Making Australia better for people with intellectual

disability

Systemic advocacy

NSW CID

Who are we?

What role do people with intellectual disability have?

What we do

InformationYou can call us

Information on our websiteLike Healthier Lives Fact Sheets

ProjectsLike

Systemic advocacy –Making Australia better for people with

intellectual disability

Better disability support Changing mainstream

services Changing the

community Changing laws

Who sets the agenda?

• Governments set the agenda

• And we set the agenda– Health– People in trouble with the police– NDIS and people on the fringe

How do we advocate? We get the evidence

We work with allies

We set a goal and some first steps

We try to be– Assertive– Constructive– Practical– Persistent

Healthier lives campaign in NSW“Stark health inequalities” say our members and researchers

People die young

Health problems not diagnosed or treated

Doctors don’t understand and are too rushed

BUT changing the health system is hard!

2002 - Conference with Ombudsman

Advocacy with ID health specialists

2 things needed: All health services to do better Specialists in ID health

Lots of talk and training packages

Not much progress

Ombudsman annual reports

We seek more allies – a mainstream issue!

2006 – Roundtable –experts and key decision makers

NSW Health commitment to an ID health framework

2007 – Framework

2009 – KPMG economic analysis

2010-11 – NSW Government funds pilot teams and Clinical Network

But still lots to do!

Do people with ID need their own systemic advocate?

We say YES - People with ID • need accessible processes

in advocacy groups• are a vulnerable group• face specific problems• 60%+ of NDIS participantsnswcid.blogspot.com.au/2015/02/people-with-intellectual-disability.html

Systemic advocacy can...

• Help the NDIS to work well• Help make the community work for people

with disability

It’s often slow, hard work but remember.......

As our chairperson says: