barriers to access: frustrations of people who use a wheelchair for full-time mobility

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Barriers to Access: Frustrations of People Who Use a Wheelchair for Full-Time Mobility Linda L. Pierce, MSN RNC CRRN A phenomenological study was conducted to answer the question, What is it like being an individual with a disability who uses a wheelchair for full-time mobility and lives in society with many potential barriers? A total of 9 people from Ohio and Pennsyl- vania composed the purposively se- lected sample. Colaizzi's method of data analysis was used to review tran- scriptions of interviews with those in the sample. The analysis identified a major theme: all participants had feelings offrustration concerning ac- cess. Four subtheme clusters related to this frustration emerged: issues of independence, attitudes of others to- ward people with disabilities, others' lack of understanding ofthe situations of individuals with disabilities, and lack of involvement ofpeople with dis- abilities in decisions regardingthe de- velopment offacilitiesfor them. This study provides insights into the lived experience of accessibility in today's environment for people with disabil- ities who use a wheelchair for full- time mobility, offers direction for health professionals who work with these individuals, and serves as an im- petus for further research. Address correspondence to Linda Pierce, 413 Loyola Drive, Elyria, OH44035. The passage of the Americans with Disabilities Act of 1990 (ADA) secured equal access to employment, recreation, transportation, and communication for 43 million Americans with disabilities. The purpose of the ADA is to provide a federal mandate to eliminate discrimination against people with disabilities, enforce the standards devel- oped to protect them, and enforce the Fourteenth Amendment's aspects of integration, to ensure access for all within American society (see Figure 1). Nonetheless, discrimination against individuals and their families can take many forms. For example, architectural barriers are a form of discrimination that is not often understood by abled-bodied people, but they are especially distressing for people who use a wheelchair for full-time mobility. It is important to remember that signs denoting that buildings or public areas are accessible to people in wheelchairs do not guarantee that these environments are, in fact, accessible. According to Glass (1988), good communication is essential for promoting accessi- bility. Fain (1996) highlighted in a travel magazine article the fact that the American ho- tel industry is facing numerous lawsuits for failing to make accommodations accessible to people with disabilities. In another article, Hahn (1993) reported that although Con- gress passed the ADA, access in the environment for people with disabilities has not be- come easy. Hahn found that assertive communication is the key to access. Pertinent literature Studies on accessibility are sparse in the research literature. Most published reports primarily have addressed access to public buildings (Martin, 1987), shopping malls (Couch, 1992; Roberts, 1986), food stores (McClain & Todd, 1990), and restaurants (McClain et aI., 1993). Through a survey focused on 13 public buildings, Martin found that the median percentage of compliance to building codes governing accessibility was 77%. Rest rooms, ramps, and parking were the major areas of noncompliance. In Kansas City, Roberts (1986) noted consistent problems with narrow aisles, high shelves and racks, inaccessible dressing rooms, poorly adapted rest rooms, and heavy doors in shopping malls. In a more recent study (Couch, 1992) of shopping mall patrons who were observed entering and leaving a department store, a majority (65.5%) of the 3,554 patrons chose ramps instead of steps to ascend or descend a height of approxi- mately 5 feet that separated the mall level from a department store. Couch's data also indicated that 81 people would have had difficulty getting to the department store with- out a ramp. Of these, 51 were parents with babies in strollers or carriages. The second largest group needing ramps were those with disabilities. Five people used wheelchairs and another 19 had evident permanent or temporary physical disabilities. This study was limited by the following factors: (a) observations that were limited to only one setting, (b) a step and ramp configuration that may have provided a convenience factor rather than demonstrated personal preferences, (c) uncontrolled demographic factors of the observed individuals, and (d) the possibility of the use of steps by individuals as exercise enhancers. Nevertheless, the results tentatively suggested that increased business and 120 Rehabilitation Nursing> Volume 23, Number May/Jun 1998

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Barriers to Access: Frustrationsof People Who Use a Wheelchairfor Full-Time Mobility

