Upload File

rare disease infographics

7
RARE DISEASES BIG IMPACT R A R E D I S E A S E S W O R L D W I D E 7, 0 0 0 Source: National Institutes of Health

Upload: phrma-pharmaceutical-research-and-manufacturers-of-america

Post on 12-Jun-2015

3.212 views

Category:

Health & Medicine


2 download

Report

Tags:

DESCRIPTION

Breakdown of the numbers surrounding rare diseases and medicines being developed to treat them. Report was released on Monday, September 7, 2013.

TRANSCRIPT

Page 1: Rare disease infographics

RARE DISEASES BIG IMPACT

RARE DISEASES WORLDWIDE

7,000

Source: National Institutes of Health

Page 2: Rare disease infographics

RARE DISEASES BIG IMPACT

<200,000patients in the United States

BY DEFINITION, A RARE DISEASE AFFECTS

Source: National Institutes of Health

Page 3: Rare disease infographics

RARE DISEASES BIG IMPACT

30 MILLION

1 IN 10 AMERICANS

IN TOTAL, RARE DISEASE IMPACT

Source: National Institutes of Health

Page 4: Rare disease infographics

RESEARCH PROGRESS HOPE

RARE DISEASES BIG IMPACT

1983

ORPH

AN DRUG ACT 2,900 ORPHAN DRUG DESIGNATIONS

SINCE 1983, NEARLY

Source: Office of Orphan Products Development, Food and Drug Administration

Page 5: Rare disease infographics

RARE DISEASES BIG IMPACT

A GOOD START, but

400FDA TREATMENTS APPROVED

<5% RARE DISEASES HAVE A TREATMENT

of

Source: Food and Drug Administration, EveryLife Foundation for Rare Diseases

Page 6: Rare disease infographics

RARE DISEASES BIG IMPACTRARE DISEASES BIG IMPACT

medicines& vaccines indevelopment

452

Source: PhRMA, 2013 Rare Diseases Report

Page 7: Rare disease infographics

RARE DISEASES BIG IMPACT

HOPE

PROGRESS

RESEARCH

Source: PhRMA


Presentation Rare Disease Special Interest Group · 11/18/2015  · ISPOR Milan Rare Disease Special Interest Group Presentation 11/18/2015 4 Rare Disease Terminology & Definitions:

Rare Disease Day - TreatSMA

Case Report Rare Manifestation of a Rare Disease, Acute

Rare Disease Caregiving in America · Rare Disease Caregiving in America 1 Acknowledgments The National Alliance for Caregiving (NAC) is proud to present Rare Disease Caregiving in

Rare Disease Drug Development Solutions...RARE DISEASE DRUG DEVELOPMENT SOLUTIONS Combining extensive rare disease clinical trial experience with actionable, patient-centric approaches

Ultra-rare cystic disease - err.ersjournals.com

The Art & Science of Evidence Rare Disease: An integrated ... · A patient-centric approach to rare disease recruiting 10 Faster recruiting for rare disease research 14 Patient advocacy

RARE DISEASE KNOWLEDGE AND PERCEPTIONS

Genetic Alliance UK/ Rare Disease UK

Small 2013 Rare Disease Poster 1

100,000 Genomes Project Rare Disease Programme · 100,000 Genomes Project Rare Disease Programme Dr Richard Scott Clinical Lead for Rare Disease, Genomics England ... Report QA Test

Ascpt rare disease talk 2016

neurological rare DiSeaSe SPECIAL REPORT

RARE DISEASE FACTS NORD - Rare Action Network | Home...RARE DISEASE FACTS NORD® RARE Learn more at rarediseases.org INSIGHTS TM There are approximately 7,000 RARE DISEASES 2 MANY

Rare Disease Day 2017 - eurordis.org

Rare Voices Australia Ltd - Microsoft...Rare Voices Australia (RVA) is Australia’s peak body for rare disease, advocating for Australians living with rare disease. We provide a strong,

A5 - Rare disease - Bagchi - Salon D

Rare Disease Impact Report:

Rare Disease Day Conference 2020...Rare Disease Day Conference 2020 March 9 - 10, 2020 Delta Hotels Ottawa City Centre Every four years we celebrate Rare Disease Day on that very rare

Rare disease day 2011 highlights

Citizen Science and Rare Disease Research

The Global Burden of Disease England Infographics

NIH Rare Disease Day Poster

IanIan Ian Kyle Friedreich’s Ataxia Pfizer Rare Disease ... · Pfizer Rare Disease is committed to transforming the lives of the rare disease community through life-changing innovations,

Rare Disease Day 2017 · Rare Disease Day 2017 March 30 - 31, 2017 Sheraton Vancouver Wall Centre ... • The Strategy was acknowledged by Parliament on Rare Disease Day 2016 and

Prion disease: A Rare Phenomena

Rare Disease Day 2021 Information Pack

Fahr's disease: A rare neurological disease

Patient involvement in rare disease research

RARE DISEASE AND ORPHAN DRUG REGISTRIES

Rare Disease

Rare Disease Day Webinar

Informative censoring in a rare disease

Understanding Rare Disease Registries - Global Genesglobalgenes.org/.../Webinar_Understanding-Rare-Disease-Registries... · Understanding Rare Disease Registries Part 1 July 31, 2013

Rare Disease Day Conference 2016 · 2016-03-09 · Rare Disease Day Conference 2016 Canada’s Rare Disease Strategy: Building on Success March 9 – 10, 2016 Sheraton Ottawa Hotel