annual report...4 als society of bc 2013 annual report it has been an honour to serve as president...

2013 AnnuAl RepoRt AlS Society of British Columbia

ouR Mission

The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS. Through assisting research, we are committed to find the cause of, and cure for

Amyotrophic Lateral Sclerosis.

ouR objectives

Find the cause of, and cure for ALS. While research is ongoing, the Society provides:

• directsupporttopatients,theirfamiliesandcaregivers,

• raisefundsforpatientservicesandresearch,and

• workstoincreasepublicawarenessandunderstanding of ALS.

Board of DirectorspReSident

Travis Stevenson

immediAte pASt pReSident

Phil Dubois

ViCe pReSident/SeCRetARy

Vandhana Misri

tReASuReR

Anthony Cheung

exeCutiVe diReCtoR

Wendy Toyer

ViCtoRiA ChApteR pReSident

Ellen Mahoney

noRth CentRAl iSlAnd

ChApteR pReSident

Glenda Reynolds

diReCtoRS

Donna BartelNeil CashmanAndrew EisenPaul LeBlancNorm LouieDon McCuskerLibby O’DonnellRichard PoliquinJim Williams

honouRARy life diReCtoRS

Dr. Andrew EisenDr. Charles Krieger

3ALS Society of BC 2013 Annual Report

Contents GeneRAl infoRmAtion 2 ALS Mission Statement & Objectives

3 Board of Directors

RepoRtS 4 President of the Board

5 Executive Director

6 Victoria Chapter & North Central Island Chapter

8 Patient Services

10 Endowment Funds

12 Reserve Endowed Funds

13 Externally Managed Endowment Fund

ACknowledGementS 14 Donors, Grants & Foundations

18 Third Party Fundraising

2013/2014 ALS BC Board of Directors

4 ALS Society of BC 2013 Annual Report

It has been an honour to serve as President of the ALS Society of BC for the past year. Being halfway through a two-year term, it is both exciting and inspiring to look back at what has been accomplished, and ahead to what can still be achieved through the efforts of an amazing group of very committed people who are dedicated to our mission of im-proving care and services for those living with ALS.

Our Society has continued to strengthen financially, allowing the programs we offer to not only be sustained but also to be continuously improved. Our strength has had the added ben-efit of allowing us to increase our strategic focus, and build a foundation to support continued success moving forward. This allows us build on our accomplishments to date in improving services available to patients and their families living with ALS, driving advocacy and awareness, and supporting research.

Our management team and staff, our volunteers and our Board and Committees have all played a significant role in the progress we have made. I would like to thank everyone for their hard work in making TEAM ALS BC & Yukon the driving force behind the changes that have taken place. It has been a great team effort, but without Wendy and her awe-some team, we would not have made the progress we have on so many fronts.

Not only has the Society of BC has evolved, but so too our national organization as the 10 ALS Societies across Canada have strengthened their connection through the creation of the Federation of ALS Societies of Canada. Though still in its infancy, I believe the Federation has the collaborative potential to make a significant impact on national fund development, and positively drive unified awareness and advocacy. Our Society has played a key role in its creation, and over the next year will continue to nurture as it matures into a powerful coalition.

Again, it has been an honour to serve as your President and I look forward to the year ahead. In closing, I would like to acknowledge the many individuals who have served on our Board of Directors and on our Board committees over the past year. They have not only made my job fulfilling but have contributed greatly to our health as a vibrant Society fully engaged in improving the quality of care for those living with ALS in our province.

travis Stevensonpresident of the Board, AlS Society of BC

Message from the President of the Board

During 2013, the Society provided direct support to 423 people living with ALS. This is an increase of 28%/91 more clients compared to the previous year. This can be attributed to an increased awareness about the services provided by the Society. With our team of dedicated staff and volunteers, we were able to meet the needs of all.

In the fall of 2011, we set a goal to raise an additional $2 mil-lion over the next five years to increase our support for ALS research as we believe we are on the cusp of a major break-through. The increased efforts with our major gifts program have made headway towards this goal. A new strategic plan is being developed to ensure we meet or exceed our target.

ALS BC, along with other ALS Societies across Canada, participated in Hill Day at parliament hill in Ottawa, meeting with members of parliament to advocate for funding for ALS research and changes to the compassionate care program. Meetings with MPs in BC at constituency offices and an ex-tensive letter writing campaign followed. The outcome is still unknown at the time this document is written. Provincially, we are developing a similar program to keep provincial issues in the forefront of MLAs. This will be an annual event.

