*anzuruni barnabe msabah · 2020. 8. 5. · refugees in africa and the complexity of healthcare...

Refugees in Africa and the complexity of healthcare services

*Anzuruni Barnabe Msabah1,2

1. Stellenbosch University, 2. Pan Africa Christian University

The health of refugees is an issue linked to and influenced by various factors. This explains why the life of

a refugee is often characterized by difficult experiences and challenges. In the midst of such complex and

difficult challenges, refugees always find hope and strive to be healthy in a constant attempt to improve

their overall well-being. It is for this reason that the refugee phenomenon in sub-Saharan Africa forces us

to re-examine different migratory trends so that we know how they are linked to the health of forcibly

displaced populations. This paper highlights issues related to migration and health in Africa using the

findings of a recently conducted study. The paper points out that refugees are often victims of poor health

conditions and they usually encounter major problems in hospitals simply because they are refugees. The

paper provides evidence that refugees face varied challenges in obtaining appropriate care as a result of

medical xenophobia and attitudinal treatment by healthcare providers. The study from which this paper is

based was carried out qualitatively with refugee respondents from various countries in sub-Saharan Africa

through semi-structured interviews and focus group discussions.

Submission No.:C000024 Refugees in Africa and the complexity of healthcare servicesResearch[R-Other]Health or healthcare-related research in other f...

Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...

The 9th International Health Humanities ConferenceThe International Health Humanities Network

How can poetry support the understanding of psychotic experiences?

–A conceptual Review

*Mark Pearson1

1. University of Nottingham

Whilst the association between psychosis and creative individuals, especially poets, has been suggested

since antiquity, only limited research has been undertaken in this area. As part of ongoing PhD research,

exploring the potential of poetry to support meaning making and recovery for those who have

experienced psychosis, this paper presents a conceptual framework based on a synthesis of existing

literature.

The conceptual framework consists of three domains: i) psychotic language as meaningful poetics, ii)

poetry as an expression of psychosis and iii) poetic exchange as therapeutic practice. The first of these

domains relates to the way in which meaning making can be undertaken and achieved when working with

individuals who have experiences psychosis. The second domain explores the linguistic theory

underpinning the way in which poetry might present new linguistic opportunities to aid expression and

narration of self and experiences. The third domain focuses on the way in which poetry is, or can, be

utilised within therapeutic clinical practice.

This conceptual framework seeks to advance the discourse in relation to psychosis, suggesting a novel

understanding relation to poetry. This novel understanding proposes moving away from traditional

biomedical paradigms and instead placing greater importance upon individual narratives.

Submission No.:C000025 How can poetry support the understanding of psychotic exp...Research[R-LIT]Literature in health or healthcare-related researc...



On the Wings of The Pegasus: Creating and sustaining a creative

writing organization within an academic setting

*Jennifer Pien-Wong1

1. Stanford University School of Medicine

Founded in 2008, the Pegasus Physician Writers at Stanford now have over 120 active members. Housed

under the Medicine & The Muse Program of Medical Humanities at Stanford University, this organization,

comprised of medical undergraduates, trainees and faculty, has expanded to include sustained writing

critique groups, curated readings and symposiums, and ongoing educational seminars designed to

promote the emergent creative writing endeavors of physicians. This presentation will describe the

methodology, support, and resources utilized in sustaining this vibrant community of physician authors

that include Drs. David Eagleman, Daniel Mason, Irv Yalom, and others in the areas of medical humanities,

Narrative Medicine, and creative writing.

Submission No.:C000026 On the Wings of The Pegasus: Creating and sustaining a cr...Education[ED-LIT]Literature/narrative in HCP education



Qualitative Analysis of Syringe Services Program: Using Narrative

Medicine to Foster Changes in a Public Health Crisis

*Amira Nafiseh1

1. Indiana University School of Medicine

Various cases of addiction, ranging from substance use to impulse control disorders, have impacted

populations for centuries, and with the emerging field of narrative medicine, clinicians can address

individuals’ health and illness accounts in greater depth. By listening to people’s stories and

interpretations, qualitative researchers and health care professionals can, based on conversations with

key participants involved in the situation, foster changes in medical and public health issues, like the

opioid crisis in Indiana.

To determine how to most effectively move forward in combatting the challenges that Scott County and

Indiana as a whole currently face with opioid addiction and HIV and hepatitis C outbreaks, fifteen

interviews were conducted and coded via the qualitative data analysis program, NVivo 10, for recurring

themes related to the implementation of syringe services programs. Law enforcement, first responders,

and local health department employees were interviewed to discuss their experiences with the programs

and working directly with patients dealing with opioid addiction. Examining data obtained from

individuals who work with community members impacted by drug abuse and HIV outbreak cases led to

new recommendations and treatments to come to light.

Submission No.:C000027 Qualitative Analysis of Syringe Services Program: Using N...Practice (Implementation)[PR-OTHER]Other fields/topics applied to healthcare practice



The individual and public health benefits of musicians playing alfresco

in an Australian private hospital.

*Margaret McAllister1, Fiona Forrest

1. Central Queensland University

In 2019, classically trained musicians were contracted for six months to play twice a week in public areas

in a private hospital in Australia and the impact on patients and staff were evaluated. An ethnographic

study was designed and data collection involved unobtrusive observation using the Arts Observation

Scale, interviews with stakeholders and analysis of musicians’ journals. Descriptive statistics and

thematic analyses were completed.

Musical performances were observed on 12 occasions and 48 people were observed, including

musicians, patients, staff and visitors. Fourteen interviews were undertaken. Participants found the music

enriching, calming and sometimes exciting. It distracted patients from symptoms and replaced the tedious

and annoying mechanical sounds with tunes that were more pleasing. Patients reported that the music

engaged their imaginations, reminding and transporting them to places that evoked memories of

wonderful times. For clinicians, the music replaced the austere atmosphere with something more

beautiful, which reminded them of the outside world, the importance of aesthetics and their role in being

part of something positive for patients, rather than mundane or dismissive. The study provided details on

how Arts in Health program managers can plan for and ensure resources are in place to enhance success

for similar musical programs.

Submission No.:C000028 The individual and public health benefits of musicians pl...Practice (Implementation)[PR-MUSIC]Music in healthcare practice (includes music th...



“The Body Issue”: What Can a Graphic Novel Teach Us About

Global and Historical Perspectives of the Ideal Female Body?

*Nealie Tan Ngo1,2

1. University of Toledo College of Medicine & Life Sciences, 2. Yale University

The Body Issue: What Global and Historical Perspectives of the Ideal Female Body Can Teach Us AboutOur Own Present-day Bodies is a graphic novel that explores the cultural and social factors influencing

female body image and aims to be an educational, entertaining tool for teaching history and medicine.

Drawing from historical and contemporary sources, as well as personal experience, the author tries to

understand the overemphasis on women’s physical appearance. The graphic novel narrates the stories

of four different historical societies: Tang Dynasty China, the Efik people, Victorian England, and Sparta,

and invites readers to consider bodies as a means to individuality instead of assimilation, acknowledge

how social and cultural factors can impact body image, and recognize that no perfect female body exists.

Poor body image is a worldwide public health crisis disproportionately affecting females. Physical bodies

are social bodies; beauty is linked to perceptions of health, wealth, power, and overall success, which

affect women’s overall views of their capabilities, strengths, and worth. History can help expose ideals of

women’s beauty as arbitrary, suggesting fluidity and subjectivity of the notion of perfection. The BodyIssue aims to help readers value self-validation over social validation with respect to their bodies.

