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2016 Board of Directors Executive Committee

Members-at-Large

Amy Semaka

Andrew Caprariello

Bob Macklon

Candice Laws

Chris Power

Coriann Berry

Darryl Moore

Gail Taylor

Judy Gordon

Kevin Cummings

Chris Huestis

Suraj Chavda

Our Mission

To be a leader in finding a cure for Multiple Sclerosis and enabling people affected by MS to enhance their quality of life.

Board Chair Gayelene Bonenfant

Vice-Chair Kevin O’Neil

Treasurer John R Sambo

Secretary and Nominations Chair Dean Walker

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Table of Contents

Annual Meeting Agenda 2016 ....................................... 4

Annual Meeting Minutes 2015 ...................................... 5

Financial Statements ...................................................... 7

Board Chair’s Report ...................................................... 8

Treasurer’s Report…………………………………………………….10

President’s Report ....................................................... 13

Committee Chair Reports………………………………………….16

2017 Nominations Slate ............................................... 22

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36th Annual Meeting - Outline of Events Alberta & Northwest Territories Division Board Members

Agenda

9:00 Welcoming Introductions & Declaration of quorum

9:05 Approval of 2015 Annual Meeting Minutes

I. Motion to Adopt 2015 Minutes

9:10 Financial Statements – Year in Review

9:20 Board Chair Report: Gayelene Bonenfant

9:25 Treasurers Report: John R. Sambo

9:30 President’s Report: Dr. Garry Wheeler

9:40 Committee Chair Reports:

x Government & Community Relations x Programs & Services x Chapter Liaison

II. Motion to Adopt Reports as received

9:50 Nominations Committee: Dean Walker, Committee Chair

x Introduction of 2016 Board Nominees III. Motion to endorse 2017 Slate of Nominees

x Recognition of Outgoing Board Members

10:00 Closing Remarks

IV. Motion to adjourn the 2016 Annual Meeting

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2015 Minutes of the 35th Annual Meeting Alberta & Northwest Territories Division

April 16, 2016 1.0 Call to Order

Host and former board member Melanie Framp called the meeting to order at 9:02 a.m. 2.0 Welcoming Remarks

Co-host Nick Dehod, Communications Manager opened with welcoming remarks and an overview of the agenda.

3.0 Introductions Board Chair, Gayelene Bonenfant, introduced the 2015 Board members and the 2016 Slate of Nominees. She then introduced special guests, Dr. Luanne Metz from the University of Calgary.

4.0 Notice of Meeting Appropriate notice of this Annual Meeting has been provided in accordance with the Governing Division Charter approved June 14, 2013.

5.0 Confirmation of Quorum Chair, Gayelene Bonenfant declared quorum.

6.0 Meeting Standing Rules Chair, Gayelene Bonenfant directed attendees to the Meeting Standing Rules as displayed on the screen.

7.0 Meeting Agenda Chair, Gayelene Bonenfant directed attendees to the April 16, 2016 meeting agenda contained in the Annual Report.

8.0 Approval of Minutes of 2014 Annual Meeting 8.1 M/S/C (Gail Taylor/Bob Macklon) Motion: “That the Minutes of the 2014 Annual Meeting held on Saturday, April 18, 2015 be adopted as presented.”

9.0 Executive Reports 9.1 Board Chair – Gayelene Bonenfant * Board Chair Gayelene Bonenfant provided an overview of the revenues for 2015 events. * Great strides have been made at both provincial and national levels including participation in the national policy forum, advocacy for employment supports and medical assistance in dying (MAID). 9.2 Treasurer’s Report * G. Bonenfant presented the Treasurer’s Report in a presentation format and directed members to the detailed report contained in the Annual Meeting Report that was distributed to members. 9.3 Committee Reports: Verbal reports for 2015 were provided by:

x Government Relations Report – Judy Gordon, Chair x Programs and Services Committee Report – Keith Johnson, Sr. Mgr Programs and

Services x Chapter Liaison Committee Report – Gayelene Bonenfant, Chair

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9.4 Regional Reports:

x Southern Region, Darrel Gregory, Director x Central Region, Lorraine Evans Cross, Director x Northern Region, Johanna Green, Director

9.5 Operational Report, Division President – Dr. Garry Wheeler * Dr. Garry Wheeler provided a brief overview of the highlights from 2015 and contextualized the research spend of 60:40 as heard in the “Listening” survey. M/S/C (Bob Macklon/Chris Kieser) Motion: “That the Chair’s, Treasurer’s, Vice-President’s, Regional Leads and President’s reports be received as presented.” Carried. 9.6 Nominations – John Sambo (2016 Slate of Nominees)

NAME LOCATION Amy Semaka Edmonton Andrew Caprariello Calgary Bob Macklon Edmonton Candice Laws Calgary Chris Huestis Calgary Christopher Power, Dr. Edmonton Coriann Berry Calgary Crista Watts Baker Fort McMurray Darryl Moore, Dr. Edmonton Dean Walker Edmonton Gail Taylor Lloydminster Gayelene Bonenfant Calgary John Sambo Calgary Judy Gordon Central Kevin Cummings Yellowknife Kevin O’Neil Edmonton Suraj Chavda Edmonton

M/C (Melanie Framp/Gayelene Bonenfant) Motion: “That the 2016 Alberta and Northwest Territories Division slate of nominees be endorsed for approval by the National Board in June 2016.” Carried. 9.7 Nominations – John Sambo Recognition of Outgoing Board Members John Sambo recognized outgoing board members Wayne Jacques and Melanie Framp for their long-standing service and commitment on the Division board. Each were presented with a Katie Gerke print.

10.0 Adjournment M/C (G. Bonenfant) Motion: “There being no more business to come before this assembly, and without objection, I declare the 2015 Annual Meeting of the Multiple Sclerosis Society of Canada – Alberta & Northwest Territories Division, adjourned.” Adjourned at 11:1

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Alberta & Northwest Territories Division, Chair’s Report Annual Meeting April 8th 2017

Gayelene Bonenfant, Chair Introduction: I am delighted to present the Chair’s report on the activities of the Alberta and Northwest Territories Division, Chapters and Community Advisory Councils for 2016. What a remarkable year it has been. Notwithstanding the economic and environmental challenges of this past year, there has been much to celebrate and I am delighted to reflect on some of the highlights in the foregoing report. A farewell to a good friend to the MS Society The year began with news on the HR front that our President of 12 years, Mr. Neil Pierce, would be leaving the MS Society of Canada. During his tenure Neil significantly grew the MS Society in Alberta and the Alberta and Northwest Territories Division; doubled its revenues between 2005 and 2010; established a new level of excellence in Government relations in the Society, and helped steer the ship through some difficult political, social and financial waters. My sincere thanks to Neil for years of dedication and commitment to the MS Society. However, we were fortunate that the former Vice President Operations, Dr. Garry Wheeler, was able to assume the President’s role and provide some continuity over the year.