In 2013, we added more names to our growing team of volun-teers – TEAM ALS BC & Yukon. These dedicated people sup-port staff in all aspects of our organization. It is because of this support administration costs can be kept low. The funds raised can go directly to our programs and goal to increase support for ALS research.

Our relationship with the ALS Centre at GF Strong Rehab Hospital is solid. Two members of the team attended the International Motor Neuron Conference and presented posters alongside their colleagues from around the world. In partner-ship with the Centre, we are able to offer mobile clinics and in-service training to ensure the best quality of care can be provided throughout BC.

Moving forward we are committed to provide and improve our core services, increase support for ALS research and improve the quality of life for those affected by ALS.

wendy toyerexecutive director, AlS Society of BC

Message from the Executive Director


The Support Group meets quarterly in Nanaimo. This coming year we are working to have meetings at least every second month. Following a guest speaker there is a discussion

period so people living with ALS and caretakers can speak on new ideas and things that have helped them in their journey that they wish to share with the group.

The annual Walk for ALS takes please in Parksville the second Sunday of June each year. Over $30,000 was raised in 2013. Our chapter transferred $15,000 to the Jean and Gord

Pearmain Endowment Fund for equipment and patient care in 2013. We continue to work to increase ALS awareness and increased fund raising.

We host and attend the Mobile Clinic in Nanaimo which is held each year. The team of professionals from the ALS Centre at GF Strong hold appointments with people living with ALS in our area on that day.

We are available to provide information on ALS and support those living with ALS in our region.

This Chapter averages about 30 to 35 people, people living with ALS at any given time.

Glenda Reynolds president, north Central island Chapter

I am proud to report the activities of the Victoria Chapter Living with ALS Support Group. Our monthly meetings from September to June keep our members connected and able to access our services.

The support group program each month features either a guest speaker or a discussion topic to engage our members.

The major fund raising efforts during the year included:

• TheWalkforALSinSeptemberledbyRasoolRayaniand Adele Fraser which raised over $57,000;

• The27thAnnualALSFlowerDayinJunecoordinatedbyLynne Murray which realized over $13,000;

• The4thAnnualCarWashandBBQorganizedbyPeterGrant and his family honouring the late James Grant which raised $4,345;

• TheThriftyFoodsSmileCardprogramcoordinatedbyJoanne McLeod raising $1,200; and

• Thesaleof“potscrubbies”createdbySusanMonaghanraising $725.

The provincial office continues to be very supportive of our Chapter. The staff regularly attend our meetings and we enjoy welcoming them and strengthening the connection between the clients, families and the Richmond office.

Iamveryappreciativeofthe“family”thatIamproudtobea member of here in Victoria – a family of volunteers dedi-cated to supporting those impacted by ALS, to increasing awareness, and to raising funds to support client services and research.

ellen mahoney president, Victoria Chapter

Messages from the Chapters

ViCtoRiA ChApteR

noRth CentRAl iSlAnd ChApteR


2013 Walk for ALS

eQuipment loAn pRoGRAm With 2,600 pieces of medical equipment our Equipment Loan Program is designed to help people cope with the daily challenges of decreasing mobility and independence, through obtaining basic and essential assistive equipment. This includes mobility equipment, lift equipment, beds & accessories, communication devices, and bathroom aids, if needed.

• 1,671requestsforequipmentwerefilled

• 2,127equipmentdeliveries/pickups

• 1,219maintenancerecords(cleaning&repair)toensuresafeandviableequipmentisprovided

CAReGiVeRS dAy SponsoredbytheGeorge“Sonny”Williamsendowmentfunds, caregiver days are hosted in communities around BC, Caregiver Day is a chance for the full-time primary caregivers of ALS Patients to have a day of respite.

• 4CaregiverDayswereheld

tRAnSpoRtAtion SuppoRt pRoGRAm The Transportation Support Program provides transportation for people living with ALS to attend Society events, appointments at the ALS Centre, other ALS related medical appointments such as Respirology, and support groups.

•248tripswereprovided

Vancouver Support Group Meeting

SuppoRt GRoupS Support groups provide an open, friendly and safe environment for ALS patients, family members, caregivers and friends to discuss issues related to living with ALS. Groups are facilitated by experienced, trained volunteers.

• 44supportgroupmeetingswereheldinBCin2013

pSyCholoGiCAl tReAtment SeRViCeS Psychological support services are available free of charge at locations across BC. Registered Psychologists and Clinical Counselors provide much needed therapy and counseling to ALS Patients, their families and caregivers at any stage of the illness.

