www.haecanada.org fun with hae! a patient services story
TRANSCRIPT
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www.haecanada.org
FUN with HAE!
A Patient Services Story
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www.haecanada.org
Patient Services
What are Patient Services? 1.HAE Updates2.HAE Summit3.Awareness and Education4.Patient Assistance
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www.haecanada.org
HAE Updates
What are they? •Fun meetings held across the country where you can meet other patients, hear a physician speaker, and get your questions answered. •Often the first time a patient has ever met another patient.•Free food!
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www.haecanada.org
HAE Updates
Physician Speaker
Patients & Family!Free Food
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www.haecanada.org
HAE Updates
Coming this Fall•Vancouver•Edmonton•SaskatoonComing this Winter•Montreal•Ottawa•KingstonComing this Spring•Regina•Halifax
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www.haecanada.org
HAE Summit
What’s the purpose? To unite the national community by once a year bringing patients together from across the country:•To participate in educational sessions •Attend our annual AGM•Hear physician speakers•And meet other patients!
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www.haecanada.org
HAE Summit
The Future of the Summit: •The location will change every year. •We hope it will grow into a can’t miss event for HAE patients in Canada!
Like the Stanley Cup!
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www.haecanada.org
Awareness and Education
Who do we want to reach?1.Undiagnosed patients2.Diagnosed patients (you guys!)
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www.haecanada.org
Awareness and Education
We do this in several ways….One is by creating a presence for the HAE community online via:•Our Website•Social Media•Public Awareness•Participation
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www.haecanada.org
Awareness and Education
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www.haecanada.org
Awareness and Education
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www.haecanada.org
Awareness and Education
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www.haecanada.org
Awareness and Education
Social Media:
Facebook.com/HAECanada Twitter.com/HAECanada
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www.haecanada.org
Awareness and Education
Public Awareness•Create press releases•Talk to media outlets•Arrange interviews•What do we need?
YOU!
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www.haecanada.org
Awareness and Education
You can help!Please send us your stories and
photographs!
Email it to [email protected]
(You can also find me later and get my business card… )
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www.haecanada.org
Awareness and Education
• Participation in:
HAE Walk
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www.haecanada.org
Patient Assistance
We have patient assistance programs in practice and in production. 1.Comprehensive Care Stop-Gap2.Ancillary Supply Program3.Centers of Excellence
But….you need to be a MEMBER!
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www.haecanada.org
How You Can Help
1. Attend HAE Events (updates + summits)2. Follow us on Facebook/Twitter 3. Check the Website frequently (all the time!)4. Write up your patient story and email it to us!5. Sign-up for membership!Bonus: Sign friends/family up for membership!