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CHARITY NO. 228157 INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH) Annual Report For the Year Ended 31 DECEMBER 2016

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CHARITY NO. 228157

INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

Annual Report

For the Year Ended 31 DECEMBER 2016

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

CONTENTS

Reference and administrative details of the charity, its Trustees and advisers

Annual Report

Independent Examiner's Report

Statement of Financial Activities

Balance Sheet

Notes to the accounts

Page No.

2-4

5-6

7

8

9-16

REFERENCE AND ADMINISTRATIVE DETAilS OF THE CHARITY

Registered charity number 228157

Governing document Deed of Trust, which was executed on 3 April 1964

Trustees Dr John Paul Leach (President) Professor Mathew Walker (Honorary Treasurer) Professor Tony Marson (Secretary) Dr Manny Bagary Dr Khalid Hamandi Dr Sallie Baxendale Professor Liam Gray Professor Markus Reuber Dr Fergus Rugg-Gunn

The above served as Trustees during and throughout the year ended 31 December 2016.

Independent examiner Helen Hunt RSM UK Tax and Accounting Limited STC House 7 Elmfield Road Bromley Kent BR1 1L T

Principal address 6t~ Floor Institute of Neurology Queen Square London WC1N 3BG

Investment Manager CCLA Senator House 85 Queen Victoria Street London EC4V4ET

Bankers Barclays Bank pic Leicester LE872BB

INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

ANNUAL REPORT FOR THE YEAR ENDED 31 DECEMBER 2016

The International League Against Epilepsy {"ILAEn) is registered with the Charity Commission (No. 228157) and is constituted by Deed of Trust, which was executed on 3 April 1964.

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity's governing document, the Charities Act 2011 and Statement of Recommended Practice: Accounting and reporting by charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) published on 16 July 2014.

The Charity is administered by a management committee, who are all Trustees, comprising:

Dr John Paul Leach (President) Professor Mathew Walker (Honourary Treasurer) Professor Tony Marson (Secretary) Dr Manny Bagary Dr Khalid Harnandi Dr Sallie Baxendale Professor Liam Gray Professor Markus Reuber Dr Fergus Rugg-Gunn

Objectives for the public benefit The aims of the International League Against Epilepsy (British Branch) ("ILAE") are to:

• Co-ordinate the activities of those interested in the better care and treatment of people with epilepsy.

• Stimulate interest in the clinical, social and scientific aspects of the disorder. • Actively participate in the business of the ILAE.

It achieves its charitable objectives by: • Holding an annual scientific meeting to promulgate the latest findings in epilepsy

research. • Awarding prizes for essays by young scientific investigators, medical students, young

physicians and by nursing and health professionals on aspects of epilepsy. • Awarding travel grants and bursaries. • Belonging to the Joint Epilepsy Council in order to promote government action to bring

epilepsy up the health agenda and to secure health services for people with epilepsy. • Representation on the All Party Epilepsy Group in the House of Commons. • Influencing the care of people with epilepsy internationally by maintaininq links with the

parent body and securing discounts for its members with major epilepsy journals. • Holding medical student weekends. • Holding meetings for GP's with specialist interest in Epilepsy.

2

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

ANNUAL REPORT FOR THE YEAR ENDED 31 DECEMBER 2016

The Trustees have paid due regard to guidance in relation to Public Benefit issued by the Charity Commission in deciding what activities the charity should undertake. The Trustees are of the opinion that it has fully complied with all such guidance.

Review of the year

The overall income for the year was £223,751 (2015: £194,406) and expenditure amounted to £245,387 (2015: £165,736) resulting in a deficit for the year of £21,047 (2015: Surplus of £28,745) after revaluation of investments by £589 (2015: £75). Reserves have thus decreased to £259,745 from £280,792 in 2015.

Recruitment of Trustees and training The composition of the Charity's board of Trustees is reviewed regularly with a view to achieving a spread of expertise and age designed to facilitate the achievement of the Charity's objects. The Trustees keep up to date on their responsibilities by various means, such as reviewing the Charity Commission web site, reading relevant periodicals and professional advice. The Trustees always recruit those with medical qualifications as they have the requisite skills in the area where the charity operates. The trustees consider the board of trustees as comprising the key management personnel of the charity. All trustees give their time freely and no remuneration was paid in the year.

