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ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY TREATMENT THROUGH THE IMPLEMENTATION OF FIDELITY EVALUATION AND TECHNICAL ASSISTANCE Lorna Moser, Ph.D. ACT TA Center Center for Excellence in Community Mental Health, UNC Department of Psychiatry [email protected] Presented at the NC PIC Meeting, January 24, 2014

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Page 1: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

ACHIEVING HIGH FIDELITY

ASSERTIVE COMMUNITY TREATMENT

THROUGH THE IMPLEMENTATION OF

FIDELITY EVALUATION AND

TECHNICAL ASSISTANCE

Lorna Moser, Ph.D.

ACT TA Center

Center for Excellence in Community Mental Health,

UNC Department of Psychiatry

[email protected]

Presented at the NC PIC Meeting, January 24, 2014

Page 2: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Evolution of ACT: Then

• Developed in 1970’s in Madison, WI (Stein & Test)

• Inpatient staff made note of revolving door patients

• “Hospital without walls”

▫ Bringing comprehensive supports to individuals where they live

▫ Major outcome of interest was decreased hospitalization

• Core elements

▫ Team approach ◦ community-based ◦ flexible, comprehensive services ◦ fixed point of responsibility ◦ 24/7 coverage ◦ small ratio consumers to staff ◦ time-unlimited

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Typical ACT Service Recipient

• Schizophrenia-spectrum disorder, bipolar disorder, or major depressive disorder with psychotic features; and

• Significant functional impairments and;

• One or more of the following:

• Comorbid substance abuse; and/or

• Hx of frequent or long-term hospitalizations; and/or

• Hx of frequent arrests/incarcerations or homelessness episodes.

• Have not (or likely would not) successfully received services from less intensive community based treatment programs

Page 4: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

ACT IS AN

ORGANIZATIONAL PLATFORM

What gets “plugged in” will always be evolving

Page 5: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Evolution of ACT: Now

• Core elements still remain, as well as primary target

population, although…

• greater attention to transition from ACT

• piloting of ACT with special populations

• Changing landscape

• New Targets

• Hospitalization is less of a focus

• Growth-oriented outcomes reflecting community

integration, transition, and recovery

• New Technology

• Evidence-based practices and implementation science

Treatment should align with chosen outcomes

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The Basic Charge of ACT Is…

To be the first-line, if not sole, provider of all the services that ACT individuals need.

• Necessitates a multidisciplinary team

• Collaboration and trans-disciplinary approach

To provide flexible, individualized services reflecting what we know to work

• Tailored to individual needs, short and long-term

• Delivered in individual’s communities/lives

To be recovery-oriented • Treatment driven by individual’s goals • Emphasis on growth and possibilities

Page 7: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

ACT as an Evidence-Based Practice (EBP)

Page 8: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

First Recognized Psychosocial EBP

• ACT has over 50 published empirical studies -- at least 25 are RCTs

• Several reviews and meta-analyses of ACT research

• All indicate some degree of improved community integration for ACT individuals

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What the Data Say Across Studies

• ACT’s most robust outcomes:

Decreased hospital use

More independent living & housing stability

Retention in treatment

individual and family satisfaction

• Variable evidence:

▫ Employment ◦ Substance use ◦ Quality of life ◦ Psychiatric symptoms ◦ Criminal justice involvement

Page 10: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Why So Much Variability?

Secondary areas not targeted in services.

• e.g., focus was on decreasing hospitalization, not improving employment outcomes

No indexing of program fidelity

Page 11: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

PROGRAM FIDELITY

What is it & why does it matter?

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Program Fidelity

Definition: The degree to which a program

includes features that are critical to achieving the

intended outcomes (and excludes those that are

detrimental to intended outcomes).