Submission No.:C000029 “The Body Issue”: What Can a Graphic Novel Teach Us About...Education[ED-ARTS]The arts in HCP education (and/or for practicing...



Apparitions and haunted hospitals: Using literature to prompt thinking

on the importance of spirituality, ethics and identity in healthcare

practice

*Margaret McAllister1, Donna Lee Brien1

1. Central Queensland University

This paper presents our recent research into Australian nursing ghost stories, which revealed a range of

themes: the wise protective ghostly nurse; uncanny experiences; and patient hauntings, where the dead

continue to reach out to staff. Intriguing though they are on their own terms, these ritually-told stories

contrast with ghost stories depicted in mainstream films about haunted hospitals because the nurses’

characters and motivations are very different. But they share what theorists have previously said about

ghost stories written by women and those in the social margins: that these narratives are veiled protests[1]

–about forgotten people; and also the embodiment of repressed anxieties[2] –revealing that nurses also

fear death and suffering. The stories also represent a challenge to prevailing rational ways of knowing. By

sharing ghostly narratives, we identify a long-silenced part of healthcare –nursing knowledge that is

intuitive, cultural and personal –and vital rituals that need to be articulated and heard.

[1] Woolf, Virginia. 1988. “Henry James’s Ghost Stories.” In The Essays of Virginia Woolf, vol. 3,

1919–1924, edited by Andrew McNeillie, 324. New York: Harcourt Brace.

[2] Briggs, Julia. 2012. “The Ghost Story.” In A New Companion to the Gothic, edited by David Punter,

176–85. London: Wiley.

Submission No.:C000030 Apparitions and haunted hospitals: Using literature to pr...Research[R-LIT]Literature in health or healthcare-related researc...



Preparing students for intentional conversations with older adults: A

narrative competence initiative.

*Colleen Ryan1, Margaret McAllister 1, Donna Brien1, Leanne Dodd1

1. CQ University

Aged care presents particular challenges for nursing clinical learning, because stigma and poorly

developed psycho-social skills compound first year nursing students’ feelings of inadequacy. Further,

aged care residents’ loneliness and social disconnection are issues that students could be empowered

to address.

A 2019 project intended to prepare students in making a positive difference through learning and using

narrative competence to increase networks of communication with older people. Narrative Competence is

the ability to deeply listen to a person’s story and then to communicate that story back so that it

becomes life-enhancing[1]. It involves three interrelated skills: intentional conversation; being conscious

of the self-in-relation to other; and creating client ease.

This presentation discusses the findings of an evaluation of an interactive workshop that combined the

narrative arts and nursing education utilising film discussion, biographical story-telling models, and

guided skills development.

A case study examined the impact of the learning experience. Focus groups provided qualitative data and

a questionnaire and self-efficacy scale were administered to understand students’ perceptions of

narrative competence and the impact of the workshop.

[1] Corbally, M, & Grant, A. (2015). Narrative competence: a neglected area in undergraduate curricula.

Nurse Education Today, 36: 7–9

Submission No.:C000031 Preparing students for intentional conversations with old...Education[ED-LIT]Literature/narrative in HCP education



The house as symbolic representation of the self

*Silvia Wyder1

1. University of Derby

My PhD-art therapy research investigates symbolic aesthetic representations of the self in the form of the

house. The study covers several cultures (Japan and Europe), incorporating fieldworks with art therapy

patients, artists and architects. Additionally, it searches for possible visual indications of Posttraumatic

Stress Disorder symptoms within house based aesthetic works.

Working on the theme of the house can be a means of expressing and reconstructing suffering selves

through art making. The topic of the house is both emotionally charged and universal; it proved to be

appropriate for cross-cultural research as people are concerned with its presence, or absence.

My research methodology is grounded in qualitative phenomenological approaches, including a

quantitative element via the Posttraumatic Stress Disorder test (IES-R, Weiss & Marmar, 1996). Fieldwork

procedures consisted of art therapy focus group workshops in clinical, and non-clinical settings where

participants are invited to paint houses. Analysis of obtained material builds on phenomenological coding

looking for emerging patterns.

The focus of this paper is to discuss overall findings gathered in Japan and Europe. Overlapping and

dissimilar patterns are investigated both theoretically and practically, while avoiding reductionist

approaches, highlighting distinct culturally grounded phenomena, which Mauss (1934) referred to as

"cultural moulding". The study's findings are conceptualized via notions of architectural and cultural

theory, art therapy and philosophy.

Submission No.:C000033 The house as symbolic representation of the selfResearch[R-Other]Health or healthcare-related research in other f...



Narrative care: writing workshops for people living with dementia to

support them in interpreting their world and build meaning.

*Sue Dean1, Joanne Lewis1

1. The University of Technology Sydney

Whilst caregiver or third person narrative life writing has proliferated in the literature around dementia,

what is missing are first person, dementia patient’s narratives. The telling of stories is a universal activity

and narratives connect meaning and comprehension, they can repair and restore significance when the

survival of the self or parts thereof are threatened and equally they can exclude the story of those people

with limits in voice or narrative space.

This paper reports on a series of workshops designed to facilitate the person with dementia, sharing their

experience of dementia and identity, through narrative writing. The process assists the person with

dementia to create a biological legacy story to interpret their world and maintain identity. It further

informs health care workers and caregivers how people with dementia navigate the uncertainties of their

impairment alongside relationships and social engagement. An alternative narrative of dementia that

transcends the dominant ‘tragedy’ discourse is created, supporting a care model for individuals with

dementia through knowing the person –past, present and future.

Submission No.:C000034 Narrative care: writing workshops for people living with ...Education[ED-LIT]Literature/narrative in HCP education



Finding the Medicine in Stories with Care Partners, People Living with

Dementia and Health Professionals

*Megan Voeller1

1. Director of Humanities, Thomas Jefferson University

This presentation details a project called Tangles in Time, a public storytelling performance about love,

loss, living with dementia, and providing care featuring a cast of six community members and six health

professions trainees. The project was developed between Jefferson, an academic medical center, and a

local nonprofit arts organization called Theater of Witness with the goal of building empathy between

medical and nursing students, medical residents, and community members with lived experience of

dementia as care partners and patients. This presentation will focus on the design of the program, how it

was integrated into other cocurricular and extracurricular humanities initiatives for students, results of

qualitative research into effects of participating on student and resident empathy, and feedback from

public audiences. Brief video clips will be shown featuring cast members. While the presentation focuses

on one specific project, general principles of the format and process—e.g., storytelling with participants

who include both health professionals and community members—will be shared as a model transferable

to other institutions.

Submission No.:C000035 Finding the Medicine in Stories with Care Partners, Peopl...Practice (Implementation)[PR-DR]Drama in healthcare practice



Designing for health; a collaboration between nursing, architecture

and landscape architecture.

*Sue Dean1, Samantha Donnelly1, Tracy Levett-Jones1

1. The University of Technology Sydney

Links between healthcare, architecture and landscape architecture, while sometimes evident in practice,

are less obvious in academic contexts. Design schools focus on spatial and environmental issues and

schools of nursing focus on patient care. However, there are recognised benefits when teaching and

learning initiatives transcend disciplinary boundaries.

This presentation reports on a project which facilitated an authentic learning experience allowing

students from three disparate disciplines, to make meaningful connections between their previous views

and experiences, and emerging understandings derived from encounters in the ‘real world’ of practice.

Students worked collaboratively to explore the health and social issues of women and children who have

experienced family violence and/or homelessness and this knowledge and understanding influenced

finally, the spatial design of a women’s refuge. New overarching frameworks and paradigms were created

and perhaps even more importantly, this novel learning approach resulted in the emergence of new

empathic understandings and insights.