Reserves policy The Trustees have been dependent on very significant support from the pharmaceutical Industry to hold the annual scientific meeting. This has enabled the cost to delegates to be kept reasonable, which has encouraged attendance, particularly by nursing and technical professionals. It has enabled the invitation of international experts and a meeting of high educational and scientific quality. The present degree of support by the pharmaceutical industry is not guaranteed in the long term.

The reserves at present amount to about 12 months of the annual expenditure, the majority of which comprises the cost of the annual scientific meeting. The Trustees aim, if possible, to increase the reserves to provide a cushion against a future reduction in the pharmaceutical industry sponsorship, and to ensure the future scientific quality of the meeting The free reserves at the year end amounted to £259,745 (2015 £280,792)

Risk factors The major risk to the charity achieving its primary aims is failure to obtain the present degree of sponsorship. The Trustees aim to mitigate this by maintaining the reserves, as indicated above.

3

INTERNATIONAL LEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

ANNUAL REPORT FOR THE YEAR ENDED 31 DECEMBER 2016

Trustees'responsibitnies

The charity Trustees are responsible for preparing a Trustees annual report and financial statements in accordance with applicable law and UK accounting standards (United Kingdom generally accepted accounting practice).

The law applicable to charities in England and Wales requires the charity Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of the charity for that year In preparing those financial statements, the Trustees are required to:

select suitable accounting policies and then apply them consistently; observe the methods and principles in the applicable charities SORP make judgements and estimates that are reasonable and prudent; state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; prepare the financial statements on the going concem basis unless it IS inappropriate to presume that the charity will continue in business.

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

~[b;]'të~ Jì' John Pal)( Leach Trustee

signed on their behalf by:

4

INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES' ON THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

I report on the accounts of International League Against Epilepsy (British Branch) for the year ended 31 December 2016 which are set out on pages 7 to 16

Respective responsibilities of trustees and examiner

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

It is my responsibility to:

examine the accounts under section 145 of the 2011 Act; follow the procedures laid down in the general Directions given by the Charity Commission under section 145 (5)(b) of the 2011 Act; and state whether particular matters have come to my attention.

Other matter - early adoption of the Charities SORP (FRS 102)

Your attention is to drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) in preference to the Accounting and Reporting by Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has been withdrawn.

We understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a "true and fair view" and the report is limited to those matters set out in the statement below.

5

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES' ON THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

(1) which gives me reasonable cause to believe that in any material respect the requirements:

• to keep accounting records in accordance with section 130 of the 2011 Act; and

• to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act

have not been met; or

(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Helen Hunt ACA ON BEHALF OF RSM UK TAX AND ACCOUNTING LIMITED Chartered Accountants STC House. 7 Elmfield Road Bromley. Kent BR1 1L T

2" Se~u."",,-~i( 2- o \-=t

6

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2016

Unrestricted Unrestricted Funds Funds 2016 2015

Note £ £ Income

Income from charitable activities 2 223,447 194,147 Investment Income 304 259

T otal income 223,751 194,406

Expenditure

Expenditure on charitable activities 3 (245,387) (165.736)

T otal expenditure (245.387) (165.736)

Net (expenditure) I income and net movement in funds before gains and losses on investments (21.636) 28.670

Net gain on investments 7 589 75

Net movement in funds (21.047) 28.745

Total funds brought forward 280.792 252.047

Total funds carried forward 11 259,745 280.792

These unaudited financial statements have been subjected to Independent examination. See report on pages 5 - 6

7

INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

BALANCE SHEET FOR THE YEAR ENDED 31 DECEMBER 2016

2016 2015 Note £ £

Fixed assets Tangible assets 6 773 Investment Fund 7 6,744 6,155

7,517 6.155 Current assets Debtors 8 1,800 982 Bank 260.939 309.818

262,739 310,800 Current liabilities: Amounts due within one year Creditors 9 (10,511) (36,163)