• 62peopleaccessedthisprogram

“This day gave me a feeling of family, love and union with other friends facing many of the same challenges as I.”

caregiver day participant

CAmp Alohi lAni In July ALS BC hosts a camp for youth who have a Parent (or Grandparent in a significant role) Living with ALS. ALS BC is extremely pleased to be able to offer this weekend retreat at no cost to families. Camp Alohi Lani, which means ‘Bright Sky’ in Hawaiian, is a safe setting in which youth aged 8 – 17 years can come together and receive support for their own journey. Most importantly Camp Alohi Lani offers campers an opportunity to meet other youth from across BC and make connections with peers.

• 29campersin2013


Patient Services

AdVoCACy Working to increase awareness for ALS with elected officials, the ALS Society of BC meets federally.

• 4delegatesparticipatedinHillDayatOttawatoadvocateforfinancialsupportforALSresearchandchangestotheCompassionateCareProgram.FollowupmeetingsandanextensiveletterwritingcampaigntoMPsfollowedHillDay.

CARe ConneCtionS The primary purpose of forming a Care Connection is to reduce caregiver responsibilities and reduce the worry the person with ALS has for their caregiver. By caring for the caregiver, the person with ALS is helped as well. The ALS Society of BC’s Care Connection is a program to aid your own group of caring family and friends to help their loved ones with ALS and their caregivers.

• 18familiesareusingthisprogram

moBile CliniCS In partnership with the ALS Centre at GF Strong Rehab Centre, the ALS Society of BC provides Mobile Clinics to outlying communities. The ALS Centre healthcare professionals including a Neurologist travel to clinic locations to provide care for people unable to travel to the Centre which is located in Vancouver.

• 4Clinicswereheldin2013

teAm AlS BC & yukon VolunteeR pRoGRAm Built on volunteerism, the ALS Society of British Columbia recognizes and affirms the involvement of volunteers at all levels of the organization as a vital component to achieving its mission: to help persons living with ALS and their families manage the effects of the disease and to raise funds for ALS research. The ALS Society of British Columbia encourages the participation of all people regardless of race, ancestry, place of origin, citizenship, creed, sex, sexual orientation, marital status, family status age, religious beliefs, location or health in contributing to and building their community and the ALS Society through the act of volunteering. The ALS Society is committed to supporting and nurturing volunteerism by providing guidance, resources and recognition to all volunteers in mutually beneficial relationship.

• 475registeredvolunteers

• 5,147volunteerhoursloggedin2013


Members of TEAM ALSBC and Yukon volunteers at 2013 Conference

Rick Poliquin, Chairperson Advocacy Committee

Don McCusker and Dr. Neil Cashman

MP Judy Sgor, Don McCusker, and Dr. Heather Durham


GeoRGe “Sonny” williAmS endowment fund

George“Sonny”WilliamsdiedonTuesday,January30,1996 at 12:20 am. The game of golf, and the entire province, lost a true friend.

Mr. Williams, the well-respected owner of Williams Moving & Storage, dealt with the debilitating effects of ALS for over 6 years before succumbing to it. Mr. Williams left his mark on many aspects of BC golf and business. He had been adamant in his pursuit of integrity for the moving industry. He was one of the first principal patrons for the BC Golf Museum. To add to his other contributions Mr. Williams was credited to the single handed saving the BC Open from a sure demise in 1982. In 1988 George Williams was named a CPGA honorary director for his contributions.

TheGeorge“Sonny”WilliamsEndowmentFundwascreated in 2003 to support caregivers of people living with ALS in B.C. In 2005 his son, Jim Williams requested that 30% of the ALS Golf Tournament proceeds be allocated to the Endowment Fund. The balance of the funds raised was donated to the ALS Society of BC. As well, 100% of the funds raised from individual donations and from the Williams Moving & Storage employees go to the fund. Disbursements go toward hosting Caregiver Day events to support the caregivers of people living with ALS.

peARmAin endowment fund Prior to retirement, Jean Pearmain was a Neurological Nurse. She worked with Neurologists that specialize in ALS including Dr. Andrew Eisen. Since that time, she served as director on the ALS Society Board of Directors and volunteered with her

husband Gord tirelessly for over 9 years supporting people living with ALS on Vancouver Island. At any given time Jean provided support to up to 30 ALS patients living in the North Central Vancouver Island region. She maintained an equipment storage locker and in many cases she and her husband Gord delivered the equipment themselves. Jean conducted home visits and coordinated the Nanaimo monthly ALS Support Group. The Pearmain’s participated in the Walk for ALS and Jean has acted as an escort for the On a Roll for ALS. Gord drove the support vehicle and Jean rode her bike next to the ALS roller. The Executive of the North Central Island Chapter established this endowment to honour the dedication of the Pearmain’s by establishing an Endowment Fund in their name. The disbursements go towards the ALS BC Equipment Loan Program.