Linda L. Pierce, MSN RNC CRRN

A phenomenological study wasconducted to answer the question,What is it likebeing an individual witha disability who uses a wheelchair forfull-time mobility and lives in societywith many potential barriers? A totalof9 people from Ohio and Pennsyl­vania composed the purposively se­lected sample. Colaizzi's method ofdata analysis was used to review tran­scriptions ofinterviews with those inthe sample. The analysis identified amajor theme: all participants hadfeelings offrustration concerning ac­cess. Four subtheme clusters relatedto this frustration emerged: issues ofindependence, attitudes ofothers to­ward people with disabilities, others'lack ofunderstanding ofthe situationsof individuals with disabilities, andlack ofinvolvement ofpeople with dis­abilities in decisions regardingthe de­velopment offacilitiesfor them. Thisstudy provides insights into the livedexperience ofaccessibility in today'senvironment for people with disabil­ities who use a wheelchair for full­time mobility, offers direction forhealth professionals who work withthese individuals,and serves as an im­petus for further research.

Address correspondence to LindaPierce, 413 Loyola Drive, Elyria,OH44035.

The passage of the Americans with Disabilities Act of 1990 (ADA) secured equalaccess to employment, recreation, transportation, and communication for 43 millionAmericans with disabilities. The purpose of the ADA is to provide a federal mandate toeliminate discrimination against people with disabilities, enforce the standards devel­oped to protect them, and enforce the Fourteenth Amendment's aspects of integration,to ensure access for all within American society (see Figure 1).

Nonetheless, discrimination against individuals and their families can take manyforms. For example, architectural barriers are a form of discrimination that is not oftenunderstood by abled-bodied people, but they are especially distressing for people whouse a wheelchair for full-time mobility. It is important to remember that signs denotingthat buildings or public areas are accessible to people in wheelchairs do not guaranteethat these environments are, in fact, accessible.

According to Glass (1988), good communication is essential for promoting accessi­bility. Fain (1996) highlighted in a travel magazine article the fact that the American ho­tel industry is facing numerous lawsuits for failing to make accommodations accessibleto people with disabilities. In another article, Hahn (1993) reported that although Con­gress passed the ADA, access in the environment for people with disabilities has not be­come easy. Hahn found that assertive communication is the key to access.

Pertinent literatureStudies on accessibility are sparse in the research literature. Most published reports

primarily have addressed access to public buildings (Martin, 1987), shopping malls(Couch, 1992; Roberts, 1986), food stores (McClain & Todd, 1990), and restaurants(McClain et aI., 1993). Through a survey focused on 13 public buildings, Martin foundthat the median percentage of compliance to building codes governing accessibility was77%. Rest rooms, ramps, and parking were the major areas of noncompliance.

In Kansas City, Roberts (1986) noted consistent problems with narrow aisles, highshelves and racks, inaccessible dressing rooms, poorly adapted rest rooms, and heavydoors in shopping malls. In a more recent study (Couch, 1992) of shopping mall patronswho were observed entering and leaving a department store, a majority (65.5%) of the3,554 patrons chose ramps instead of steps to ascend or descend a height of approxi­mately 5 feet that separated the mall level from a department store. Couch's data alsoindicated that 81 people would have had difficulty getting to the department store with­out a ramp. Of these, 51 were parents with babies in strollers or carriages. The secondlargest group needing ramps were those with disabilities. Five people used wheelchairsand another 19 had evident permanent or temporary physical disabilities. This study waslimited by the following factors: (a) observations that were limited to only one setting,(b) a step and ramp configuration that may have provided a convenience factor ratherthan demonstrated personal preferences, (c) uncontrolled demographic factors of theobserved individuals, and (d) the possibility of the use of steps by individuals as exerciseenhancers. Nevertheless, the results tentatively suggested that increased business and

120 Rehabilitation Nursing> Volume 23, Number 3· May/Jun 1998

greater customer satisfaction could be incentives that compa­nies should consider when weighing the possibility of includ­ing ramps in their construction plans.

