e-patient bill of rights webinar

E-Patient Bill of RightsProject Overview and Next Steps

Mark BardDigital Health Coalition

Agenda

• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)

• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org

• Next Steps with the Project

Jay Goldman

Lucie Leblois

Mark Bard

Agenda

• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)

• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org

• Next Steps with the Project

Roundtable Participants

• Eileen Bailey (healthcentral.com/profiles/c/1443)• Mark Bard (digitalhealthcoalition.org)• Alex Baldwin (healthcentral.com/about/alex-baldwin/)• Ann Bartlett (healthcentral.com/profiles/c/9993)• Phil Baumann (philbaumann.com)• Robert Breining (poziam.org)• Dave deBronkart (epatientdave.com)• Bob Brooks (wegohealth.com )• Bennet Dunlap (ydmv.net)• Lisa Emrich (brassandivory.org)• Jay Goldman (klickpharma.com)• Joe Farris (digitalhealthcoalition.org)

Roundtable Participants

• Amy Gurowitz (mslol.wordpress.com) • PJ Hamel (healthcentral.com/profiles/c/78)• Mark S. King (myfabulousdisease.com)• Sarah Krug (e-patients.net)• Lucie Leblois (healthcentral.com/about/lucie-leblois/)• Tiffany Peterson (www.tiffanyandlupus.com)• Jenny Pettit (myuiiblog.blogspot.com)• Casey Quinlan (mightycasey.com)• Teri Robert (helpforheadaches.com)• Rudy Sims (rudysims.com)• Michael Weiss (hospitalpatient.com)• Kelly Young (rawarrior.com)

Photos from 9/19 Roundtable Copyright© Klick 2011 All Rights Reserved

Photos from 9/19 Roundtable Copyright© Klick 2011 All Rights Reserved

“Story” Boards Graphic Recording by www.imagethink.net

Graphic Recording by www.imagethink.net

Graphic Recording by www.imagethink.net

Graphic Recording by www.imagethink.net

Principle #1

• Shared access to my data

Principle #2

• Attitude of collaboration and overall respect

Principle #3

• The patient is the largest stakeholder

Principle #4

• Transparency and authenticity across all areas

Principle #5

• Voice of the patient is a legitimate (clinical) source

Principle #6

• The right to efficient communication with providers who utilize the technology that we need

Graphic Recording by www.imagethink.net

Graphic Recording by www.imagethink.net

Facebook Page

www.epatientbillofrights.org

Facebook Page

www.epatientbillofrights.org

Agenda

• Introduction from Jay Goldman (Klick) • Introduction from Lucie Leblois (HealthCentral)

• Project Overview from Mark Bard (Digital Health Coalition)• Motivation for Project • September 19 Workshop• The Initial 6 Principles• The Facebook Page – www.epatientbillofrights.org

• Next Steps with the Project

Next Steps

• Using Facebook for outreach/education• Listening to the market in Q4• Incorporating feedback from

physicians• Incorporating feedback from pharma

and device companies • Working towards white

paper/principles in early 2012

E-Patient Bill of RightsProject Overview and Next Steps

Questions?