i am still me i can understand - engaging dementia€¦ · hospital • national dementia office...

I am still me

I can understand

I can manage

Development of a psycho-educational post

diagnostic programme using a salutogenic

approach

Catherine Daly, Senior Occupational Therapist, HSE Primary Care

catherinekeogh.daly@hse.ie 086-1453678

Set your Intention

Find your tribe

Find your framework

Set to work

Set your Intention

O Less about the

symptoms – more

about the person

O Diagnosis being a

part of you, but not

all of you

O Living alongside

dementia and living

that life well

O “Hope is a decision

you make” (Ronan Smyth)

• Primary Care Occupational Therapy

Department – Dublin South City

• Department of Age Related

Healthcare – Tallaght University

Hospital

• National Dementia Office

• DCCN and IDWG (ASI)Kathy Ryan

Model of Human Occupation

Sense of CoherenceMy world has

meaning

My world is

understandable

My world is

manageable

I am still me

I can understand

I can manage

Sense of Coherence

Kitwood’s Enriched Model of Dementia

Set to Work

Instead of counting my days,

I’m going to make my days count

Kathy Ryan

ReferencesO Becker, C., Glascoff, M.A. & Felts, W.M. (2010). Salutogenesis 30 years later: Where do we go from here?

International Electronic Journal of Health Education, 13: 25-32

O Bielsten, T., Lasrado, R., Keady, J., Kullberg, A. & Hellstrom, I. (2018) Living Life and Doing Things Together: Collaborative research with couples where one person has a diagnosis of dementia. Qualitative Health Research. Vol. 28 (11) 1719-1734

O Clare, L. (2002). We’ll fight it for as long as we can: coping with the onset of Alzheimer’s disease. Aging and Mental Health; 6 (2): 139-148

O Fleming, R. (2017). Shifting the focus of care to wellness. Australian Ageing Agenda (online)

O Gibb, M., O’Caheny, D., Craid, C., & Begley, E. (2019). The Next Steps: Dementia post-diagnostic support guidance. Tullamore: National Dementia Office

O Kielhofner, G. (2002). A Model of Human Occupation: Theory and Application. 3rd Edition. Lippincott, Williams and Wilkins

O Mountain, G. & Craig, C. (2012) What should be in a self-management programme for people with early dementia? Aging and Mental Health, Vol 16, No.5, 576-583.

O O’Shea, E., Keogh, F. & Heneghan, C. (2018). Post Diagnostic support forpeople with dementia and their carers. Centre for Economic and Social Research on Dementia. Tullamore: National Dementia Office.

O Robinson, L, Clare, L & Evans, K. (2005). Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging and Mental Health, 9 (4): 337-347

O Romero, B & Wenz, M. (2010). Self-maintenance therapy in Alzheimer’s disease. Neuropsychological Rehabilitation, 11 (3) 333-355.

O Sprange, K., Mountain, G., Shortland, K., Craig, C., Blackburn, D., Bowie, P., Harkness, K. & Spencer, M. (2015). Journeying though Dementia, a community-based self-management intervention for people aged 65 years and over: a feasibility study to inform a future trial. Pilot and Feasiblity Studies, 1:42