In a small survey of 20 grocery and convenience stores inthe urban and rural areas of one Midwestern state, McClain andTodd (1990) found that urban and rural convenience storesearned lower accessibility scores than grocery stores. These in­vestigators hypothesized that grocery stores may have earnedhigher scores on the survey because of the architectural de­mands of the stores themselves. For instance, the use of gro­cery carts, which grocery stores provide but convenience storesdo not, necessitates ramps, accessible curbs, and doors that openeasily. These features, which are designed for carts, may alsoincrease accessibility for people in wheelchairs.

In another study designed to determine restaurants' com­pliance with the wheelchair accessibility standards found in Ti­tle III of the ADA, McClain et a1. (1993) compared 120 con­ventional and fast food restaurants in urban and rural settingsin three states. Although no notable differences emerged fromthese comparisons, these investigators found three problem ar­eas for the restaurants. Parking the car was often an obstacle toeating out, as only 53% of the surveyed restaurants providedhandicapped parking spaces. Entering the buildings was also aproblem. Only 66% of the restaurants that needed a ramp pro­vided one. Inside the facility, the major problems were acces­sible rest rooms and table height.

Figure 1. Overview of the Americans withDisabilities Act (ADA) of 1990

Title I. Access to EmploymentThere must be no discrimination in recruiting,hiring,pro­motion,job assignment, transfer,rate of pay, fringe bene­fits, or training.Facilitiesmust be readily accessibleto andusable by all.

Title II. Public ServicesPublic transit must be accessible to those in wheelchairs.

Title III. Public Accommodations and Related ServicesPrivate businesses(e.g., hotels, physicians' offices, shop­ping centers, restaurants) must provide accessibility.

Title IV. TelecommunicationsTelephoneservices offered to the public must includefulltelecommunication relay service for people who are hear­ing impaired.

Title V. Miscellaneous ProvisionsA local or state governmental law that providesgreaterprotectionfor the rights of persons with disabilitiesover­rides the terms of the ADA.

Note. From Public Law 101-336.

Recent follow-up projects related to the few available pub­lished studies are lacking. No definitive work has been report­ed in the literature to explore the lived experience of accessi­bility for people who use wheelchairs for full-time mobility;therefore, accessibility remains a relatively neglected issue.

Research questionThe research question that guided this study was, What is it

like being an individual with a disability who uses a wheelchairfor full-time mobility and lives in society with many potentialbarriers?

MethodDesign and conceptual approach: Phenomenology is the

study of essence (Ray, 1985) or "what makes something whatit is" (Ray, 1990, p. 173). The aim of phenomenology is to de­scribe the human experience as it is lived (Oiler, 1982). In thisstudy, a phenomenological approach was used to examine thelived experience and achieve a fuller understanding through de­scription, reflection, and direct awareness of accessibility is­sues for people with disabilities who use a wheelchair for full­time mobility.

Sample: The sample consisted of 4 men and 5 women be­tween 20 and 52 years of age. Some lived alone; others did not.All of the participants spoke English and were articulate. In ad­dition, they all used a wheelchair for full-time mobility becauseof a physical disability and had lived in an urban communitysetting for at least the preceding 6 months.

Specificprocedures: Four nurse investigators collected datafor this study. Prior to beginning the data collection, one of thedoctorally prepared investigators, who was experienced withthe method, reviewed the interview procedures with the other in­vestigators. The investigators obtained their institutional reviewboards' approval and the participants' informed consent. Theinvestigators then recruited a purposive sample of men andwomen from northern and central Ohio and western Pennsyl­vania. To select participants for the study, investigators usedpurposive sampling, which is based on personal judgments aboutpeople who would be most representative of the general popu­lation. An investigator contacted potential participants 1 weekprior to the data collection phase and offered them the oppor­tunity to participate in the study. If participants agreed to takepart in the study, the investigator read the research question sothe participants could think about their responses. Each partic­ipant was assured that all data would be analyzed as groupresponses and that individual participants would not be identi­fied. Finally, the investigator gave each participant an oppor­tunity to contact her prior to the data collection date to ask anygeneral questions about the interview process.

