2016 nsw biennial state palliative care conference ... … · transforming palliative care and end...

2016 NSW Biennial State Palliative Care Conference Transforming our Landscape a

2016 NSW Biennial State Palliative Care Conference Transforming our Landscapeb

welcome

It is with great pleasure that we welcome you to Broken Hill and to the Palliative Care NSW

Biennial State Conference Transforming our Landscape.

The theme ‘Transforming our Landscape’ plays on the uniqueness of the local landscape, and

is designed to challenge delegates to make the journey to Broken Hill and transform what they

do; how they do it, and even who they are.

The conference has been planned in such a way that it will enable delegates to immerse

themselves in the beautiful landscape of Broken Hill and its culture, whilst learning and

exchanging ideas about providing quality Palliative Care to patients and carers. Transforming

Palliative Care and End of life care involves assessing and continually improving the way patient

and family care is delivered within a range of care settings.

We are looking forward to welcoming you to the desert, and we invite you to take this journey

of transformation and be invigorated and enlightened – and maybe even stay a while.

Thank you to our amazing major sponsors: NSW Ministry of Health, HammondCare,

Far West Local Health District, ACI, Calvary, CEC and Outback Publicans. We couldn’t

do this without you.

Melissa Cumming & Dr Sarah Wenham

Co-Chairs, Conference Organising Committee

WeLCoMe To The 2016 nSW bienniaL STaTePaLLiaTive Care ConferenCe

2016 NSW Biennial State Palliative Care Conference Transforming our Landscape2

Our majOr spOnsOrs

organising Committee Melissa Cumming, Co-Chair; Dr Sarah Wenham, Co-Chair; Joan Ryan; Linda Hansen.

Scientific Committee Dr Peta McVey, Chair; Dr Sue Kirby; Dr Philip Lee; Prof Liz Lobb; A/Prof Christine Sanderson;

Prof Patsy Yates; Ms Claudia Virdun.

COnferenCe Organising COmmittee & sCientifiC COmmittee

Thank you

2016 NSW Biennial State Palliative Care Conference Transforming our Landscape 3

key venues

mulberry Vale gallery

10690 Menindee Road, Broken Hill

silverton pub

12 Layard Street, Silverton

mundi mundi plains

4km north of Silverton

Broken Hill regional art gallery

404–408 Argent Street, Broken Hill

palace Hotel

227 Argent Street, Broken Hill

Broken Hill musician’s Club

276 Crystal Street, Broken Hill

royal exchange Hotel


maari ma aboriginal Health Centre


Broken Hill City Council

240 Blende Street, Broken Hill


highlighTs & acTiviTies

palliative Care nsW annual general meeting

Election of the Management Committee for 2017/18.

Date: Thursday 13 October Time: 5–5.30pm Location: Maari Ma Health Building

Welcome reception

PCNSW President Therese Smeal will officially welcome you to the conference and launch the Robin Sellick photographic exhibition. Broken Hill has a long history with the arts. See it for yourself during the Welcome Reception at the art gallery.

When: Thursday 13 October Time: 6–8pm Location: Broken Hill Regional Art Gallery

Welcome performance with Deborah Cheetham

We are extremely fortunate to have a welcome performance by Deborah Cheetham, soprano and composer from Short Black Opera and local indigenous children courtesy of Maari Ma Aboriginal Health.

When: Friday 14 October (morning session 1) Time: 9am Location: Musician’s Club

Calvary Health Care Conference Dinner

Wine and nibbles at Mundi Mundi then on to Silverton for dinner and show.

When: Friday 14 October Time: 6.30pm drinks, 7.30pm dinner Location: Mundi Mundi then Silverton Pub Transport: Bus will pick up from the major hotels between 5.45 – 6.15pm.

post Conference Drinks

Wind down in style on the (in)famous Priscilla balcony.

When: Saturday 15 October Time: 5pm Location: Palace Hotel

royal flying Doctor service flight simulator

Come and fly a RFDS plane!

When: Throughout the conference Location: Musician’s Club

art Legacy Workshop

A highly experiential, interactive and inspiring workshop for anyone interested in implementing an arts program in a healthcare space.

When: Sunday 16 October Time: 9am – 11am Location: Mulberry Vale Gallery

story poles with john sloane

Story Poles are an art form for story-telling. They often represent connection of people to country, and help to signify an important event.

Delegates are invited to contribute to the painting of the story pole being created by local Aboriginal artist, John Sloane, throughout the duration of the conference. At the conclusion of the conference, the Story Pole will be gifted by the conference delegates to the Broken Hill Palliative Care Suite courtyard.