Typical purposes of fidelity measures: • Ensure optimal implementation & guide quality

improvement • Refine knowledge development via research

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13

Value of Program Fidelity

• Program fidelity is positively correlated with

outcomes

• More cost-effective (Latimer, 1999)

• Decreases hospital days (McHugo et al., 1999)

• Outcomes come too slowly to use exclusively as

feedback

• Provides empirical reference and conceptual

base for informed adaptation and innovation

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Higher Fidelity Predicts Better Outcomes: Findings from McHugo et al. (1999)

High Fidelity ACT

Teams

Low Fidelity ACT

Teams

Treatment

Dropouts 15% 30%

Substance Use in

Remission 58% 13%

Hospital

Admissions 2.87 4.69

NC ACT Coalition, 2012

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ACT Fidelity Measures

• Dartmouth ACT Scale (DACTS; Teague, et al., 1998)

• Most widely used up to date

• Focus on more structural features of ACT

• Tool for Measurement of ACT (TMACT; Monroe-DeVita,

Moser, & Teague, 2012)

• Uses same 5-point behavioral anchors as DACTS

• Replacing DACTS in many States

• More comprehensive evaluation tool

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16

Dartmouth ACT Scale (DACTS) (Teague, et al., 1998)

• Had been the most widely used ACT fidelity measure

• 28 items/ 5-point anchored scales

▫ (1 = not implemented; 5 = fully implemented)

• 3 subscales

◦ Human Resources

◦ Organizational Boundaries

◦ Services

• Incorporated into SAMHSA EBP (Toolkit) Project

• Sometimes used for accreditation/funding

Page 17: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Example of DACTS Item:

O4. Responsibility for Crisis Services

Domain Rating

1 2 3 4 5

Responsibility

for Crisis

Services

Not

responsible

for

handling

crises after

hours

Emergency

service has

program-

generated

protocol

Program

available

by phone;

consult role

Program

provides

emergency

service

backup

Program

provides

24-hour

coverage

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DACTS Concerns

• Not fully consistent with National PACT Standards

• Little grounding in program theory

• Primary focus on structure (vs. process)

• Specific measurement gaps:

• Assessment & treatment planning

• Team & staff functioning

• Recovery orientation

• Treatment & rehabilitation interventions

• Item calibration

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From DACTS to TMACT (Monroe-DeVita, Moser, & Teague, 2012)

DACTS = 28 items

• Revised (22 items) ▫ Rescaled anchors

▫ Modified assessment

• Removed (6) ▫ Items not particular to ACT

▫ Folded into another

• Added (25) ▫ New items judged critical to ACT

▫ Extracted/ expanded concepts embedded in earlier items

Tool for Measurement of ACT (TMACT) = 47 items

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TMACT Evaluation Process:

• Two fidelity reviewers

• 1 ¾ day onsite visit

• Some data collected ahead of visit

• During the onsite visit:

• Interview most/all team members

• Interview small group of service recipients

• Chart review (20% min random selection)

• Observe team processed (daily team meeting; person-centered planning meeting

• Rating the team

• Independently rate

• Consensus meeting

• Report development

• Feedback

• Onsite during debrief meeting

• Report (30 pages)

• Follow-up call (kick off strategic planning)

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TMACT: A Snapshot

• 47 items that assess 120+ elements

• Look at the structural features of the team (staffing,

boundaries of care, target population, level of care, types

of service provided)

• Evaluate the quality of care

• Are staff able to operate within their areas of specialty?

• Are staff knowledgeable and skilled in psychosocial evidence-

based practices?

• Is treatment person-centered and promoting individual’s self-

determination and independence?

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TMACT Subscales

• Six subscales:

1. Operations & Structure (OS): 12 items

2. Core Team (CT): 7 items

3. Specialist Team (ST): 8 items

4. Core Practices (CP): 8 items

5. Evidence-Based Practices (EP): 8 items

6. Person-Centered Planning & Practices

(PP): 4 items

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23

CP6. Responsibility for Crisis Services: The team has 24-hour responsibility for directly

responding to psychiatric crises. Team is evaluated on whether they meet the following

criteria: 1) The team is available to individuals in crisis 24 hours a day, 7 days a week; 2) The

team is the first-line crisis evaluator and responder (if another crisis responder screens calls,

there is very minimal triaging); 3) The team accesses practical, individualized crisis plans to

help them address crises for each individual; and 4) The team is able and willing to respond to

crises in person, when needed.