Each one-on-one interview was held in a location chosen bythe participant, was audiotaped, and lasted approximately 1hour. On the day of the interview, the investigator once againread the participant the research question; the remainder of thetime was devoted to the participant's response. The investiga­tor informed the participant that the audiotape could be stoppedat any time during the interview. At the end of each interview,

Rehabilitation Nursing s Volume 23, Number 3' May/Juri 1998 121

Barriers to Access

Figure 2. Subthemes with Representative Statements

Frustration with issues of independence• "Treat me like anybody else. But, you know, I've had some ex­

periences as I was growing up where [people] would talk to myparents [and not me], and, you know, that was kind of really dif­ficult for me to get over .... You may be aggravated on the in­side, but you don't let that aggravation show."

• "Accessibility would mean that I would, without worrying,[have] greater independence. It would free me and free them,too. It's just my aunt. She's 78 years old and she's always wor­rying about if I'm going to get into something that I can't han­dle.... Accessible means freedom, in general .... Independencewould mean [I could do] anything I choose to do."

• "With accessibility, you feel more independent, less restrained.It's like you are in shackles the other way [nonaccessible], andthis way, you are free."

• "If you need help with the elevator, they will help you, but in­stead of letting you tell them what to do, they just automaticallydo it for you .... 1 like to take control of myself and be able to tellthe people what 1need."

• ''The most important thing is being able to be as independent as1can be in the community and the interactions 1have with peo­ple, and I think [it] goes hand in hand with accessibility. Be­cause for me to be independent, 1have to be able to relate topeople; they have to be able to understand my needs in the com­munity. [When something's] not accessible, it's kind of reallyfrustrating. 1 used to get really angry. I had to work through itmyself before 1could deal with them."

• "Well, it makes me quite frustrated because 1 want to go intothose stores on that side of the shopping center and usually havegreat difficulty getting there because of closed gates or thecurbs .... I have to have someone with me.... [I just need] greaterindependence.... 1 would be less of a bother to them and thengrow more independent. 1know 1probably [will] always needsomebody to go with me, but the more 1can do for myself, thebetter. ... 1 know 1have limitations...."

Frustration with attitudes of others toward people withdisabilities

• "You still have to be given the chance, and people sometimesaren't willing to wait.... They just kind of rush you."

• "Attitudes are getting better, but 1feel they still need to change."• ''There are those instances when individuals aren't really willing

to listen to me or another individual with a disability."

Frustration with others' lack of understanding ofthe situationsof individuals with disabilities

• "I don't ever remember anybody talking with me about theproblem of being in a wheelchair and getting around."

• "It's kind oflike to say if you are in a wheelchair, then you areall the same because you are in a wheelchair."

• "I think one of the most devaluing things is to go somewhereand they don't know what to do with you when you get there."

Frustration with lack of involvement in decisions regarding thedevelopment of accessible facilities

• "I think a lot of places are ignorant to the fact of what youneed."

• "When a place is being built, I think they need to call a personin a wheelchair and ask them what they need to do because aperson who is not in a chair would say, 'Oh, this bathroom isgreat.'"

122 Rehabilitation Nursing « Volume 23, Number 3' May/Jun 1998

the data collector explained to the participant that a second con­tact would be made to gather any additional information to clar­ify or add to any points.

Data analysisColaizzi (1978) and Giorgi (1975) have described strategies

for analyzing data in phenomenological research. All thesemethods use the process of sequential steps that yields de­scriptions of the phenomena that transcend the specific experi­ences on which they are based (Polkinghorne, 1989). The de­scriptions of the phenomena are therefore broader andgeneralized from the respondents' specific experiences.

For this study, the analysis of the transcribed interviews fol­lowed the protocols for rigorous data analysis using Colaizzi's(1978) method. The steps for data analysis are as follows:

• Read the entire description of the experience to get a senseof the whole.

• Read the description again to identify transitions or themesand subthemes.

• Eliminate redundancy; clarify or elaborate the remainingthemes and subthemes by relating them to each other andthe whole.