Endowment funds managed by the “investment policy statement.”

Jean and Gord Pearmain

Jim, Verna, and Zach Williams

Endowment Funds


dR. AndRew & kAthleen eiSen endowment fund

Dr. Eisen is a founding director of the Amyotrophic Lateral Sclerosis (ALS) Society of British Columbia. He has been an active volunteer on the board since 1981, and has been named as a honourary life director.

Dr. Eisen is a brilliant and compassionate physician and neurologist, and a pioneer in the field of clinical neurophysiology. The University of British Columbia, Neuromuscular Diseases Unit (NDU) and the Amyotrophic Lateral Sclerosis (ALS) Clinic was a coveted location for trainee physicians, technicians and other researchers to learn from one of the best clinician-researchers in the world.

His teaching legacy can be traced through his many books, hundreds of scientific papers and international lectures. Andrew’s influence and legacy as a teacher and mentor in the practice of neurology, clinical neurophysiology, and neuromuscular disease research can be traced all over the world.

Andy met Kathy in Montreal in 1963, when she was a Neurological Nurse and he was starting his Residency in Neurology at the Montreal Neurological Institute. Kathy then went on to work at the Allergy Clinic, Royal Victoria Hospital, Montreal until they moved to Vancouver in 1980. That year Kathy together with Dr. Donald Paty started the

dAVid pendRAy memoRiAl endowment fund

David (Dave) Pendray passed away from the effects of ALS at the age of 57 years. Dave was a third generation dairy farmer. The 225-acre Pendray dairy farm is located off West Saanich Road, in North Saanich on Vancouver Island BC. The farm is now operated by David’s family. Milk

from the Pendray farm has been shipped to Island Farms Dairy since 1960. The Pendray family and Island Farms Dairy have had strong connections for over 50 years. The disbursements from this fund are directed to support ALS patient services, with a focus on enhancing the quality of life for people living with ALS.

Dr. Andrew and Kathleen Eisen

Multiple Sclerosis Clinic at the University of British Columbia. Kathy was its Nurse Co-ordinator for the next 18 years. The Clinic quickly developed an international reputation and to this day the Clinic and Kathy are synonymous. She put many devoted hours into looking after the several thousand MS patients until her retirement in 1998.

Proceeds from the endowment are directed to support ALS patient services provided by the ALS Society of BC.

David Pendray

AlS AdVentuRe ChAllenGe fund Lena Nilsson was born in Sweden. She married Nils and had two children, Peter and Lisa. The Nilsson’s made their home in North Vancouver, BC. Lena worked as a land developer and in property management until she was diagnosed with Bulbar ALS in 2003. Prior to ALS, Lena was very active running, hiking, biking, boating, gourmet cooking, entertaining, restoring old homes, furniture and artifacts, and milling lumber. After her diagnosis, she focused her energy on travel, fundraising, reading, playing with her grandchild, learning American Sign language and raising awareness about ALS.

With the family’s encouragement, her daughter Lisa and her husband Dave Richardson came up with the idea of the ALS Adventure Challenge to raise money for patient care and research into the cause of, and cure for ALS. As Lena and her family had always been outdoor adventurers, the Challenge focused on trail running, kayaking and mountain biking. In the weeks leading up to the Challenge, participants are provided training in return for raising a minimum amount of donations which towards the Nilsson Foundation which funded this endowment. Revenue held in this fund support improved research technology and services for ALS Patients that will improve their quality of life, and new initiatives proposed by the ALS Society of BC.

These funds have been allocated for the purpose of supporting the Society’s activities in the event of a cash flow decline.

ViCtoRiA endowed fund The Victoria Chapter of the ALS Society of BC was founded in 1984. It has served to support local ALS patients and families through equipment loan plus financial and emotional support. The Chapter raises funds through many events, endowments, memorials, bequests, cash donations and also donations of medical equipment. The Fund’s purpose is to financially assist people living with ALS.