When: Duration of the conference Location: Musician’s Club

Numbers are limited and you must register to attend the following events: Clinical breakfast, Art Legacy Workshop, and Workshops 1, 2, & 4.

Go to our conference page for directions about how to register: www.pcnsw2016.com.au

pre BOOk yOur eVents


PRogRamme ThuRsday 13 ocToBeR

time aCtiVity LOCatiOn

17.00 – 17.30 Palliative Care nSW annual General Meeting Maari Ma Health Building

18.00 – 20.00 Welcome reception & registration Broken Hill Regional Art Gallery

Ph

oto

: Pau

la McM

anu

s


PRogRamme FRiday 14 ocToBeR


8.00 – 8.45 registration Musician’s Club foyer

8.45 – 10.30 Morning Session 1: Plenaries Chair: Dr Sarah Wenham

8.45 – 8.55 PCnSW executive officer’s Welcome Linda Hansen Musician’s Club

8.50 – 8.55 Day 1 welcome Dr Sarah Wenham Musician’s Club

8.55 – 9.00 Welcome to Country Aunty Maureen O’Donnell Musician’s Club

9.00 – 9.10 Maari Ma Children’s Choir Deborah Cheetham Musician’s Club

9.10 – 9.15 Welcome to the Minister Stuart Riley, CE, FWLHD Musician’s Club

9.10 – 9.30 Minister’s welcome Jillian Skinner, NSW Minister for Health Musician’s Club

9.30 – 10.30 Keynote 1: Transforming Care holistically Dr BJ Miller Musician’s Club

10.30 – 11.00 Morning tea

11.00 – 12.30 Morning Session 2: Workshops/Concurrents (see sessions on page 8)

12.30 – 13.30 Lunch All lunches, morning tea and afternoon tea are sponsored by Outback Publicans

12.30 – 13.30 Poster judging Gallery Bar, Musician’s Club

13.30 – 14.30 afternoon Session 1: Concurrents (see sessions on page 9)

14.30 – 15.00 afternoon tea

15.00 – 16.30 afternoon Session 2: Plenaries Chair: Joan Ryan

15.00 – 15.45 Keynote 2: barbara Leroy Memorial Melissa Cumming Musician’s Club

15.45 – 16.30 Q&a Panel: Transforming our Landscape Chair: Joan Ryan, Dr BJ Miller, Dr Sarah Wenham, Therese Smeal, Deborah Cheetham, Carolyn Walsh

Musician’s Club

16.30 Day 1 close Joan Ryan Musician’s Club

18.00 – late Calvary health Care Conference Dinner (see details on page 4)Mundi Mundi and Silverton Pub


PRogRamme saTuRday 15 ocToBeR


8.00 – 8.30 registration Musician’s Club foyer

7.30 – 8.30 breakfast Session Chair: Dr Sarah Wenham

7.30 – 8.30 Clinical breakfast: new Palliative Care Therapeutic Guidelines Chair: Dr Sarah Wenham & A/Prof Greg Crawford

Royal Exchange Hotel

8.50 – 10.30 Morning Session 1: Plenaries Chair: Melissa Cumming

8.50 – 9.00 Day 2 welcome Melissa Cumming Musician’s Club

9.00 – 9.45 Keynote 3: Transforming Clinical Care Dr Anthoulla Mohamudally Musician’s Club

9.45 – 10.30 Keynote 4: Transforming Dying Molly Carlile, AM Musician’s Club

10.30 – 11.00 Morning tea

11.00 – 12.30 Morning Session 2: Workshops/Concurrents (see sessions on page 10)

12.30 – 13.30 Lunch

12.30 – 13.30 Poster judging Gallery Bar, Musician’s Club

13.30 – 14.30 afternoon Session 1: Concurrents (see sessions on page 11)

14.30 – 15.00 afternoon tea

15.00 – 16.30 afternoon Session 2: Pleanaries Chair: Dr Peta McVey

15.00 – 15.30 Keynote 5: Transforming Us Personally Captain Clyde Thomson, AM Musician’s Club

15.30 – 16.15 Keynote 6: Transforming our future Dr Sarah Wenham Musician’s Club

16.25 – 16.30 Conference close Joan Ryan & Linda Hansen Musician’s Club

17.00 – late Post conference cheese and wine Palace Hotel balcony


9.00 – 11.00 art Legacy Workshop Flutter Lyon (see details on page 4) Mulberry Vale Gallery

sunday 16 ocToBeR


woRkshoPs/concuRRenTs FRiday 14 ocToBeR

11.00 – 12.30 mOrning sessiOn 2

CLiniCaL WOrksHOp 1 aBstraCts 1 aBstraCts 2 WOrksHOp 1

theme: transforming Clinical Care

Chair: Prof Jane Philips

Venue: Auditorium

theme: transforming our Landscape

Chair: Dr Peta McVey

Venue: Twilight Room 1

theme: transforming Care Holistically (Carers)

Chair: Caroline Short


theme: transforming Care Holistically

Chair: Melissa Cumming

Venue: Party Room

Clinical Workshop 1: An introduction to palliative care symptom management and assessment – Physical symptoms.