• Transform the meaning from the concrete language of theinformants into the language or concepts of science.

• Integrate and synthesize the insights into a descriptive struc­ture of the meaning of the experience.

The scholarly trustworthiness of this study was maintainedby leaving an audit trail to ensure internal validity: truth value,applicability, consistency, and neutrality. Simply put, the audittrail is a systematic collection and documentation of materialsin the study that allow another person to draw conclusions aboutthe data. In addition, the investigators established a rapport withthe participants prior to the data collection.

Together, the investigators for this study have had formal ed­ucation, supervision, and experience in phenomenological re­search. A graduate student, who is a registered nurse and whohad completed extensive study on the phenomenological methodand data analysis, also participated in the initial analysis of thedata. Three of the investigators and the graduate student inde­pendently read all verbatim transcripts of the audiotapes to es­tablish a baseline impression of the whole dialogue. They thenreread the transcripts, extracted significant statements relatingto the phenomenon of accessibility, and wrote them down. Thesame three investigators then collaborated to cluster the signif­icant statements into major themes. The contents of all of thethemes were then integrated by the investigators into an over­all description of the phenomenon of accessibility. Throughoutthis process, differences in coding or categorizing the themeswere discussed by the three investigators until a final agreementwas reached.

FindingsThe transcript analysis revealed the major theme of feelings

of frustration with barriers to access. Four subtheme clustersemerged from the data: (a) frustration with issues of indepen­dence, (b) frustration with others' attitudes toward people with

disabilities, (c) frustration with other people's lack of under­standing of the situations of individuals with disabilities, and(d) the desire of people with disabilities to become involved indecisions regarding the development of accessible facilities.Figure 2 lists subthemes and representative statements.

Frustration with issues of independence: All participantsdiscussed their feelings of frustration over being seen by oth­ers as dependent. Over and over again, they used words suchas "aggravation," "anger," and "worry." One young woman cap­tured the essence of all the participants' frustration with tryingto be independent in her statement:

I get frustrated ...with sales clerks in stores where you arechecking out; for some reason ...people look at me whenI flick out my charge card.... They assume incorrectly thatpeople in wheelchairs don't have charge [cards]. Peopleask me where my mother lives and if she's at home. Shedoesn't have to be with me. I'm capable of taking care ofmyself and that kind of thing....Treat people like adults.We may be in wheelchairs and we may not handle thingslike you or your neighbors would, but treat us likeadults [I've had] to work through anger and frustra-tion When I was growing up, I was always the cute lit-tle handicapped child who was maybe never going togrow up to be a woman. And, suddenly, there I was, and,you know, people around me just didn't know how tocope with that. It's taken me years to kind of feel goodabout myself.

Issues of independence and access were clearly linked to frus­trations with others' attitudes toward people with disabilities.

Frustration with the attitudes of others toward peoplewith disabilities: All of the participants expressed feelings offrustration with the attitudes of others. One woman expressedthis experience with remarkable candor in the following story:

I was at a fund-raiser...and had to use the bathroom. Well,this was the type of place that has weddings; it's supposedto be a hall. So I go into the bathroom, and I fit throughthe door, but none of the doors of the stalls were wideenough for me to get into. So I went out and went to thehat-check stand and said, "Excuse me, are there any bath­rooms around here that are wheelchair accessible?" Thewoman there said, "Well, we thought those were." I said,"No. Can I talk to the manager?" The manager said thatthey were accessible, too, and says, "Everybody else canfit in there. Well, if I get a bucket and put it underneathyou, do you think you could use that?" I shook my headno and didn't say anything more. The two other peoplestanding there seemed stunned. Instead of losing my tem­per, I just walked away. It just made me mad.

The participant clarified her response this way: "I said, 'Whywasn't it changed? Why don't you move some of this stuff or puta little ramp down there so we can get in?'"

Not only were the participants frustrated with others' atti­tudes, but they were also frustrated that others did not truly un­derstand the everyday situations that they experienced.

