113526758 poster 050 assessing children young adults with special health care needs a survey of the...

Figure 1: Location of CMP Satellite Clinics The “CYSHCN in Mississippi Parent/Guardian Survey” included 15 quantitative and qualitative items. The survey was administered from August 2010 to May 2011 at specialty satellite clinics and Blake Clinic, a multidiscipli nary clinic. The parent/guardian completed a survey for each child/young adult who was receiving CMP benefits. The Children’s Medical Program (CMP), Mississippi’s Title V Children and Youth with special healthcare needs (CSHCN) program, provides care coordination and assists with access to specialty services for enrolled children at the public health district level. The prevalence of children with special healthcare needs is 15.1% nationally and 16.4% in Mississippi. Gaps in services for children and youth with special health care needs in Mississippi need to be identified. A survey tool was developed for inquiry into parent/guardian concerns. BACKGROUND Assessing Children/Young Adults with Special Health Care Needs: A Survey of the Parent/Guardian Perspective Step hanie Iv y, MPH , Beryl W. Polk, Ph D, MS, CP M , Jaso n Brown , MHSA 1 Mississipp i Department of Finance and Administration 2 Mississipp i State Department of Health METHODS Evaluate utilization of health care and support resources Assess barriers to healthcare utilization Assess parental satisfaction OBJECTIVES Understanding the needs of Mississippi’s CYSHCN is critical in promoting positive health outcomes. Recommendat ions for future improvement of program services include: 1) Evaluate the satellite clinic needs in each public health district 2) Increase knowledge and utilization of support services 3) Collaborate with medical providers on the development of a guide for transitio ning adolescents from pediatri c to adult services 4) Expand and revise the survey based on current results and national data for future administration Respondents were limited to patients enrolled in the Children’s Medical Program and present for an appointment during the administration of the survey Survey questions may have been misinterpreted Two-hund red and twenty-five surveys were completed. The mean age of the child/young adult was 10 years of age. 78% of the respondents had Medicaid/CHIP insurance Respondents reported high levels of satisfaction and communication regarding their child/young adult’s healthcare. Clinic services were well utilized although the child/youn g adult had to travel long distances to receive medical care/treatment. Medicaid was the primary payment source for health care services; however, some respondents had issues with limited coverage for needed services. Most respondents reported that they were referred for non-medical services, but some community-based services were not as well known or utilized. Health Care Services Utilization Patients visited Specialty Care Physicians (SCP) an average of six times per year, with an average distance of 71 miles between their home and SCP. Primary care physician (PCP) visits occurred, on average, seven times per year, with an average distance of 16 miles to the PCP from the home. On average, patients lived 14 miles from their pharmacy and traveled there 10 times per year. Health Care/Support Services and Communication 44% of respondents reported they didn’t know or weren’t sure about available support services. 95% of respondents reported satisfaction with their involvement in making decisions with the healthcare team. Communication with the healthcare providers rated at least good by 86% (very good-53%, good-33%). RESULTS LIMITATIONS Qualitative Perceptions Parents/guardians provided comments on Medicaid, financial, and insurance coverage limitations, support and satisfaction related to staff/clinic, location/tra nsportation issues, health status of child/youn g adult, and other concerns. CONCLUSIONS RECOMMENDATIONS

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Page 1: 113526758 Poster 050 Assessing Children Young Adults With Special Health Care Needs a Survey of the Parent Guardian Perspective

Figure 1: Location of CMP Satellite Clinics

The “CYSHCN in MississippiParent/Guardian Survey”included 15 quantitative andqualitative items. The surveywas administered from August2010 to May 2011 at specialtysatellite clinics and BlakeClinic, a multidisciplinaryclinic. The parent/guardiancompleted a survey for eachchild/young adult who was

receiving CMP benefits.

The Children’s Medical Program (CMP), Mississippi’sTitle V Children and Youth with special healthcareneeds (CSHCN) program, provides care coordination andassists with access to specialty services for enrolledchildren at the public health district level. Theprevalence of children with special healthcare needs is15.1% nationally and 16.4% in Mississippi. Gaps inservices for children and youth with special health careneeds in Mississippi need to be identified. A survey toolwas developed for inquiry into parent/guardianconcerns.

BACKGROUND

Assessing Children/Young Adults with Special Health Care Needs: A Survey of the Parent/Guardian Perspective

Stephanie Ivy, MPH , Beryl W. Polk, PhD, MS, CPM , Jason Brown, MHSA1Mississippi Department of Finance and Administration 2Mississippi State Department of Health

METHODS

Evaluate utilization of health care and supportresources

Assess barriers to healthcare utilization

Assess parental satisfaction

OBJECTIVES

Understanding the needs of Mississippi’s CYSHCN is criticalin promoting positive health outcomes. Recommendat ionsfor future improvement of program services include:1) Evaluate the satellite clinic needs in each public

health district2) Increase knowledge and utilization of support services3) Collaborate with medical providers on the

development of a guide for transitioning adolescentsfrom pediatric to adult services

4) Expand and revise the survey based on current resultsand national data for future administration

Respondents were limited to patients enrolled in theChildren’s Medical Program and present for anappointment during the administration of the survey

Survey questions may have been misinterpreted

Two-hundred and twenty-five surveys werecompleted.

The mean age of the child/young adult was 10 yearsof age.

78% of the respondents had Medicaid/CHIP insurance

Respondents reported high levels of satisfaction and

communication regarding their child/young adult’shealthcare.

Clinic services were well utilized although the

child/young adult had to travel long distances to receivemedical care/treatment.

Medicaid was the primary payment source for health care

services; however, some respondents had issues withlimited coverage for needed services.

Most respondents reported that they were referred for

non-medical services, but some community-basedservices were not as well known or utilized.

Health Care Services Utilization

Patients visited Specialty Care Physicians (SCP) anaverage of six times per year, with an averagedistance of 71 miles between their home and SCP.

Primary care physician (PCP) visits occurred, onaverage, seven times per year, with an averagedistance of 16 miles to the PCP from the home.

On average, patients lived 14 miles from theirpharmacy and traveled there 10 times per year.

Health Care/Support Services and Communication

44% of respondents reported they didn’t know orweren’t sure about available support services.

95% of respondents reported satisfaction with theirinvolvement in making decisions with the healthcareteam.

Communication with the healthcare providers ratedat least good by 86% (very good-53%, good-33%).

RESULTS LIMITATIONS

Qualitative Perceptions

Parents/guardians provided comments on Medicaid,financial, and insurance coverage limitations,support and satisfaction related to staff/clinic,location/transportation issues, health status ofchild/young adult, and other concerns.

CONCLUSIONS

RECOMMENDATIONS