- Introduction Prof Jane Phillips (Nurse)

- Breathlessness Dr Anthoulla Mohamudally

- Itch, hiccups and other hard to manage symptoms Dr Frank Brennan

- Delirium A/Prof Christine Sanderson

- Catastrophic terminal events Linda Magann

Listen, acknowledge, respond: Addressing the mental health treatment gap.

Julianne Whyte

Carer experiences of palliative care: Informing and transforming practice through an exploration of carer narratives.

Kristin Bindley

Workshop 1: Transformed by art.

Explore how art is available to us and invites us to be in touch with the deeply transforming experiences we have as practitioners in palliative care.

Dr Leonie Zadow

Maximum 40 people. Please book in advance.

Dying is difficult in any language: The views of palliative care nurses on barriers to access to palliative care for patients from culturally and linguistically diverse backgrounds.

Liz Lobb

Are rural and remote patients, families and caregivers needs in life-limiting illness different from those of urban dwellers? A narrative synthesis of the evidence.

Emily Saurman

A changing landscape? A snapshot of palliative care advanced trainees and intentions towards rural practice in Australia.

Alison Blight

Understanding the sleep disturbances experienced by caregivers to highlight the need for better monitoring and treatment to improve caregiver outcomes.

Kirstin F Maltby

Carter v Canada: Perspectives on physician assisted dying.

Linda Ora

What can we learn from family caregivers about hope during a home death?

Matra Robertson


WOrksHOp 2 aBstraCts 3 aBstraCts 4 aBstraCts 5


Chair: Dr Sarah Wenham

Venue: Palace Hotel Balcony


Chair: Therese Smeal


theme: transforming Clinical Care (Hospital)

Chair: Colleen Carter



Chair: Deborah Parker

Venue: Auditorium

Workshop 2: Transformed by photography.

Gain a unique perspective on how to connect with photographic subjects, and challenge how to do the same with those we meet in our professional and personal lives.

Robin Sellick


Ambulances and palliative care patients. A study of NSW Ambulance Palliative Care Plans, and their impact on patients’ experience of crisis.

Christine Sanderson

Establishing a new Palliative Care Unit (PCU).

Mary Trotter

What are the barriers to providing good end-of-life care for patients from culturally and linguistically diverse communities?

Liz Lobb

Implementing the Palliative Care After Hours Helpline to support Palliative Care patients, their carers and families.

Janelle Painter

Good relationships: Managing the transition from the ICU to general ward for end-of-life care.

Linda Magann

Cancer pain management needs and perspectives of patients from Chinese backgrounds: A systematic review of the Chinese and English literatures under clinical.

Jane Philips

POMSNAME: A tool to promote quality assessment in palliative care.

Kerrie Womsley

Creatively transforming care within the acute hospital setting using the arts to connect to self and others.

Katrina Armour

Data drives improvement; Utilising Palliative Care Outcomes Collaboration (PCOC) reports to transform clinical care for patients and families: A case study analysis.

Gaye Bishop

13.30 – 14.30 afternOOn sessiOn 1

concuRRenTs FRiday 14 ocToBeR


woRkshoPs/concuRRenTs saTuRday 15 ocToBeR

11.00 – 12.30 mOrning sessiOn 2

WOrksHOp 3 aBstraCts 6 WOrksHOp 4 WOrksHOp 5


Chair: Peter Cleasby


theme: transforming Clinical Care (raCf)

Chair: Bron Heron



Chair: Joan Ryan/Alison Dawes

Venue: Party Room

theme: transforming Dying

Chair: Bev Mercer

Venue: Auditorium

Workshop 4: Transforming Clinical Care.

Persuading to make a difference: Sharing lessons of our improvement journeys.

Dr Rob Wilkins & Bernadette King

The unmet palliative care needs of residents in residential aged care facilities: What a scoping study can tell us about future needs.

Claire Backhouse

Workshop 3: Transforming Legacy.

A highly experiential, interactive and inspiring workshop for anyone interested in implementing an arts program in a healthcare space.

Flutter Lyon


Workshop 4: Transforming Dying.

