inclusion time spring issue 2014
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Spring 2014
!
P.8
P.12
P.4
EDITOR-IN-CHIEF
Jonathan Rossell
SENIOR EDITOR
Bernardo Pace
ASSOCIATE EDITOR
Gina Abraham
EDITORIAL ADVISOR
Dr. Joseph Coppolo Jr.
EXEC. ACCOUNTANT
Laura Paternostro
DESIGNER
Jonathan Rossell
OFFICE ASSISTANTS
Sarah Moretti
William Chapnick
EDITORIAL
CONSULTANTS
John Bilotti
James Allocco
Joseph DeVivo
Jennifer Brown
Danielle Kasday
Danielle Tedesco
Michael Urkonis
Randy Yhap
VOLUNTEER COORDINATOR
Joelle Bilotti
*A special thanks to everyone at the ICC Day Habilitation Program; including mainte-nance staff, job trainers, group supervisors, administrative staff, and, of course, program participants. Without your cooperation and support, Inclu-sion Time’s publication would not be possible.
Inclusion Time prints quarterly. Reproduction of Inclusion Time, in whole or part, is prohibited without written consent by On Your Mark, Inc. Inclusion Time and/or On Your Mark, Inc. are neither responsible for, nor endorse statements made by advertisers, writers, etc. Inclusion Time is not liable for any negative encounters or experiences that may occur.
Editor Letter
Sunday, September 28, 2014
College of Staten Island
WalkNowForAutismSpeaks.org/StatenIsland/teamonyourmark
Join our team and help us reach our goal.
Contact Jonathan Rossell
at 718-720-9411 Ext. 5100
Honoring
Lizette Colon
& Judge David G. Trager Memorial Community
Recognition Award Recipient
Roy Raineri
Saturday evening, April 12, 2014
Registration & Raffle Sales 6:30
- Cocktails 7:00 - Dinner 8:00
The Hilton Garden Inn, Staten Island, New York
For more info contact Helen DiPaolo @ 718-720-9233 ext. 5017
Spring has finally sprung and many of us will participate in a tradition known as
spring cleaning! Spring cleaning is very symbolic to the changes that occur in our lives
around this time; the time goes forward, days seem longer, trees grow leaves, and most
importantly, the temperature rises. These seasonal changes occur throughout a short
period of time and most people are able to cope with these changes.
Some individuals use routines and schedules to help cope with change. Developing routines gives the
opportunity to prepare for change, make necessary adjustments, and alleviate the stress that comes with
it. There are many ways to develop and properly use a routine, especially in the lives of individuals with
developmental disabilities. There are many helpful ways to establish routines including picture activity
schedules and other written schedules as well as the use of communication devices and communication
applications on smartphones or tablets. Check out our articles for more information on routines and
schedules, the benefits of routines, and insight from a participant of the On Your Mark Day Hab Program.
Easter and Passover, other Spring traditions, can be a fun time for parents and children alike. At times it
may be difficult for our individuals to participate in holiday events, but there are many creative ways to
modify activities and events to make it fun for everyone! Check out the articles on pages 4 & 14 for more
details on how to everyone in your Easter and Passover fun!
For more information visit www.inclusiontimeoym.com or email us at inclusiontime@onyourmark.org!
: Like us @inclusiontime_oym Jonathan Rossell Editor-in-Chief
Easter Egg Hunt
Work on Skills While
Having Fun
Neighborhood Egg Hunt
“Here to help the you find a loan that fits your unique needs, while easing loan-
process anxiety.”
THOMAS BILOTTI
TBILOTTI@ADVISORSMORTGAGE.COM
WWW.ADVISORSMORTAGE.COM/SI
How to Modify Easter Activities for
Individuals with Special Needs
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Educate the Community
Decorating Easter Eggs
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How to Modify Easter Activities for
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W e all have routines in our daily lives. Many of us
wake up in the morning, make coffee, take a
shower, get dressed and eat breakfast before heading to
work. A routine is a plan for the flow of your day more than a
rigid schedule for every minute of the day. Developing,
maintaining and executing an effective routine helps adults
have a productive day. In the same vein, children thrive in
an ordered and predictable home environment, where their
care-givers approach daily routines, such as mealtimes,
sleep times, eating, playing and toileting, with predictability.
Routines are where young children do most (if not all!) of
their learning.