Frustration with others' lack of understanding of situa­tions: All of the men and women talked of situations involving

accessibility issues related to shopping, restaurants, socialevents, schools, rest rooms, hotels, medical care, cars, andplanes. One older woman said this about hotels:

I have disabled friends that complained about the fact thatthey often travel with either an attendant or someone thatthey don't know very well but [who] has agreed totravel with them. They don't want to sleep in the samebed...[but] you can't often find [wheelchair-] accessiblerooms that have two beds in them. For some reason, [ho­tels] tend to think that disabled people need a king-sizebed. It's the strangest thing I have ever seen.

Participants' comments about situations such as this one indi­cated frustration with the lack of involvement of people withdisabilities in making decisions about the design of facilities.

Participants in our study shared a variety ofinsights on issues related to accessibility.

Frustration with the lack of involvement in decisions re­garding the development of accessible facilities: Most of theparticipants said that they write letters to organizations andagencies to express their frustrations over their lack of accessand to suggest that, as one participant said, "They need to ad­dress them at this point." One man said this:

Doctors' offices are really bad and I was really surprised.Every physician's office I have been to-and I have beento many-does not have a treatment table that goes upand down. They either have to examine me in a chair orget two or three people to lift me and help. I think the gov­ernment needs to set up some type of board with personswho are handicapped and have been in wheelchairs...sothe government knows what needs to be done in offices,hotels, motels, and restaurants to make them accessible.

Nonetheless, all of the participants were able to describe specificactivities that they engaged in to deal with their frustration withaccess. For instance, to decrease feelings of frustration overtheir lack of participation in decisions regarding the develop­ment of accessible facilities, one participant suggested this:"One thing I would like to make you aware of is to be sensi­tive." Another said, "I would say be really understanding."

DiscussionAlthough the women and men in this study identified their

very personal experiences related to frustration with barriers toaccess, the meanings associated with these experiences werebroader and yielded common subthemes. They were frustratednot only by issues related to independence but also by others'attitudes toward and lack of understanding of people with dis­abilities. In addition, they were frustrated by the insufficient in­volvement by people with disabilities in decisions regardingthe development of facilities to meet ADA requirements.

The findings of this study support and extend the work ofCouch (1992), McClain et al. (1993), McClain and Todd (1990),and Roberts (1986). However, the participants in this studyshared insights on issues of accessibility beyond those involv-

Rehabilitation Nursing> Volume 23, Number 3' May/Jun 1998 123

Barriers to Access

Assertive Communication Strategiesfor Dealing with Frustrations Relatedto Accessibility

Speaking up and listening• "Take control of self and be able to tell people what I need."• "Listen to what [people with disability] have to say."• "Whoever is building these places needs to talk to a person

in a wheelchair and get them to show what needs to bedone."

• '" used to demand things and say, 'Are you telling me thatyou can't do this?' I guess' tend to find that the nicer' am,the nicer people are back to me at this point, It makes a dif­ference, and I think that if you are nice to people and pointthings out to them in a nice way, most people try to doeverything they can to try to make things accessible for meas well. That helps."

• '" choose services that are accessible. 'call and if they aren'tsure, then I ask them to check it out. Are there parkingspots? 'S there a cutdown curb? Will I be able to get to theelevator?"

• '" need to do for myself. I say, 'Excuse me, would you mindopening that door for me?' or 'Would you mind helping meup this curb?'"

• "Speak up in a polite way. 'find that people for the mostpart respect me for that communication."

• "[Some people might say] I'm no good for anything and I'min this wheelchair and I don't know why I'm on this earth.'guess what I'm saying to you is 'That's the wrong attitude.We have to speak for ourselves whether we are disabled orblack or whatever minority that you are.' I think you arenever going to go back to a time when these minorities willbe voiceless and not speak up for what they need and want....I think adjustment is ongoing and you have to continue toadjust. ... It's the part that we can control and change. So nomatter how accessible we make the world, physically andotherwise, it's really not going to make as much difference[unless we] help people be able to deal with whatever theyhave to deal with."

