healthcare heal thyself - the patient as the hub of a new health system

Healthcare Heal Thyself!Are You Prepared for the Consumer-driven Revolution?

Mark Scrimshire @ekivemark

R LESHHS Entrepreneur-in-Residence

Medyear CTO &Co-Founder

HealthCa.mp Chief Instigator

Ski Instructor

Big Data & Cloud Technologist

Health & Social Data Ninja

@ekivemark

@ekivemark

DisclaimerThe views expressed in this presentation are my own personal views and should not be construed as an official position of the US Department of Health and Human Services or the Centers for Medicare and Medicaid Services.

3

HealthCare is complicated

... because the patient is

usually excluded@ekivemark

YOUOne Common Factor…

Consumerism

Technology Data Policy

Regulatory

EconomicFive Transformational Changes in Health

@ekivemark

A Tipping Point is coming…

Consumer Industry

RetailPHR

Devices

Genome

EHR

@ekivemark

will be the hubY U

@ekivemark

“The new health care infrastructure must be built on independent and autonomous patients, not on systems that surround and subordinate patients. Once it is, the systems will be vastly improved, and far more profitable for all.”

Doc Searls - Cluetrain Manifesto

@ekivemark

@ekivemark

Consumers are still kept in the dark

Joachim @ daysoff.wordpress.com

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http://healthca.mp

$

A decision without Information…

@ekivemark

"Patient Engagement is the

Blockbuster Drug of the Century"

@LeonardKish

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A tough economy drove rapid adoption of High Deductible Health Plans

Consumer-Directed

81%

72%

2014

2015

@ekivemark

17.4%

Health Affairs Magazine

HealthCare percentage of GDP in 2013

$2.9T

@ekivemark

CBO.gov

Medicare shifts to Value-based Pay

$585B@ekivemark

Sensors are becoming commodities @ekivemark

Observations ofDaily Living

ODL

http://healthca.mp

@ekivemark

@ekivemarkhttp://healthca.mp

Blue Button Unleashes Personal Data

http://healthca.mp

2010

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…but it left the patient doing the heavy lifting

An Essential First Step

@ekivemark

@ekivemark

https://leicalady.files.wordpress.com/2010/08/annie-­‐admiring-­‐paintingsmall.jpeg

People don’t want their data for it’s own sake…

@ekivemark

Our Health data should be a valuable toolwe put to good use

http://commons.wikimedia.org/wiki/File:Toolbox_(6788494881).jpg

@ekivemark

JSON and the Argonauts: A New ApproachFHIR Fast Healthcare Interoperability Resources Project Argonaut • Open source • Industry Heavyweight adoption • Public/Private partnership

REST API Lightweight web services Read AND write

OAuth Traceability Popular Authorization protocol Familiar to users Layered Authorization

BlueButton Structured Data: JSON XML @ekivemark

Innovators are already creating Personal Health Hubs

and a SMART api ecosystem…

@ekivemark

<XML>BlueButton  CCDA</XML>

FHIR. “Resources” are: • Granular concepts • Managed in isolation, or

aggregated into complex documents

• Designed for the web • Simple XML or JSON

structures • HTTPS-based RESTful

protocol • Predictable URLs • Using open internet

standards for data representation

• Authorization via OAuth

BBonFHIR: One Platform – Two Services

OAuth 2.0: • Defeats the

password anti-pattern

• Creates a consistent, flexible identity and policy architecture

• Suited to web applications, web services, devices and desktop clients communicating with Cloud APIs.

{“json”:”format”} <xml>format</xml>

BLUEBUTTON ON FHIR

@ekivemark

Follow our progress, join us and contribute

• Structured File Formats:• ( https://github.com/ekivemark/claims )

• BlueButton Text to JSON Converter:• ( https://github.com/ekivemark/python-bluebutton )

• Developer Code of Honor:• ( http://2.healthca.mp/1GjOUsY )

• HL7 - FHIR• ( http://www.hl7.org/implement/standards/fhir/http.html )

• Developer.HealthCa.mp• Washington DC: May 30, 2015• http://healthca.mp/dev

@ekivemark

There are big opportunities

54,000,000Medicare Beneficiaries (2014 est.)

@ekivemark

Are you ready for the Personal Health Hub?

Y U

@ekivemark

Big Data, Little Data and Data Flows all represent Opportunities in the new paradigm

@ekivemark

@ekivemark

Mark Scrimshire HHS Entrepreneur-in-Residence (CMS)

@ekivemark http://ekivemark.com

mark.scrimshire@cms.hhs.gov 703.623.2789

Find out more about#BlueButton on FHIR}{ @