4. newborn screening updates

Newborn Screening Updates

LCO & HoM Forum – 1 July 2016 Angela Dietrich, Senior QA Advisor

Public Health England leads the NHS Screening Programmes

Overview

Topics included in this presentation:

NIPE SMART

NIPE stakeholder event & survey

Pulse Oximetry

NBS Screening

Newborn Hearing Screening

Newborn screening publications

2 Newborn Screening Updates LCO & HoM Forum – 1 July 2016

NIPE


NIPE

NIPE SMART- interoperability

• Increasing number of requests for NIPE SMART integration with maternity

IT systems (current and potential NIPE SMART users)

• Trusts do not wish to use two (or 3) systems – maternity and NIPE SMART

with associated double (or triple) data entry

• Interoperability work has now started

• NIPE SMART user development workshop – 21st July 2016.

• Survey across existing users to:

• identify those aspects of the system they like, those they don’t

• identify some areas where the national system could be improved

• ascertain from all trusts how many would want to use their maternity systems to

record and support screening as opposed to a new SMART system


Pulse Oximetry Screening

Rationale

• Hypoxaemia present in the majority of critical CHD (CCHD)

• Frequently clinically undetectable - current tests can miss 50% of

babies with CHD and 1/3 of babies with critical CHD

• Pulse oximetry may detect babies with CCHD early, before they

collapse. In studies using PulseOx in addition to standard tests,

more than 90% of affected babies picked up


Pulse Oximetry Screening Simple test

Can detect other serious (non-cardiac) illnesses

Pulse oximetry pilot progress and report went to the UK NSC in June 2016

It is hoped that the pilot will provide evidence that PO screening: -

• is feasible, cost-effective and acceptable to parents and staff

• adds value to existing screening procedures


UK Newborn Pulse Oximetry

Screening Pilot Pathway


NIPE

NIPE publications

First ever NIPE handbook published in April 2016

• Excellent resource for clinicians. Details the

screening elements undertaken as part of the head to

toe baby examination.

• Advises Trusts to consider implementing mandatory

assessment of clinical competencies for all health

care professionals who conduct newborn physical

examinations.

Revised NIPE Standards 2016

• Five standards

• Covers the identification and referral of babies born

with congenital abnormalities of the eyes, hips and

testes

• Cardiac standards: Will be developed at a later date.

Will include findings and outcomes of the Pulse

Oximetry Pilot Study.

Presentation title - edit in Header and Footer 8 Newborn Screening Updates LCO & HoM Forum – 1 July 2016

NBS Screening

NBS publications

•Revised guidelines for newborn blood spot sampling

•New template letters

•Quick guide will be available in hard copy soon

•New results to parents template letters

•New IMD parent leaflets (13)


NBS guidelines The revised guideline highlights:

• Importance of NBS screening in preventing severe disability and death

• Steps to take if parents decline screening

• Why good quality samples are vital for accurate screening results

• How to complete the blood spot card and collect good quality spots first

time

• What to do in different situations when a baby has had a blood transfusion

or needs a preterm repeat


NBS Screening

Programme reviews

• Card sample transport review – project to gather data on sample transport

issues and best practice

• Programme is reviewing options for NBS labs to work Saturdays and Bank

Holidays

• Residual bloodspot consultation - waiting for ministerial confirmation

• Review of bloodspot card once residual bloodspot consultation completed

• Review of standards - volunteers to be recruited by the NBS programme


NBS Screening NBS Failsafe Solution

• Continues to help find babies that may have missed screening

• Some paediatric hospitals now have access e.g. GOSH

• User group meets quarterly with representation from all regions


NHSP New IT system SMaRT4Hearing

• No planned go-live date as yet

• Extensive testing in progress

• Regional workshops will be scheduled to support this transition

• Each NHSP site will be provided with a list of active records that need

updating

• NHSP managers to ensure that the correct Internet Explorer versions are

used

• Queries re: implementation of the new system can be sent to:

[email protected]


NHSP

mailto:[email protected]

• Screening qualification to be rolled out from April 2017

• The qualification will be a Level 3 Diploma for Health Screeners

• Trusts can register to become an awarding centre to provide the new

qualification to their staff, and to other screening providers

For more information visit:

http://cpd.screening.nhs.uk/healthscreenerqualification


NHSP – Screening qualification

http://cpd.screening.nhs.uk/healthscreenerqualification

5 new and revised standards

• Provide a defined set of measures to ensure local programmes are safe

and effective

• Cover the screening journey up to and including the point of referral to

audiology and entry into audiological assessment.


NHSP Standards

Any Questions?

4. newborn screening updates

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