Submission No.:C000036 Designing for health; a collaboration between nursing, ar...Practice (Implementation)[PR-ARCH]Architecture/design in healthcare practice



Makeway Lab, A hospital makerspace to build the self efficacy ofdialysis patients

*John William Waldron1

1. Queensland University of Technology (QUT)

Introduction - This presentation describes a creative, agency focused design response to the experience

of treatment for Chronic Kidney Disease (CKD). CKD is increasingly common and with high impact

treatment that results in reduced mental health of patients. The Makeway Lab, created by first author

Waldron, is designed to facilitate increased mental wellbeing for patients undergoing CKD treatment.

Hemodialysis (HD) is described as both a time-creating and a time-consuming process. People on HD are

required to modify their lifestyle, which can affect their quality of life. For many their diagnosis and

treatment triggers emotional instability and anxiety and them to devalue themselves and lose their sense

of agency and confidence.

These factors point towards a need to improve patient mental health and improve the quality of time

during dialysis. The Makeway Lab is a project designed to respond to this situation.

Description - The Makeway Lab is a clinical trial underway that examines the experience of a group of HD

patients and their interaction with a purposefully designed mobile makerspace during their treatment. The

participants undertake a series of interesting and educative ‘maker’ activities in digital design and 3D

printing to improve the quality of their treatment time.

Outcomes - For the participants the project will provide them interesting and engaging activities to

stimulate them socially, cognitively and physically. For the hospital the project can account for the social

and mental health of the participants and provide an innovative mental health intervention.

Discussion - At a time of growing international acceptance that participation in creative, participatory

activity can be beneficial for wellbeing and health, this study provides a unique hospital inquiry that will

add to the knowledge addressing HD patients and the in-hospital programs and activities that can assist

their social and mental health.

Submission No.:C000038 Makeway Lab, A hospital makerspace to build the self effi...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...



Metaphors of mental health. A research project on how sufferers and

professionals talk about severe mental illness

*Marta Coll-Florit1, Salvador Climent1, Martín Correa-Urquiza3, Eulàlia Hernández2, Antoni Oliver1, Asun Pié2

1. Universitat Oberta de Catalunya UOC, Arts and Humanities, 2. Universitat Oberta de Catalunya UOC, Psychology

and Education Sciences, 3. Universitat Rovira i Virgili, Anthropology - Philosophy and Social Work

In Cognitive Linguistics, Conceptual Metaphor is understood both as a mechanism for the

conceptualization of experiences and as a method for analyzing people's discourse. Multiple studies at

the intersection of Conceptual Metaphor Theory and Health Studies have revealed that metaphors can

play an important role in the analysis of sufferers' emotions, in public communication, and in

psychotherapeutic treatment in the case of mental illness.

In this framework, we present the MOMENT Project (Metaphors of Mental Health; FFI2017-86969-R

REA/ERDF, EU), a large effort to study the metaphors produced in the internet (blogs, twitter) by patients

of severe mental illness and health care professionals. Texts in Spanish (approximately one million words)

are analysed for four groups of patients (schizophrenia, depression, OCD and bipolar disorder) and

professionals (psychiatrists, psychologists, nurses and social educators), in order to detect the most

relevant metaphors issued by each group and compare the discourses.

Metaphors have been classified into three broad domains: sufferer’s life, social environment and

medical practice. We will present the most important frames detected in the study, highlighting those that

can contribute to sufferer empowerment. As a result of the project, an online repertoire of metaphors

detected in the discourses will be publicly available.

Submission No.:C000039 Metaphors of mental health. A research project on how suf...Research[R-LING]Linguistics in health or healthcare-related research

Language:EnglishPresentation type:Poster presentations (vertical orientat...


Using art-based methods to engage the seldom heard voices of

homeless people: an inclusive approach to education and research

*Lee-Ann Fenge1

1. Bournemouth University

Homeless people often experience complex health and social care needs resulting in deep social

exclusion. They are subject to harassment, violence and abuse and can become 'othered' in a way which

can dehumanise understanding of their lives. Practitioner understanding can be complicated the

contested nature of homelessness and whether it is viewed as an individual problem, the result of

structural factors or an interaction between both.

A key challenge in developing appropriate interventions links to our ability to work in humanised ways

with homeless people. This presentation reports on an arts-based project which aimed to provide insights

into the lived experience of homeless people through participant poetry. This participatory approach is

grounded in social justice, engaging directly with the experiences and feelings of homeless people.

Consideration is given to how a Performative Social Science approach (Jones, 2006) can engage students

and practitioners to think differently about homelessness through engagement with poetry and film of the

project. Such an approach may change hearts and minds to build communities of practice that have more

humanised and nuanced understanding of homelessness.

Jones, K. 2006. A biographic researcher in pursuit of an aesthetic: QSR,21

Submission No.:C000040 Using art-based methods to engage the seldom heard voices...Education[ED-ARTS]The arts in HCP education (and/or for practicing...



Environment in relation to health, wellbeing and human flourishing:

the contribution of 20th century continental philosophy of life and of

the subject

*Marie Gaille1

1. CNRS

Health, wellbeing and human flourishing are related in various ways to the emplaced dimension of human

existence. In this presentation, we would like to highlight how a network of thinkers that are part of the

20th century continental philosophy gave a specific content to this general and broad idea of a

relationship between human health, wellbeing and human flourishing and environment: namely, K.

Goldstein, G. Canguilhem and M. Merleau-Ponty. K. Goldstein conceived of healthy and pathological

states as essentially related to the patient’s environment understood as “the others and the world”. G.

Canguilhem focused on the human capacity to tailor one’s milieu of living and conceived of it as the

basis of human health. In its turn, M. Merleau-Ponty’s conception of the “lived space” offers key tools

to consider this issue, especially when one wants to take into account the embodied dimension of human

life and the meanings of the “lived world”. Taking K. Goldstein’s inquiry as a starting point, one may

consider how rich is the continental dialogue between him and his French readers G. Canguilhem and M.

Merleau-Ponty to conceive of the relationship between health, wellbeing and human flourishing.

Submission No.:C000041 Environment in relation to health, wellbeing and human fl...Research[R-H]History in health or healthcare-related research



Development and Clinical Study of Interactive Art Programs for

Rehabilitation

*吉岡聖美1

*Kiyomi Yoshioka1

1. 明星大学

1. Meisei University

We have studied two interactive art programs for rehabilitation. A virtual reality(VR) program was

developed in which patients perform standing-up and sitting-down rehabilitation exercises based on

interactive changes in VR images, and the level of exercises achieved is reflected in the images as

feedback. In a recovery-phase rehabilitation hospital, the patients who used the program rated their

enjoyment of rehabilitation significantly higher than those who did not use the program. The patients who

used the program also found that rehabilitation was more enjoyable after the exercise than before. In

addition, the number of movements increased significantly by continuing exercises over a long time

period. Furthermore, focusing on respiratory rehabilitation for maintaining and improving swallowing

function, we have developed a program that involves production of an artwork into which breath is blown.

The rehabilitation session consisted of strongly blowing into an artwork doll 10 times in a row per day for

30 days. The swallowing function of elderly people who need nursing care remained in as good condition

as before the sequence. As the participants completed the respiratory rehabilitation sessions for a full

30-days it indicates the program using their own artworks is effective for sustaining rehabilitation on a

long-term basis.