Net current assets 252,228 274,637

Net assets 259,745 280,792

The funds of the charity: Unrestricted funds 11 259.745 280.792

Total funds 259,745 280,792

The financlal'{t~~ments on page 7 to 16 were approved by the Trustees for Issue

on r"'---"'"\');\ .12017 I

I~ l ~ L'-.l( M DJi__ Dr ,bohn Paul Le~ch 'fi'(¡stee & President

Professor Mathew Walker Trustee & Honorary Treasurer

These unaudited financial statements have been subjected to independent examination See report on pages 5 - 6

8

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

1 ACCOUNTING POLICIES

Basis of accounting

The accounts have been prepared under the historical cost convention with items recognised at the cost or transaction value unless otherwise stated in the relevant note to these accounts.

The financial statements are prepared in sterling, which is the functional currency of the Trust. Monetary amounts in these financial statements are rounded to the nearest £.

The accounts (financial statements) have been prepared in accordance with the Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011 and the financial reporting standard applicable in the United Kingdom and the Republic of Ireland

The accounts (financial statements) have been prepared to give a 'true and fair' view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved follOWing Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.

The charity constitutes a public benefit entity as defined by FRS 102. The charity is a trust that is domiciled in England and Wales.

Going Concern

It IS the opinion of the trustees thaI the charity is a going concern, and Ihey are aware of no material uncertainties which may affect its abilities to continue as such for the foreseeable future.

Income

Income represents the total income receivable during the year comprising of conference income, membership income, sponsorship, other income and investment income. All income is included in the Statement of Financial Activities when the charity is legally entitled to the income, it is probable that the income will be received, and the amount can be measured reliably. Interest on funds is included when receivable and the amount can be measured reliably by the charity; this is normally upon notification of the interest paid or payable by the bank. Dividends are recognised once the dividend has been declared and notification has been received of the dividend due.

These unaudited financial statements have been subjected to Independent examination. See report on pages 5 - 6

9

INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

1 ACCOUNTING POLICIES (CONTINUED)

Expenditure

Expenditure is accounted for on accrual basis and inclusive of any VAT.

Charitable activities Include expenses relating to the charity's activities. These costs include both direct costs and support costs relating to these activities.

Governance costs

Governance costs comprise all costs involving the public accountability of the charity and its compliance with regulation and good practice. These costs include costs related to independent examination and legal fees and are included in expenditure on charitable activities in the Statement of Financial Activities.

Investments

Investments are included at market value with any realised or unrealised gain or loss arising taken to the Statement of Financial Activities as they arise. Realised gams and losses are calculated as the difference between sales proceeds and their opening carrying value, or purchase value if acquired subsequent to first day of the financial year. Unrealised gains and losses are calculated as the difference between the fair value at the year end and their carrying value. Realised and unrealised gains and losses are combined in the Statement of Financial Activities.

Tangible Fixed Assets

Assets with a value greater than £500 are capitalised at cost, being their purchase cost together with any incidental expenses at acquisition. in the balance sheet. Assets below this level are treated as expenditure and are included in the Statement of Financial Activities in the year the expenditure is incurred. Depreciation is provided for on all tangible fixed assets by equal instalments over their expected useful life:

Fixtures. Fittings & Equipment - 5 years

Financial instruments

The financial instruments of the charity comprise fixed asset investments, bank balances, including monies on deposit, debtors and creditors. Bank balances are accounted for on cash held and debtors and creditors are included at amounts settled after any discounts.

Fund accounting

Unrestricted funds comprise accumulated surpluses and deficits on general funds. They are available for use at the discretion of the Trustees in furtherance of the general charitable objectives.

These unaudited financial statements have been subjected lo Independent examination See report on pages 5 - 6

10

INTERNATIONAL lEAGUE AGAINST EPilEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

1 ACCOUNTING POLICIES (CONTINUED)

Irrecoverable VAT

The charity is not registered for VAT, therefore irrecoverable VAT is included with the costs to which it relates.

Taxation

International League Against Epilepsy (British Branch) is a registered charity, and as such its income and gains falling within Sections 471 to 489 of the Corporation Tax Act 2010 or Section 256 Taxation and Chargeable Gains Act 1992 are exempt from corporation tax to the extent that they are applied to its charitable objectives.