1 2 3 4 5

Team has no

responsibility for

directly handling

crises after-hours.

Team meets up

to 2 criteria at

least PARTIALLY.

Team meets

Criterion #1 and

PARTIALLY

meets 2 to 3

criteria.

Team meets 3

criteria FULLY and

1 PARTIALLY.

Team FULLY

meets all 4 criteria

(see under

definition).

Page 24: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Evidence in Support of TMACT

• TMACT sets a higher bar for ACT program performance than DACTS

• More challenging to rate over a 4.0 on TMACT than DACTS

• Greater “specificity” -- reduces the probability of “false positives”

• TMACT more sensitive to change over time

• Improved implementation and performance improvement is detected by changing TMACT ratings

• Variations across subscales match expectations of challenges in implementing ACT components

• Basic and structural features are easier to accomplish, implementing evidence-based psychosocial practices more difficult

• Cross-state scores are consistent with differences in policy, training, and resource environments

• WA has received the most upfront support

• Relationship between TMACT and Recovery-orientation

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WA TMACT Scale Scores: Baseline – 18 mo (Thin Bars = range, lowest to highest)

1.0

1.5

2.0

2.5

3.0

3.5

4.0

4.5

5.0

OS CT ST CP EP PP Tot

B

6m

12m

18m

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TMACT Overall Medians & Ranges

by State (N=34 teams, 5 states)

1.0

1.5

2.0

2.5

3.0

3.5

4.0

4.5

5.0

A (11) B (3) C (2) D (8) E (10) ALL

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Longitudinal Study (WA, N=10 teams, 18 mo;

Cuddeback et al., 2013)

• Higher TMACT scores were associated with

• Fewer state hospital days per month

• Not significant for highest users

• Fewer local hospital days for high users

• Fewer crisis stabilization unit days

• Note:

• WA teams generally had high fidelity and little variability, so findings

are conservative estimates

Page 28: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

AVAILABILITY OF ACT How many ACT teams are there?

How many do we need?

Page 29: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Prevalence of ACT

• ACT available in at least 42 U.S. states

• Wide variability in oversight and funding

• Number of teams may range from 1 -12 (e.g.,

NE, WA) to 75+ (MI, NY)

• Wide variability in fidelity to the model

• Other countries have implemented ACT, or

a modified version:

• E.g., Canada; Japan; UK; Norway; Netherlands;

Spain

Page 30: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

How many ACT Teams Do We Need?

• Speculate that about 20% of the population with severe

mental illness truly needs ACT.

• Research shows that ACT is only cost-effective when

serving the most in need.

• Many people may appear to “need” ACT when in fact they

simply need some decent quality and consistent services!

How many do you think NC has?

Page 31: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

BARRIERS TO

IMPLEMENTING

HIGH-FIDELITY ACT

Findings from the National Implementing Evidence-

Based Practices Project (Drake et al., 2000)

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State Mental Health Authority’s

Support Key Facilitator

• Funding • Start-up money

• Medicaid reimbursement

• Licensing for ACT • Standards reflected moderate to high fidelity

• Auditing process and accountability

• Money contingent on meeting standards

• Technical assistance • Guided use of “toolkits”

• Team assigned a consultant

• Fidelity reviews and feedback

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Barriers to High Fidelity ACT Implementation

• Ineffective agency admin and team leadership

• Understanding of ACT

• Allocation of resources

• Personnel management

• Staffing

• Competency

• Team conflict

• High turnover

• Lack of agency change culture

• Only willing to make incremental changes

• Embraced practices contrary to ACT model

• Resistance to other EBPs

Page 34: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

RAISING THE BAR Implementing High-Fidelity ACT in NC

Page 35: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

NC SMHA Support as a Key Facilitator

• Funding

• NC has had Medicaid Funding for ACT as an Enhanced Service

• Monthly case rate chunked out into 4 units

• Billing tied to face-to-face contacts

• Case rate (approx $1200 per person per month) comparable to other states focused on ACT implementation