Submission No.:C000042実践[PR-ARCH]医療実践における建築/デザイン

Language:日本語Presentation type:30分間のプレゼンテーション...

第9回国際ヘルスヒューマニティーズ学会The International Health Humanit...

Being ill in a risk society: patient narratives on the management of

uncertainty

*佐藤（佐久間）りか1、磯野真穂2、菅野摂子3

*Rika Sakuma Sato1, Maho Isono2, Setsuko Sugano3

1. 認定NPO法人健康と病いの語りディペックス・ジャパン、2. 国際医療福祉大学、3. 立教大学

1. DIPEx-Japan, 2. International University of Health and Welfare, 3. Rikkyo University

“Kyuni-guaiga-warukunaru” (“When you suddenly get sick”) is a title of a book, based on the

correspondence between a philosopher suffering cancer and an anthropologist. In the book, the two

women exchange their ideas about the contingencies of life, the risk management, and the “fateful”

decision making.

This panel discussion is inspired by their exchanges regarding the predicament that today’s patient must

face when medical professionals deliver information hoping that she/he would make a rational decision

based on the evidential information they provide. In contemporary society, individuals are held

responsible for managing risks which can only be identified by experts (Giddens1990; Beck 1992).

However, individuals often resist experts’ assessment of the risk and their advice when they try to

manage their uncertainty. The dichotomy between “rational” and “irrational” is not productive here.

We need to analyze how individuals mobilize resources such as trust or hope which are nurtured within

their experience-based knowledge.

We begin the panel discussion with the presentation of audiovisual narratives taken from the Database of

Health and Illness Narratives compiled by DIPEx-Japan, followed by two panelists’ (Setsuko Sugano, a

sociologist, and Maho Isono, the anthropologist who co-authored the book mentioned above) discussion

on patient strategies for managing uncertainty in a risk society.

Submission No.:C000043理論と展望[HH-T]ヘルスヒューマニティーズ全体にかかわる理論と展望

Language:日本語Presentation type:70分間のパネルディスカッシ...


Implementing Medical Humanities - the case of Kraków, Poland and

Narrative Medicine

*Adrianna Beczek1,2,3, Mateusz Potoniec1,2, Hubert Syzdek1,2

1. Uniwersytet Jagiellonski/Jagiellonian University, 2. Koło Naukowe Humanistyki Medycznej/ Student's Research

Group for Medical Humanities, 3. Interdyscyplinarne Centrum Etyki UJ/Interdisciplinary Centre for Ethics JU

Pellegrino (1984) claimed that 'medicine (...) sits between the sciences and the humanities being

exclusively neither one nor the other but having some of thequalities of both'. We are a group of people

who, following this thought, are trying to shift the weight of medical practice slightly more towards

humanities in our city of Kraków, Poland. Kraków has a profound history of humanistic medicine, which

seems to have been neglected over the recent years. In the proces of reintroducing humanities into

medical curriculum we see opportunities to create something new and ameliorate medical care both for

patients and for doctors. In the discussion we: Hubert, a student of Medicine and Philosophy, Mateusz, a

student of Literature, who have both recently translated the book "The Principles and Practice of Narrative

Medicine" into Polish and Adrianna, who is a researcher in Cultural Anthropology and Philosophy and a

student of Medicine, wish to demonstrate our views on the role of Medical Humanities, especially

Narrative Medicine, in the clinic, and search for further possibilites this perspective provides.

Submission No.:C000044 Implementing Medical Humanities - the case of Kraków, Pol...Practice (Implementation)[PR-LIT]Literature in healthcare practice (includes bibli...

Language:EnglishPresentation type:70-minute panel discussion (inclusive o...


Evaluating the use of filmmaking as an activity for students in learning

disability centre and its effect on daily activities.

*Vignesh Vyas Vyas1

1. UEA

Background: Individuals with learning disabilities have difficulties undertaking activities of daily living and

this could have an impact on their social inclusion. This study aimed to identify the benefits of individuals

with learning disabilities taking part in a filmmaking group, where peer-peer support was used to help

individuals learn a specific activity of daily living skill.

Aims: To establish if filmmaking group has any effect on the individual’s activities of daily living.

Method: A pilot study was conducted at a learning disabilities center. Our participants, three females and

one male, all aged between 30 and 40 years with learning disabilities took part in the study. Sessions were

split into three stages - pre-production, production and post-production.

Results: All four participants’ specific functional performance of a daily living task improved in accuracy

and efficiency after taking part in the filmmaking project. The results were collated from interviews with

the participants and the questionnaires filled by staff members. All four participants improved

self-confidence, team working skills and communication.

Conclusion: Filmmaking could be used as an activity, which could help individuals with learning

disabilities learn specific activities of daily living skills. Taking part in the project could also improve

individual’s self-confidence and wellbeing.

Submission No.:C000045 Evaluating the use of filmmaking as an activity for stude...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...



Cultivating evidence based contemplative practices to transform

healthcare and leadership.

*Amit Biswas1

1. Consultant Adolescent Forensic Neuropsychiatrist, Film maker; St Andrews Healthcare

Caring for others is one of the most fulfilling and rewarding work in life but is not always easy and even

can be highly challenging. Professionals can feel increasingly disconnected and discontent in caring work

which seriously compromises their wellbeing and capacity to work at their peak!Understanding,

containing and resolving these overpowering emotions, creating space of inner harmony and self

compassion is highly important to live well, lead well and help others in suffering.

Increasing evidence is emerging about learning various contemplative practices and traditional

techniques from ancient wisdom and mystical traditions (such as mindfulness, loving kindness and other

meditations, Yoga, gratitude practices, embodied dance, chanting, ceremonies, self compassion and so

on) create positive impact on individuals in care profession and teams through a heightened level of intra

and interpersonal awareness, well being and openness enabling greater emotional intelligence,

authenticity and alignment with deepest values.

In healthcare, leaders who have undergone mindfulness and similar training and integrated contemplative

practices in their leadership roles, show significantly improved self awareness, clarity in decision making,

creativity/ innovation, increased ability to lead with courage, confidence and compassion and skillfully

guide change.

In this experiential, interactive and practical workshop, we will establish or deepen the knowledge about

the science and practices of these disciplines and learn a number of techniques to connect deeply with

self and others, increasing capacity to remain open ,compassionate, positive and resilient.

Submission No.:C000047 Cultivating evidence based contemplative practices to tra...Practice (Implementation)[PR-SPIRIT]Religion/spiritualism in healthcare practice (...

Language:EnglishPresentation type:30-minute workshop (inclusive of around...


Using psychological theory to understand the need for relatedness

amongst people living with severe asthma

*Lorraine Smith1, Helen Reddel1,2, Kath Ryan3, Daniela Eassey1

1. University of Sydney, 2. Woolcock Institute of Medical Research, 3. Reading University

Background

Severe asthma affects 3-10% of the asthma population and is associated with a significant burden

affecting social and working life. The Self-Determination Theory (SDT) construct of ‘relatedness’

concerns the need for belonging both with individuals and community. However, this has not been closely

examined from the patient’s perspective.

Methods

In-depth semi-structured interviews were conducted with participants aged 18+ years and diagnosed with

severe asthma. Interviews were video and/or audio recorded, transcribed, and analysed inductively and

deductively, informed by the SDT construct of relatedness.

Results

Thirty-eight face-to-face interviews, lasting 1.5 - 4 hours, were conducted around Australia. Participants’

sense of relatedness was challenged by the impact of their illness. Two themes emerged: 1) the desire tobe understood: feeling isolated and 2) the desire to be accepted: ‘I’m supposed to be like everybodyelse’. Participants valued feeling cared for, understood, connected to others and having a sense of

belonging. Their overall psychological well-being was dependent upon their sense of connection to

others.

