biological domains - the internet of human beings as the new big data
DESCRIPTION
Describes how patient genetic data will cause health records to evolve into biological domains. Suggests genomes could disrupt current information flows on the web - with human beings moving from user accounts to nodes on the network with real time consent.TRANSCRIPT
The Internet of Human Beings July 30, 2013 | California
Biological Domains
& Big Data
Alice Rathjen, CEO, Founder DNA Guide
Alice Rathjen © 2013 -
How Genetic Data Will Force Health Records To Evolve
2023 2013 Research Institutes
Government IDs / Passports
Electronic Health Records
Biometric Access/ E-Commerce
Ancestry
Online Identity Services
Citizen Science
Patient Advocacy Sites
Non-Govt. Health Organizations
Disaster Response / Epidemics
Gaming (DNA avatars)
2 Billion Genomes in 10 Years Will Transform Information Flows of the Web
Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars
The Current Web
The Future Web
Mobile Internet of
Things
Search
E Commerce
Social
Biological Network - Internet of
Human Beings
The Old Web
Solving Health Care IT for the Future Web
Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -
What Happens Once Genetic Data
is Added to a Health Record?
Health Record
Genetic Dataset
“Sticky” Universal
Health Record
Alice Rathjen © 2013 -
Health Data Becomes Identifiable
Big Data = Big Liability
Health Record
Genetic Dataset
De-identified
Data
De-Identified
Data
Alice Rathjen © 2013 -
Solution : Health IT Network =
Biological Domain Registrar
Health Record
Genetic Dataset
Portable Patient Health
Record (patient picks
trusted registrar)
Alice Rathjen © 2013 -
Real Time Consent
Future Health Record
Human = Node On The Network
Biometric
Map of the Body
Map of the Genome
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2013 -
Mobile/Visual Maps of Body & Genome
Information Organized
by Location & Time
Patient Raw Data
Stored Separately
Dynamic Interpretation
& Reports
Easy Adoption
Needs to be able to
Scale Indefinitely
Alice Rathjen © 2013 -
Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete (by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone
PG = Physician Guidance
R = Restricted
(Medical Ethics, Counselor)
Category Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -
Exponential
Growth
Patient Data • Imaging
• Remote Sensors
• Cancer Tumor Analysis
• Drug Response
• Disease Risk
• Carrier Testing
• Life Style
• Environment
Alice Rathjen © 2013 -
User Accounts Biological Domains
Old Big Data vs. New Big Data
just data JUST DATA Alice Rathjen © 2013 -
The Internet of Human Beings July 30, 2013 | Sebastopol, California
Biological Domains & Big Data
Alice Rathjen, CEO, Founder DNA Guide
Patient Health Information with Real Time Consent
Alice Rathjen © 2013 -