• Recent revisions in ACT Service Def focus on a per diem rate for ACT

Page 36: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

NC SMHA Support as a Key Facilitator

• Licensing for ACT

• Revised Service Definition more clearly aligned with standards of practice, reflecting moderate to high fidelity practice

• Service Definition lists certification standards

• Monitoring conducted by ACT TA Center and DMHDDSAS partnership via fidelity evaluations

• MCOs still expected to operate as an “auditor” on their own

• MCOs directed to only contract with teams meeting minimal threshold of fidelity

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NC SMHA Support as a Key Facilitator

• Technical assistance • NC TA Center at UNC Center for Excellence in Community MH

• Fidelity Evaluations using the TMACT • Direct and manage fidelity reviews, first seen as quality

improvement • Several levels of feedback

• High-Fidelity ACT 101 Trainings • NC ACT Coalition • Collaboration with other key Stakeholders, esp. MCOs

• DMHDDSAS Best Practices Team • Service Def Webinars • Developing ACT Training quality eval tool for state endorsement

Not yet put in place: • Resources for assigned consultants/coaches

• Plans to make best use of distance technologies • Training needs assessment and develop/implement resources to

meet those needs

Page 38: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Roll-Out of ACT Fidelity Evaluations in NC:

Phase 1

• Phone DACTS as Initial Screen

• All Endorsed ACT Teams (some exceptions)

• Ratings only used to determine # of teams who approximately meet

fidelity standards for DOJ reporting (4.0+ Total DACTS)

• Increased measurement error

• Small teams rate higher than large teams as a result of how our ACT Service

Definition cross-walks with DACTS’ requirements

• Of the 86 teams screened, 18 did not meet the minimal threshold of 4.0

• Several teams unable to be screened because of extremely low census

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ACT Milestones (Per DOJ Settlement)

• The State will be responsible to provide high-fidelity Assertive Community Treatment (ACT) as part of the community-based mental health service continuum.

• Goal #1: “By July 1, 2013, the State will increase the number of individuals served by ACT teams to 33 teams serving 3,225 individuals at any one time.” • Met: At least 50 teams meeting basic fidelity (4.0 on DACTS screen)

serving 3,575 individuals

• Goal #2: “By July 1, 2014, the State will increase the number of individuals served by ACT teams to 34 teams serving 3,467 individuals at any one time, using the TMACT model” • By July 2019, 50 teams meeting fidelity, serving 5,000 individuals

Page 40: ACHIEVING HIGH FIDELITY ASSERTIVE COMMUNITY …TMACT Evaluation Process: • Two fidelity reviewers • 1 ¾ day onsite visit • Some data collected ahead of visit • During the

Roll-Out of ACT Fidelity Evaluations in NC:

Phase 2

• TMACT Evaluations

• Training of Evaluators commenced in June, 2013

• Baseline evaluations began August, 2013

• Slow ramp up period

• 14 teams assessed by end of 2013

• Goal is to evaluate 5 teams per month

• Appox 18 months for baseline evals to be completed

• MCOs only receive TMACT

rating of those teams rating

3.0+ , full report of those

under a 3.0.

TMACT Rating

No Certification Below 3.0

Basic Fidelity 3.0 – 3.6

Moderately High Fidelity 3.7 – 4.2

High Fidelity 4.3+

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TMACT Evaluators:

Who has been serving in this role?

1. Government authorities

• New York, Pennsylvania

2. Training and technical assistance centers

• Indiana

3. Partnership between #1 and #2

• Washington, Maryland

4. ACT Program Leadership (Peer Evaluators)

• Florida, Minnesota (Ramsey Co.)

5. Partnership between #1, #2, and #4

• North Carolina!!