Reserve Endowed Funds

kAmloopS endowed fund The families of Clayton Smailes, Giovanni (John) Caferra and Brian Rintoul established this fund. Revenue is generated from 30% of the net revenue each year at the annual ALS Golf Tournament of Hope. The fund supports the development of communications technology used by people living with ALS to provide the best quality of life possible for patients living with ALS.

Clayton Smailes Brian Rintoul

Victoria Chapter of the ALS Society of BC 2013/2014 Executive Committee

Giovanni (John) Caferra

Olivia, Dave, Lisa, and Mason Richardson

“I am writing this note to express my gratitude for the ALS summer camp opportunity offered to my daughter. Her grandmother has had extensive support from the ALS Society over the years. ALS BC sent out an email offering kids in families with a person diagnosed with ALS the chance to attend a four night retreat on the Coast. As a single mom with a limited income, this was so welcomed by myself, as without the financial assistance she would not have been given this opportunity. We do not ever go on any vacations outside of town so this retreat has been the highlight of her summer every year. The staff was so organized and helpful in making this retreat happen. They arranged transportation, and were so kind to my daughter. My daughter loved all of the staff and the activities and has made new ongoing friends from the retreat. I cannot express my appreciation enough.”

parent of an alohi lani caMper


AlS SoCiety of BRitiSh ColumBiA endowment fund

In 1992 the family of Jeanette Heinrich established an endowment in her memory with the Vancouver Foundation. This is a permanent endowment that is administered by the Vancouver Foundation. The capital value remains intact and all interest

income generated is paid to the ALS Society of BC in support of ALS patients throughout the Province.

kARl StefAno wAtt endowed fund

This fund was established by the parents of Karl Stefano Watt in his memory. Karl was a vibrant physically active young man in the prime of his musical career as a rock/jazz drummer in three jazz bands. Music was his passion. The fund is to be used to assist

family home caregivers caring in their homes for a loved family member suffering from ALS.

Karl Stefano Watt

Camp Alohi LaniBob Heinrich

Externally Managed Endowment Fund


We would like to thank our donors and sponsors who have supported the programs and fundrais-ing events of the society in 2013. Below is the list of donors who gave $500 or more to ALS Society of BC (the list excludes anonymous donors).

pRoVinCiAl SponSoRSPeoples Drug Mart (BC) Ltd

Province of British Columbia through BC Gaming Grant

CoRpoRAtionS & CluBS697674 Alberta Ltd

Abbotsford Police Association Local #7

ABC Express Service Ltd

ACT/UCT Kelowna West Council #1003

Agassiz Fire Department Society

Agropur

Apotex Inc

Ardmore Golf Course

Army Navy & Air Force Veterans Unit #284

Army Navy & Air Force Veterans Unit #305

Auto West BMW

Baker-West Inspection Engineering

BC Trucking Association

Beddis Financial Services Corp

Bel Investments Ltd

Borden Ladner Gervais LLP

Breze Salon and Day Spa

CEP Local #1010 Unit Kamloops

Cambridge House International

Canadian Forces (Chiefs & PO’s)

Canadian Institute of Mining, Metallurgy Petroleum

Capital Motors Ltd

Capri Insurance Services

CBRE Ltd

CFJC TV-7 Kamloops

Chances Gaming Entertainment

Cloverdale Paint Inc

Commodore Grand Café & Lounge

Comox Valley Monarch Lions Club

Cor Productions Inc

Craftsman Collision

Cowichan Valley Oldtimers Hockey Association

Dell Transport Ltd

Dorcas Unit Osoyoos United Church

Echlin Insurance Agency

Fair Value Pharmacy Ltd

Fast Signs

Flatiron Construction Corp

FortisBC

Fraternal Order of Eagles #3318

Global TV News

Handsworth Secondary School

High Country Photography

HME Mobility & Accessibility

Home Life Realty Service

Hot Tommy’s Food

HUB International TOS

Investors Group

IUOE Local #115

Joy Factory Films Inc

Kal Tire

KGHM Ajax Mining Inc

KNV Chartered Accountants LLP

Kineshanko Logging Ltd

Kinette Club of Duncan

Kinsmen Club of Ladysmith

Kiwanis Club of West Vancouver

Knights of Columbus #3478

Knights of Columbus #6233

Kokanee Chapter IODE

Ladysmith Health Care Auxiliary

Lantzville Ladies Auxiliary #257

Livingston Freight

London Eye Centre

Los Rios Storage

Lotic Environmental

Lynn Valley Lions Club

MacDonald, Dettwiler and Associates Ltd (MDA Corporation)