“Routines…are really important for all children,” said Mag-
gie Collins, who has worked at the Family Child Learning
Center for nine years as an Early Intervention Specialist,
“We want children to feel comfortable in their routines so
they can learn and grow up to their fullest potential.” Collins
noted that, due to their repetitive and consistent nature,
routines are particularly helpful for children with special
needs. “Having consistent routines helps a child have more
opportunities to learn,” said Collins. “Sometimes, children
with special needs can benefit from the additional practice.
The best thing about opportunities during daily routines is
that they are naturally occurring times that happen daily in
the natural rhythms of a child’s own home life.” Learning to
use and understand language, gaining a sense of security
and stability, building self confidence, anticipating daily
events and transitions, and even decreasing challenging
behaviors are some of the benefits of effective routines,
according to Collins and Amy Soranno, who is also an Early
Intervention Specialist at Family Child Learning Center. The
pair works with families who have children ages birth to 3
with developmental delays and diagnosed disabilities.
The mission of Early Interven-
tion is to “assist family mem-
bers and caregivers to enhance
children’s learning and develop-
ment through everyday learning
opportunities” (OSEP Communi-
ty of Practice, 2008). In other
words, Early Intervention should
focus on routines! The profes-
sionals working with the child
should guide caregiv-
ers on ways “to help
facilitate their child’s
development based
on each family and
child’s individual
needs,” said Soran-
no, who has worked
at FCLC for seven
years. Soranno said
that routines can help
“influence a child’s
emotional, cognitive,
and social develop-
ment” and she believes that routines can particularly aid
children in understanding and learning to use language,
through the adult’s use of providing simple, predictable
phrases for each step of a routine as they are performed in
the home (“Brush teeth,” “Diaper on”). Soranno added, “It
doesn’t matter what the phrase is, as long as it’s the same
phrase every time.” For each routine, Collins said children
would begin to anticipate the “routine and the language as-
sociated with it and they are more likely to imitate and use
those words first.” When Collins executes routines with her
2-year-old-daughter Molly (who has unilateral hearing loss),
she is “very, very aware…about language in the routine.”
Not just because of the language associated with the rou-
tines but other functions of language, such as listening and
following directions, said Collins.
Additionally, routines allow children to not only hear the
same words repeatedly, but it can help ease their anxiety
when they are able to predict the next activity in their day,
said Collins. “It helps calm and regulate children when they
know what the future holds,” added Soranno. In this way,
routines can be reassuring as they
help children anticipate what is
coming next.
Along with feelings of security dur-
ing routines comes a corresponding
increase in pride and accomplish-
ment that develops through repeat-
edly engaging and successfully per-
forming in parts of their daily rou-
tine. For example, if a child strug-
Routines Help Children With Special Needs.
WWW.INCLUSIONTIME.COM 8
By: Peter Keren
gles with teeth brushing one day, but is able to have repeat-
ed opportunities and practice this same activity day after
day, over time the child will begin to gain more independ-
ence and pride from being more and more successful.
Soranno noted that she and Collins spend a great deal of
time with caregivers discussing with them what their daily
routines already look like. Soranno explained that once she
and Collins “better understand what a family’s routine con-
sists of, they can help the family modify the routine within
the context of the family’s current needs and priorities.” If a
family is struggling with bedtime, the FCLC Early Interven-
tion Specialist would have conversations with the family
about what bedtime looks like currently and how the family
might try to change the routine so it goes more smoothly
and can be more effective for the family, al-lowing the child
to learn new skills.
Collins emphasized that a challenge for all parents of chil-
dren with special needs is to engage in daily routines that
provide consistency and security, yet also remain flexible
and responsive to the individual
needs of their family life and
child. With her own family,
Soranno said she lives “by
the clock” while engag-
ing in her daily rou-
tines. Collins ex-
plained she finds her-
self a little less by the
clock but “has a pre-
dictable and set daily
schedule.” Both em-
phasized that there is
not a set template for
carrying out routines.
Parents should do what
works for them and their
children based on their family’s
goals and needs. Collins added that it is key for early inter-
vention professionals to work with parents in a collabora-
tive manner to fine-tune their already existing routines ra-
ther than changing the style and personality of each individ-
ual family. Together, professionals and parents can adapt
the family’s already existing routines to both match the
child’s developmental level and provide the child with a
predictable framework that will allow him or her to achieve
his fullest potential. Families can provide increased oppor-
tunities to their children for learning that is reflective of
their already existing daily lives.