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Partnership Between DMHDDSAS and

Provider-Peer Evaluators

• Division’s Best Practice Team/ACT TA Center

• Assumes Lead Evaluator Role

• Part of job description (i.e., protected time to carry out pre- and post-

evaluation work)

• Has authority – can ensure accountability of process

• ACT Provider Role

• Assumes Second Evaluator Role

• Helps with data collection, some interviewing, and coming to

consensus ratings

• Reviews and provides input to report, particularly with QI feedback

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TMACT in NC: How’s it Going? • Most teams rate as predicted (around mid-3.0s)

• Have one team rating over a 4.0 at this time

• A few under 3.0

• Strong group of TMACT evaluators • Agency support

• Personal investment

• Return investment to agency

• Goal is to develop/identify shadow teams throughout the state

• TMACT implementation hiccups – timely feedback

• Ongoing need to have conversations with all stakeholders to keep everyone on the same page in support of best practice ACT

• Plans underway for ACT specific, standardized outcome monitoring

• ACT will only get stronger as we improve the continuum of care in NC • Need to improve step-down/alternatives to ACT

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References • Bond, G.R., Evans, L., Salyers, M.P., Williams, J., & Kim, H.W. (2000). Measurement of

fidelity in psychiatric rehabilitation research. Mental Health Services Research, 2, 75-87.

• Bond, G.R., Drake, R.E., Mueser, K.T., & Latimer, E. (2001). Assertive community treatment for people with severe mental illness. Disease Management & Health Outcomes, 9, 141-159.

• Cuddeback, G.S., Domino, M.E., Morrissey, J.P., Monroe-DeVita, M., Teague, G.B., & Moser, L.L. (2013). Fidelity to recovery-oriented ACT practices and consumer outcomes. Psychiatric Services. Advance online publication. doi:10.1176/appi.ps.201200095.

• Dixon, L.B., Dickerson, F., Bellack, A.S., Bennett, M., Dickinson, D., Goldberg, R.W. et al. (2010). The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophr.Bull., 36, 48-70.

• Latimer, E. (1999). Economic impacts of assertive community treatment: A review of the literature. Canadian Journal of Psychiatry, 44, 443-454.

• McHugo, G.J., Drake, R.E., Teague, G.B., & Xie, H. (1999). Fidelity to assertive community treatment and client outcomes in the New Hampshire Dual Disorders Study. PsychiatricServices, 50, 818-824.

NC ACT Coalition, 2012

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References (continued) • Mancini, A.D., Moser, L.L., Whitley, R., McHugo, G.J., Bond, G.R., Finnerty, M.T.,

& Burns, B.J. (2009). Assertive community treatment: Facilitators and barriers to implementation in routine mental health settings. Psychiatric Services, 60, 189–195. doi:10.1176/appi.ps.60.2.

• Monroe-DeVita, M., Teague, G.B., & Moser, L.L. (2011). The TMACT: A new tool for measuring fidelity to assertive community treatment. Journal of the American Psychiatric Nurses Association, 17, 17–29. doi:10.1177/1078390310394658

• Monroe-DeVita, M., Moser, L.L. & Teague, G.B. (2013). The tool for measurement of assertive community treatment (TMACT). In M. P. McGovern, G. J. McHugo, R. E. Drake, G. R. Bond, & M. R. Merrens. (Eds.), Implementing evidence-based practices in behavioral health. Center City, MN: Hazelden.

• Stein, L.I., & Test, M.A. (1980). Alternative to mental hospital treatment: I. Conceptual model, treatment program, and clinical evaluation. Archivesof General Psychiatry, 37(4), 392–397.

• Teague, G.B., Bond, G.R., & Drake, R.E. (1998). Program fidelity in assertive community treatment: Development and use of a measure. American Journal of Orthopsychiatry, 68(2), 216–232.

NC ACT Coalition, 2012

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Links

• Transitions to Community Living http://www.ncdhhs.gov/mhddsas/providers/dojsettlement/index.htm

• NC ACT TA Center http://www.med.unc.edu/psych/cecmh/community/unc-assertive-community-treatment-act-team-center

Other resources:

• National ACT Association http://www.actassociation.org/

• NAMI http://www.nami.org/Template.cfm?Section=ACT-TA_Center

• ACT Center of Indiana http://www.psych.iupui.edu/ACT/

• Ohio ACT Center http://www.ohioactcenter.org/whatisact.html