On the fundraising front: Had I been asked at the end of June 2016, how our fund raising year would end, I confess I would likely not have provided a very hopeful outlook. The economy and the northern wildfires had clearly taken their toll. It was clear there was going to be a significant reduction in final event revenues. Both participant rates and revenues were trending significantly lower in the Jayman BUILT MS Walks and also – although not as significantly – in the Johnson MS Bike.

Gross revenues for 2016 were $7.873 million which was below budget by 6%. However, total consolidated gross expenditures were down 4% and 7% year over year. As a result of the careful expenditures and cost controls, I am pleased to note that, notwithstanding the challenges that were faced this year, we posted a small surplus in 2016 and most important of all, we met our research contribution target of $1.67 million. This is a remarkable feat during a year in which all not for profit organizations have been hit extremely hard by the economic climate. My sincere thanks to our staff and volunteers for all of their work and contributions that 'turned the tides' on a difficult year, and helped us achieve our important goals.

Accelerating Research: Despite the challenges of fund raising, a new strategic direction approved by the national board in February has sought to increase our focus on research and in particular the funding of research in progressive MS. The “Accelerating Research” strategic direction was a direct response to respondents to the “Listening” Survey in which people told us clearly that we should spend more monies on research.

As a result, the MS Society has set a target of a 60:40 spend ratio (Research to Services) by 2019. To achieve this, numerous targets have been set to either restructure how we operate, increase efficiencies or raise more monies. I am pleased to say that the President and the Alberta and Northwest Territories Division staff have responded quickly and effectively in this regard and targets set by the National team

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have been met. I note the President has described these successes, and therefore, direct the reader to that portion of his report. I am very pleased and grateful to tell you of the successful government, private industry and MS Society partnership that facilitated our raising over $200,000 in grants and in-kind donations to allow the Division office to be renovated and transformed into a modern open concept. This has reduced our monthly rent obligations by over half over the 10-year term, resulting in over $1.2 million in savings on the life of the lease. May I add my thanks to our partners in Fillmore Construction and Stantec, as well as to the Federal and Provincial Governments for their support.

In spite of the proactive response of the country to addressing this shift in spending, it became apparent early in the fall, that the Society would still be carrying a significant deficit of over a million dollars into 2017 unless immediate action was taken. Clearly, the funding of deficits on an ongoing basis from donor monies was unacceptable, and therefore, at the direction of the Board, on November 1, 2016, the MS Society embarked on a major restructuring of staffing across the country resulting in the elimination of 40 positions, thus meeting the goal of eliminating the deficit. In Alberta, we were fortunate to only lose two full time positions whereas other Provinces lost many more.

Community Facing Task force A key element in achieving the goals of “Accelerating Research” is the shift in the roles and responsibilities of our boards to that of Community Facing activities. Such activities include: government relations and advocacy, opening doors to potential donors and fund raising, and telling the MS Society’s story. To this end, in September 2016 the National Board created the Community Facing Task force to address the question of the community facing roles and responsibilities and to increase role clarity and engagement throughout the organization. This is a critical element of the Accelerating Research strategy and our ability to raise our profile, increase our relevance in the MS domain, in the eyes of both the public and our donors.

In order to help inform this work, the Alberta and Northwest Territories Division intends to embark on a series of workshops engaging our Division board, Chapter boards and councils. The process of defining community facing and the roles and responsibilities of community facing boards, as well as encouraging these local bodies to define strategies to reach into our MS communities and connect with corporate and private partners, build relationships with government at every level and empower our many volunteer leaders to make meaningful contributions to our MS family.

I look forward to 2017 with a renewed optimism. Our performance this year, in light of our amazing resilience in the face of challenge, fills me with hope for the upcoming year. I want to thank all of you, our members, donors and volunteers for all your support this year, and to members of the Alberta and Northwest Territories Division, and all Chapter and Council volunteers, a heartfelt thank you for your unfailing support. Respectfully submitted,

Gayelene Bonenfant Chair, Alberta and Northwest Territories Division Board

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Alberta & Northwest Territories Division Annual Meeting April 8th 2017

Treasurer’s Report How we raised and spent monies in 2016: A narrative

Introduction: Once again 2016 proved to be a difficult year on the financial front. However, at year end, the financial position of the Alberta and Northwest Territories Division was considerably better than might have been predicted at the mid-point of the year. We are particularly pleased to have met our research contribution target while recording a balanced budget and a small surplus. The following report is based on the December 31st 2016 Income statement and specifically refers to consolidated totals (i.e. adding up the totals across all events, expenditure across all chapters and regional offices within Alberta and Northwest Territories Division). Organization of the Report: For the purpose of presenting the financial statements for 2016, the foregoing report is organized to answer the following questions:

1. How much money did we raise in 2016? 2. How much money did we raise from our community fund raising events? 3. How much money did we raise from our leadership giving (donor) portfolio? 4. How much did it cost overall to raise our monies and how is that distributed across fund raising

and administration? 5. How much did we donate to research? 6. What is the bottom line? Where did we land at the end of 2016?

Financial report:

1. How much money did we raise in 2016?

The consolidated total revenues raised for 2016 were $7.873 million. This is $540,000 below budget or 6% and down 12% year over year. This was largely the result of an ongoing economic downturn and the ‘donor diversion effect’ of the Northern wildfires.

2. How much money did we raise from our community fund raising events?

In 2016, we raised a total of $5.086 million. Our main community fund raising events are our Jayman BUILT MS Walks and our Johnson MS Bike tours. We raised $1.764 million from the Jayman BUILT MS Walks and $3.32 million from the Johnson MS Bike this year. Unfortunately, this consolidated revenue total was $565,000 or 10% below budget and accounts for the overall decrease in revenues from 2015. This downturn in major event revenues was partially offset by (i) a strong performance in leadership giving (major donations) and (ii) strict costs and expenditures controls (see below). It is important to note that given the financial challenges of 2016 we in fact, ‘held up’ rather well given the decline in revenues experienced by other not for profits.

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3. What were our event highlights?

