE, SPAIN

Superior, front line two bedroom apartment with ensuite levelaccess shower. Modern low rise complex, beautifully keptgardens, swimming pools. Large terrace overlooking beach.Wheelchair accessible throughout. Level access to bars andrestaurants. Secure parking. Email: [email protected]. Tel: 01228 561 219

COSTA BLANCA, JAVEA, SPAIN

Spacious, fully-equipped, luxury, five-bedroom villa, sleeps 10.Three bathrooms (two ensuite, one with roll-in shower). Flat plot, fully accessible gardens. 12m x 6m pool with hoist.Sky TV. 2.5km to beach. Vehicle required. Contact John Kenny07721 336 747. Email: [email protected]

COSTA BLANCA, TORREVIEJA, SPAIN

Established, detached family villa with lovely gardens in sunnyTorrevieja on the Spanish Costa Blanca. Huge wheel-inswimming pool. Custom built for C5 owner. Close to beach and all amenities. Airport 20-mins. Converted vehicle alsoavailable to hire. For details Tel: 01262 676 015www.disabledvilla.com

COSTA BLANCA, JAVEA, SPAIN

Lovely wheelchair friendly villa set in large colourful gardens on level, gated plot. Well equipped, three beds, two baths,master bed with large ensuite bathroom and wheel-in shower (chair provided). Cable TV with Sky and English channels, DVD player plus DVD library, free broadband internet access.Wheelchair-friendly gardens, 10m x 5m pool with easy-to-usewater-powered pool lift and full-size outdoor tennis table. T1 paraplegic owner. Contact Norman or Sue.Tel: 01900 67280. Mobile: 07818 406 861Email: [email protected]. www.accessvillaspain.com


PORTUGALALGARVE, PORTUGAL

Luz do Sol 4 bedroom villa with pool enjoys panoramic sea views, peaceful location Sleeps 7 spacious and light.Complimentary accessible car, pool lift, hoist, shower trolley,shower/commode chair, massage table, airport transfers.Fantastic family holiday villa. www.algarve-vacations.comEmail: [email protected] or call 00 351 919 032 377

ALGARVE, PORTUGAL

Your home from home in the sun including accessible transportand airport transfers. Owned by C4 tetraplegic, 20-minutesfrom Faro airport with stunning views and privacy. Three twinbedrooms, two with wheel-in showers. Pool with hoist heatedto 25°C. Inclusive accessible vans & airport transfers, electricup and down bed, electric indoor hoist, shower/commodechairs etc. Not to be missed. See full details on ourcomprehensive website. Tel: 00351 289 414 687Email: [email protected]. www.ouricodomar.com

ALGARVE, PORTUGAL

Spacious private villa with pool and hoist. Three bed, two bathwith wheel-in shower. Shower chair provided. Well-equippedkitchen. Two barbecues. All doors one-metre wide. Levelaccess throughout villa and pool area. Paraplegic owner.Debbie Wells. Tel: 01277 354 313

ALAMANCIL, ALGARVE, PORTUGAL

Outstanding, fully-accessible luxury private villa set inbeautiful countryside. Three bedrooms, all ensuite with wheel-in showers. Private pool with hoist. Comfortablelounge/dining rooms and well-equipped kitchen. All you could wish for in a holiday home and so much more! To contact us call 01530 833 690 or www.villas-algarve.co.uk


CYPRUSVILLA CARPE DIEM, MARONI, CYPRUS

Consistently rated five stars, spacious, accessible private villa,own pool and hoist. Sensory gardens, shaded verandah,spectacular sea and countryside views. Designed with SCIperson. 4 bedrooms, 4 bathrooms. Accessible suite – wheel-inshower including shower chair, level access, Therapostureprofiling or Baltic turning electric beds, Likoroll ceiling hoist.Raise recline chair. Assistance available through local Englishagencies. Access statement www.villacarpediem.co.uk Childfriendly. Wheelchair accessible vehicle, airport collectionservice. Local services and beach. Call Andy 00357 99968418or Niki 07866 441204. Email: [email protected]

POLIS, CYPRUS

Three-bed accessible villa Private pool with electric pool hoist,wide steps and handrails. Ramp access throughout the villa and grounds. Walking/pushing distance from shops, villageand beach (with sea trac chair available in the summer season- see website). Wheel-in wet room with wall mounted showerseat and self-propelling shower chair available. Accessible hoband sink in kitchen. Child friendly. Owned and designed by anSCI person. Email: [email protected]

