Advancing Patient & Family Centred Advancing Patient & Family Centred Care across a Health Care SystemCare across a Health Care System

Presented at Presented at

The 3The 3rdrd International Conference on International Conference on Patient and Family Centred CarePatient and Family Centred Care

Seattle, WashingtonSeattle, WashingtonAugust 1August 1stst, 2007, 2007

AuthorsAuthorsAlexandra Harrison, PhD, DirectorAlexandra Harrison, PhD, DirectorPatient Experience Portfolio, Calgary Health RegionPatient Experience Portfolio, Calgary Health RegionAlexandra.Harrison@CalgaryHealthRegion.caAlexandra.Harrison@CalgaryHealthRegion.ca

Janice Popp, MSW, RSW, DirectorJanice Popp, MSW, RSW, DirectorSouthern Alberta Child & Youth Health NetworkSouthern Alberta Child & Youth Health NetworkJanice.Popp@CalgaryHealthRegion.caJanice.Popp@CalgaryHealthRegion.ca

Gail Mackean, PhD, Family MemberGail Mackean, PhD, Family MemberPatient Experience Advisory CommitteePatient Experience Advisory CommitteeCalgary Health RegionCalgary Health Region

Health Regions in Alberta, Canada

Calgary Health RegionCalgary Health Region

• Large integrated healthcare system

in Alberta, Canada

• Responsible: health of population (1.2 million)

Across the continuum of care- Public health, acute care, long term care,

community care

Across the continuum of experience- Pediatrics to Geriatrics, Neonatal to Palliative

LeadershipLeadership

• Vision, Mission, Values Mission - Leaders in Health, A Partner in Care

Values - Caring, Respectful Relationships shown by: Providing patient and family

centred care

• Support from CEO and Board

• Senior Vice President on Executive

FoundationFoundation

• 30 year history in Pediatrics

• Environmental scan – Director’s report

• Principles– Respect, – Communication: Information and Listening– Involvement: Care and Services

StructureStructure

• Patient Experience Portfolio (2005)

• Two areas of Focus– Engaging Patients and Families – Engaging staff

Areas of Family EngagementAreas of Family Engagement

• Involvement in Capital Planning– e.g. Children’s hospital, New south health campus

• More than 40 councils and committees- e.g. longstanding in Pediatrics, new in Safety

Patient Experience

Advisors Handbook Calgary Health Region

2007

How was the handbook developed?How was the handbook developed?

• Led by Patient Experience Portfolio

• Internal & external environmental “scan”– Promising practices elsewhere, including

resources developed– Promising practices locally

• Built on local promising practices– Invited participation of current patient

experience advisors & staff

What’s in the Handbook?What’s in the Handbook?

• Background

• Tips for committees & teams

• Tips for patient experience advisors

• Links to additional resources

Resources for Engaging Resources for Engaging Patients and FamiliesPatients and Families

• Institute for Family-Centred Care

• NHS Institute for Innovation & Improvement

• Dana-Farber/Brigham and Women’s Cancer Centre

Resources for Engaging StaffResources for Engaging Staff

• Planetree

• Institute for Healthcare Communication

Internal PartnershipsInternal Partnerships• Quality and Safety Portfolio

– Patient / Family Safety Council– Brochure on patient and family role in safety

• People and Learning– Competencies– Orientation

• Volunteers

Future PrioritiesFuture Priorities• Family presence - Visiting Hours

• Patient access to their health record– Electronic Health Record

• Consumer health information

• Planetree rollout to all hospitals

• Evaluation

Southern Alberta Child & Youth Southern Alberta Child & Youth Health Network: Health Network:

Promoting Family Centred Care Promoting Family Centred Care across Health Regionsacross Health Regions

Presented byJanice Popp, DirectorJanice Popp, Director

Southern Alberta Child & Youth Health NetworkSouthern Alberta Child & Youth Health Network

janice.popp@calgaryhealthregion.cajanice.popp@calgaryhealthregion.cawww.sacyhn.cawww.sacyhn.ca

The Paradigm Shift…The Paradigm Shift…

From:

• Medical model• Services at the

center• Deficits• Control• Expert model• Information gatekeeping• (-) Support• Rigidity

To:

• Biopsychosocial model• Patient & family at the

centre• Strengths• Collaboration• Partnership model• Information Sharing• (+) Support• Flexibility

What is a Network? What is a Network?

“…a set of autonomous organizations that come together to reach goals that none of them can reach separately.” (Chisholm, 1998, p. xxi)

“…a group of three or more autonomous organizations working together across structural, temporal and geographic boundaries…”

(Huerta, Casebeer, & VanderPlaat, 2006, p. 13)

Characteristics of networks that enableCharacteristics of networks that enablefamily centred carefamily centred care

Networks

– Real world situations– Orientation to a system level– Sensitivity to issues & each

other– Enhances collaboration &

cooperation– Appreciates & honours

differences– Addresses issues around

power– Enables transformative

learning

Family Centred Care

– Child in context of family & community

– Goes beyond health care– Humanity & compassion– Collaborative relationships

are central– Flexible, non-judgemental,

focuses on strengths– Information sharing, invite

participation– Involves a paradigm shift

About SACYHNAbout SACYHN

35 organizations, 4 health regions, half a province, 1 children’s hospital

•Parents

•Ministries that serve children

•Provincial boards and agencies

•Regional authorities

•Universities

•First Nations

•Not-for-profit sector

FCC Goals/Activities of SACYHNFCC Goals/Activities of SACYHN

• Develop and communicate a shared vision and purpose to Develop and communicate a shared vision and purpose to families, communities and organizational stafffamilies, communities and organizational staff

• Create opportunities for positive change and innovation in service Create opportunities for positive change and innovation in service deliverydelivery

• Coordinate services and information as close to home as possible

• Build and sustain inter-regional and cross-sector connections / Build and sustain inter-regional and cross-sector connections / linkageslinkages

• Involve parents and providers in service planningInvolve parents and providers in service planning

• Strengthen community & professional capacity

• Support the use of new technologiesSupport the use of new technologies

Involving parents in network Involving parents in network

governance, policy development, governance, policy development, service planningservice planning

• Steering CommitteeSteering Committee

• Working GroupsWorking Groups

• EvaluationEvaluation

Involving youth in policy Involving youth in policy

development and service planningdevelopment and service planning

Child and Youth Advisory Council (CAYAC)Child and Youth Advisory Council (CAYAC)

• SACYHN videoSACYHN video

• Input into new Alberta Children’s HospitalInput into new Alberta Children’s Hospital (patient rooms, (patient rooms,

landscaping, Christmas decorations, street and cafeteria naming)landscaping, Christmas decorations, street and cafeteria naming)

• Asthma and youth suicide prevention initiativesAsthma and youth suicide prevention initiatives

• Response to Premier’s invitation on how to use the Response to Premier’s invitation on how to use the surplussurplus

• Submission to government roundtable on family Submission to government roundtable on family violence and bullyingviolence and bullying

Building capacity and enhancing Building capacity and enhancing control and independencecontrol and independence

Family & Community Resource CentreFamily & Community Resource Centre

• Connecting families and community Connecting families and community providers to quality information providers to quality information

• Family supportFamily support

• Community Education ServiceCommunity Education Service

• Resource DevelopmentResource Development

Clinical care closer to homeClinical care closer to home

• Outreach Outreach

• TelehealthTelehealth

• Professional Education to build expertiseProfessional Education to build expertise

ReferencesReferences

Chisholm, R. F. (1998). Chisholm, R. F. (1998). Developing network organizations: Learning from practice and Developing network organizations: Learning from practice and theorytheory. Reading, MA: Addison-Wesley.. Reading, MA: Addison-Wesley.

Huerta, T.R., Casebeer, A., & VanderPlaat, M. (2006). Using networks to enhance health Huerta, T.R., Casebeer, A., & VanderPlaat, M. (2006). Using networks to enhance health services delivery: Perspectives, paradoxes and propostions. services delivery: Perspectives, paradoxes and propostions. HealthcarePapers, 7HealthcarePapers, 7(2), pp. (2), pp. 10-26.10-26.

McPherson, C.M., Popp, J.K., & Lindstrom, R.R. (2006). Re-examining the paradox of McPherson, C.M., Popp, J.K., & Lindstrom, R.R. (2006). Re-examining the paradox of structure: A child health network perspective. structure: A child health network perspective. HealthcarePapers, (7)HealthcarePapers, (7)2, pp. 46-52.2, pp. 46-52.

Popp, J. K. et al on behalf of Child and Youth Health Networks of Canada. (2007). Popp, J. K. et al on behalf of Child and Youth Health Networks of Canada. (2007). Inter-Inter-Organizational Networks as a Vehicle for Enhancing Family Centred Care in Child and Organizational Networks as a Vehicle for Enhancing Family Centred Care in Child and Youth Services.Youth Services. Presented at the Family Centred Care in Context 2007 Conference, Presented at the Family Centred Care in Context 2007 Conference, Calgary.Calgary.

• Questions???