A number of the Jayman BUILT MS Walks did make or exceed budget this year: for example, Lakeland St. Paul. As well, this year saw record attendance at the Johnson MS Bike – Leduc to Camrose with over 2,030 participants taking part and raising over $2 million dollars. Add to that very successful Whiskey and other third party events which raised over $267,000, this was a more positive year than one might have predicted. We also completed another successful partnership with A&W raising over $263,000 in 2016. In a year when many golf tournaments were cancelled due to lack of sponsorships and registrations we continued to experience success raising $242,000 across the Province. Although not event related, a key success this year was raising over $200,000 in Federal and Provincial Grants as well as in kind funding to support the renovation of the Alberta and Northwest Territories Division and Edmonton and Capital Region Offices. This was made possible through a tremendous partnership between two levels of government, private industry and the MS Society. We are grateful to the Provincial and Federal Governments, as well as Stantec and Fillmore Construction for their invaluable support. We actually received support from all three levels of government this year which is most significant. We received a grant from the City of Edmonton for operations, $130,000 for the Friendly Visiting Program as well as $125,000 from the Community Facilities Enhancement fund (for the renovation) from the Provincial Government, and finally $50,000 from the Federal Enabling Accessibility Fund.

4. How much money did we raise from our leadership giving (donor) portfolio?

The Leadership Giving (LG) portfolio generally includes major gifts from our donors. The total revenues for leadership giving were $1.127 million or 31% ahead of budget for 2016 and ahead of 2015 numbers by 33%. This was an excellent achievement in the current economic climate. The growth in revenue from LG represents an increasingly important element of the Alberta and Northwest Territories Division fund raising portfolio.

5. How much did it cost overall to raise our monies and how is that distributed across fund raising and administration?

Our total cost of fundraising during 2016 was officially calculated at 31% (on the dollar). Total consolidated expenditures were $7.87 million which is $269,000 or 3% below budget and down 8% year over year. Total fundraising expenditures were $1.088 million or 1% below budget and 12% down year over year. Total programs and administrative expenditures were $6.78 million which was $263,000 or 4% below budget and down 7% year over year. Of note, total programs and services expenditures were down 33% or $157,000 and 12% down year over year. Salary expenditures were $266,000 below budget or 8%. This is down 15% year over year and marks the impact of not filling existing vacancies as well as terminations over the past 24 months including the November 1st restructuring. However, it is important to note that our program and services portfolio continues to provide essential and impactful services including advocacy, volunteer legal advocacy (new program in development), education and essential financial equipment support.

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6. How much did we donate to research?

In 2016, we budgeted $1.67 million for research. In spite of all the challenges we were successful in meeting this goal. We are excited to continue to excel in raising dollars for research and the overall impact this will have on ‘Accelerating Research’ in the realm of progressive disease.

7. What is the bottom line? Where did we land at the end of 2016.

The consolidated net position of the Alberta and Northwest Territories Division to December 31st 2016 is a deficit of $270,000 to budget. However, a small surplus of $2,329 was achieved. In conclusion: These are favorable results after a most difficult year and reflect excellent performance in the leadership giving area as well as strong cost and expenditures controls. I want to thank all our staff and volunteers for a wonderful job in raising revenues for the MS Society of Canada. We cannot do this without you. Respectfully submitted,

John R. Sambo Treasurer, AB & NWT Division Board

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Alberta & Northwest Territories Division Annual Meeting: April 8th 2017

President’s Report Introduction

I am pleased to provide the Annual President’s report for the Alberta and Northwest Territories Division for 2016. Despite another difficult year, we achieved a balanced budget and met our research expectations for 2016. This was a splendid achievement given the ongoing financial climate and the impact of the Fort McMurray wild fires in the Spring.

A Year of Challenges, Successes and Change

Notwithstanding the prospect of a difficult financial year, the year began with three highly successful Whiskey Festivals in Edmonton, Calgary and Red Deer. Although MS Walk and MS Bike revenues were down significantly, excellent performances in some of our Jayman BUILT MS Walks, as well as record participation in the Johnson MS Bike - Leduc to Camrose, helped mitigate the impact of lower participation and revenues, and demonstrated that we could ‘hold our own’ in spite of the financial climate. I am pleased to report that excellent performance in the leadership giving portfolio, including “Whatever it Takes” campaign donations, helped us reach our research contribution goals and record a small surplus this year. This is an excellent achievement during a year in which many non-profits – small and large – faced significant financial challenges and considerable downsizing.

2016 was marked by the introduction of the MS Society of Canada’s latest strategic direction – Accelerating Research. This initiative is directed by the National Board in the Spring and is in response to over 6,000 Canadians affected by MS who completed the Listening to People Affected by MS survey, distributed by National. The feedback from the survey emphasized the need for a significant investment in new research and treatments for progressive MS. Thus, the ‘old’ balanced spending model, in place since 1982, was replaced by a new 60:40 spend target in regards to the research to programs and services ratio, planning to be fully implemented by 2018.

To achieve this targets were set in all areas of operations of the MS Society to either achieve financial efficiencies or raise more monies. This included raising more monies for research, stabilizing or growing our major events, controlling real estate costs and identifying efficiencies in the programs and services area. I am pleased to report that the Alberta and Northwest Territories Division met all targets this year associated with the Accelerating Research strategy. This included exceeding our leadership giving by 31% in 2016 and increasing funds raised in this area by 33% year over year. As well we have demonstrated significant monetary savings on the real estate front. In the programs and services area we have successfully initiated the retirement of non-equipment funding and are working hard to create partnerships in the community for wellness programming. And of course we reached our research contribution target.

In the Spring of 2016 we developed a plan to reduce the Alberta and Northwest Territories Division and Edmonton and Capital Region office space by 50% to achieve notable savings. We were able to raise over $200,000 in federal and provincial grants, as well as in kind donations, and moved into a new open concept space in the Summer. This move will result in savings of approximately $1.2 million over the 10-year life of the new lease. This was a marvelous example of a partnership between government, private industry and non-profit and we are grateful to the Alberta and Federal Government, as well as Stantec

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and Fillmore Construction for their tremendous support. This added to earlier success in decreasing rent in our Central office and efforts are underway to confirm a significant sublease situation in the Calgary and Area office.

A number of significant changes have also been undertaken within the newly named programs and services domain. In order to achieve greater efficiencies, and in the interests of providing better services, the MS Society has moved towards engaging partners in the community to assist in the provision of quality services. To this end we have worked to create community partnerships to provide wellness opportunities as well as beginning to engage volunteers in working with support groups. Unfortunately, we have had to carefully re-evaluate our program offerings based on new insurance requirements with regard to risk management and mitigation. At the same time, a new focus on advocacy and systems navigation is providing essential supports to people in both the community and long term care through our MS Navigators, Volunteer Legal Advocacy Program and Friendly Visiting. These programs and efforts are combined with highly focused government relations strategies to address areas such as incomes and supports and the provision of a highly integrated care system for those affected by MS across the lifespan. Additionally, education remains a key focus for the MS Society and as such we have delivered a variety of in person workshops, including a highly successful MS Wellness workshop series that was hosted in all three regions of the Division, as well as webinars to attract a broader audience to bridge a wider gap.

