rare disease day 2017 - eurordis.org

eurordis.orgeurordis.org

Lara Chappell, Communications Director

Rare Disease Day 2017

106/06/2016

eurordis.org

Rare Disease Day and the CNA

06/06/2016 2

• Recap of 2016

What worked? What can be improved?

• Theme for 2017

• Process of decision for 2017 and timeline

• Feedback

Webinar subjects?

Fundraising, corporate partners

Other questions?

eurordis.org

Rare Disease Day – global and growing!

06/06/2016 3

Events in over 80 countries – 10 new countries

Video translated in 34 languages

Over 300.000 video views

on social media

Website visits increased by

15%

Over 7 million people reached on social media

Springboard to advocate to

policy makers

Thank you for your participation!

RARE

DISEASE

DAY IN 85

COUNTRIES!

Collectively over 300,000 views (youtube and

facebook)

Over 4,500 shares on facebook!

eurordis.org

Recap of 2016

06/06/2016 9

• Marked by Publicis LifeBrands International

New way of organising campaign

« Creative concept » based around the video

Stronger visual identity

Communications materials linked – visuals taken to a new

level

Website user experience – web marketing improvement

• Result = more unified message!

Lithuania

South Carolina

Mauritius

ArabicGerman

y

Tanzania

eurordis.org

Process of decision and timeline

06/06/2016 12

• CNA decides year by year the slogan of Rare

Disease Day

A message which resonates on every continent

• Steering committee – currently 8 members

proposes the theme

adapts script

validates visuals

eurordis.org

2016-2019 – Themes for Rare Disease Day

06/06/2016 13

Patient Involvement

2016 Patient Voice

2017

2018?

2019?

eurordis.org

2016-2019 – Themes for Rare Disease Day

06/06/2016 14

Patient Involvement

2016 Patient Voice

2017 Research

2018?

2019?

eurordis.org

Timeline – year round preparation

06/06/2016 15

• March-April –your

participation!

• May – Theme

announced

• June – Creative

concept voted via email

• July –August – Script,

visuals, video

production

• September – video

translations, finalize

different versions

• November 20 –

Website launched

100 days of campaign

- video launched

• 22-23 February –

Multistakeholder

symposium, Brussels

• 28 February – Rare

Disease Day

eurordis.org

Changes this year

06/06/2016 16

• CNA voting a full concept

Publicis LifeBrands will propose slogans to steering

committee once the concept is voted

• Earlier timeline

Video teaser, visuals ready with website launch

• Let’s reach a wider public, but not lose our grass

roots patient-driven feeling

• Theme Ideas for 2018?

eurordis.org

Feedback

06/06/2016 17

• Questions?

• Webinar subjects?

• Private company funding events?