Conclusion

Using SDT and qualitative methods has enabled a more nuanced and rich understanding of living with a

debilitating and unpredictable illness. Findings such as these can inform future self-management

interventions for those living with severe asthma.

Submission No.:C000048 Using psychological theory to understand the need for rel...Research[R-PSYCH]Psychology in health or healthcare-related research



Integrating drawings into health curricula: university educators’

perspectives

*Lorraine Smith1, Bandana Saini1, Melissa Cheung1

1. University of Sydney

Background

Research shows that drawings offer a window into the authentic, insider view of health and illness. Based

on our earlier work this study explored university educators’ opinions regarding the implementation of

drawings as an educational tool for higher education healthcare students.

Objective

To explore pathways for utilising drawings as an art form in an educational context, and provide

recommendations for developing curricula and resources for further evaluation.

Methods

Focus group interviews with university educators. Materials included patient and healthcare professional

drawings of perceptions of the lived experience of asthma.

Results

Participating educators supported the use of drawings as a novel medium. Perceived benefits were that

drawings foster student appreciation of: (i) the holistic impact of illness, (ii) the importance of patients’

priorities, and (iii) the value of learning from the patient.

Conclusion

Drawings offer opportunities for students to explicitly reflect about the patient experience holistically

rather than view the patient as a ‘biomedical problem.’ Shifting students’ perspectives and

assumptions to be better aligned with and appreciative of patients’ experiences were noted as central to

adopting a person-centred approach to healthcare practice. Our findings suggest that incorporating

drawings as educational tools would be a valuable addition to health curricula.

Submission No.:C000049 Integrating drawings into health curricula: university ed...Education[ED-ARTS]The arts in HCP education (and/or for practicing...



Cultural Care: Art-based Intervention in old-age and end-of-life care in

East Asia

*Harry Yi-Jui Wu1, How Wee Ng3, Michael Koon Boon Tan2, Ian Thomas Ash

1. The University of Hong Kong, 2. Nanyang Technological University, 3. Westminster University

This panel discussion consists of four presenters from various intellectual and practical backgrounds.

They examine art-based projects related to old-age care in clinical and public settings based on their own

practices or subjects of observation. Literature has shown contested perspectives on explaining ageing,

dying and death in Asia. Some have argued that these topics are taboos commonly evading attention in

public discourses. On the contrary, some have claimed that they have been expressed in subtle ways in

people’s daily practices. In East Asia, creative efforts have been made to further open up discussion

about these agenda in health care practices. Art & Health scholar Michael Tan introduces art-based

toolkits suitable for nursing homes to improve residents’ well-beings in Singapore. Literature scholar

How Wee Ng analyses three films produced by Singapore’s Drama Box concerning its multidisciplinary

community art project to stimulate public discussion on death. Medical Humanities educator Harry Yi-Jui

Wu attempts to create a verbatim theatre project to assist students to explore burden of end-of-life care in

Hong Kong. Lastly, filmmaker Ian Thomas Ash explores multiple aspects of film making on death and

dying, including how related talks have been facilitated through public screening of his documentaries in

Japan.

Submission No.:C000050 Cultural Care: Art-based Intervention in old-age and end-...Education[ED-ARTS]The arts in HCP education (and/or for practicing...

Language:EnglishPresentation type:70-minute panel discussion (inclusive o...


Experiences of people with disability seeking to become healthcare

professionals.

*瀬戸山陽子1、射場典子2

*Yoko SETOYAMA1, Noriko IBA2

1. 東京医科大学、2. NPO法人DIPEx-Japan

1. Tokyo Medical University, 2. DIPEx-Japan

Objective:

The promotion of worker-friendly environment and diversity of healthcare professionals(HP) is a major

issue in Japan today. This study explores the experiences of people with disability seeking to become, or

those who have become HP, in order to promote inclusive environment within the healthcare field.

Method:

Thematic analysis of qualitative data collected by narrative interviews conducted between December

2018 and October 2019. Data from 6 people with disabilities who have the experiences of being HP or

healthcare students was analyzed.

Findings:

A nurse with internal disability since the age of 16 found that his experience of disability had prompted

him to become HP, and a doctor using wheelchair said the disability might affect the relationship with

patients. Some felt ethical dilemma in being or seeking to be HP with disabilities.

Discussions:

HP with disabilities have recognized that their own disabilities affect both positively and negatively on

being or seeking to become HP. While people with disabilities have the right to choose their occupations,

in healthcare settings, patients’ safety and quality of care must take priorities. We need more discussions

on what the essence of being HP and how to provide reasonable accommodation to HP with disabilities.

Submission No.:C000051教育[ED-DIS]医療者教育における障がい学



Care and the Child-Grandparent Relationship in Children’s

Picturebooks in Japan

*Katsura Sako1, Sarah Falcus2

1. Keio University, 2. University of Huddersfield

In many ageing societies concerned about the growing demand for care, the health of older people has

become a significant issue with profound economic and social implications, promoting the perception of

old age as a time of ill health and dependency and in some cases, creating generational tension.

With their unique mixture of didacticism and aestheticism, children’s picturebooks can play a vital role

in interrogating and re-shaping the limited cultural perceptions of ageing. Bringing together ageing

studies and the childhood studies, we explore subjectivity, autonomy and dependency through the

connection between the child and the older adult depicted in Japanese picturebooks from the late 20th

and early 21st centuries. Specifically, the presentation will analyse books where ageing and associated

changes, such as increased frailty, threaten to upset generational roles that are organised around care.

These books emphasise the relationality between child and grandparent that stands upon both their

dependency and autonomy. Situating these texts within the cultural context of contemporary Japan, we

suggest that the model of relationality and responsibility that emerges in these books, whilst undoubtedly

contextually related, offers a way of rethinking subjectivity, health and our understanding of the

temporality of the lifecourse.

Submission No.:C000052 Care and the Child-Grandparent Relationship in Children’s...Research[R-LIT]Literature in health or healthcare-related researc...



Following the learning journey in Health Humanities- A narrative

analysis of written assignments by pre health students

*Sandra Carr1, Brid Phillips1

1. The University of Western Australia

Health Humanities in the context of educating health professions is increasingly seen as a vehicle to

provide a balance between the dichotomous teaching of the sciences, with the compassion, critical and

reflexive skills health professionals need. Properly used, reflective writing is one way of promoting and

assessing the development of these aspects of professionalism.This study explored the learning processes

demonstrated and learning outcomes achieved through a narrative analysis of reflective written

assessments of pre health students. Adapting the reflective writing model proposed by Shapiro in 2006,

the analysis explored how students engaged in the writing process to effect a change or learning of self.

Most demonstrated they were not yet constrained by specialized vocabularies, prescribed cognitive

frameworks and routine petterns of action often associated with health students. They demonstrated

capacity to think about other peoples situations abd contemplate their own reactions in relation to those

situations from a subjective and personal stance. The writing also illustrated their beginning transition

from lay person to health professional and how they were contemplating and in some instances adopting

the required attitudes and even values. How this writing resulted in reflective self assessment, values

clarification and professional identity formation with examples will be further explored at presentation.

Submission No.:C000053 Following the learning journey in Health Humanities- A na...Research[R-Other]Health or healthcare-related research in other f...