24

Holiday Classifieds from SIA’s forward magazine


AMERICAORANGE TREE, ORLANDO, FLORIDA, USA

Five bed/four bath, purpose-built wheelchair accessible villa overlooking lake and conservation area. Level accessthroughout. Wheel-in shower and shower chair. Non-chlorine x-large pool with spa, both accessible by hoist.Free Wi-Fi, sleeps 12, short drive to attractions and amenities.Paraplegic owner. www.ayersfloridavillas.comEmail: [email protected]


SCOTLANDCLOBER FARM, MILNGAVIE, GLASGOW, SCOTLAND

Spinal Injuries Scotland were bequeathed this GradeC-listed property and have converted it to fully accessibleaccommodation, with extensive gardens, situated around 30 minutes from Glasgow city centre. The accommodationsleeps five/six and comprises adaptable kitchen, two doublebedrooms, one with ensuite wet room, a single bedroom, plus a modern accessible bathroom. For further information, see the SIS www.sisonline.org. Email: [email protected] Tel: 0141 427 7686 / 0800 0132 305

CRATHIE OPPORTUNITY HOLIDAYS, DEESIDE, SCOTLAND

These four fabulous cottages are 40 miles west of Aberdeenand are located in the old Manse Courtyard of Crathie Kirk.They are situated within the Cairngorm National Park on thebanks of the River Dee and offer stunning views.

While accessible to all, the cottages offer facilities so thatdisabled people can also enjoy relaxing holidays in wonderfulsurroundings. The range of additional equipment is extensiveand provided at no charge. The cottages have a security gateand are surrounded by a fenced play making them also idealfor families with children. www.crathieholidays.org.ukTel: 013397 42100 or Email: [email protected]


ENGLANDCENTRAL CORNWALL, ENGLAND

Two barns, sleep 2/4 and 4/6, converted for wheelchairusers, each with 2 wet rooms. Quiet level site on smallworking farm, 480 metre easy walk/wheel to village shops, pub, etc. Open all year. Owners live on site.www.roperswalkbarns.co.ukEmail: [email protected]: 01209 891632

ABNEY, DERBYSHIRE, ENGLAND

Room for all Seasons, fully adapted, luxury, self-cateringproperty in the heart of the Peak District National Park.Wheelchair accessible, hoist available. Sleeps three.www.laneendfarmtrust.co.ukTel Viv for leaflet or more information 01433 650 043

TODSWORTHY FARM HOLIDAYS, CORNWALL, ENGLAND

Luxury and spacious barn conversions on a family runworking farm. Located in an area of outstanding naturalbeauty in the picturesque Tamar Valley. Owned by a C6/7tetra both self-catering cottages are superbly adapted forwheelchair users and their families. Both cottages sleep 6 and have a level access bedroom with a spacious ensuitewetroom. Shower chair, hoist and profiling bed can beprovided. Both cottages are pet and family friendly. Perfect location for touring Devon and Cornwall. Open all year. Tel: 01822 834 744 www.todsworthyfarmholidays.co.uk

TREWORGANS FARM HOLIDAYS, MID CORNWALL, ENGLAND

Specially converted cottages (sleep 4 & 6) that are fullywheelchair accessible. FREE use of 4-section electric profiling beds, air mattresses, electric hoists, shower chairsand rise/recline chairs as well as numerous other mobilityaids. All bedrooms have en-suite facilities – each propertyhas one level-access wet room. Adapted kitchens. Accessible decked patio areas. Detached. Ample parkingareas. Care available from local agency. Exposed beams,wood burner. Ideal location for exploring the whole county. Tel: 01726 883240 or 07762 173860www.treworgansfarm.co.uk

POOLE, DORSET, ENGLAND

Hill Lodge. Owned by C5/6 Tetra. Holiday let in beautifulrural location just 10mins from Poole Harbour. Three doubleensuite bedrooms. Sleeps up to 6 people. The accessibleroom is on the ground floor with ensuite wet room. Shower chair provided. Electric height-adjusted and profiling bed. Accessible kitchen with wheel-under hob and sink. Free WI-FI. Level access and exclusive use ofgardens. Further equipment provided on request. View at www.endeavour-uk.co.ukContact Becky [email protected]: 01202 630 075


WALESGLAN Y GORS COTTAGE, WALES

Snowdonia. Fully accessible, self-catering cottage in beautifulrural location, with open views of Snowdon and surroundingmountains. 4 bedrooms, 3 bathrooms, large kitchen/diner,lounge with log fire. Ground floor bedroom and shower room.Hospital bed and mobile hoist available. Sleeps 10 (12 with sofa bed), reduced rates for smaller groups. See website for details: www.wilsons-holidays.co.ukEmail: [email protected]: 01286 870 261


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