Allison Nickerson, MSWProgram Coordinator, New York City Family Caregiver

CoalitionCouncil of Senior Centers & Services of NYC, Inc.

Participants◦ National Alliance for

Caregiving◦ AARP◦ NAC Coalition

members◦ Nursing professionals◦ Community based

service providers

Purposeo Develop and

discuss possible synergies and opportunities to working together to support family caregivers and nurses in the state of New York

17 Total Synergies

1. Integrate services - Remove artificial separation of “social” vs. “medical” daycare

2. Research - “I’m not a dual eligible- who will be there for me?”

3. Advocate – Understand how to be more “disruptive” on behalf of caregivers

4. Use common language - Move the policy agenda forward with the terms “caregiver” and/or "identified person”

5. Understand the “other” patient - Assist in the recognition of the family caregiver

6. What drives what?- Understand what is more affordable when comparing medical vs. community based services

7. Recognize Caregiving – Discuss a potential addition to the Medicare Annual Wellness visit to include questions about family caregiving

8. Remove barriers to practice – Understand the barriers and issues that create struggles for Nurse Practitioners

9. Understand systems and transitions of care – Report on the disconnect between the family caregiver and health practitioner

10. Bridge the gap – Work together to create caregiver navigators to liaison between doctors and caregivers for resources

11. Create first hand knowledge – Create shadowing opportunities for professionals to better understand the needs of family caregivers

12. Build education – Create placements for nursing, social work or other allied health education students within family caregiving situations

13. Consider continuity in care - Build better relationships between the family unit and medical professionals to ease continuity of care

14. Ease communication - Create a family caregiver notebook

15. Frame family caregiving as a public health issue - “what do you need vs. this is what I have, do you want it?”

16. Increase knowledge - Design and translate models for caregiving

17. Reform payment – Restructure how family caregivers can be supported

10 Total Next Steps

Support economic research and make the business case for family caregivers to support policy change

Recommend 7th vital sign for nurses (are you a family caregiver?)

Center to Champion Nursing in America at AARP to check the Oasis to see about the family caregiver

NYSCRC to share a family caregiving curriculum developed in West Chester County, NY for reference or possible recreation

Create and share resources such as papers and research including local curriculum, PowerPoint presentations from NAC and AARP

NAC to check in about Utah Family Caregiving Coalition to get more information about family caregiver placement- University credits for respite care being provided by students to the family caregivers

Research development and grant opportunities to fund next steps (i.e. HRSA- nursing education)

NYCFCC to develop materials that detail models of advocacy- webinars, trainings and print outs

If applicable, present a united front on policy issues such as any future Medicaid waiver/reform policies

Develop Nursing Guidelines for Dealing with Family Caregivers – similar to work conducted by NASW