Bringing the Health Humanities to the next generation of health

professionals

*Sandra Carr1, Brid Phillips1


The gap between patient expectations and the performance of health professionals appears to be

widening. With our crowded and shorter courses there is less time to shape the professional that can

appreciate diversity and uncertainty so as to become a person centred practitioner. Many educators

recognise the value of balancing the sciences with the arts and have been working to bring the Arts and

Humanities into health professions education. Most commonly this effort has resulted in small scale,

individual or short series’ of learning activities. We have introduced an undergraduate major in

Humanities for Health and Medicine. This presentation shares our journey to establish an undergraduate

degree in health humanities as a pathway to the heath professions. The course structure and curriculum

will be presented leading to a discussion around the resulting educational philosophy. How the learning

and assessment activities are utilising health humanities to achieve the development of observation,

listening, critical and reflective skills in students will be explored along with a summary of the planned

program evaluation strategy.The course development process has revealed the highly variable quality of

research into the effect of education using Health Humanities approaches and evaluation to substantiate

such programs remains a challenge.

Submission No.:C000054 Bringing the Health Humanities to the next generation of ...Education[ED-OTHER ]Other fields/issues in HCP education



Health communication and citizen empowerment: Exploring the value

of a social practice approach in research with health consumers

*Olaf Werder1, Kate Holland2, Mark Ferson3, Catherine Bateman-Steel3, Kelly-Anne Ressler3,

Theaanna Kiaos1

1. University of Sydney, 2. University of Canberra, 3. South-Eastern Sydney Local Health District

Personal health and its communication exist within a complex context. The way people make decisions

about how they prepare for any potential health problem, i.e., negotiate prevention and warning messages

in the contexts of their everyday social practices, is not fully understood.

In this workshop, we plan to demonstrate and let participants experience the methods we employed in

social practice projects. These consist of a small self-monitoring or evaluation exercise (photo analysis)

and the ethnographic interview technique. We plan to show that these methods can help to identify social

and health practices and the circumstances in which they occur, how these practices co-evolve, and how

connections between them become strengthened or weakened, including the awareness and/or

resonance of any intervention messages with those practices (we briefly introduce our research in cruise

travel health as an example).

Aside from demonstrating the value of participatory and inductive data collection practices for the

development of health interventions, we also aim to show the benefit social representation and narrative

models for health communication would provide in opposition to top-down models and approaches to

health campaigns (and their evaluation) that often neglect the contextual factors that shape everyday

practices, including people’s engagement with health promotion messages

Submission No.:C000055 Health communication and citizen empowerment: Exploring t...Research[R-ANTH]Anthropology/ethnography in health or healthcare-...



Student Led Staged Readings in Health Humanities Education

*Brid Phillips1


Through the humanities, we develop skills in thinking reflectively, listening actively, and being present for

our patients. In particular, creating and staging a short creative piece focussed on health topics offers an

immersive learning experience which develops skills in empathy, communication, and self-reflection. This

presentation discusses the outcomes of the first UWA Health Humanities Staged Reading Project.

The project is designed to enhance the experiential learning for health humanities students and to bring

that learning to the wider community of undergraduate and postgraduate students across the campus.

Students are given support to devise a short creative piece based on a health topic which is then read for

an audience. Students lead a focussed discussion on the themes they have uncovered. A university grant

offered students the opportunity to travel to a rural satellite campus and perform their readings to a

diverse audience. Whilst developing personal skills was the main aim, the collaborative nature of the

project can demonstrate the positive benefits of community engagement as students embark on their

health professional journey. This project examines the use of creative writing and performance as an

educational tool to foster critical thinking and empathetic awareness about moral issues surrounding

health topics.

Submission No.:C000056 Student Led Staged Readings in Health Humanities EducationEducation[ED-LIT]Literature/narrative in HCP education



Japan's "Tobyo-ki" transformed into medical resourced -its

significance, publication status, and actual situation in libraries

*和田恵美子1、石井保志2、金井一弘3

*Emiko WADA Wada1, Yasushi Ishii2, Kazuhiro Kanai3

1. 認定NPO法人健康と病いの語りディペックス・ジャパン、2. 国際医療福祉大学大学院、3. 株式会社　星湖舎

1. DIPEx-Japan, 2. International University of Health and Welfare Graduate School, 3. Seikosya Co., Ltd.

(Background) In Japan, books written by patients with leprosy and tuberculosis have been for a long time.

Books describing the autobiographical internal experiences of illness are referred to as "Tobyo-ki" in

Japan. Due to the large number of self-published publications, it had been not consistently organized. The

citizen research group the Health Information Bookshelf Project tried to make a list by hand-searching

them.

(Purpose) To analyze the actual state of Tobyo-ki and examine its potential as a material that contributes

to humanities.

(Method) Using the data of publishers in Osaka and NDL database, analyze the current status of Tobyo-ki

in public and medical university libraries.

(Result) The Tobyo-ki database was released to NDL in 2007. In 2006, its installation method was

released, and it spread rapidly to public libraries. Tobyo-ki were published about 100 books each year.

There were more than 150 Tobyo-ki paperbacks nationwide.

(Conclusion) Tobyo-ki, which have been positioned as essays and literature, have been transformed into

medical resources by being assigned a classification. It is necessary to examine the needs of users in

libraries and consider the relationship with medical consultation services. The genre of Tobyo-ki has a

unique characteristic in Japan, and it is necessary to compare it with other countries.

Submission No.:C000057実践[PR-LIT]医療実践における文学（ビブリオセラピー・読書療法...



“It takes a village: building partnerships to deliver an Arts in Health

Program within a major paediatric Hospital”.

*Lynne Seear1,2

1. AHNQ, 2. CHQHHS

The Queensland Children’s Hospital opened at the end of 2014 and is the only standalone facility

offering tertiary and quaternary care to paediatric patients, newborn to 18 years, in the state of

Queensland. The hospital was designed from the earliest stages of planning to incorporate a multi-faceted

Arts in Health therapeutic program to enhance patient experience and recovery. This includes a bespoke

visual arts collection and a regular schedule of creative, participatory activities integrated into the daily

routines of patients, clinicians and visitors. The success and sustainability of this initiative are dependent

on formal partnerships with major cultural and educational institutions which provide direct programming

support. This presentation will demonstrate the potential that can be realised when the creative

community partners with the healthcare sector to care for the whole child - body, mind and spirit. Three

case studies will be described, involving innovative projects co-designed by clinicians and cultural

workers, to deliver specific, meaningful benefits. These include the commissioning of VR-based artwork;

the establishment of a hospital choir; and a narrative medicine workshop series.

Submission No.:C000058 “It takes a village: building partnerships to deliver an ...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...



Graphic Medicine may provide different educational benefits for

medical students and resident trainees

*Lara Ronan1

1. Geisel School of Medicine, Dartmouth College

A Graphic Medicine curriculum has been offered to medical students (Geisel School of Medicine) and

resident physicians (Department of Neurology Dartmouth Hitchcock) since 2016. Graphic Medicine is the

interaction between the medium of comics and medical illness for our purposes. This course includes 4-6

one-hour sessions that loosely follow narrative medicine format described by Rita Charon and colleagues;

close reading, reflective writing/drawing and sharing of work. Graphic medicine sessions include

instruction on cartooning technique and comics structure. Excerpts of graphic novels with health-related

themes, single and multi-panel comics, and patient instructional comics are utilized. Students create their

own comics in several formats from prompts related to the readings. The course has been well received

and felt to add value to the traditional curriculum. Qualitative data from end-of- course evaluations

suggest that early stage medical students derive benefit predominantly from learning a new form of

expression for their lived experience as students. Medical residents reported gaining insight into

patient/care-giver experience with illness, and communication between physician and patient. Individual

participants reported an increased sense of camaraderie with colleagues. Further research on the impact

of this curriculum on empathy, communication and physician well-being is ongoing.