How can each of us as individuals influence how dying happens in our communities? What are the personal values and philosophies that impact on how we provide care? Are we prepared to collaborate and ‘play’ with non-traditional end of life care providers? If not, why not? If so, how do we go about it?

Molly Carlile, AM

Implementing facilitated case conferencing for people living in aged care with advanced dementia – benefits, barriers and facilitators.

Tim Luckett

Translation into practice.

Peter Cleasby

Transforming clinical care: One year of after death audits in a residential aged care facility.

Larissa B McIntyre

Transforming the palliative approach in residential aged care facilities in Broken Hill.

Sarah Wenham


13.30 – 14.30 afternOOn sessiOn 1

concuRRenTssaTuRday 15 ocToBeR

CLiniCaL WOrksHOp 2 WOrksHOp 6 aBstraCts 7 aBstraCts 8


Chair: Prof Jane Philips

Venue: Auditorium


Chair: Joan Ryan


theme: transforming Clinical Care (regional, rural and remote)

Chair: Alison Dawes


theme: transforming Dying

Chair: Beverley Mercer

Venue: Party Room

Clinical Workshop 2: An introduction to palliative care symptom management and assessment – Psychosocial symptoms.

- Introduction Prof Jane Phillips

- Depression and Anxiety A/Prof Greg Crawford

- Supporting Children Dr Matra Robertson

- Anticipatory Grief A/Prof Liz Lobb

Workshop 5: Transformed by Mentoring.

Examine the role of mentoring as a way to prepare for the future landscape of Palliative Care education.

Dr Frank Brennan & Joan Ryan

Providing end-of-life care in rural and regional Australia: Optimal expectations versus actual end of life care.

Peta McVey

What does it take for people to die where they choose and what effect does this have on formal and informal caring networks?

Debbie Horsfall

Ethical considerations of a longitudinal study of informal care networks across rural and remote NSW.

Emily Saurman

Dying2learn: The first ever Australian MOOC on death and dying.

Christine Sanderson

Transforming the landscape: Exploring the experience of Australian rural palliative medicine specialists.

Alison Blight

The Good, the bad and the ugly: How caring for my dying relatives changed me as a palliative care nurse.

Kathleen Wurth


Dr. BJ Miller is a hospice and palliative medicine physician. He sees patients and families at the UCSF Helen Diller Family Comprehensive Cancer Center, where he also teaches and serves on faculty. In addition, he serves as Advisor for Zen Hospice Project, a residential hospice facility and education center in San Francisco which he directed from 2011 through 2015. Dr. Miller also consults at the intersection of palliative care and design and frequently speaks publicly on this topic. He and his coauthor, Shoshana Berger, are currently writing a practical manual for preparing for death that will be a highly practical and provocative guide to navigating dying in contemporary american society.

His interests are in working across disciplines to affect broad-based culture change and in cultivating a civic model for aging and dying. This includes the creation of a Research Center that will foster change outside the confines of modern medicine as well as grow a mobile palliative care team and promote public art projects within communities as a means to memorialize and provoke discussion around the topic of death.

His 2015 TED Talk ‘Not Whether But How’ (aka ‘What Matters Most at the End of Life’), a reflection of his vision to make empathic palliative care available to all, ranked among the Top 15 Most Viewed Talks of the year and he continues to speak internationally on the topics of perspective making, aesthetics, and palliative care.

Dr. BJ Miller invites us to think about and discuss the end of our lives through the lens of a mindful, human-centered model of care, one that embraces dying not as a medical event but rather as a universally shared life experience. Informed by his own experiences as a patient, Dr. Miller powerfully advocates the roles of our senses, community and presence in designing a better ending.

BJ brings a unique blend of training, experience and commitment to furthering the message that suffering and dying are fundamental and intrinsic aspects of life and is widely recognized for his efforts in cultivating a larger dialogue about this universal human experience.

Dr Bj miLLer

keynoTe sPeakeRs


Melissa Cumming is a Registered Nurse with almost 30 years’ experience in Palliative Care, with 27 years of those years working in rural and remote communities of the Far West. Her current role is the Director of Cancer and Palliative Care Services for the FWLHD.

Melissa moved to Broken Hill in 1989 after working for two years at Calvary Hospice in Sydney in both the specialist palliative care inpatient and community setting. As there was no palliative care service in Broken Hill, Melissa started the Broken Hill Palliative Care service 6 months after arriving, and later developed Palliative Care services in Dareton and outreach services to the whole of the FWLHD.