Mainland Sand & Gravel Ltd

Manulife Financial

Matcon Civil Constructors Inc

McNally Excavating Inc

Meadowridge School

Molson Coors

Mount Cheam Lions Club

Mr. G Stores Ltd

Nanaimo Harbor Lites Lioness Club

Nanaimo Lions Club

Nelson Masonic Lodge #23

Orica Canada

Peace Arch Toyota

Peak Fitness

Phillips, Hager & North Investment

Ponte Bros Contracting

Powell River Regional District

QuappEquipmentLtd

Re/Max Centre City Realty

Residence & Conference Centre

RN Trucking Ltd

Rokstad Power Corp

Rosedale on Robson

Rotary Club of Lantzville

Royal Canadian Legion #6










Donors, Grants & Foundations






RW Schmunk Insurance Services Ltd

Salt Spring Island Lions Club

Scott Construction

Seawave Management Inc

Selkirk Paving Nelson Ready Mix

Shaw Communications Inc

Shoppers Wholesale Foods

Slater Vecchio LLP

Smithrite Disposal Ltd

SN Transport Ltd

Spirit Bear Consulting Ltd

Stewart’s Welding Ltd

Summit Financial Planners Inc

Team 1040 Sports Radio

Team 2 Guns

TEAM TELUS Charitable Giving (through employee, Darla Duquette)

TEAM TELUS Charitable Giving (through employee, Eldon Paul)

TEAM TELUS Charitable Giving (through employee, Robert Neilson)

TEAM TELUS Charitable Giving (through employee, Marisa Zanichelli)

