biological domains - the internet of human beings as the new big data
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The Internet of Human Beings July 30, 2013 | California
Biological Domains
& Big Data
Alice Rathjen, CEO, Founder DNA Guide
Alice Rathjen © 2013 -
How Genetic Data Will Force Health Records To Evolve
2023 2013 Research Institutes
Government IDs / Passports
Electronic Health Records
Biometric Access/ E-Commerce
Ancestry
Online Identity Services
Citizen Science
Patient Advocacy Sites
Non-Govt. Health Organizations
Disaster Response / Epidemics
Gaming (DNA avatars)
2 Billion Genomes in 10 Years Will Transform Information Flows of the Web
Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars
The Current Web
The Future Web
Mobile Internet of
Things
Search
E Commerce
Social
Biological Network - Internet of
Human Beings
The Old Web
Solving Health Care IT for the Future Web
Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -
What Happens Once Genetic Data
is Added to a Health Record?
Health Record
Genetic Dataset
“Sticky” Universal
Health Record
Alice Rathjen © 2013 -
Health Data Becomes Identifiable
Big Data = Big Liability
Health Record
Genetic Dataset
De-identified
Data
De-Identified
Data
Alice Rathjen © 2013 -
Solution : Health IT Network =
Biological Domain Registrar
Health Record
Genetic Dataset
Portable Patient Health
Record (patient picks
trusted registrar)
Alice Rathjen © 2013 -
Real Time Consent
Future Health Record
Human = Node On The Network
Biometric
Map of the Body
Map of the Genome
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2013 -
Mobile/Visual Maps of Body & Genome
Information Organized
by Location & Time
Patient Raw Data
Stored Separately
Dynamic Interpretation
& Reports
Easy Adoption
Needs to be able to
Scale Indefinitely
Alice Rathjen © 2013 -
Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete (by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone
PG = Physician Guidance
R = Restricted
(Medical Ethics, Counselor)
Category Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -
Exponential
Growth
Patient Data • Imaging
• Remote Sensors
• Cancer Tumor Analysis
• Drug Response
• Disease Risk
• Carrier Testing
• Life Style
• Environment
Alice Rathjen © 2013 -
User Accounts Biological Domains
Old Big Data vs. New Big Data
just data JUST DATA Alice Rathjen © 2013 -
The Internet of Human Beings July 30, 2013 | Sebastopol, California
Biological Domains & Big Data
Alice Rathjen, CEO, Founder DNA Guide
Patient Health Information with Real Time Consent
Alice Rathjen © 2013 -
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