what are we missing?
TRANSCRIPT
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What Are We Missing?
@DrAttai#ASBrS #Prez
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ASBrS Mission
“Committed to continually improving the practice of breast surgery by serving as an advocate for surgeons who seek
excellence in the care of breast patients by providing a forum for the exchange of ideas, and by promoting education, research,
and the development of advanced surgical techniques.”#ASBrS#Prez
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What Are We Missing?
#ASBrS#Prez
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The Social Media Connection
#ASBrS#Prez
Sharon Grutman
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Our Patients Are Online
#ASBrS#Prez
#BCSM Co-Founders
Jody Schoger Alicia Staley
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Information Overload
#ASBrS#Prez
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Information Overload
#ASBrS#Prez
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#ASBrS#Prez
Information Overload
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Too Many Choices
#ASBrS#Prez
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The World Revolved Around Us
#ASBrS#Prez
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The World Revolved Around Us
#ASBrS#Prez
Quality: cure the disease without doing harm along the way
Greenberg CC, Kennedy GD Ann Surg.2014 Jul;206(1):10-12
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#ASBrS#Prez
It’s A Different World
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#ASBrS#Prez
It’s A Different World
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Who Is the e-patient?• Equipped with skills• Enabled and Empowered to
make self-care choices• Engaged in their care• Equal partnership with doc
“Nothing about me without me”
#ASBrS#Prez
Billingham V 1998Through The Patient’s Eyes
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#ASBrS#Prez
An Early e-patient
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Patient-Centered Care as a QM
#ASBrS#Prez
Institute of Medicine 2001Crossing the Quality Chasm
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Patient-Centered Care as a QM
#ASBrS#Prez
Institute of Medicine 2001Crossing the Quality Chasm
Care should be patient-centered: respectful of and responsive to individual patient preference
The patient is the source of control, and the system should be able to accommodate differences in patient preference and
encourage shared decision making
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Barriers and Challenges
#ASBrS#Prez
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Just Ask!
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Just Ask!
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Bad Timing
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My Work Here is Done…
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How Does This Help Me?
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Patient-Centered PATIENT
Pharma
Payer
PhysicianResearcher
Program development
#ASBrS#Prez
Slide Courtesy AnneMarie Ciccarella@chemobrainfog
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PROBLEM
e-Patient
Pharma
Payer
Physician
Researcher
Program development
#ASBrS#Prez
Slide Courtesy AnneMarie Ciccarella@chemobrainfog
Patients as Partners
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Neither is King, Neither is the Sun
Bardes NEJM2012;366: 782-783
#ASBrS#Prez
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ASBrS Mission
“Committed to continually improving the practice of breast surgery by serving as an advocate for surgeons who seek
excellence in the care of breast patients by providing a forum for the exchange of ideas, and by promoting education, research,
and the development of advanced surgical techniques.”#ASBrS#Prez
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ASBrS PALs
#ASBrS#Prez
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ASBrS Initiatives
#ASBrS#Prez
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Patient Experience Survey
#ASBrS#Prez
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Patient Experience Survey Team
#ASBrS#Prez
Dr. Jeffrey LandercasperASBrS PSQCDr. Eric WhitacreDr. Leonard BerryDr. Jane MendezMarie LaFargueAlicia StaleyThomas WhitacreSamuel LandercasperGundersen Health System IRB
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Patient Experience Survey
#ASBrS#Prez
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Patient Experience Survey
#ASBrS#Prez
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Patient Experience Survey
#ASBrS#Prez
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Shared Decision Making
#ASBrS#Prez
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Shared Decision Making
#ASBrS#Prez
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Shared Decision Making
#ASBrS#Prez
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Breast Education Decision Aid Instrument
#ASBrS#Prez
Dr. Rena Kass / Penn StateASBrS Education CommitteeDr. Jane MendezDr. Kristine WiddersDr. Susie SunDr. Jane SchubartDr. Oscar Garcia-Fraga
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Nurse BEDI
#ASBrS#Prez
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Nurse BEDI
#ASBrS#Prez
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Patient Education
#ASBrS#Prez
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Breast360.org
#ASBrS#Prez
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Breast360.org Team
#ASBrS#Prez
Dr. Richard FineDr. Carrie ThomsDr. Richard AltmanMargaret SchlosnagleMaureen KalilJane SchusterChris Barbee>70 ASBrS MembersASBrS Foundation
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#ASBrS#Prez
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Guidelines: Facts versus Value Judgments
#ASBrS#Prez
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Consensus Conference
#ASBrS#Prez
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Clinical Trial Design
#ASBrS#Prez
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#ASBrS#Prez
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#ASBrS#Prez
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#ASBrS#Prez
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“In our country, patients are the most underutilized resource, and they have the most at stake. They want to be involved, and they can be involved.”
#ASBrS#Prez
Dr. Charles SafranHouse Ways and MeansSubcommittee on HealthJune 17, 2004
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#ASBrS#Prez
Mom and Dad
Linnette
Robert, Ashley,Isabelle and Christine
Thank You
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Thank You
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#ASBrS#Prez
Maggie, Ana and Melissa Laura Zibecchi NP
Thank You
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#ASBrS#Prez
Dr. Robert Wallace Dr. Russell Nauta Dr. Stephen Evans Dr. Colette Magnant
Dr. Daniel Miller Dr. Richard White
Thank You
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#ASBrS#Prez
Dr. Richard Fine Dr. Victor Zannis Dr. Shawna Willey Dr. Helen Pass
Dr. Eric Whitacre Dr. Howard Snider Dr. Suzanne Klimberg Dr. Hiram Cody
Thank You
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Thank You
#ASBrS#Prez
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#ASBrS#Prez
Thank You
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#ASBrS#Prez