TELUS Corporation

The Allegra Singers Society

The Inland Group

The Printing House

Thompson Valley Funeral Home Ltd

Trace Resources

Trafalgar/Pro Patria Br#292

TRUE Consulting

Upright Décor

Valachy/Caferra Family

Van-Whole Produce

Vancouver Fire Fighters’ Union

Vancouver Firefighters Athletic Club

Vancouver Firefighters’ Credit Union

Vero Management

Walmart

West Coast Resorts

West Jet

White Tail Oilfield Rentals

Willow Point Lions Club

Williams Moving & Storage

eStAteSEstate of Craig Holte Davidson

Estate of Suzzanne Leeper

Estate of Mary Eileen MacKenzie

Estate of Ruth Bernice Margarette Smith

Estate of Audrey Kathleen Taylor

GoVeRnmentBC Government Gaming Policy & Enforcement Branch

Government of Canada through the Canada Student Summer Jobs

indiViduAl donoRSBecky & Luke Abrahamse

Jennifer Agar

Bruce Aitken

Mary-Louise Anderson

Gordon Annand

Shawn Ashworth

Elizabeth Atmore

Joan Axford

Blaine Baldwin

Paul Balfour

John Baker

Sharon Bardsley

Jas Battu

Rick Beer

Linda Berglund

Gayle Boddie

Theresia Boese

Debbie Born

Nat Bosa

Mark Boutiler

Heather Bradfield

Philip Brodeur

Sharon Bromley

Viki Bullock

Denise Bumby

Wally Buono

Dennis Burdett

Katrina Burns

Noel Chalmers

Judy Chucko

Marc Cianci

Anthony Cheung

John Clemens

Patti Cockcroft

Daniel Coutu

Stanley Cowdell

Dan Cox

Maureen Crockett

Leon Crowley

Paul Daniels

Francoise Desautels

Timothy Deutscher

Deidra Dewey

Hardev Dhillon

James Dickie

Jon Dietrich

Gavin Dirom

John Dolmage

Terry-Lynn Dryfhout

Philip Dubois

Barbara Duncan

Andrew & Kathy Eisen

Carissa Eykel

Joan Fillion

James Findlay

Asaph Fipke

Iris & Gus Fischer

Anne Fomenoff

Irene Forsberg

Alan Fotheringham

Debi Fraser

John Froese

Clay & Joanne Gillespie

Bob Goffin

G. R. Goffin

Elaine Gordon

Connor Graham

Peter Grant


Kenneth Greaves

Garry Green

Gregory Groff

Dawna & Nels Guloien

John Hall

Richard & Sheila Hart

Bill Hatswell

Phil Hay

Stanley Hay

Robert Heinrich

Leonard Hiebert

Len Hintz

Peter Hirschfeld

James Horne

Nancy Howatson

Patricia Hoydal

David Hughes

Gordon Hutcheson

Gordon Huxley

Audre Jackson

Svend Jacobsen

Alan Jebson

Michael Jenkins

Tom Johner

Kelvin Johnston

Donald Johnstone

Wanda Jones

Alice Kan

Paul Kariya

Chari Keet

Zita Kenny

Richard Kerr

Tom Klinko

Irene Kvaale

C.B. Kwong

Jonathan Larter

Darin Lashman

Tim LeClair

Ernie Leeck

William Leeper

Linda Lees

Yves Lefebvre

Grant Legge

David Leung

Irene Lihaven

Christine Lod

Lori Lovlin

George MacLeod

Cameron Macrae

Joel Madden

Lynne Maher

Robert Maingot

Dominic Marini

Rex & Karin Marshall

Patricia McCalib

James McKeon

Robert McKinnon

Catherine McLaughlin

Robin McLuskie

Patricia Metcalfe

Sue Monaghan

Janice Moss

Stephen Moza

Marianne Muir

Maria Mullan

Larry Needham

Elaine Needham

Judy Newberry

Tom Newell

Lorna Nielsen

Helga Norgaard

Lilian Olljum

Dave Otto

David Page

Nick Papoutsis

Nicole Parent

Michael Parker

Janna Payne

Joshua Peer

John Pendray

Carol Pendray

Michael Perchinsky

Tremayne Perry

Penny Piercy

Derek Phoenix

Ian Pitfield

Robert Pratt

Alister Prout

Dianne Randall

Kathy Ratchford

Richard Reid

Joan Robertson

Stephen Ross

Sandra Rothery

Sheila Rowand

Karyn Ruddick

Stanley Rutledge

Paul Sabatino

Richard Samaroo

Tim Schilds

Fran Schilds

Danny Schilds

Savita Seru

Christy Shaw

Gwynneth Shaw

Tom Shiftman

A Daniel Sisco

Joseph Sladen

Carol Slater

Dawn Smailes

Kevin Smith

Emily Smith

Shirley & Dennis Smith

Anne Solyom

Daniel Spelliscy

Caple Spence

Glenna Stark

Chris Stathis

Karen Straker

Andy Szocs

Stanley Takasaki

Jean Taylor

George Tetreau

Chris Tidd

Wendy & Tony Toyer

Alan Treleaven

William Trimble

Eva Trott

Karen Tunmore

Randy Turner

Zographini Vlachos

Derry Walsh

John Watson

Tracy Watson

Bonnie Watts

Peter Webb

Stuart Wells

Judy Werts

Peter White

Doreen Wiener

Gifts for Tomorrow, a Legacy Gift to the ALS Society of BC

We would like to extend our appreciation to the following donors who have named the ALS Society of BC in their wills, life insurance policies,

RRSP’s, RRIFs and other planned financial gifts.

• HughColeman

• Dr.Andrew&KathyEisen

• RobertHowell

• IreneKvaale

• MarciaStromsmoe

• AnonymousDonors

The ALS Society of BC is a partner of LEAVE A LEGACY, its’ goal is to raise awareness of the importance of thought-ful, well planned, tax-preferred gifts and their impact on the quality of life for everyone in our communities.

A planned gift to the ALS Society of BC is a simple and pow-erful way to be remembered. Your gift will change the future of the ALS community, the patients, their families and health-care professionals. For more information about the planned giving program of the ALS Society of BC, please contact our office at 1.800.708.2257 ext. 225 or email [email protected].

“As I am a senior, my volunteering will have to be in the form of a financial contribution given with grateful thanks. Having seen your work in a personal way because of my friend it is given willingly.”

donor

Layne Williams

Jim Williams

Tom Williams

Mark Woodall

Morris & Madeleine Woodland

Kevin Yockey

Waldo Yule

Eli Zagoudakis

Leon Zupan

not-foR-pRofit oRGAnizAtionS & foundAtionSAL Roadburg Foundation

Art and Pearl Van Der Linden Foundation

BC Bakery & Deli Foundation

BC/Yukon Command of the Royal Canadian Legion Foundation

BC Hockey Benevolent Foundation

Central Okanagan Foundation

Chris Spencer Foundation

Deloitte & Touche Foundation Canada

Great Century Foundation

Greygates Foundation

Honda Canada Foundation

Lagniappe Foundation

Lohn Foundation

London Drugs Foundation

May and Stanley Smith Charitable Trust

Mr. and Mrs. P.A. Woodward’s Foundation

Nilsson Foundation

North Shore Community Foundation

NWM Private Giving Foundation

Paul Lee Family Foundation

RBC Foundation

RBC Foundation (through employee, Anthony Cheung volunteer hours)