Operating leases Annual rentals are charged to the Statement of Financial Activities on a straight line basis over the lease term. Rent free periods are accounted for as a reduction to the expense and are recognised on a straight line basis over the lease term.

2 Income from charitable activities

2016 2015 £ £

Membership fees 20,146 19,237 Sponsorship received 80,473 128,075 Registrations received 122,828 46,835

223,447 194,147

These unaudited financial statements have been subjected to Independent examination. See report on pages 5 - 6

11

INTERNATIONAL lEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

3 Expenditure on Charitable activities 2016 2015

£ £

Meeting expenses 176,967 110,570 Prizes 4,640 4,158 Miscellaneous 1,348 792 Subscription and membership fees 757 752 Support and governance costs (note 4) 52,177 49,464 Donations 9,305 Depreciation 193

245,387 165,736

4 Support and governance costs

Included in expenditure on charitable activities is: 2016

£ 2015

£

Independent examination fees Secretarial and administration assistance Trustees expenses Website costs Accountancy Rent

3,600 38,723

930 4,167 3,240 1,517

3,600 30,043

397 12,304 3,120

52,177 49,464

These unaudited financial statements have been subjected to Independent examination. See report on pages 5 - 6

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INTERNATIONAL lEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

5 Staff costs

Included In expenditure on secretarial and administration assistance is:

2016 2015 £ £

Wages and salaries 38,051 28,221 Social security costs 45 364

38,096 28,585

The Trustees are considered to be the key management of the charity. Trustees received no remuneration during the year. (2016: £Nil). Trustees received reimbursement of expenses of £930 (2015: £397)

The average number of employees during the year was 2 (2015: 2)

No employees received emoluments exceeding £60,000 in the year (2015: none)

6 Tangible assets

Total £

Cost: AI 1 January 2016 Additions 966

AI31 December 2016 966

Depreciation: AI 1 January 2016 Charge for year 193

AI 31 December 2016 193

Net book value:

At 1 January 2016

AI31 December 2016 773

These unaudited financial statements have been subjected to independent examination. See report on pages 5 - 6

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INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

7 Investments

2016 £

2015 £

Opening market value at 1 January Net gain on revaluation

6,155 589

6,080 75

Closing market value at 31 December 6,744 6,155

The above represents 499 units In the CCLA Investment Management limited COIF Charity Funds.

8 Debtors 2016 2015

£ £

Debtors 1,800 794 Prepayments 188

1,800 982

9 Creditors 2016 2015

£ £

Conference expenses paid after date 4,904 29,617 Independent examiner's fee 4,500 4,500 Accruals 395 Salaries 1,623 PAYE Liability 712 423

10,511 36,163

These unaudited financial statements have been subjected to independent examination. See report on page 5-6

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INTERNATIONAL LEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

10 Financial Instruments

The carrying amount of the charity's financial instruments at the year end were:

2016 £

2015 £

Financial assets Debt Instruments measured at amortised cosI 1,800 794

Financial investments Financial liabilities measured at amortised cost 9,799 35.740

11 Analysis of charitable funds

At At Revaluation 31

1 January of investments December 2016 Income Expenditure 2016

£ £ £ £ £

Unrestncted funds 280.792 223,751 (245,387) 589 259,745

Total funds 280,792 223,751 (245,387) 589 259,745

Analysis of charitable funds for prior year

At At Revaluation 31

1 January of investments December 2015 Income Expenditure 2015

£ £ £ £ £

Unrestricted funds 252,047 195,406 (166,736) 75 280,792

Total funds 252,047 195,406 (166,736) 75 280.792

These unaudited financial statements have been subjected to independent examination. See report on pages 5 - 6

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INTERNATIONAL lEAGUE AGAINST EPILEPSY (BRITISH BRANCH)

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2016

12 Commitments under operating leases

The total future minimum lease payments under non-cancellable operating leases are as follows:

2016 £

2015 £

Within one year 7,980

7,980

These unaudited financial statements have been subjected to independent examination. See report on pages 5 - 6

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