Restructuring within the Division

Early in the fall a persistent national deficit of over $1 million nationally was identified by the National Board as requiring immediate action. On the instruction of the board, a major restructuring exercise was undertaken on November 1st, 2016 in which the MS Society of Canada eliminated 40 full time positions across the country (including 27 not renewals of positions and 13 terminations) to address this deficit.

While one is never pleased to have to say farewell to staff under such circumstances, in Alberta and Northwest Territories we were fortunate that this entailed eliminating only two full-time positions in our Division. This placed us in a much more favourable position than many other Divisions and was the result of prudent (if not unpopular) controls/delays in rehiring during the latter part of 2015 and throughout 2016.

As a result of staff changes under the November 1st restructuring exercise, the Alberta and Northwest Territories Division undertook plans to move from a three region administrative model (North, South and Central) to a two region administrative model effective March of 2017 (North and South Central). It is interesting to reflect that whereas a decade ago the Division was organized as a series of eight individual Chapters with Boards, we have moved through a number of changes including the creation of Community Advisory Councils and Regional Offices (e.g. West Yellowhead, Fort McMurray, St Paul/Lakeland), to a four regional model (North, Lakeland, Central and South), to a three region and finally two region administrative model. Most importantly, we have moved from an old federated to a centralized model. Although this has resulted in many changes in programs and services and research directions, it has resulted in the provision of extensive national support in the functional areas (communications, marketing, fundraising, leadership giving, human resources, financial), essential in the changing world of not for profits and a more difficult fundraising climate.

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Looking forward to 2017

And so we look to the future and the future of the MS Society of Canada, its programs and services and fundraising for research. There is little doubt that we live in an age of so-called ‘digital disruption’ and the role of technology and social media is becoming increasingly important in telling our story and remaining relevant in the eyes of potential donors. Combined with the emergence of a power market force in the guise of the millennial generation, we are going to have to create new ways and develop new strategies to maintain momentum and success as an organization. We intend to work on that.

One of the key elements of the Accelerating Research strategy is that of storytelling. It is incumbent upon all of us in the MS Society, in research, or in the volunteer domain to become experts in telling ‘our story’ – whether it is about a successful program or a new research project and the impact it has on the life of an individual living with MS. I am pleased to say we intend to invest significantly in this area in terms of professional development opportunities for staff and volunteers alike in 2017.

I also look forward to another successful fundraising season and some other exciting plans we have in the works, such as our upcoming MS Connect Conference which will take place in the fall of 2017. This will be our biggest conference yet and one that is a ‘do not miss’ for all people impacted by multiple sclerosis.

As I bring my report to a close I want to thank some very special groups of people. First, the staff of the Alberta and Northwest Territories Division. In spite of the significant challenges we have faced this year (in raising monies and providing programs and services), not least of were the combined challenges of the late winter departure of our long-time President, a continuing downturn in the economy and ‘donor diversion’ effect of the northern wild fires, our staff have risen to these challenges and performed above all expectations – that is a true definition of resilience and I am eternally grateful to all our staff for their tremendous work and dedication. And to all the Board and Council volunteers in our chapters and regional offices, please accept my thanks for your having stayed with us and committed to the cause during challenging times. And finally, to the Chair, Executive and members of the Alberta and Northwest Territories Division Board, thank you for your confidence in me this year and for staying the course.

I am excited for 2017 and we have the staff and volunteers to make this a most splendid year.

Respectfully submitted,

Garry Wheeler President, Alberta and Northwest Territories Division

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Government and Community Relations 2016 Year in Review

Report and Recommendations: A Place to Call Home – A Continuing Care Symposium for Younger Adults with Disabilities

We are happy to share with you the final report and recommendations from A Place to Call Home – A Continuing Care Symposium for Younger Adults with Disabilities which was held on May 5, 2016 in response to a specific recommendation from the Continuing Care Resolution Team (CCRT)’s final report. This recommendation identified an opportunity to implement innovative care models for special populations, including younger adults, by increasing capacity in continuing care, creating flexibility to support care in place and considering technological innovations and housing/care models. Julie Kelndorfer, Director, Government and Community Relations, MS Society, participated as an active member on the steering committee for the symposium. "Our goal is to ensure each and every younger adult has a place they

can call home.” - Dr. Verna Yiu CEO, Alberta Health Services During the Symposium, younger adults with disabilities, their families, continuing care and housing providers, community organizations and health system leaders developed key principles, priorities for action and recommendations, with a vision of enhancing the quality of life and care. A Place to Call Home Report and Recommendations reflects the information presented and discussed at the Symposium, as well as the priorities for action and recommendations for next steps. The MS Society looks forward to working with all stakeholders on implementing the recommendations and actions noted within the report. Relationships We were pleased that the MS Society was hosted on World MS Day at the Alberta Legislature by MLA Edmonton-Whitemud, Bob Turner. We were introduced by Minister Marlin Schmidt followed by a member’s statement by MLA Annie McKitrick. All across the province we had a good response from politicians attending both our fundraising events and our annual Burgers to Beat MS. The Way Forward: Alberta’s MS Partnership In 2016, The Way Forward reconvened with support from the MS Society in gathering info and connecting to new members and held their meeting in October. This was an introductory meeting with new members including Dr. Penny Smyth, a MS neurologist, Roxanne Gerbrandt, from AB Human Services and Shannon Berg of Alberta Health’s Primary Care area. The committee agreed that the full group of committee members would provide a “steering committee” role and meet twice a year. There would be working groups to focus on specific issues. Three areas the group will focus on include: patient navigation, employment, and housing. The committee will reconvene in April 2017 whilst the secretariat from AB Health will complete a scan of the MS community and resources landscape.