Teaching• '" think you have to teach people how to ask for help...in

terms of how people are taught to relate to people with spe­cial needs" .."

• "Certainly, the family support and friends ...teach people howto cope with loss.... You have to have somebody; that's whysupport groups are good."

• "The ones that are really cranky with you say, 'Weill don'thave to change my place.' Well, what you do is you givethem a wheelchair and say, 'Here, now you try to go useyour bathroom or try to get through this place.'''

Writing• "I will write a note about concerns that I have and tell them

that they need to address them at this point in time."• "I've become really good at writing letters. I find that it's a

nice way of just expressing my concerns.... A lot of times,with a letter you can state your case and then people cancome back to you."

124 Rehabilitation Nursing > Volume 23, Number 3· May!Jun 1998

ing shopping malls, stores, and restaurants. A recommendationfor further research is that studies be conducted to identify morespecific actions that people with disabilities can take along withan evaluation of their outcomes. Investigators should also con­sider replication of this study with people from a broader geo­graphic area as well as with people living in rural settings.

This project is limited as to its transferability or the extentto which its findings can be used in other settings or with oth­er groups. An important goal is to understand issues of acces­sibility not in just one isolated circumstance but in a broad, gen­eral sense. To this end, the investigators provided an in-depthdescription to enable the reader to reach a conclusion aboutwhether transfer of the findings to other settings is possible (seeFigure 2).

A strength of this study is that the participants who usedwheelchairs for full-time mobility recommended positive per­sonal communication strategies they found valuable when deal­ing with their frustration related to access. Their assertive com­munication strategies (see the sidebar) suggest thoughtful,commonsense actions for promoting access. These personalcommunication strategies not only reflect the themes and rein­force the fundamental importance of being independent but alsosupport Glass' (1988) belief that expression of needs is criticalto obtaining access.

Implications for practiceRehabilitation nurses and other team members should as­

sess people's readiness to participate and to evaluate outcomesthat result from incorporating communication strategies whenworking with people who have disabilities. Health profession­als might be able to foster or strengthen feelings of indepen­dence and decrease feelings of frustration over accessibility is­sues for people who use a wheelchair for full-time mobility byusing the assertive communication strategies suggested by theparticipants in this study.

In general, rehabilitation professionals must be aware of theADA; educate clients, families, other healthcare providers, em­ployers, and the public about the ADA provisions; and offer en­couragement and counseling for these individuals. For instance,rehabilitation nurses in clinic settings can work with vocation­al counselors and people with disabilities to coordinate strate­gies for job accommodations. In addition, political activism byhealthcare professionals to effect change on behalf of theseclients is critical. This can be accomplished by identifying oneissue each year and acting on it, joining national groups to getaccess to information, developing relationships with elected of­ficials, serving on local commissions, and acting as advocatesfor people with disabilities.

ConclusionThis study offers important insights into the lived experi­

ence of people with disabilities who use a wheelchair for full­time mobility. Healthcare professionals and policy makers mustbe cognizant of this information as they work with this segmentof the population and make plans to comply with the ADA nowand in the 21st century.

ReferencesAmericans with Disabilities Act of 1990, Pub. L. No. 101-336, §2, 104

Stat. 328 (1990).Colaizzi, P. (1978). Psychological research as the phenomenologist views

it. In R. Valle & M. King (Eds.), Existential phenomenological alternatives forpsychology (pp. 48-71). New York: Oxford University Press.

Couch, R. (1992). Ramps not steps: A study of accessibility preferences.Journal ofRehabilitation, 58(1), 65-69.

Fain, J. (1996, December). No ramp at the inn. Traveler, 31-32, 34.Giorgi, A. (1975). An application of the phenomenological method in psy­

chology. In A. Giorgi, C. Fisher, & E. Murray (Eds.), Duquesne studies in phe­nomenological psychology (pp. 82-103). Pittsburgh: Duquesne University Press.

Glass, D. (1988). Accessibility and the American Congress of Rehabilita­tion Medicine. Archives ofPhysical Medicine and Rehabilitation, 69, 79-80.