Robert C. Coleman Charitable Foundation

SpencerCreo Foundation

Surrey Firefighters Charitable Society

Surrey Foundation

Sutherland Foundation Inc

The Charros Foundation

The Hamber Foundation

The Joseph Segal Family Foundation

The KPMG Foundation

The Phyliss & Irving Snider

Foundation

The Vine & Branch Foundation

uniPHARM & Medicine Centre Pharmacies Charitable Foundation

Vancouver Foundation through Mrs. Jeanette Heinrich ALS Society of BC Endowment Fund

Variety, the Children’s Charity of BC

Victoria Foundation through United Commercial Travelers’ Fund

Warm Hearts Charitable Foundation


“After long and valiant battles with ALS, Fire Fighter Ranny MacDonald passed away in 2003, and Battalion Chief Jim MacLeod passed away in 2009. Not only did the Vancouver Fire Department lose two good men, I lost two good friends. Ranny and Jim were avid outdoorsmen and would loved the idea of a fundraiser that introduces people to sporting clay events. So every year, we host Shoot for a Cure, both to raise money for the ALS Society of BC and to keep the memory of Ranny and Jim alive.”

todd johnstone, vancouver firefighter


Abbotsford Benevolent Police Association – John Goyer Memorial Golf Tournament

ALSBBQandWalkn’RollFundraiser

Ardmore Golf Tournament

BCTF Industries Ltd Fundraising

Bob Heinrich Calendars

Cambridge House Fundraising

Carol-Ann’s 70th Birthday Celebration & ALS Fundraiser

Chairman Tom’s Grouse Grind

Cycle of Hope

Dane Stevens Jewellers Fundraising

David Wood Wedding Bonbonnieres

Dr. David Richardson – Iron Man

Fortis BC – Cupcakes for a Cause

Guns & Hoses Hockey Game

Handsworth Secondary Cookbook Fundraising

Hot Tommy Food Fundraising

Third Party Fundraising

2013 Shoot for a Cure

Island Farms MOO-Man Charity Golf Tournament

John Goyer Memorial Golf Tournament

Julie Spooner ALS Bracelets

Kwantlen Student Keyston Project T-Shirt Sale

Living Life, Marilyn Arthurs

Lyall Street Service Fundraising (Peter Grant)

Michael Wall’s Card Sale Fundraising

Montys Day ALS Fundraiser

Nanaimo Daily News – You and ALS

Ocean Floor Ltd – Fundraising for ALS

Old Timers Hockey

Ol’ Hustler’s Mini Tournament

Peoples Drug Mart Fundraising Series

Peter Grant Fundraising

Peter Lee Golf Tournament

PGA of BC Golfathon for ALS

Scarves Fundraising (in memory of Grinda de Baat)

“When we saw how much help ALSBC was giving our son before he died with ALS, we felt we just had to help the society as much as we could and that donating on a monthly basis not only made it easier for us but we’re sure helps the society manage their finances.”

Monthly GivingThrough the monthly giving program you are able to budget and spread your donation throughout the year and support the programs of the society.

For inquiries or other donation options, please contact: Rena Mendoza E: [email protected] P: 1-800-708-3228 ext. 225

Whether large or small, your gift is much needed and appre-ciated – every dollar makes a difference.

“This program has meant so much to us. To be able to access the necessary equipment, quickly, as this disease progresses has meant a lot to the quality of our life together.”

clayton sMailes


Sheet Metal Association Golf Tournament

Sheila Tynan – Nanaimo Haircut Fundraising

Shoot for ALS

Spring Honda Fun Run for ALS

Susan Monaghan Pot Scrubbers

Team Blair-Kusam Klimb Fundraising

Team Clarke Annual Pumpkin Give-Away & Harvest Festival for ALS

Team Clarke Clutter Clean Up

Teeter Totter A Thon

The Allegra Singers Society

Thompson Valley Funeral Home Charity Golf (in memory of Wanda Desrosiers-Lavoie)

Thrifty Foods – Smile Card Program for ALS

UBC Sororities Greek Week Event

Walk for ALS and Mrs. Rudersdorfer

Williams Lake ALS Oktoberfest 2013Smailes Family

AMYOTROPHIC LATERAL SCLEROSIS SOCIETY OF BRITISH COLUMBIA

annual report...4 als society of bc 2013 annual report it has been an honour to serve as president...

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