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National Government Relations At the beginning of 2016, hundreds of Albertans, participated in the 2016 #TeamFight to #endMS online campaign targeting federal MPs. This campaign called upon members of parliament (MPs) across Canada to take action to improve quality of life for Canadians affected by MS. We launched MS Awareness Month on Parliament Hill in May 2016 to raise awareness that Canada has the highest rate of multiple sclerosis in the world and to invite parliamentarians and staff to join #TeamFight to end this unpredictable disease, multiple sclerosis. Over three days we held a reception, held many meetings and in particular with MPs from Alberta & Northwest Territories, and hosted our annual carnation pinning. We were the top lobbyist in the month of May. The MS Society was involved on a steering committee in a project with the Conference Board of Canada to better understand the impact and burden of MS in the workplace. This included a literature review, and a national roundtable discussion with stakeholders, that was held in November 2015. On May 24, 2016 the Conference Board of Canada released the final report Multiple Sclerosis in the Workplace: Supporting Successful Employment Experiences as well as a press release “Canadian Employers Can Do More to Help Individuals Affected by Multiple Sclerosis (MS).” The MS Society also released our own press release “MS Society of Canada endorses Conference Board of Canada report on labour force participation.” The report drives home the importance of support for people affected by MS – including those living with the disease and their caregivers – to enable more successful participation in the labour force and, in turn, enhance quality of life. The theme throughout 2016 with the federal government was one of consultations. From science, and flexible work arrangements to caregiving and accessibility, the MS Society provided feedback in multiple consultations to ensure the voice of people affected by MS was heard. The Government of Canada launched its consultation on new accessibility legislation in June 2016 and it ran until February 2017. We shared information from the government website on “How to Participate” section with a survey and discussion guide on social media and with multiple stakeholders. We encouraged individuals to participate in the in person consultations across the country. The MS Society also developed a written submission to the consultation. The National Government Relations team in fall 2016 launched a review of our national government relations priorities. To this end a survey was developed and launched to four key stakeholder groups (National GR Committee, Division GR Committees, National Executive Team, and MS Ambassadors) at the end of September. The survey closed at the end of October with 74 responses. The National Government Relations Committee November teleconference focused on a discussion of the results and endorsed the recommendations which were presented and approved at the National Board meeting in December. The three main priorities of focus include: Income and Employment, Accelerating Research, and Access. Respectfully submitted,

Julie Kelndorfer Director, Government & Community Relations

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Division Programs & Services Committee Report for Annual Meeting

Prepared by: Keith Johnston, Senior Manager Program & Services / Grant & Fund Development

For the MS Society within Alberta and Northwest Territories, 2016 was a year of transformation and advancement for programs and services. Transformation in how the MS Society approaches and delivers programs and services, but also advancement in supporting more people with MS within Alberta and Northwest Territories. This report highlights some of this transformation and advancement through the lens of Accelerating Research.

Wellness: In 2016, programs and services undertook to transforming how it delivered wellness programs in Alberta. Specifically, moving from direct delivery of wellness (i.e., exercise and physical activity) programs to indirect delivery via partnerships and collaborations with community wellness organizations and facilities, with the express intent of increasing the number and quality of wellness opportunities. While this transition was difficult the lessons learned have strengthened the MS Society’s position in the wellness community and has opened new possibilities for people living with MS in wellness. New partnerships and collaborations were developed and are in development; increased number of wellness opportunities (e.g., 12 new community wellness opportunities); and new and different opportunities were created.

Knowledge Network: The launch of the Knowledge Network in the 4th quarter (October) provided an enhanced level of support and access to information for people affected by MS. The Knowledge Network provides access to knowledge based experts who support and compliment programs and services staff. More importantly, it provides information and support beyond standards operating hours of the MS Society in Alberta & Northwest Territories, due to MS Navigators being located across the country. In 2016, the Navigators supported 104 people affected by MS (i.e., person with MS, Family or friend, etc.) for a total of 158 cases/issues in Alberta and Northwest Territories. The significance impact is increased support to people affected by MS no matter where they live, but also indirectly programs and services staff have been able direct more time and resources to localized programs and complex needs (e.g., education and advocacy).

Retirement of Quality of Life – Non-Equipment Grants: In Alberta and Northwest Territories the most significant change will be the retirement of the Quality of Life – Non-Equipment Grants. A comprehensive multi-year strategy and communications plan was developed based on the gradual retirement of the program to ensure we can support individuals with the greatest financial need the longest while working to identify alternative community and government resources. Communication of this program retirement begin in November 2016 and will continue until program retirement in 2019. Reactions received have been mixed, ranging from understanding to frustration and/or sadness. In each case Programs and Services staff have responded with compassion, understanding and empathy while working to identified alternative community resources or providing increased advocacy support.

New Quality of Life – Equipment Grant Program: To coincide with the retirement of the Quality of Life – Non-Equipment Grant Program, a new provincial model of Quality of Life – Equipment Grants was developed. This new model will launch in 2017, will be centralized and adjudicated by a committee of senior level Programs and Services staff, but will transition to a volunteer lead adjudication committee. This new model brings consistency and standardization to the Quality of Life – Equipment Grant

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Program, as there has existed inequality amongst the individual chapters and offices (i.e., $250 - $3,000 maximum funding level per person) and what information was gathered from applicants. Under new model the maximum amount is $1,000, but also contains a hardship clause which allows for increased funding support based on financial need. This new model will represent an enhancement to this program within Alberta & Northwest Territories for 2017, while providing greater funding support to more people.

Increased Integration of Technology: To support reaching more people with MS, an increased focus was placed on increasing the accessibility of education via webinar. Programs like ‘Understanding MS’ which provides an introduction to multiple sclerosis, symptom management, and the MS Society traditionally was offered solely as an in-person live event, is now offered in-person and via webinar. The significance of this is it always people no matter where they live to attend, take part and learn, while reducing duplication and ensuring resourceful management of limited resources. Subsequently, allowing for increased staff time within other programs and services areas, such as advocacy.

While the Programs and Services Committee has not met since early 2016 primarily due to staffing and committee member changes and vacancies; as the role of community facing evolves the importance of this committee will grow as adjudicators for the new Quality of Life – Equipment Grant, continued implementation of Accelerating Research, and a voice for the people we support.

Respectfully submitted,

Keith Johnston Senior Manager, Programs & Services, Coordinator, Grant & Fund Development

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Chapter Liaison Committee Report for 2016 Report for Annual Meeting

Prepared by: Gayelene Bonenfant, Chapter Liaison Committee Chair As I reflect on this past year, many will agree, 2016 was a challenging year, but one that has demonstrated to us the importance of connection. I believe I speak for the members of the committee when I say that we each became involved with the CLC because we have a connection to Multiple Sclerosis, but we have remained involved because we have formed critical bonds of purpose, meaning and support.

The past year has seen significant moments of change in both our province and the Society itself. Change is not always easy, but it is made easier with the support of those around us that understand our struggles, our commitment and our desire to see an end to a disease that has impacted so many. Our resilient friends in Fort McMurray have taught us a great deal about what it takes to stand with one another during change.

Our committee has seen the addition of new members and the strengthening of the supportive bond of the members of the committee. Our committee has relied on one another for advice, support and have worked together on meaningful initiatives and improvements. We are committed to open communication, idea-sharing and problem-solving.

Each year, the CLC has the great honor and responsibility of adjudicating the Awards Nominations process. We have an opportunity to see all of the incredible work being performed by so many people in our communities. We see so much promise in the incredible young people who have become volunteers in their communities, in their schools, in their fundraising efforts and in science. We see skillful corporations and professionals who have stood with the MS Community, lending their minds to a great cause. We see the stories of our incredible staff members who dedicate their daily efforts to making the Society a place for advice, advocacy, support and a driver of policy change within our governments. And we see the stories of the lives of so many long time volunteers, whose continual and selfless efforts, have contributed so much awareness and thousands of dollars over decades of dedication. They have all shown us what a life well lived looks like. We want to be a Society that recognizes each and everyone for their personal stories of purpose-driven lives. Each one of these many staff and volunteers has meant so much in the lives of those they impact. On behalf of the Chapter Liaison Committee, the Multiple Sclerosis Society and Canadians living with MS, THANK YOU!

