www.friendlyfaces.org lisa pleasants-smith from a family perspective children’s healthcare of...
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www.friendlyfaces.org
Lisa Pleasants-Smith
From a Family Perspective
Children’s Healthcare of Atlanta
17th Annual Cleft Lip and Palate SymposiumJuly 22, 2004
www.friendlyfaces.org
Lisa Pleasants-Smith
A resource for, and network of, individuals with facial differences, parents, families, friends, and healthcare professionals
www.friendlyfaces.org
Lisa Pleasants-Smith
www.friendlyfaces.org
Lisa Pleasants-Smith
www.friendlyfaces.org
Lisa Pleasants-Smith
www.friendlyfaces.org
Lisa Pleasants-Smith
NICU Coping Strategies
1. Acquiring information
2. Gaining Control (bonding)
3. Social Comparison
www.friendlyfaces.org
Lisa Pleasants-Smith
Early Intervention
1. Craniofacial Team
2. Audiology
3. Babies Can’t Wait, CMS, Georgia PINES
www.friendlyfaces.org
Lisa Pleasants-Smith
Advocacy BeginsProactive Parenting
1. Self-Education/Research
2. Networking
www.friendlyfaces.org
Lisa Pleasants-Smith
Ongoing ChallengesHealth/Medical Issues
1. Airway Management
2. Nutrition
3. Hearing
4. Craniofacial Surgery
5. Dental
6. Ophthalmology
7. Speech Therapy (Oral Motor and Articulation)
8. Home Health Nursing
www.friendlyfaces.org
Lisa Pleasants-Smith
Ongoing ChallengesEducation Issues
1. Preparation for Individualized Education Plans
2. Special Education/Hearing Impairment Program Options
• Oral/Speech
• American Sign Language (ASL)
• Total Communication (Oral and ASL)
3. Assistive Technology
www.friendlyfaces.org
Lisa Pleasants-Smith
Ongoing ChallengesSocial/Psychological
Issues
www.friendlyfaces.org
Lisa Pleasants-Smith
Ongoing ChallengesHealth Insurance
1. Deeming Waiver
2. Health Insurance Premium Plan (HIPP)
3. Babies Can’t Wait
4. CMS
5. Medicaid Waivers
www.friendlyfaces.org
Lisa Pleasants-Smith
Ongoing ChallengesStress
1. Chronic
2. Affects Entire Family
3. Intervention—Counseling, Support Groups
www.friendlyfaces.org
Lisa Pleasants-Smith
Support1. Continuing Education
• Internet
• Journal Articles and Books
2. Parent-to-Parent Networking
• Parent to Parent of Georgia
• Families of Children Under Stress (FOCUS)
• Mothers United for Moral Support (MUMS)
• Condition-Specific Listservs (e.g. Yahoo! Groups)
www.friendlyfaces.org
Lisa Pleasants-Smith
Essential Resources• Charkins, H. (1996) Children with Facial Difference: A Parent's Guide.
Bethesda: Woodbine House.
• The Resource Guide for People with Disabilities and their Families in
Georgia published by the Governor's Council on Developmental Disabilities.
Call 404-657-2126 for a copy.
• Families Of Children Under Stress (FOCUS)
3050 Presidential Drive, Suite 114, Atlanta, Georgia 30340
Phone: 770-234-9111
Web site: www.focus-ga.org
www.friendlyfaces.org
Lisa Pleasants-Smith
Thank You!