Six Benefits of Using Routines
Taken from Dr. Laura Mark-ham’s website:
http://www.ahaparenting.com/
1. Routines eliminate power struggles because you aren't
bossing them around. This activity (brushing teeth, napping,
turning off the TV to come to dinner) is just what we do at
this time of day. The parent stops being the bad guy, and
nagging is greatly reduced.
2. Routines help kids cooperate by reducing stress and anx-
iety for everyone. We all know what comes next, we get fair
warning for transitions, and no one feels pushed around.
3. Routines help kids learn to take charge of their own ac-
tivities. Over time, kids learn to brush their teeth, pack their
backpacks, etc., without constant reminders. Kids love be-
ing in charge of themselves. This feeling increases their
sense of mastery and competence. Kids who feel more in-
dependent and in charge of themselves have less need to
rebel and be oppositional.
4. Kids learn the concept of "looking forward" to things they
enjoy, which is an important part of making a happy accom-
modation with the demands of a schedule. He may want to
go to the playground now, but he can learn that we al ways
go to the playground in the afternoon, and he can look for-
ward to it then.
5. Regular routines help kids get on a schedule, so that
they fall asleep more easily at night.
6. Schedules help parents maintain consistency in expecta-
tions. If every-thing is a fight, parents end up settling: more
TV, skip brushing teeth for tonight, etc. With a routine, par-
ents are more likely to stick to healthy expectations for eve-
ryone in the family, because that's just the way we do
things in our household. The result: a family with healthy
habits, where everything runs more smoothly!
WWW.INCLUSIONTIME.COM 9
Written By: Kevin Wismer
Through Their Eyes
Our specialty is caring for people with developmental disabilities.
Extended Home Care can help each individual reach their
maximum potential.
You want your family member, young or old, to have the best possible quality of life. But accessing
all the right services for people with Developmental Disabilities can be very challenging. Ex-
tended Home Care is specially licensed to serve cognitively and neurologically impaired
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Extended Home Care serves children and adults with:
900 South Ave. Staten Island New York 10314
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Kevin Wismer, a participant at the On Your Mark Day Habilitation Program on Staten Island, shares
his take on routines and how they allow him to overcome daily life obstacles and changes.
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COMMUNITY HABILITATION:
A Very Special Place
Center for Family Support
Community Resources
Crossroads Unlimited, Inc.
Lifestyles for the Disabled
Modest Community Services Association
On Your Mark, Inc.
United Cerebral Palsy/New York
DAY SERVICES(4-21 YEAR OLD):
Eden II
Jewish Community Center of S.I.
DAY SERVICES (21+ YEARS OLD):
A Very Special Place
AHRC
Center for Family Support
City Access
Community Resources
Crossroads Unlimited, Inc.
Eden II
Heartshare
Independent Living Association
Lifespire
Lifestyles for the Disabled
Modest Community Services Association
On Your Mark, Inc.
Person Centered Care Services
United Cerebral Palsy/New York
EARLY INTERVENTION:
Challenge Early Intervention Center
Community Resources
Eden II
Elizabeth W. Pouch Center
Gingerbread Learning Center
Heartshare
Jewish Community Center of S.I.
The GRACE Foundation
FAMILY SUPPORT:
Center for Family Support
On Your Mark
FAMILY EDUCATION & TRAINING:
A Very Special Place
Center for Family Support
Person Centered Care Services
The GRACE Foundation
United Cerebral Palsy/New York
MEDICAID SERVICE COORDINATION:
A Very Special Place
Center for Family Support
Community Resources
Community Unlimited
Eden II
Heartshare
Independent Living Association
Lifespire
Lifestyles for the Disabled
Modest Community Services Association
On Your Mark, Inc.
Person Centered Care Services
The Grace Foundation
United Cerebral Palsy/New York
RECREATION:
A Very Special Place
Community Resources
Heartshare
Modest Community Services Association
On Your Mark, Inc.
The GRACE Foundation
United Cerebral Palsy/New York
RESPITE:
A Very Special Place
Center for Family Support
City Access
Heartshare
Lifespire
Lifestyles for the Disabled
Person Centered Care Services
The GRACE Foundation
RESOURCES & INFORMATION:
Parent-to-Parent
Inclusion Time
Resources We understand how busy life can get, so we’ve done the research for you!