As we look forward to 2017, a new opportunity awaits the CLC. We look forward to supporting our local chapters, and continuing to create opportunities for improvement, creativity and communication throughout the Society.

Respectfully submitted,

Gayelene Bonenfant, CLC Chair

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Alberta & Northwest Territories Division Annual Meeting April 8th 2017

Dean Walker, Nominations Chair Division Board Nominations

On behalf of the Nominations Committee, I am pleased to present the slate of nominees for endorsement to the Alberta and Northwest Territories Division Board of Directors of the Multiple Sclerosis Society of Canada at the 2016 Annual Meeting, April 8th 2017.

There are currently 13 directors serving on the Alberta and Northwest Territories Division Board, 11 of whom are seeking re-election to the Division Board. There are four (4) new nominees being advanced for endorsement to the board; Dr. Brad Kerr, Carmen Rouselle, Mark Hanlon and Nathalie Sigalet.

A call for nominations was distributed broadly to our membership on our website and to our membership through our MS Connect Newsletter. As part of the process, the Committee performed a geographical scan of the regions to best determine the needs of the Board followed by a thorough recruitment drive including targeted advertising in the three administrative regions.

Some of the skills we were looking for were fundraising, marketing, governance, health research and strategic planning. Personal qualities include a personal connection to the cause, a readiness to participate on board committees and a desire to advance the work of the Society through their networks. The Nominations Committee is confident that the nominees being proposed for endorsement reflect these priorities and bring skills and qualities that help ensure that the Division maintains a well-balanced board.

The nominees will be submitted to the National governance committee for endorsement to the national board at their meeting in June of 2017.

I also wish to thank Ms. Judy Gordon who has now completed her term on the board. I also wish to thank Mr. Kevin Cummings, Dr. Chris Power and Dr. Darrel Moore who have recently resigned their positions on the board. Thank you to all for your work on behalf of the Alberta and Northwest Territories Division Board and people affected by MS.

I wish to thank the Nominations Committee members for their contribution in the selection process this year. As well, my thanks to Liz Laurence, Manager Volunteer Resources for her invaluable assistance in the nominations process.

Please join me in thanking outgoing members and welcoming the new slate of nominees to the Alberta and Northwest Territories Division Board.

Respectfully submitted by,

Dear Walker Chair, Nominations Committee

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2017 Board of Directors Executive Committee

Members-at-Large

Amy Semaka

Andrew Caprariello

Bob Macklon

Bradley Kerr

Candice Laws

Carmen Rousselle

Chris Huestis

Coriann Berry

Gail Taylor

Mark Hanlon

Natalie Sigalet

Suraj Chavda

Our Mission

To be a leader in finding a cure for Multiple Sclerosis and enabling people affected by MS to enhance their quality of life.

Board Chair Gayelene Bonenfant

Vice-Chair Kevin O’Neil

Treasurer John R Sambo

Secretary and Nominations Chair Dean Walker

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AB & NWT 2017 Division Board of Directors

Gayelene Bonenfant (Chairperson)

On a personal level, Gayelene is a single mother to her daughter Alana. They share a passion for travel, history and social activism.

In addition to the divisional role, Gayelene chairs the national investment committee. She is an active fundraiser, and helped to launch the endMS campaign, built support through her networks for “People Against MS” (PAMS) events, and locally, remains involved with the Calgary Whisky Festival committee

Professionally, Gayelene has been an accountant for twenty years in the oil and gas industry, ten years as CFO, ten years as CEO of her own oil company and is the former controller of Freemont Resources Ltd.

Gayelene completed her MBA at Royal Roads University in early 2015 and wrote the Level 1 CFA exam in December of 2015.

Gayelene’s involvement with the MS Society is motivated by her sister’s diagnosis in 1999. She is no stranger the effects of the disease on those who suffer, and the people that care for them, as approximately 8% of her hometown has MS.

Gayelene enjoys a great sense of satisfaction from her work with a group of very dedicated individuals who have people with MS at the heart of their commitment to the society.

Kevin O’Neil (Vice-Chairperson)

Mr. O’Neil is recently retired after a 40 year career as an environmental scientist. Kevin is originally from Montreal and is a graduate of McGill University. Prior to his retirement, Kevin was employed by Stantec Consulting Ltd. in the Edmonton office over a 10 year period. Recently, he coordinated Stantec’s involvement with the MS Society Alberta and Northwest Territories Division’s “Office Renovation Project” – a highly successful collaboration between Stantec, Fillmore Construction Management, the Government of Alberta and the MS Society. Previously to his tenure with Stantec, Kevin spent 27 years working for the Alberta Government in several management positions dealing with environmental issues.

Kevin originally volunteered several years ago with the MS Society after his sister was diagnosed. Since then he has become involved in various volunteer positions with the Alberta and Northwest Territories Division, and has annually raised significant personal and corporate funds through the Bike Tour (10 years) and the Edmonton Golf Tournament (5 years).

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John R. Sambo (Treasurer)

John R. Sambo is currently employed by Mount Royal University as Manager, Commerce and Receivables in the Financial Services Department. John’s current duties are overseeing and managing all responsibilities related to student and non-student revenue and receivable activities including: student tuition and fee process, billing and collections for all student and non-student revenue. In addition, John is responsible for the management, accuracy and completeness of institution wide commerce operations through collaboration with all departmental business processes, the deposit, safe keeping and disbursement of University funds through managing and implementing the appropriate internal controls and best practices. John is the primary

contact for all banking and credit card vendors and is responsible for ensuring an effective and efficient relationship to maximize service while minimizing costs to the University.

John is a Certified General Accountant accompanied with a Bachelor of Commerce undergraduate degree from the University of Calgary. John has been in the accounting profession for over 30 years in managerial and senior roles such as Corporate Controller and CFO in various industries.

John and his wife Mary Lou have two children; Gregory (age 27) and Marisa (age 22). Mary Lou and her brother Fred were both diagnosed with relapsing/remitting MS 25 and 22 years ago respectively. Since then, her entire family has been actively involved with the MS Society of Calgary. Both John and his family have seen the symptoms and life changes/challenges both Mary Lou and her brother have experienced since their diagnosis with MS. This has motivated John to participate in helping the Alberta MS Society in any capacity so that a cure may be found or continual progress be made to enhance their quality of life. For over 23 years, John and his family have made the annual Calgary MS Walk a special event, rain or shine, and are very proud of the public pledges acquired through their personal fundraising efforts.

