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Addenbrooke’s Kidney Patients Association

NEWSFLASHYour local association — Run by patients for the benefit of patients

In this issue� The 2018 British 2Transplant Games

� Peter Retires 2

� AKPA Supports Fistula 2Research

� Holiday Dialysis Away 3From the UK: Safari Dialysis

� Fundraising 4–5

� 200 Club Winners 5

� Fiona’s Story 6

� AGM – September 2018 7

� AKPA Contacts 8

Issue 2 2018 No. 63

A MEMBER OF THE NAT IONAL K IDNEY F EDERAT ION

www.akpa.org.uk

Dates for 2018Thurs. December 13th –Bric a Brac Stall, Outpatients Entrance Hall

Wed. December 19th – 2pm –AKPA Raffle Draw, Cambridge Dialysis Centre

2018 British Transplant Games

Gold medal winners for the Addenbrooke’s Team in the Ladies Badminton Doubles. Sarah Moody (left)and Claudia Tibbutt (right). AKPA supports the Addenbrooke’s team, full report on page 2

Saturday 22nd December at 3.00pm

AKPA Christmas Carol ServiceGreat St Mary’s Church Cambridge

Address to be given by Dr Rowan Williams (former Archbishop of Canterbury): with traditional Bible readings

and seasonal carols by the St Augustine’s Singers under their director Philip Mead with organist David Poulter.

Refreshments will be served after the service. Please join us in this joyful experience – all welcome.

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Addenbrooke’s Team was verysuccessful, winning 23 Gold,14 Silverand 6 Bronze medals.

Most events took place on the Universityof Birmingham’s excellent facilities. Oneof the first events being archery, withAddenbrooke’s Sam Newton securingthe first gold for the team.

In the table tennis, Ralph Rogers wongold in his age group, which is a greatachievement for his first games. OnFriday evening the cycling event washeld off site near Kidderminster, withOttilie Quince winning two gold medalsfor the team’s collection. Doug Choatand Ian Norman achieved bronze medalsin football.

Badminton is one of Addenbrooke’sstrong events with gold medals achievedby Tim Adamson and John Tibbutt in themen’s doubles and gold for Sarah Moodyand Claudia Tibbutt in the women’sdoubles. In the women’s veteran agegroup, Val Cooper won gold with herpartner Maggie Gambril from Papworth.Val also gained a silver in the afternoon’s3km walk despite the high temperatures.

The swimming took place on theSaturday afternoon and our new memberAnn Peet, winning her first medal for theteam – a much deserved silver medal.

Saturday evening was glorious for themini marathon and Donor Run aroundthe campus. It’s a great family eventwith about 2,000 people taking part inthanks to their donor and to raiseawareness of organ donation. Theatmosphere was incredible, everyone injubilant mood some taking the eventseriously, others dressing up and doing it for fun.

The weather held good on Sunday for the Athletics, and John Tibbutt won silver in ball throw, MalcolmSousa Lewis topped the table for his

The 2018 British Transplant GamesBirmingham – August 2nd–5th

super-senior veterans age group with agold in high jump, shot putt, ball throw,discuss and javelin. Steven Evansperformed very well for the teambagging silver in the 100m, 200m and a bronze in the 400m.

The team would like to give their thanksto AKPA for their continual support.These games allow competitors todemonstrate how transplantation, theamazing gift of life, can enable goals tobe achieved.

Selection for the World TransplantGames, to be held in Newcastle/Gateshead in August 2019, depends on performance at the BTG. So we keepour fingers crossed that someAddenbrooke’s Competitors will shortlyreceive selection letters.

For Information on:

Addenbrooke’s Transplant Games Teamhttp://atgt.co.uk/The British Transplant Gameshttp://www.transplantsport.org.uk/The World Transplant Gameshttp://worldtransplantgames.org/

Peter RetiresAfter serving on the AKPAcommittee for five years, four ofthose as Chairman, Peter Constableannounced his retirement from thecommittee prior to the AGM.

During his time as Chairman Peterrevived the annual AKPA ChristmasCarol Service at Great St Mary’sChurch and over the last four yearsthis has become a prestigious andjoyful event.

Peter’s wide experience of charitywork and finance helped AKPA tomanoeuvre through the constantlychanging rules and regulations of thecharity world. And his experience ofworking with the NHS managementwas invaluable when negotiatingimportant projects.

During the AGM Peter waspresented with a token ofappreciation from the committee andall wished him a happy retirement.

Addenbrooke’s Hospital is part of a newmulti-centre Vascular Access study toevaluate the role of ultrasound increating healthy fistulas forhaemodialysis patients and providingtreatment to prevent them failing.

The presentation at this year’s AGMoutlined the scope of the trial, known asSONAR (Surveillance Of arterioveNousfistulA using ultRasound) and explainedthat although the medical aspects of thetrial were well funded with a £1.8million grant, it would be difficult torecruit patients from across a large areawithout offering to refund transport

AKPA Supports Fistula Researchcosts. AKPA have agreed to support thetrial by funding these costs.

This is the biggest multi-centre VascularAccess study trial in Europe with 16participating hospitals in the UK.Participating centres include Cambridge,Oxford, Manchester, Royal Free, Guys,Barts, St George’s London, Portsmouthand Leicester.

This is a very prestigious award and agreat opportunity for Addenbrooke’s tobe a focal point of vascular Accessresearch leading to improvements intreatment for dialysis patients.

Infrared TherapyImproves Fistula HealingOver the past three years, infraredmachines have been used successfully totreat fistula problems in Addenbrooke’sdialysis units. This has resulted in greaterdemand for the treatment and AKPA isplanning to fund more of these machinesin the near future.

Report by Sarah Moody (above in the badminton)

NKF HelplinePlease note: new number is FREEPHONE

Tel. 0800 169 09 36E–mail: helpline@kidney.org.ukWebsite: www.kidney.org.uk

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Holiday Dialysis Away from the UK: Safari DialysisIn the previous edition of Newsflash Ireported on my experiences of holidaydialysis in the USA and Greece. SouthAfrica was my next target.

First a little background. In the late1970’s my family and I lived in asuburb of Johannesburg calledKempton Park. It was the time of theApartheid regime and many of theblack residents were living in what wascalled their ‘homeland’, although oftenit was not.

Gambling was prohibited in SouthAfrica but not in the homelands, so anentrepreneur called Sol Kerznerinvested huge sums of money to build aresort in the bush in a homeland calledBophutatswana. ‘Sun City’ as it wascalled, opened in 1974 and had all thegambling tools like slots and roulette so was a magnet for weekend visits bywealthy white South Africans. AfterNelson Mandela came to power in the1990’s, gambling was legalised andSun City ceased to be the place youwent to gamble, so it had to re-inventitself as a resort destination.

I visited in 1998 just as they launchedtheir timeshare complex and we wereexcited by the possibilities ofownership. Twenty years later we havenot regretted the decision and have hadmany wonderful trips.

The resort has hotels and restaurants, ahuge wave pool, lake with water sports,two championship golf courses andmany other distractions. The mostimportant of these is that five minutesdrive away and surrounding the resorton three sides is South Africa’s fifth-largest game reserve – the Pilanesberg.This is 500 sq. kilometres of bush withmany habitats and full of all theanimals you expect including the ‘BigFive’ – Lion, Leopard, Elephant, Rhinoand Buffalo.

There are 80 miles of roads and tracksall passable by car so you can drivefrom the resort in your hire car andcreate your own safari. If you want tobe driven there are companiesproviding that service located in SunCity. The other great thing is that youare completely safe in the resort, sowalking around in the amazing gardensand visiting the attractions is fine at anytime of the day or night. A free bus

service operates right through theresort. There is truly nowhere else likeit in the world.

So how did I manage to dialyse out inthe bush?

The surounding area is a centre forplatinum mining and the nearest town,Rustenberg, a 35–40 minute drive fromSun City, is served by excellent roads.The main local hospital, has a unitoffering dialysis to locals and visitors,as I was able to discover compared tosurfing the Internet.

There are other units in the area run byFresenius, but these are much moreexpensive than the one I found, NationalRenal Care. They are extremelyresponsive on e-mail and charge a fee ofabout £120 a session, which is veryreasonable by other places I have visitedoutside the Eurozone.

The other special thing was that theyoperate four sessions a day, starting at5.00am and finishing at between 12.00and 1.00 am. I was attracted by the freetime which the overnight session(starting at 8.00pm) was able to give me.After the session, the chairs are madeflat into beds so you can catch a fewhours of sleep and then when the lightsgo on at 4.30 am I drove home andslipped into bed to complete the night.Driving to and from in the dark was notas scary as it sounds as the roads arebusy with miners going to or from shifts.

Daytime slots were also available if thatwas not your ideal thing to do. The unitis small, but clean and professional andrefreshments were provided even on thenight session. Payment was done byelectronic bank transfer before arriving,so that was not an issue. If anyone wantsto try a trip on the wild side, I am happyto help and there are other places you canstay and get treatment besides Sun City.

Andrew Norton

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Fundraising • Fundraising • Fundraising • Fundraising

Roger Ward (a renal transplantee ofDecember 1994) and his wife Lizcelebrated their Golden WeddingAnniversary at their home on Saturday28 July with family and friends.

Roger and Liz are long time supportersof AKPA and they requested thatinstead of buying presents, their guestsshould donate money to AKPA. As aresult of their celebrations they raised a brilliant £320 for AKPA.

Our thanks to Roger and Liz, and theirgenerous family and friends.

Regin Runs for AKPARegin Lagac, (CDC Vascular AccessSpecialist) completed the 10 kmKidney Research Fun Run onthe19th June during the British RenalSociety Conference at Harrogate.

Regin represented the CambridgeTeam and the money raised was splitbetween Kidney Research and AKPA.

Our thanks to Regin for all hisfundraising efforts in support of AKPA.

Left to right: Helen Burns (Low clearance nurse), Angela Green (Home dialysis nurse), David and EmmaBrooke (Andrew’s daughter and son-in-law), Aaron Norton (Andrew’s grandson) and his girlfriend IzzyJordan. Angela also had her son Adam and dog Poppy on the walk.

Golden WeddingAnniversary

AKPA Great Grafham EventThe valiant walkers who completed the nine mile Grafham Water circuit on one ofthe hottest days! Our thanks to Andrew Norton and Martin Harmor for organisingthe event and to all the walkers who braved the heat. Another Great Event.

World Kidney DayTo mark World Kidney day on March8th, AKPA committee member JanetMan and Liz Ulas from KidneyResearch had an information stall atWaitrose. They distributed leafletsabout transplantation, kidney donationand dialysis to passing shoppers.

Tour de DialysisMoney was raised for the National Kidney Federation and AKPA, many thanks to everyone that took part and thisincluded patients, nurses, doctors andrelations of patients.

Our thanks to Andy Fry and Pete Revell ofthe NKF for organising another great ride.

The fundraising cycle ride made awelcome return with cyclists starting outon a very windy Friday morning andtravelling to West Suffolk hospital RenalUnit, Kings Lynn Renal Unit,Hinchingbrooke Renal unit and thenreturning around 6pm on Saturday evening.

Andrew Norton on dialysis at Cambridge Dialysis Centre surrounded by riders ready to start on the tour.Andrew later joined the ride for one stage of the tour.

Help Addenbrooke’s Kidney Patients when you shop on-line. Visit: www.akpa.org.uk/ easyfundraising for more information.

Fundraising • Fundraising • Fundraising • Fundraising

Transplant PartySheila Roberts, a long time supporterof AKPA held a party for friends andfamily at her home in July, tocelebrate her 80th birthday and 35 years since since she had hertransplant. Sheila asked for donationsto AKPA and raised £305.

Our thanks to Sheila and her family.

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MAY 2018First prize £102 • Mr D. AndersonSecond prize £62 • Mr A. ThompsonThird prize £41 • Val Cooper

JULY 2018First prize £102 • Mrs C. HeavinghamSecond prize £62 • Derek DinsdaleThird prize £41 • Simon Pitts

200 Club – Winners

Email: fundraising@akpa.org.uk

Malcolm’s Celebration

Malcolm Souza-Lewis and his wifeValerie held a party at their home in theNorfolk village of North Runcton tocelebrate the 30th Anniversary ofMalcolm’s kidney transplant.

Around twenty guests enjoyed snacks,sparkling wine and a “Sidney the Kidney”iced cake. After cutting the cake Malcolmmade a short speech and presented chequesfor £100 to Colin Gant for AKPA and toStewart South for Kidney Research UK.

They drank a toast to the NHS andMalcom’s wife Valerie “who”, said

Malcolm “have kept me going throughtwo kidney transplants, a triple bypass,abdominal operations, gall bladderremoval, knee replacement, diabetes andatrial fibrillation. They are an unbeatablecombination – Valerie and the NHS!”

Our thanks for the donation and bestwishes to Malcolm and Valerie.

Malcolm cutting the cake (centre) with (L to R)Malcolm’s wife Valerie, Colin Gant (AKPA rep.)Stewart South (Kidney Research) and ElizabethNockolds (Deputy Leader of the local Council)Charity Race Night

Lorraine and Paul Webb at the West SuffolkHospital handing over the cheque from thisyear’s event to Nicola Moncrieff, Vice Chairmanof AKPA

Lorraine and Paul Webb held a charityRace Night on Saturday15th Septemberto raise funds for AKPA and in memoryof Lorraine’s brother Michael. This isthe second year they have held this eventwith a total of £3,350 raised over thetwo years.

Michael was a dialysis patient at WestSuffolk Hospital and although Lorrainehad been identified as a potential donorMichael’s health deteriorated before atransplant could take place.

The Race Night was a great success withRaffle prizes on the night donated bylocal companies and friends of Lorraineand Paul.

The money raised will help to pay for aninfrared machine for West Suffolkdialysis unit to increase healing andcomfort for their patients

Plans are already under way for nextyear’s event when the couple hope tohave raised over £5,000 in three yearsfor AKPA.

Our thanks to Lorraine and Paul andtheir friends, who contributed to thesuccess of the Race Night

Bric-a-Brac StallsDuring the Spring and Summer SueOates and Monica Taylor’s bric-a-brac stalls in the Outpatient’s Hallraised £640 for AKPA.

Sue and Monica are planning tohold another bric-a-brac stall in thesame venue on December 13th.They would welcome donations ofgood quality bric-a-brac.

Our thanks to Sue and Monica.

Handmade Quilts for Dialysis Centre

Keeping warm in style – The Barton MillsQuilting Group have again donated beautifullyhandmade quilts for the use of patients whilst ondialysis. The group also make quilts for theneonatal unit but when they heard dialysispatients sometimes need extra warmth theybegan producing bigger quilts for them.

Help Us Raise More –Fundraise on JustGiving

doing and why you are raising money.Please visit www.justgiving.com/akpa

You can set up your own JustGivingfundraising page to say what you are

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For people with end stage kidney diseasedialysis will ensure they remain as wellas possible. Most patients are able to beput on a waiting list for a kidneytransplant which, all being well, will leadto the life changing operation.Fiona Haygreen has experiencedboth. She kindly offered to answersome quick fire questions.Can you tell us about your home lifeFiona?I live an a village called Ridgewell inEssex on the Suffolk border. I live withmy husband Ian who I’ve been married tofor 15 years. No pets, but one day when Ihave more time I’d love a dog.

What is your current treatment forrenal failure?On March 21st this year I had atransplant after 10 years on Dialysis

How’s it all going?It’s wonderful. I feel great and having myfreedom again is the best gift of all. I canwork properly again without feelingconstantly exhausted because of trying tofit Dialysis in with a full time job. I canhave week day hobbies again because Idon’t feel like I’m neglecting my homelife. My appetite has returned, I find foodtastes better and I like different foods now.

How do you feel about having acadaver kidney?That’s always a hard question to answer. I try not to think of my donor in thoseterms but instead as a real person who hadthe foresight to consider how their organsand tissue could help others in the case oftheir death.

How did you discover you had aproblem with your kidneys?I noticed my ankles had swelled up and ithurt when I went for a wee. I went to myGP who eventually identified through ablood test that I had a problem in mykidneys

Have you experienced dialysis?My kidneys failed in 1995 when I was 24 and I started Dialysis 6 months afterthe first symptoms. My first choice wasCAPD because my lifestyle back thensuited the freedom. I was on CAPD for 3 years and I had a kidney transplant in1998 which lasted for 10 years and after

Fiona’s StoryAn Informal Interview by Suzi Turton

this ended up on Haemodialysis for 10 years until I received a kidneytransplant on 21st March this year.

Any tips on how to cope with dialysis? This is subject I’m quite passionateabout. We don’t know how long we aregoing to be on Dialysis and some mightbe facing their whole life on it, so it’sincredibly important to learn how to livewith Dialysis. It’s important not to giveup on fun and joy because of Dialysis. Itis about quality of our free days, not thequantity. There is so much happiness tobe had from the world, and I think thatliving in the moment and enjoying thesmall pleasures of life such as friends,family, nature, the arts, a day in thesunshine, whatever gives you pleasure,makes it all so much more bearable. Ifyou are on the list for a kidney don’tforget to live while you are waiting.

Any entertaining stories involvingDialysis?I can’t think of any one occasion butactually there was often fun and laughterto be had with the nurses and otherpatients at Dialysis. They made it somuch better for us patients.

When I was on CAPD I used to take myDialysis kit down to Cornwall on holiday.I was very inventive with a tea tray when,on days out, I would use it as preparationarea. Then I would sit on my boot andhang my bag on the top of the open door!

What do you appreciate most abouthaving a kidney transplant?The freedom to do what I want, when Iwant and to drink and eat (mostly) what Iwant. I’ve rediscovered the joy of a glass of wine, I’ve even taken to buying theoccasional bottle now and then! I love notbeing too tired to cook a nice meal for myhusband and myself after work.

How has your life changed since having the transplant?I’ve done something that I’ve wanted todo for years but wasn't able to because ofDialysis, I’ve joined an amateurdramatics group and bagged myself agreat part in a play, which I’m currentlyrehearsing. It was always a great hobbyfor me. I haven’t been abroad yet buthope I might be able to. I fancy doing aScottish tour so hopefully will save up forit over the next couple of years. I’ve neverbeen, and I can imagine seeing the lakes

and islands andinlets.

What plans doyou have for thefuture?More am-dram,lose some weight(feeling betterhas boosted myappetite a bit toomuch!), andgenerally enjoythe freedom but living each day as itcomes. I don’t want to waste a moment.

Anything else you would like to say?I’m so grateful to all the doctors,researchers, nurses and all those involvedin my care who enable us kidney patientsto go on living when not so many decadesearlier our lives would have ended. Alsoto the wonderful volunteers andsupporters of AKPA and Kidney Carewho helped me out so many timesbecause the pressures of Dialysis meantthat we were often financially hard upand thanks to AKPA I was able to replacemy oven and washing machine when theyfailed, afforded me a few breaks andholidays when I really needed them.Thank you all.

One final question, what is yourfavourite quote or saying?‘Live each day as it comes’ and ‘Variety is the spice of life’!

Fiona and her husband Ian

Volunteers Neededfor the CambridgeDialysis CentreTo help serve refreshments to patientsreceiving haemodialysis, spend timelistening, chatting or reading topatients, escort visitors to appropriateareas, keep magazines etc. tidy andwell stocked and engage in activitieswithin the Centre, for example, artproject and jigsaws.

We are looking for sensitive peoplewho can offer three to four hoursduring the day or in the evening.

To find out more please contact:Gerrie Millar, Renal Counsellor,Telephone: 01223 400186 or Email:gerrie.millar@addenbrookes.nhs.uk

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Following the traditional buffet, ActingJoint Chair Ralph Slattery opened themeeting by welcoming everyone andthanking them for their support.

This was followed by a presentationgiven by Mr Mohammad Hossain,(Speciality Registrar) and Regin Lagaac,(Clinical Nurse Specialist, VascularAccess). They explained the importanceof maintaining healthy, functioningfistulas for Haemodialysis Patients anddescribed their forthcoming medical trialThe Sonographic Assessment ofArteriovenous Fistula (SONAR),which would provide information tohelp surgeons and medical staff createheathy fistulas and provide treatment tostop them failing.

Chairman’s ReportRalph began his report by summarisingthe activities of the charity over theprevious year. Saying that althoughcomplying with the new GDPR law hadbeen time consuming, the charity nowhas a policy in place to ensure that anydata held is safe.

Going on to describe the annualChristmas Carol concert at Great StMary’s, he said that the well-attendedevent was intended as a celebration ofthose living with kidney disease as wellas the successes of medical treatment.Also with an opportunity to mingleafterwards with wine and cake.

He thanked everyone who hasundertaken a fundraising event for AKPAduring the year. Saying, ‘there are toomany of you to mention individually’.

He explained that following AKPA’sfinancial support for the Exercise Projectthe NHS had accepted the therapeuticbenefit of doing exercise while onhaemodialysis. And so the money wehad earmarked for that has been divertedto other projects. But we are happy tohave been involved in the originalresearch project.

He went on to describe other projectsfunded, including two research postsand the Transonic scanner formeasuring the blood flow of patientsundergoing haemodialysis.

Adding that the committee are seekingout further opportunities to fund

special projects, and a few proposalsare under consideration.

Ralph finished by saying a big ‘thankyou’ to the other members of the AKPA committee. “It is throughworking as a team we can continuewith the charity’s work.”

Financial ReportIncome for year ending 31st March2018:AKPA had a good year with incometotalling £44,859.

Our fundraisers achieved great success,raising £25,069 and income fromdonations totalled £5,660. I would liketo thank all the people who raise fundsand support us in this way.

Donations in memory totalled £7,177 andincome from legacies £4,499. Interestearned by our reserves totalled £2,454.

Expenditure for year ending 31stMarch 2018:Total expenditure was £92,910 creatingan excess of spending over income of£48,051. The excess was comfortablycovered by our reserves and was theresult of planned spending on projectsthat are important to the well being ofkidney patients. (See “Where theMoney Goes”.)

Our support for patients also includedwelfare and holiday awards to sick andneedy patients totalling £6,581. Furtherhelp included £908 for Christmas buffetsfor patients receiving treatment over theChristmas period in the Dialysis Centre,and satellite units.

We helped publicise organtransplantation by supporting participantsin the National Transplant Games at acost of £750 and funded nursing staff toattend a conference at a cost of £662.

Publicity and fundraising costs totalled£6,166 – this includes printing anddistributing our newsletter, running the200 club and selling Christmas cards.

Our administration costs totalled £2,781and represents a very small proportionof our total annual spending.

Brian Wood (Treasurer) and Andrew Collins (Deputy Treasurer)

AKPA Annual General Meeting

September 2018 – Cambridge Dialysis Centre

Where the MoneyGoesAs well as our regular support forpatients detailed in the Financial Report,during the last financial year, we fundedthe following Special Projects (projectsoutside our regular remit and usually ofshort duration). Our Total spending onthese projects was £70,416.

• A Transonic scanner for use in theDialysis Centre and Satellite units ata cost of £36,520. This machine isvital for measuring the blood flow ofpatients undergoing haemodialysis.Prior to this one machine had to beshared between four dialysis unitsand over 400 patients.

• A six month Research Nurse post at acost of £11,370 to administer a newlyapproved drug to treat PolycysticKidney disease until funding wasavailable from the NHS.

• Funding a research post to develop ahandheld potassium measuring kit forpatients on home dialysis at a cost of£13,395.

• The printing of skin care leaflet fortransplant patients at a cost of £353.

• Patient comforts for the DialysisCentre including: Jigsaw table, watercooler, a piano, 40 mattresses, atoaster, wrist bands and twowheelchairs, at a total cost of £8,778.

Committee Changes – NewChairman and CommitteeMemberFollowing Peter Constable’s retirement,Vice Chair Ralph Slattery offered tostand as Chairman and was elected tothe post at the AGM. Ralph has servedon the committee for around 10 yearsas the NKF rep. and latterly has takenon running the raffle.

Andrew Norton, who for several yearshas been involved in fundraising forAKPA, put his name forward to join thecommittee and was elected at the AGM.Andrew, who has many years experienceof fundraising for various charities andfor the last two years has organised theGrafham Water Event for AKPA waswelcomed to the committee. For fullAKPA Committee list see back page.

Page 8Addenbrooke’s Kidney Patients Association is a member of the National Kidney Federation

The views and opinions expressed in Newsflash are not necessarily those of AKPA.Registered Charity No. 277236

Andrew CollinsAssistant Treasurer

Andrew NortonFundraiser

Scott Devereux

Angela GreenStaff Representative

Janet ManFundraising

Richard JarvisWebsite

Mike RuggieriCollecting TinsCoordinator

Nicky MoncrieffVice Chair & Staff Representative

Hannah AlexanderMinutes & MembershipSecretary

Ralph SlatteryChairman, NKF Rep. & Raffle

Brian WoodTreasurer & NewsflashEditor

Martin HarnorFundraising

AKPA Committee Members 2018

Our website address is:www.akpa.org.uk• For information aboutAKPA.

You can e-mail us at:info@akpa.org.uk• For general enquiries to AKPA.

fundraising@akpa.org.uk• For help withfundraising.

webmaster@akpa.org.uk• To advertise events onthe website.

Postal Address:AKPA, 48 Montague Road,Cambridge CB4 1BX

AKPA Patient RepresentativesLocal contacts for information about AKPA, also AKPA Christmas cards and raffle:

Addenbrooke’s Dialysis Centre – Suzi Turton

Kings Lynn – Colin Gant, Telephone: 01553 828600

West Suffolk Hospital, Bury St Edmunds – John Smitherman

NewsflashContributions

We would love to hear from you,letters and articles for

publication in Newsflash arealways welcome. Send them to the editor: Brian Wood,

address, phone see Committee Members list.

October 2018

n Addenbrooke’s – CambridgeElaine Corden – covers CAPD.Clare Adams – covers ward C5,haemodialysis, Hinchingbrooke dialysis,low clearance clinic.Mary Dullea – wards G5/F5, renaltransplant, home haemodialysis.We can be contacted on 01223 216655.

n Queen Elizabeth Hospital – Kings Lynn

Hannah Edwards – Contact on 01553 613861.n West Suffolk Hospital – Bury St Edmunds

Laura Riley – Contact on 01284 712920

If you have any questions regarding your diet please contact therelevant dietician. Here’s a who’s who of the dieticians in our area:

Renal Diet Information

Would You Liketo Support AKPA?Newsflash is a free newsletter,sent out by post and email toinform people about the work ofAddenbrooke’s Kidney PatientsAssociation (AKPA) and provideuseful information for patientsand their families.

If you would like to receiveregular copies by post or emailplease email: info@akpa.org.uk.