Submission No.:C000060 Graphic Medicine may provide different educational benefi...Education[ED-LIT]Literature/narrative in HCP education



Mapping the Future: Understanding Diversity and Difference Through

Collaboration

*Mark Bookman1

1. University of Tokyo

Today, many persons with disabilities in Japan are unable to access education, employment,

transportation, healthcare, and other services necessary for independent and self-determined living. Part

of the problem is that specialists in various fields often fail to communicate with each other and persons

with disabilities as they work to create access in their respective spheres of influence. An engineer might

design a high-tech wheelchair, only to have its functions limited by an architect who does not build her

rooms to accommodate that chair. Similarly, a physician might be prepared to administer treatments for

various ailments, only to have her good will hampered by transit issues that prevent patients from

reaching her door. How can we overcome such disciplinary divides and empower persons with disabilities

to ensure they have equal opportunities? One method, I argue, is through deliberate participatory

mapping exercises that demonstrate the complexity of diversity.

In this workshop, I guide participants from different personal and professional backgrounds through a

collaborative mapping exercise that teaches them how to mobilize their unique trainings and

intersectional identities –understood in terms of race, class, gender, and ability –as tools for initiating

transdisciplinary exchanges that can identify and resolve barriers to accessibility in Japan.

Submission No.:C000061 Mapping the Future: Understanding Diversity and Differenc...Practice (Implementation)[PR-ARCH]Architecture/design in healthcare practice



Medical Manga Genre in the Context of Global Graphic Medicine:

Social Functions and Ethical Issues

*中垣恒太郎1

*Kotaro Nakagaki1

1. 専修大学

1. Senshu University

With developing medical technology, the Japanese manga genre has been diversifying its expressions and

themes. As is reflected in current of medical team trends, the medical manga genre has been subdivided

alongside specific professions. As conventional manga, narratives about surgical operation and their

power struggles remain popular; however, new divisions of this genre have emerged, such as regional

medicine, disaster medicine, terminal care, anesthesiology, radiology, nutritionists, home-visit nursing

care, and so on. Among them, Fragile: Some Observations of a Pathologist, Dr. Kishi (2014-) is the first

work featuring pathologists in Japanese medical manga. Even though pathology is significant in practical

medical fields, patients do not usually deal with pathologists directly. Indeed, there are a few medical

students who want to be pathologists. The narratives in Fragile introduce the roles pathologists play and

explore the development of medical sciences. Furthermore, this work raises social issues about medical

fields such as institutional deficiencies relating to the Ministry of Health and Welfare, medical fraud, or

maltreatment. This presentation will examine the current tendency of the subdivided medical manga in

the context of health care crisis and global graphic medicine. The social functions of medical manga and

its associated ethical issues will be discussed.

Submission No.:C000062研究[R-LIT]健康やヘルスケアに関連する研究における文学（ナラデ...



“What is Ageing?”: Photo-Elicitation as a Teaching & Learning Tool

for Medical Students to Explore Human Experience in Late Adulthood

*Samson Ki-Sum Wong1, Abigail Wright 1, Harry Yi-Jui Wu1

1. Medical Ethics and Humanities Unit, The University of Hong Kong

With recent advances in anti-ageing and regenerative medicine, physicians-in-training may develop

tendency to view frail and vulnerable older patients negatively. Previous research noted that age-related

biases in medical students include seeing ageing as a frustrating process of decline, infirmity and decay,

or assuming older adults are inherently “end of life” patients [1]. By arbitrarily lumping persons aged 65

or above into one group “the elderly”, students could be at risk of inadvertently undertreating or

over-treating older patients in future practice.

Scholars believe that, by integrating photo-elicitation into healthcare professions education, photographs

of older adults could elicit stereotypical views, evoke personal connections and facilitate

perspective-taking [2]. Reflective activities, therefore, enhance students’ insight into previously

unexplored age-related beliefs. Research also supports that socializing medical students with healthy

older adults through art could facilitate sense of commonality.

This presentation reports the experience of running a photo-based workshop for medical students in

Hong Kong, where notion of ageing is highly contested. Prior to class, students were asked to capture

images in their daily life in response to the question prompt “What is Ageing?”. Joined by older adults,

students would collectively explore these visual narratives, uncover hidden beliefs, and re-invent

meanings of photographs.

[1] Higashi, Tillack, Steinman, Harper, & Johnston. (2012). Elder care as "frustrating" and "boring":

Understanding the persistence of negative attitudes toward older patients among physicians-in-training.

Journal of Aging Studies, 26(4), 476-483.

[2] Brand, Gabrielle, Karen Miller, Rosemary Saunders, Helen Dugmore, and Christopher Etherton-Beer.

"Expanding the Caring Lens: Nursing and Medical Students Reflecting on Images of Older People."

Gerontology & Geriatrics Education 37.2 (2016): 167-84.

Submission No.:C000063 “What is Ageing?”: Photo-Elicitation as a Teaching & Lear...Education[ED-ARTS]The arts in HCP education (and/or for practicing...



Theater! The Workshop: Learn to Use Improv to Create Theatrical

Vignettes for Improving Mental and Behavioral Health

*Alan Kum Wing Lee1, Kara Beatrice Beck2, Eunice Yuen1

1. Yale School of Medicine, 2. Drexel University Dornsife School of Public Health

Child-parent interactions are a common area where conflict occurs due to cross-cultural challenges. This

workshop aims to develop realistic and relatable theatrical vignettes, namely “child-parent playbooks”,

as an educational vehicle for a variety of mental and behavioral health related goals in Asian American

families.

The workshop will teach how to create natural dialogues through long-form improvisational comedy

techniques based on relevant lived experiences. This method starts with an in-depth discussion with

script contributors. That then guides decisions about the characters, their relationship to each other, and

their emotional motivation. Scenes are then improvised, recorded, and transcribed, with these steps

repeated as necessary, focusing attention on cultivating a natural interaction.

Participants will understand the framework of constructing child-parent playbook vignettes. In addition to

Asian American child-parent cultural disconnect, other vignettes that have been written and performed

with audiences include ones related to low-income families as well as others that bring awareness to the

emotional stress that COVID-19 is having on families and healthcare providers.

Our child-parent playbook workshop will take participants through the process of creating scripts and

scenarios using these techniques, demonstrate their application, and allow participants an opportunity to

practice script development and to reflect on the process.

Submission No.:C000064 Theater! The Workshop: Learn to Use Improv to Create Thea...Practice (Implementation)[PR-DR]Drama in healthcare practice



Listening to Experiences of Health and Illness around the World:

Introducing the DIPEx International Project

*佐藤（佐久間）りか1,3、ロレインスミス2,3

*Rika Sakuma Sato1,3, Lorraine Smith 2,3

1. 認定NPO法人健康と病いの語りディペックス・ジャパン、2. シドニー大学、3. ディペックス・インターナショナル

1. DIPEx-Japan, 2. The University of Sydney, 3. DIPEx International

DIPEx (Database of Individual Patient Experiences) is a unique online resource that compiles a wide

variety of people’s narratives on experiences of health and illnesses, founded in UK in the 1990’s. The

enterprise, after twenty years, has grown into a collaboration of research organizations around the world

using a common rigorous qualitative research method to collect and compile people’s experiences.