During the children’s earlier years, John was very active in Continental Little League Baseball - five years as a coach as well as a two year role as V.P. of Operations. Most recently, John’s term as Director and Treasurer of CYDC (Calgary Youth Development Centre) ended after serving for five years.

John is an avid golfer and loves to travel every September with his wife Mary Lou to celebrate their annual wedding anniversary.

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Dean B. Walker (Secretary)

Dean B. Walker works in Production Coordination/Inventory Control at Alberta Oil Tool in Edmonton. He has been employed there for 29+ years. He retired after 18+ years in the Canadian Forces Reserve as a Captain a number of years ago. He became an MS Ambassador in remembrance of his Dad who passed away from Acute MS in 1983. He has participated in raffle ticket sales, as a MS Walk volunteer, Cruisin’ for a Cause and worked as a Lay Reviewer on the MS Research Grants Review Board. He is currently Secretary of the AB/NWT Division Board and Co-Chair of the Recruitment Committee.

Dean has been married to Deanna for 29 years; they have three children; Ethan, 26; Shaelyn, 20 and Melissa, 18. He is interested in

Modern Day Military Topics, Antarctic Exploration, Leadership, Philosophy and Ethics. He is currently pursuing his Bachelor of Military Arts and Sciences degree via Distance Learning from the Royal Military College of Canada (RMCC).

Bob Macklon (Member at Large)

Bob Macklon was diagnosed with MS in 1988. Bob is currently retired on a medical disability, is married, and has two adult sons and two granddaughters. Since his retirement Bob has been an active volunteer serving on many boards in the Edmonton area including the ‘Alberta And Northwest Territories Division Board’, the ‘Edmonton Transit System Advisory Board’, the ‘DATS Advisory Group’ and the Alberta and Northwest Territories Division ‘Government and Community Relations Committee.’ Bob brings commitment and experience to the Alberta & Northwest Territories Division Board.

Gail Taylor (Member at Large)

Since being diagnosed with MS in 2007, Gail Taylor has made it her personal mission to bring MS to the forefront of public attention. Over the last 9 years, she has co-captained their own Walk team, which has raised more than $301,000 in the fight against MS. As part of her fundraising, Gail and her husband of 36 years, Barry, host their own annual MS golf tournament, which has raised $161,000 in 6 years for the MS Society. Gail is also an MS Ambassador and dedicated Lloydminster Chapter volunteer, playing key roles in both the annual Carnation Campaign and A&W Cruisin’ for a Cause Day. Gail sits on both the Lloydminster Chapter Board. Gail previously served as Vice Chair of the Lloydminster Chapter Board of Directors. Gail also sits on the

Chapter Liaison Committee. In 2012, Gail was awarded Alberta Division’s Development Volunteer of the Year Award for her outstanding contributions to raising funds and awareness for the MS Society.

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Her commitment to the cause has been both unwavering and exceptional. In the speech Gail gives about her own MS story, she explains: “I decided that if I wasn’t going to volunteer, how could I expect anyone without MS to do it for me. MS has enriched my life – when you give of your time and talents, it is the best reward you can get.”

Gail Taylor is co‐owner of BG Taylor Consulting Ltd. in Lloydminster, she sells & installs computer accounting software and helps clients with their accounting needs. Her and her husband Barry are also starting a new venture called TaylorMade Designs.

When not spending time with her two stepchildren and three grandchildren. Gail enjoys spending time at the lake with great friends golfing, quadding and ski-dooing.

Gail’s enjoys sewing and crafting.

Gail dedicates her efforts to making a difference in her community.

Coriann Berry (Member at Large)

Coriann Berry is currently employed by MEG Energy in Calgary and is a registered professional engineer with APEGA. Coriann has been in the engineering profession and quality management for over 20 years. Coriann served 5 years in the Canadian Armed Forces during which she attend Royal Roads Military College in Victoria BC and the Royal Military College in Kingston.

Coriann has a bachelor degree in Chemical engineering. She is an internal and lead auditor of ISO 9001. She is also a certified six sigma yellow belt and she has a certificate in project management from Mount Royal University. Coriann began to fundraise for the MS Society in 2008 by participating in the MS Walk when her brother was

diagnosed with relapsing/ remitting MS. Coriann was diagnosis with MS in Aug. 2015 which made her even more determined to make a difference in the battle against MS.

Coriann served as the treasurer for 3016 Airdrie Army cadets for 2 years starting in 2013. She is currently treasurer for the Alberta Army cadet’s RECCE program. She served on the 2016 personnel awards research review committee for the MS society of Canada as a community representative.

When Coriann enjoys participating in the Airdrie Community Choir, spending time with her husband and step-son and swimming.

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Chris Huestis (Member at Large)

Chris’ background and passion is the non-profit sector. He has worked in progressively senior roles in fundraising, marketing/communications and volunteer management for organizations including the MS Society of Canada, AIDS Calgary, and the Calgary Foundation.

After a short break in the corporate sector, he has returned to his non-profit roots and is currently consulting for a number of local, provincial and national organizations in the areas of fund development, communications, volunteer management and strategic planning.

Chris’ passion for the MS Society is strong. He first participated in 2006 in the MS Bike Tour, and has filled several roles throughout the Society,

including event participant, fundraiser, employee, and volunteer. He is excited to continue to support the work of the MS Society.

Chris is a third generation Calgarian, and enjoys being active outside. When not working, he is often lost in the woods, be it on a bike, a pair of skis, or sometimes neither. In addition to supporting the MS Society, Chris is involved with a number of local and national organizations advancing human rights, both in Canada and abroad

Andrew Caprariello (Member at Large)

Andrew Caprariello is a Postdoctoral Research Fellow in the laboratory of Peter Stys at the University of Calgary’s Hotchkiss Brain Institute. He has longstanding interest in the neuropathology of MS lesions, particularly in their earliest stages, as a leverage point for understanding the origins of MS pathology. Currently, he is applying advanced spectral imaging techniques in experimental models of MS in order to understand the cell and molecular mechanisms underlying MS lesions. He also is actively designing experimental models designed to interrogate the initial trigger of MS lesions.

He received his Ph.D. from the Department of Physiology & Biophysics at Case Western Reserve University in Cleveland, Ohio. Under the tutelage of

Dr. Robert Miller, a renowned leader in the MS field, he developed an original experimental model designed to directly interrogate whether the death of a particular brain cell, the myelinating oligodendrocyte, could generate MS-like lesions.

Outside of the lab, Andrew enjoys all manner of outdoor activities with his wife Jamie including but not limited to golf, camping, hiking, rafting, and cycling. Often pushing his endurance limits, he has completed an iron-distance triathlon and most recently finished the Tough Mudder Alberta. When confined to the indoors, he is playing the piano or applying his science degrees to the art of cocktail mixology.