Melissa has a Master’s Degree in Palliative Care and is a part time teacher in Palliative Care for Indigenous Populations at Flinders University, Adelaide. ‘How Primary Health Care Nurses feel about

providing palliative care’ was the basis of a research project that Melissa went on to publish in 2012.

Melissa’s leadership role and advocacy for equitable and quality palliative and end of life care has seen her awarded with the Broken Hill City Council Australia Day Award 1996; Inaugural Nurse of the Year Broken Hill 1997; one of 10 finalists (from 200 nominations) in the Australian Rural and Outback Awards ‘Health and Community Service Category’ 2009; Inaugural NSW Nursing and Midwifery Excellence Award winner in “Excellence in Leadership” 2013, and Australian of the Year nomination 2016.

Melissa’s work in palliative care is driven by her desire to ensure that a person can receive quality palliative and end of life care regardless of where they live, and to support their choice to die in their preferred place of care.

keynoTe sPeakeRs

meLissa Cumming


Dr antHOuLLa mOHamuDaLLy

Dr Anthoulla Mohamudally graduated from the University of London in 1996 and completed basic physician training in the UK before moving to Australia in 2001.

She undertook basic and advance physician training in Sydney, becoming a specialist in Palliative Medicine in 2009.

Anthoulla went from studying a PhD on ‘The Impact of the Anorexia-Cachexia Syndrome on the Pharmacokinetics of Opioids’ to providing palliative care in the Northern Territory, largely in remote communities.

Returning to Sydney in 2014, Anthoulla joined HammondCare and currently works as a Palliative Care specialist at Royal North Shore Hospital.

Anthoulla at the 2014 conference in Sydney to an overwhelmingly positive response. Every evaluation of her presentation rated her five out of five and we are most grateful that she has agreed to come to Broken Hill with two more years of working in the city under her belt.

keynoTe sPeakeRs


mOLLy CarLiLe, am

Molly Carlile is ‘The Deathtalker®’. She has been a passionate advocate for dying and grieving people and for building compassionate communities for the bulk of her eclectic career. She is a sought after speaker because she talks about death in plain English, without all the medical jargon with the aim of returning ownership and control to ordinary people.

A published author, her first book Jelly Bean’s Secret has been used widely as a tool for introducing the concept of death and grief to young children and her book, Sometimes Life Sucks addresses the complex needs of young adults when experiencing death and loss. Her new book, The Death Talker is being released internationally in October 2016 by New Holland and is a ‘go to’ guide, in plain English that explores all aspects of death and grief, utilising engaging, individual stories to address common questions and misconceptions about everything from the dying process to funerals, planning and rituals, with a focus on providing information to people both living with a serious illness and to those who find themselves caring for a dying loved one.

Her website deathtalker.com facilitates death and grief awareness online and explores the broader questions of meaning and life purpose.

Molly has embraced the use of the arts as a vehicle for empowering people to come together and be entertained while also being challenged to think about their fears and anxieties about death. To this end, she collaborated with celebrated Australian author and playwright, Alan Hopgood on the plays, Four Funerals in One Day and The Empty Chair, exploring multiple issues including end of life, grief, dementia and relationships and both plays continue to tour nationally, recently being performed internationally. She has also appeared in a number of documentaries and short films.

Molly not only speaks about these issues in the community but in the media and in the health and education sectors, appearing regularly on television, including on Network 10’s The Circle and The Project and on ABC’s The Weekly with Charlie Pickering . She is a regular commentator and studio guest on national radio, with multiple interviews on Radio National, ABC Local (NSW, WA, Vic, TAS, NT and Queensland), and commercial and community radio. Molly is CEO of South East Palliative Care Ltd in Melbourne.

keynoTe sPeakeRs


Captain CLyDe spenCe tHOmsOn, am

Clyde Thomson joined the Royal Flying Doctor Service of Australia (SE Section) as a pilot and served as chief pilot and operations manager. He was CEO of the South Eastern Section for twenty-eight years, overseeing the development of operations from a single base with two aircraft to an operation spanning three States, five bases and eighteen aircraft. Total assets grew from $14.5M to $143M and annual income increased from $6.2M to $70M.

Established with Dr Jack Best AM, Dr Sue Morey AM and Professor David Lyle the Broken Hill University Department of Rural Health in 2006 and subsequently the Sydney University Dubbo Clinical Training School.

Previously Clyde worked as General Manager of Arkaroola Enterprises, with responsibility for aviation, operational and pastoral operations, and as a surveyor and pilot with Geo Surveys a subsidiary of Beach Petroleum Pty Ltd.

Clyde retired from his position of CEO with the RFDS SE Section in 2013 after serving the organisation for forty years in various operational and management positions across all Sections of the RFDS of Australia.