Researchers from 14 countries (Australia, Brazil, Canada, Czech Republic, Germany, Israel, Japan,

Netherlands, Norway, Republic of Korea, Spain, Switzerland, UK and US) are now involved in the DIPEx

International project (www.dipexinternational.org).

DIPEx website is comprised of approximately 250 video and audio clips for each condition, thematically

organized to show different aspects of illness experiences. DIPEx-Japan has published 7 websites on

health conditions and medical interventions (e.g., breast cancer, dementia, chronic pain, bowel screening,

clinical trials, etc.) and as for DIPEx International we have in total over 150 conditions and interventions

covered. While the majority of the users are patients and families, the database is increasingly being

utilized as a resource for teaching medical professionals, service improvement and cross-national

comparative research. In the poster, we will present our ongoing challenges to present polyphonic voices

of health and illness around the world.

Submission No.:C000065 Listening to Experiences of Health and Illness around the...OTHER[OTHER]Topics that seem to fit in the overall scheme of H...

Language:EnglishPresentation type:Poster presentations (vertical orientat...


Ethical analysis of uncomfortable feelings in nursing practice

described in narrative writing

*鶴若麻理1、麻原きよみ1

*Mari Tsuruwaka1, Kiyomi Asahara1

1. 聖路加国際大学看護学研究科　

1. Graduate School of Nursing Sciences, St. Luke's International University

Objectives: The purpose of this study was to explore the significance of narrative writing by analyzing from

an ethical perspective nurses’ narrative described based on uncomfortable feelings that they had in

nursing practice.

Methods: The analyzed data were 86 nursing graduate students' narratives described as uncomfortable

feelings in clinical settings. We examined what kinds of ethical issues had occurred from their narratives in

light of the Code of Ethics for Nurses (2003) proposed by the Japanese Nursing Association and ethical

principles. This study was conducted with the approval of St. Luke’s International University Research

Ethics Review Committee (14-035).

Results: Many of the 86 narratives included their insincere attitudes to patients and what was associated

with patients' autonomy such as respect for their will, the right to know, and the assurance of

self-determination. The nurses appeared to struggle to preserve patients’ autonomy and be honest with

patients amid various difficulties.

Conclusions: Narrative writing helped nurses notice and consider ethical issues in daily nursing practice

in the described situations.

Submission No.:C000066教育[ED-ETH]医療者教育における倫理



‘Beyond Words’ books: how visual narratives can help people with

learning disabilities to understand healthcare and tell their own stories

*Bethany McPeake1,2

1. The Open University, 2. Beyond Words

For people with learning disabilities, creative spaces foster social inclusion and encourage feelings of

interpersonal belonging. In the UK, various groups use creative practices to cultivate relationships and

self-advocacy, including my partner organisation, Beyond Words. Beyond Words produce wordless picture

books for adults, dealing with key issues in social, emotional, mental and physical health.

Beyond Words Book Clubs use the approach of ‘co-creative reading’, which allows participants to

actively contribute towards the texts’ meaning, as part of a team. This encourages collaboration and

uses nonverbal communication cues that are necessary for many people with learning disabilities.

Wordless books help people with learning disabilities to acquire robust visual and emotional literacies,

enabling people to spot the signs of health problems, to understand what to do about them and to

communicate with others experiencing similar issues.

This presentation aims to explore the potential health and wellbeing benefits of co-creative reading in

Beyond Words Book Clubs. This collaborative practice leads to the sharing of personal narratives that

people with learning disabilities might not otherwise have the opportunity to tell. I will investigate the

social, emotional and cognitive benefits of the visual form for health education, storytelling and

relationship-building amongst people with learning disabilities.

Submission No.:C000067 ‘Beyond Words’ books: how visual narratives can help peop...Practice (Implementation)[PR-LIT]Literature in healthcare practice (includes bibli...



Resiliency Dialogues in Schizophrenia Intervention: Geographical

Dynamics and Considerations in Mira T. Lee's Everything Here is

Beautiful

*SARAH Mathews CURRIE1

1. UNIVERSITY OF WATERLOO

In an age of extreme medicalization of normalcy, academia is suffering from no shortage of anecdotes

suffered by “system users”, who go on to become academics in the field of mad studies or disability

studies. But more radical theorization of how the ‘average citizen’ becomes enmeshed in systemic

oppression is necessary in order to develop less hostility towards the greater antipsychiatry /

antimedicalization movement, which typically generates aggression and biomedical sympathy in larger

audiences. Mira T. Lee’s bestseller, Everything Here is Beautiful, demonstrates the system carer’s

instinct to oppress, delegitimize and silence the sufferer (the protagonist) for deviating dramatically from

accepted sociocultural norms, and demonstrates the care team’s pathologization of the protagonist as

incapable of self-care (RESILIENCE) without a medication regiment –a myth this book explores while

concomitantly highlighting the extreme geopolitical inequalities of the Global South (versus Global North).

Interestingly, Lee’s novel never directly suggests that this ethical failure to rationalize extreme disparity

between South/North could be central to the protagonist’s psychosis –thus becoming a case study in a

“them, not us” dialectic sustained by the general public which seeks to pathologize the extremes of

human emotion as unacceptable, abnormal and dangerous, instead of seeking to understand the systemic

oppressions and inequalities that foster a FAILURE OF RESILENCE. Everything Here is Wonderful could

serve as a great introductory “case study” to the field of mad studies and medical humanities, with

enough character complexity and geopolitical concerns to sustain both ‘sides’ of the commonplace

resilience dialectic –but ultimately conclude that an ethical perspective may lie beyond the traditional

treatment protocol of institutionalization and medication (which Lee’s novel also ultimately rejects). This

discussion could be used towards a discourse of activism in mad studies –how could the protagonist have

been better served? Was her suicide preventable, in a new age where antipsychiatry and radical

socioeconomic movements are beginning to take the forefront in humanities dialectics?

Submission No.:C000068教育[ED-LIT]医療者教育における文学/ナラティブ



Designing Effective Interpersonal Communication in Improving the

Well-Being of Dementia Patients: The Yumetomo (“Dream

Together”) Project in Kadoma City, Japan

*コミサロフ喜美1、森安美2

*Kimi Komisarof1, Yasumi Mori2

1. 東京外国語大学、2. ゆめ伴プロジェクト in 門真実行委員会

1. Tokyo University of Foreign Studies, 2. Yumetomo Project in Kadoma Executive Committee

Japan is one of the world’s fastest graying societies, experiencing rapid growth in the number of people

with dementia. Such patients often feel disconnected from society, causing them to lose hope and suffer

negative effects to their well-being. To remedy these issues, in addition to medical treatment and physical

caregiving, it is crucial to offer support through consciously designed communication opportunities

between dementia patients and others as a means of nurturing connection to the surrounding community.

The presenters will describe the “Dream Together” project in Kadoma City, Japan (implemented since

2018), which serves such ends—constructing a vibrant, fulfilling context for interpersonal communication

where dementia patients can flourish as they relate with fellow residents. Through Dream Together,

dementia patients engage in cooperative, enjoyable activities designed to empower them with a sense of

ownership and agency while performing social roles. For example, with local residents, dementia patients

worked in a neighborhood café, sang in a concert, ran a mini-marathon, and weaved artistic tapestries. As

a result, positive changes were observed in those patients’ mental health outcomes. The presenters will

discuss this program’s key success factors—bridging theory and practice by analyzing how

communication opportunities were designed to foster community and connection.

Submission No.:C000069 Designing Effective Interpersonal Communication in Improv...Practice (Implementation)[PR-OTHER]Other fields/topics applied to healthcare practice



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