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Candice Laws (Member at Large)

By day, Candice Laws is a Senior Consultant with the consulting firm Global Public Affairs. In this role she assists clients by providing government and current affairs monitoring, analysis, and strategic engagement advice. Candice joined Global Public Affairs after having worked for the Canada West Foundation, researching and writing on a variety of public policy issues including Western Canadian economic diversification and the Alberta non-profit sector. She also had the opportunity to work overseas, developing an HIV/AIDS awareness program for high school and university-aged youth in western Ukraine.

Outside of work, Candice is committed to supporting the MS community as an MS Ambassador. As both her father and her sister are living with

MS, she is especially committed to supporting those living with MS, and those who love them through it.

When the weather permits (and even when it doesn’t) Candice is also an avid skier, hiker and road biker. A former dancer, she is also a strong supporter of the arts. She holds a BA in Political Science and Psychology from the University of Alberta, and a MA in Political Science from the University of Calgary.

Suraj Chavda (Member at Large)

Suraj Chavda is currently a student at the University of Alberta, completing his Doctor of Dental Surgery (DDS) and his Master of Public Health (MPH) in Health Policy & Management. His public health interests include aboriginal rural suicide in Canada, mental health risk factors and electronic cigarette regulations. He has also received his Bachelor of Science (BSc) from the University of Alberta. Suraj co-founded the Canadian Mental Health Association’s (Edmonton Region) first university student group at the University of Alberta. He acted as Treasurer for two years and also participated in organizing mental health symposiums and awareness events to reduce stigma of mental illness. Suraj has also volunteered as an In-School Mentor for Boys &

Girls Club Big Brothers Big Sisters. This entailed mentoring young boys at school on issues such as bullying and helping them with their school work.

Suraj is currently volunteering at the SHINE (Student Health Initiative for the Needs of Edmonton) Dental Clinic at the Boyle McCauley Health Centre which is a student-run dental clinic. This clinic provides free dental care to youth at need at no cost to the patients.

Suraj has had experience in government engagement and health policy.

As a Policy Intern for the Canadian Cancer Society, Alberta & Northwest Territories Division, Suraj developed policy analyses on electronic cigarette regulations for municipal, provincial and federal health authorities.

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When Suraj is not volunteering or working at school, he tries to spend time with his family. He also enjoys travelling, drawing and reading. Suraj aims to continue making a positive impact on his community through volunteering and advocacy.

Amy Semaka (Member at Large)

Amy Semaka graduated from the University of Alberta in June 2015 with a Bachelor of Science in Pharmacy and recently completed a Doctor of Pharmacy (PharmD) degree in November 2016. Amy currently works for the Royal Alexandra Hospital and at a family medicine clinic. She enjoys interacting with and assisting various patients and collaborating with numerous other health professionals. She devotes a lot of time to her career and her desire to improve the lives of others. In her spare time, Amy takes pleasure in leading an active lifestyle and staying involved in research projects with the University of Alberta and her colleagues. She loves to spend time with family and friends and enjoys cooking and reading.

Amy’s desire to become a Board Member with the MS Society stemmed from her experiences with patients affected by MS. She hopes to improve the care and quality of life for patients with MS, and to increase knowledge about the management of the condition.

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AB & NWT Division Board 2017 Nominees

Mark D. Hanlon

Mark D. Hanlon is currently employed by Inter Pipeline Ltd. as Project Manager at the Cochrane Extraction Plant. Mark’s current duties include the oversight and management of all projects at the facility.

Mark is a Professional Engineer with a Bachelor of Science in Mechanical Engineering undergraduate degree from the University of Calgary as well as a Project Management Professional from the Project Management Institute. Mark has worked as an Engineer for 14 years in the oil and gas and professional car racing industries.

Mark and his wife Heather have been married for 12 years with two children; Charlotte (age 5) and Benjamin (age 2). Mark’s maternal grandfather was diagnosed with primary progressive MS at the age of 45. He was quickly confined to a wheelchair and was cared for by his

wife until his death at age 66. Seeing his struggles with the disease early in Mark’s life had a lasting impact to help those suffering from MS and to find a cure. As a young adult, Mark became a volunteer on the MS Society Calgary & Area Chapter Walk Committee. He volunteered on this committee for 5 years before joining the Calgary & Area Board. Mark has served on the Chapter Board for 6 years, including 4 as Board Chair.

Mark is currently finishing his final year on the Calgary & Area Chapter Board as Board Chair and beginning his first year as a member of the Alberta & Northwest Territories Division Board.

Mark is an avid sailor and spends several weeks every year sailing with his family aboard his 33’ Beneteau Wanderer in the Gulf Islands.

Dr. Bradley Kerr

Dr. Bradley Kerr received his BSc in Psychology from McGill University. He then went on to obtain a Ph.D. in Neuroscience from the University of London-King’s College in the UK. His PhD research was aimed at understanding the role of novel modulatory peptides, growth factors and pro-inflammatory cytokines in persistent pain. Dr. Kerr went on to do postdoctoral work at the California Institute of Technology and at McGill University where his work focused on studying inflammatory responses after nervous system injury. Dr. Kerr joined the Department of Anesthesiology and Pain Medicine at the University of Alberta in 2007 and is also an adjunct associate professor in the Department of Pharmacology and Psychiatry. The focus of research in his lab is aimed at addressing the mechanisms of chronic pain after injury or disease

with a major focus on chronic pain associated with Multiple Sclerosis.

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Carmen Rousselle

Carmen is currently the President of the Burke Group, a media company with a 114-year history in Edmonton. Carmen’s interest in becoming more involved with the MS Society, is a very personal one that stems from watching his mother struggle with the effects of this disease. Since her diagnosis more than thirty years ago, Carmen has watched the impact MS has had, not just on his mother, but on his entire family. In his spare time, Carmen enjoys photography and travelling with his wife Erinn. Carmen is also an avid golfer and a member at the Edmonton Country Club.

Natalie Sigalet

Natalie uses her deep understanding of politics and policies in Alberta to assist clients in navigating governmental processes. She supports clients in a number of sectors including health care, pharmaceuticals, technology and energy.

Prior to joining H+K, Natalie spent six years at the Alberta Legislature in a variety of positions, including chief of staff in advanced education and technology, municipal affairs and as assistant director in the Premier's Office under the administration of former premier Alison Redford. Previously, Natalie worked for a member of parliament from British Columbia.

Natalie holds a bachelor of arts in political science from the University of Calgary and a bachelor of music from the University of Victoria. She is an

active volunteer with the Multiple Sclerosis Society of Alberta, where she is currently on the organizing committee of the local bike tour fundraising campaign.

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