Hahn, J. (1993, October 17). Mouth helps wheelchair traveler. The PlainDealer, p. 13.

Martin, L. (1987). Wheelchair accessibility of public buildings in Utica,New York. American Journal ofOccupational Therapy, 41,217-221.

McClain, L., Beringer, D., Kuhnert, H., Priest, 1., Wilkes, E., Wilkinson, S.,& Wyrick, L. (1993). Restaurant wheelchair accessibility. American JournalofOccupational Therapy, 47, 619-623.

McClain, L., & Todd, C. (1990). Food store accessibility. American Jour­nal ofOccupational Therapy, 44, 487-491.

Oiler, C. (1982). The phenomenological approach in nursing research. Nurs­ing Research, 31, 178-181.

Polkinghome, D. (1989). Phenomenological research methods. In R. Valle& S. Holling (Eds.), Existential-phenomenological perspectives in psychology(pp. 41-60). New York: Plenum Press.

Ray, M. (1985). A philosophical method to study nursing phenomena. InM. Leininger (Ed.), Qualitative research methods in nursing (pp. 81-92). NewYork: Grune & Stratton.

Ray, M. (1990). Phenomenological method for nursing research. In N.Chaska (Ed.), The nursing profession: Turning points (pp. 173-179). St. Louis:Mosby.

Roberts, K. (1986). Shopping for architectural barriers. Rehabilitation Nurs­ing, 11(4),20-21.

Linda Pierce is an assistant professor at the Medical College ofOhio School ofNursing in Toledo and a doctoral candidate atWayne State University College ofNursing in Detroit.

AcknowledgmentsThe author acknowledges the contributions of co-investigators

Lorraine Rodriques-Fisher, EdD RN, Clare Hopkins, PhD RN,and Kathy Mitchell, MSN RN CRRN, in the conceptualizationof the original idea, data collection and analysis, and review ofthis paper. The author also thanks Sherri S. Winegardner, MSNRN, for her assistance in the initial data analysis and Judy Salter,MSN RN CRRN, for her thoughtful critique of this manuscript.

Partial funding for this project carne from a grant from theNorth Coast Chapter of the Association of Rehabilitation Nurs­es (ARN) and the Iota Psi Chapter of Sigma Theta Tau Interna­tional.

This research was presented as a poster at the ARN 22nd An­nual Educational Conference in Seattle.

This continuing education offering (codenumber RNC-129) will provide 1 con­tact hour to those who read this articleand complete the application form onpage 168.This independent study offering is ap­

propriate for all rehabilitation nurses. By reading this arti­cle, the learner will achieve the following objectives:

1. Identify accessibility issues for people who use a wheelchairfor full-time mobility in today's society.

2. State implications for nursing practice related to personal com­munication strategies.

CLINICAL TOPICS

~ Rehabilitation nursing "basics"bowel and bladder protocolsskin integrityfall preventionsexualitybehaviorcoping and adjustmentpatient and family educationanatomy and physiology reviews

~ Orthopedic topics

~ Cardiopulmonary topics

~ Oncology

~ Pediatrics

~ Health promotion in chronic illnessand disability

Calling All Authors:Write for

Rehabilitation NursingToday!

Rehabilitation Nursing is seekingarticles on the clinical and practicemanagement topics listed here.

Articles should make strong nursingimplications and practice suggestions.Case studies are welcome.

For guidelines for authors,contact Rehabilitation Nursing,

800/229-7530, fax 847/375-4777,e-mail [email protected].,Web site www.rehabnurse.org.

PRACTICE MANAGEMENT TOPICS

~ Home healthcare issues

~ Subacute care issues

~ Case management issues

~ Outpatient care issues

~ Clinical pathways

~ Quality improvement

~ Delegation/unlicensed assistivepersonnel issues

~ Nurse entrepreneurship

~ Community-based care

~ Team management

~ Ethical issues

Rehabilitation Nursing- Volume 23, Number 3· May/Jun 1998 125