His current positions include:

- Board Member of the African Medical and Research Foundation (AMREF) Royal Flying Doctor Service in Kenya, Africa, which provides aero medical evacuation and clinical programmes across Africa. Appointed 2005.

- Trustee of the Royal Flying Doctor Service Friends in the United Kingdom under the patronage of HRH Prince Charles – an organisation which raises funds for the Royal Flying Doctor Service of Australia. Appointed 2003.

- Board Member of the Far West Local Health District. Appointed June 2011.

- Board Member and Lecturer University of NSW Aviation Operations.

keynoTe sPeakeRs


Dr saraH WenHam

Dr Sarah Wenham is the Specialist Palliative Care Physician and Clinical Director of Sub & Non-Acute Care for the Far West LHD, serving the 32,000 people that live rurally and remotely in Far West NSW, a geographical area that covers 195,000km2 and boarders with Queensland, South Australia and Victoria. Sarah moved to Broken Hill directly from the UK in 2012, where she previously worked as a Community Consultant in Palliative Medicine in the Blackpool area, serving a population of 333,000 people.

Sarah is passionate about providing high-quality patient-centred palliative and end of life care in all care settings for the community within which she now lives. She is equally eager to ensure the healthcare needs of rural and remote Australians are represented at State and National level, and she holds current positions on the Agency of

Clinical Innovation Palliative Care Executive Committee, Clinical Excellence Commission End of Life Advisory Committee and Therapeutic Guidelines Palliative Care Expert Writing Group.

Sarah is married to John, a General Practitioner with the Royal Flying Doctor Service. Sarah and her family love living in outback Australia; she has learnt to appreciate life from a different perspective, finding unexpected beauty in the rugged harsh landscape and extremes of desert living, which showcase rainbows, storms, sunsets and stars like she’s never seen them before.

Sarah hopes that you too will reflect on what you see and experience in the place she now calls home, and that you don’t leave without being challenged to find exceptional in the everyday.

keynoTe sPeakeRs

Clinical Excellence Commission Leading quality and safety improvement in the NSW public health

system

Clinical Excellence CommissionLeading quality and safety improvement in the NSW public health system

The Palliative Care After Hours Helpline

1800 548 225Available weekdays 5pm-9am, all day Saturday, Sunday and public holidays

The NSW Palliative Care After Hours Helpline is a free service that provides professional health information, support and advice for people who receive palliative care, their carers, parents, families and health professionals during the after hours period. The Helpline is complementary to specialist palliative care services provided during the day and other after hours palliative care arrangements.

Palliative care providers and health professionals can refer their patients to call the Helpline if they need advice or support in the after hours period.


WOrksHOp 1: transfOrmeD By art

woRkshoPs

In this workshop we will explore how art is available to us and invites us to be in touch with the deeply transforming experiences we have as practitioners in palliative care.

Not only, then, does art become a means for our own self - care, but we come to appreciate the varied ways we can make it available in encounters with other staff, patients, families and the community.

We will spend some time pondering what art might mean to us, and then we will use a couple of art forms to play with the idea of our transformation.

No prior art awards are necessary to join in. This will fun – even if it transforms you!

Workshop capacity: 40 people Pre book: Yes

Leonie Zadow is a senior consultant physician working in the Central Adelaide Palliative Service. Her experience spans some 30 years working with people on the edge of their living.

Her passion to integrate whole person care, with working on the edge and being a physician, led her to a four year program with the Sacred Art of Living and Dying Centre, in the USA. She continues to be drawn by the question: Who and what is transformed when caring for the dying?

presenter: Leonie Zadow

Each conference theme will be explored by a keynote speaker and then followed up with a workshop to examine the issues raised in more detail.


WOrksHOp 2: transfOrmeD By pHOtOgrapHy

woRkshoPs

In this workshop you will discover what photographing celebrities has in common with caring for patients: Working with people who feel vulnerable; creating an open line of communication; overcoming their fears and quickly establishing trust.

Sellick will share his unique perspective on how he connects with his photographic subjects, and challenge how we do the same with those we meet in our professional and personal lives.

Robin will tell you how he approaches shooting people from all walks of life and teach some of his techniques to get the best out of people. And you’ll even learn a few tips to improve your photography.


