YRAB Meeting7.10.14

Ana: Adolescent Medicine Physician and Researcher

Interested in how to help teens who need help with depression get the care that they need

Would help to have advice about using the internet to get teens and parents to participate in research

Thanks for your help!

What is a stakeholder?

A person or an organization who has an interest in the results of research

Representing the needs and interests of stakeholders is important through all steps of the research process

Goal: Involve Stakeholders

1) Think of a research question.

2) Design a way to answer the research question.

3) Conduct the research study.

4) Write about the research study.

What are steps in research?

1) Think of a research question: Do teens want their parents in the room during a clinic visit? What

are reasons for or against it?

2) Design a way to answer the research question. Come up with a survey.

3) Conduct the research study. Ask people to do the survey and collect it.

4) Write about the research study. Analyze your results and write a paper.

What are steps in research?

1) Think of a research question: Do teens want their parents in the room during a clinic visit? What are reasons for or against

it? Is this an important question? If we answer it, what can we do with the information? Is

there a different question we should be asking?

2) Design a way to answer the research question. Come up with a survey.

Is this the best way to answer the question? How should the survey be worded so everyone understands it? What’s the best way to order the survey questions? How long should it be? What should be asked?

3) Conduct the research study. Ask people to do the survey and collect it.

What groups should we ask to do the survey? What’s the best way to ask them to do it? If we use recruitment fliers, what kind of design should we use?

4) Write about the research study. Analyze your results and write a paper.

Does the way we interpreted the results make sense? Where should we send the article to to get published? Who should we share the information with?

How can stakeholders help with research questions?

Teens who have depression Parents of teens with depression Doctors, nurses, therapists Schools Community groups Insurance Companies

Stakeholders in Adolescent Depression

Maybe not… Depressed teens use the internet more often

than teens who are not depressed They talk to strangers more often Some of their symptoms like – not being

motivated to do things or not being interested in things they used to like may make it hard for them to bring themselves in

Do Depressed Teens want to come to an in person meeting?

Social Media Interviews: interviewed depressed teens and parents about how they use social media

A lot of teens with depression use social media and try to connect with other teens who might need help and convince them to get treatment, give them positive advice

Depressed teens seem to want to help other teens with the same problems they have

Would teens talk about depression research online?

Develop an online stakeholder group for adolescent depression:

2 separate groups – one for teens and one for parents

Purpose: to provide feedback on my research steps and potentially other adolescent depression research

My goal

What is the best place on the internet for people to provide feedback and interact with researchers?

Do people want their information (fbk profile pic) to show up when they are providing feedback or would they rather be anonymous?

Do they want the fact that they posted on this board to be visible to their social media contacts?

Would people sign up to participate in clinic if I have them join the social media groups?

Questions

First we’ll go through an example. Then I’ll ask for feedback on each step in this process.

Lana goes to her visit with her therapist. Hanging up on the wall is a flier.

Example: Recruitment

Your opinion matters! Help researchers figure out the best way to help teens with

depression and other mental health problems. Sign up for “SOVA” Supporting Our Valued Adolescents groups

and let us know your thoughts about important questions we should be asking to help people like you live healthy and happy lives.

If you are a teen or a parent of a teen who has every been told by a doctor they may have symptoms of depression, sign up to provide research feedback today!

Facebook Group: ___ QR code Follow us on Twitter @SOVA etc. or hashtag SOVA Follow us on Instagram Follow us on Tumblr

Flier says:

Lana scans the QR code for the Facebook Group.

SOVA – Teen Group

Miley

Thanks for joining the SOVA group for teens! Check out our first post we’d love to have

your feedback on!

Lana clicks on the web link and gets transported to a forum where she can give her response to a question which is asked and/or like or move up answers which she agrees with.

Website Blog

http://www.youtube.com/watch?v=w6w3zyfi7-c

Example of Website

Rebel: I think the background color is ugly and

the picture looks like a car salesman! Try blue!

Emma: I want to know more about what the study is about?

SOVA: Check out this flier we would like to use for a study. What do you think about the pictures and wording?

Sign up for this awesome study!Call 641.4141

9

5

Now that you know the steps in the process let’s go step by step and hear what you think!

Now for feedback!

Lana goes to her visit with her therapist. Hanging up on the wall is a flier.

Example: Recruitment

Your opinion matters! Help researchers figure out the best way to help teens with

depression and other mental health problems. Sign up for “SOVA” Supporting Our Valued Adolescents groups

and let us know your thoughts about important questions we should be asking to help people like you live healthy and happy lives.

If you are a teen or a parent of a teen who has every been told by a doctor they may have symptoms of depression, sign up to provide research feedback today!

Facebook Group: ___ QR code Follow us on Twitter @SOVA etc. or hashtag SOVA Follow us on Instagram Follow us on Tumblr

Flier says:

Lana scans the QR code for the Facebook Group.

SOVA – Teen Group

Miley

Thanks for joining the SOVA group for teens! Check out our first post we’d love to have

your feedback on!

Lana clicks on the web link and gets transported to a forum where she can give her response to a question which is asked and/or like or move up answers which she agrees with.

Website Blog

http://www.youtube.com/watch?v=w6w3zyfi7-c

Example of Website

Rebel: I think the background color is ugly and

the picture looks like a car salesman! Try blue!

Emma: I want to know more about what the study is about?

SOVA: Check out this flier we would like to use for a study. What do you think about the pictures and wording?

Sign up for this awesome study!Call 641.4141

9

5

Thank you!