Below is a list of services provided by various volunteer agencies who serve
local individuals with developmental disabilities.
Services may have seasonal enrollment
and/or limited space. Contact infor-
mation about these organizations is
provided on following page.
A Very Special Place
718-987-1234
49 Cedar Grove Ave
Staten Island, NY 10306
info@avspny.org
AHRC
212-780-2500
83 Maiden Ln
New York, NY 10038
webmaster@ahrcnyc.org
Center for Family Support
718-667-4263
88 New Dorp Plaza Suite 101
Staten Island, NY 10306
mmazzocco@cfsny.org
Challenge Early Intervention Center
718-851-3300
1911 Richmond Ave
Staten Island, NY 10314
S.Ibel@challenge-el.com
Child Study Center of NY
718-442-8588
33 White Place
Staten Island, NY 10310
*No E-mail listed on website.
City Access New York
718-285-6548
1207 Castleton Ave
Staten Island, NY 10310
*No E-mail listed on website.
Community Resources
718-447-5200
3450 Victory Blvd
Staten Island, NY 10314
comres@si.rr.com
Crossroads Unlimited, Inc.
718-420-6330
1207 Castleton Ave
Staten Island, NY 10310
*No E-mail listed on website.
Eden II
718-816-1422
150 Granite Ave
Staten Island, NY 10303
*No E-mail listed on website.
Elizabeth W. Pouch Center
718-448-9775
657 Castleton Ave
Staten Island, NY 10301
info@simhs.org
Gingerbread Learning Center
718-356-0008
471 N. Gannon Ave
Staten Island, NY 10314
gingerbreadlearn@aol.com
Heartshare Human Services
718-442-4200
12 Metro Tech Center 29th Fl.
Brooklyn, NY 11201
info@heartshare.org
Independent Living Association
718-852-2000
110 York St.
Brooklyn, NY 11201
info@ilaonline.org
Jewish Community Center of Staten Island
718-475-5273
1466 Manor Rd
Staten Island, NY 10314
slipton@sijcc.com
Lifespire
212-741-0100
1 Whitehall St 9th Fl
New York, NY 10004
info@lifespire.org
Lifestyles for the Disabled
718-983-5351
930 Willowbrook Rd 12-G
Staten Island, NY 10314
info@lfdsi.org
Modest Community Services Association
718-447-8200
88 New Dorp Plaza Suite 202
Staten Island, NY 10306
info@modestservices.org
On Your Mark, Inc.
718-720-9233
645 Forest Ave
Staten Island, NY 10310
inclusiontime@onyourmark.org
Parent-to-Parent
718-494-4872
1050 Forest Hill Rd
Staten Island, NY 10314
siptp@aol.com
Person Centered Care Services
718-370-1088
40-A Marble Loop
Staten Island, NY 10309
info@pccsny.org
Richard H. Hungerford School
718-273-8622
155 Tompkins Ave.
Staten Island, NY 10308
*No E-mail listed on website.
The GRACE Foundation
718-983-3800
264 Watchogue Rd.
Staten Island, NY 10314
dawnbatgrace@aol.com
United Cerebral Palsy/NYC
718-442-6006
281 Port Richmond Ave
Staten Island, NY 10302
projectconnect@ucpnyc.org
Information based on agency websites and
subject to change without notice. Inclusion
Time and/or On Your Mark is not affiliated
with or does not endorse any other agen-
cies practices or beliefs. Inclusion Time is
not liable for negative encounters or expe-
riences that may occur.
Resources
WWW.INCLUSIONTIME.COM 13
Feel free to contact these agencies for more information.
Oscar Weissglass Memorial Seder
● ●
●
Four Children: Many Abilities by Sara Rubinow Simon
Business Corner
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Questions? Concerns? Suggestions?
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645 Forest Avenue
Staten Island, NY 10310
(718) 720-9233
Fax (718) 720-9331
Dr. Joseph Coppolo
Director of Clinical Services
drcoppolo@onyourmark.org
- Catherine Pulsifer -The Social Inclusion Act, Canada
645 Forest Ave.
Staten Island, NY 10310
718-720-9233 ● Ext. 5107
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