Robin Sellick is an Australian portrait photographer widely known as Australia’s leading celebrity photographer. The son of a miner, Sellick was born in Broken Hill in outback NSW, Australia, where, as a teenager, he gained a reputation as a “dog photographer”, taking portraits of people’s pets for free, before graduating to wedding portraits after moving to Adelaide in 1988. It was here, while working at a wedding portrait studio, that Sellick mistakenly developed slide film in chemicals meant for print, and thus became an accidental pioneer of cross processing, the exaggerated colours that result from the process becoming Sellick’s trademark in coming years. In 1990, his exploration of this method saw him become the first person to win both of the highest awards for portraiture in Australia in the same year through the Australian Institute of Professional Photography, a feat he was to repeat the following year.

In his workshop, Transforming our Landscape through Photography, Sellick will sharing his unique perspective on how he connects with his photographic subjects, and challenge how we do the same with those we meet in our professional and personal lives.

presenter: robin sellick


WOrksHOp 3: transfOrming CLiniCaL Care

Providing care to people as they approach and reach the end of their lives often requires a great deal of persuasion: persuasion to have difficult conversations; persuasion to change the way our organisations provide care and persuasion to convince everyone that they have a genuine role to play.

This interactive workshop is designed to help us think about and share examples where we made a difference; where we persuaded someone or something and changed the care we provide for the better. The interactive part of the workshop will be followed by an update from the Clinical Excellence Commission’s End of Life Program.

Workshop capacity: 50 people Pre book: No

presenters: Dr rob Wilkins & Bernadette king

woRkshoPs


During this powerful workshop experience Flutter Lyon will take you on a journey through your own storytelling and legacy alongside the findings of the award-winning Reflected Legacy Palliative Care program.

Through her unique art form of ink-pressings, created during interactive storytelling pressing sessions, Lyon is able to bring the life stories of a person to the surface in a real, safe, beautiful way – giving patients the ability to reflect upon their lives at such a profound moment in their human life. Lyon will demonstrate the technique and invite members of the workshop to participate in a pressing session of their own.

There will be an exploration of the links between arts and health and ways to generate brand new ideas that help to meet some of the most vital needs in the palliative care space. This workshop is designed to be highly experiential, interactive and inspiring for anyone interested in implementing an arts program in a healthcare space.


WOrksHOp 4: transfOrming LegaCy

woRkshoPs

Flutter Lyon (Robyn Wilson) is an Australian contemporary artist and experience designer who takes human beings on deep journeys of storytelling and creativity.

Over the last 10 years she has pioneered the ink-pressing art form and interactive storytelling experiences of pressing sessions. She co-founded the Reflected Legacy program at Liverpool Hospital, a groundbreaking arts and health project recording the life stories of patients in palliative care in ink-pressing artworks and sound recordings.

She is also currently leading the international #500LIVES project, recording the life stories of 500 human beings across a diversity of cultural, social and political spaces. Her work connects and celebrates the intelligence of humanity, through experiences that draw upon memory, emotions and sensory recall.

presenter: flutter Lyon


This workshop will cover in more detail the concepts addressed in the keynote address. Participants will be encouraged to apply the idea of personal transformation, workplace transformation and sector transformation in order to develop some strategic ideas to take away and implement.

How can each of us as individuals influence how dying happens in our communities? What are the personal values and philosophies that impact on how we provide care? Are we prepared to collaborate and ‘play’ with non-traditional end of life care providers? If not, why not? If so, how do we go about it?

Participants will be encouraged to think creatively about where they see the future of the sector and how they can influence change at a grass roots level to ‘throw open the doors’ and grow the capacity in their local communities. We will explore the barriers and opportunities provided by an aging population with high expectations about the care they are entitled to and how we can place ourselves, our organisations and the sector as a whole to embrace change and build compassionate, local communities that address both expectations and individual need.


WOrksHOp 5: transfOrming Dying

woRkshoPs

Molly Carlile AM is a multi-award winning death and grief specialist, palliative care activist, author and international speaker. She has extensive academic qualifications in health, end of life care, counselling and education, and over 20 years of experience in the field. Known as ‘The Deathtalker®, she supports people to become informed about death and grief in order to live life to the full.

But death is not all Molly talks about. She actively promotes the idea that if we build caring and compassionate communities, we would all feel supported and be better equipped to support others during life challenges and periods of emotional turmoil.

Molly believes that by empowering our local communities (be they workplaces, professional, school or residential communities) to explore the concepts of connection and empathy, we can create a groundswell of change that can have wide ranging impacts on our quality of life.

presenter: molly Carlile, am


WOrksHOp 6: transfOrmeD By mentOring

woRkshoPs

Beyond the teaching of facts what does it mean to be a good mentor in Palliative Care? The creation of compassionate hospitals and workforces depends largely on how as clinicians we intrinsically learn to be present in the midst of suffering. Dignity, respect and compassion are among the core values of Palliative Care. How then do we learn and teach such values and remain present in the face of distress?

This workshop will examine the role of mentoring as a way to prepare for the future landscape of Palliative Care education. It will draw on the arts to explore the role of mentoring as a way of nurturing, understanding, affirming and inspiring a culture of learning beyond mere skills.


Frank Brennan is Palliative Care Staff Specialist, a lawyer and a writer. He is very interested in the interface between medicine and literature and how we can use this to educate in Palliative Care. He has published a series of medical humanities pieces looking at poetry and other literature in the context of serious illness, death and bereavement. He has published widely on the topic of Palliative Care and human rights. Currently he works closely with the Department of Nephrology at St George Hospital, Sydney in the area of Renal Palliative Care and Calvary Hospital.

Joan is a Palliative Care Clinical Nurse Consultant at Royal Prince Alfred Hospital with vast clinical experience in Palliative Care Specialist Nursing in the acute, community and inpatient setting. She has a special interest in the interface between nursing, the humanities and ethical decision making. To this end Joan collaborates and facilitates on many workshops using the arts to engage in conversation around a compassionate culture of care especially end of life care and meaningful communication. Joan has completed a Psychology/Anthropology degree to widen her understanding of human behaviour especially around learning.

Together Joan and Frank have collaborated on many educational workshops and have extended this interest globally mainly within the Asian Pacific Nations.

presenters: frank Brennan & joan ryan


amanDa jOHnsOn

local aRTisT

Amanda Johnson is a self taught artist and fourth generation Broken Hill resident. After five years as pay mistress at the South Mine, Amanda operated a ceramic teaching studio. Folk art was a natural progression from ceramics, but fine art is her first love.

As is the way of all artists, her career began emulating others, but has now evolved to an individual style capturing the environment she lives in.

Amanda’s atelier is Willy Nilly Art on Argent Street, Broken Hill. There she has a gallery, retail and teaching space as well as on-site studio.

Amanda was commissioned by the organising committee to do the art work for the conference due to her unique artistic style in capturing the iconic Broken Hill landscape. Amanda’s paintings are colourful and vibrant and bring joy to their audience.

26

Far West LHD logo Maari Ma LogoSouthern Cross Care.

JOIN US https://www.aci.health.nsw.gov.au/networks/palliative-care

Palliative Care Network

Working to ensure that all NSW residents have equitable access to quality care based on assessed need as they approach and reach the end of their life.

Working to ensure that all NSW residents have equitable access to quality care based on assessed need as they approach and reach the end of their life.

Join us www.aci.health.nsw.gov.au/ networks/palliative-care

Palliative Care Network

The Palliative Care After Hours Helpline

1800 548 225Available weekdays 5pm-9am, all day Saturday, Sunday and public holidays

What is the NSW Palliative Care After Hours Helpline?

The NSW Palliative Care After Hours Helpline is managed by Healthdirect Australia on behalf of the NSW Government. For more information or free resources, come see us at our conference stand, or visit: about.healthdirect.gov.au/promotional-materials

The NSW Palliative Care After Hours Helpline provides professional health information, support and advice for people who receive palliative care, their carers, parents, families and health professionals during the after hours period.

How can the Helpline be accessed?

The Helpline is a free NSW service and is available overnight 5pm-9am (AEST), on weekends and public holidays.

Anyone can access the Helpline. It is free to call from landlines, Telstra payphones and some mobile phones depending on the contract.

How does the Helpline support palliative care patients?

The Helpline is operated by registered nurses with training in palliative care, who will provide professional trusted advice and support. If the caller’s concerns are complex, the call will be transferred to a specialist palliative care nurse.

Palliative care patients receive information and assistance about a range of concerns, including:

• professional assessment of their current symptoms

• support and advice about the care plan provided by their principal healthcare professional

• advice on symptom and medication management aligned with their care plan

• psychosocial support in managing concerns, worries or fears

• referrals to their closest service provider.

How does the Helpline support the work of health professionals?

The Helpline is designed to be complementary to specialist palliative care services provided during the day and other after hours palliative care arrangements. The Helpline assists health professionals to support palliative care patients who choose to remain at home.

Health professionals can refer their patients to call the Helpline if they need advice or support in the after hours period.

Health professionals can also call the Helpline for advice on how to manage a palliative care patient’s symptoms and equipment.

After each call, a summary is provided to the patient’s specified palliative care provider to keep them informed.

palliative care a4 ad - 20160912.indd 1 16/09/2016 11:27:02

2016 nsw biennial state palliative care conference ... … · transforming palliative care and end...

Documents