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Family Centered care in a Swedish NICU Uwe Ewald, Uppsala, Sweden

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Page 1: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Fam ily Centered care in a Swedish NI CU Uwe Ewald, Uppsala, Sweden

Page 2: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

“Today it is rout ine that parents are

together with their child in the hospital”

But is this t rue in the NI CU?

Page 3: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Separat ion of newborn infants today

• Majority of infants are healthy at bir th – albeit some are immature/preterm – Only in need of

• Cleanliness, warmth, breastfeeding/milk

• And ”love” » Essential care of the newborn, WHO2012

• But 10-15 % are referred to a NI CU – Prolonged hospitalization – Rooming-in and/or single family room uncommon – Visiting allowed, but restrictions common

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But who is at r isk to be separated?

Page 5: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

• Be close to m y child • Part icipate and have influence • Feel safe • Qualified staff in a well-organized unit • Have a good and open com m unicat ion with

the staff

Hallström 1998, Wigert 2008

Whishes from parents in hospital

Page 6: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Closeness vs separat ion

• Mother infant interact ion - offspring variat ion in phenotype – epigenet ics

– Meaney 2005

• Bet ter sleep – brain developm ent – Morrissey 2004

• At tachm ent – relieve pain/ st ress – Axelin 2009

• Physical contact enhance developm ent – Treyvaud 2009

• Parent ing intervent ion – bet ter cognit ive outcom e

– Nordhov 2010

• Parental presence – m ore vocalizat ion – Caskey 2011

Page 7: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Separat ion vs closeness

• Maternal depression de Alencar 2009

• I ncom petence of parental role Muller-Nix 2004

• Bonding requires close physical contact Klaus & Kennel 1976

• More guilt / sham e Flacking 2007

• Less breast feeding Flacking 2011

Page 8: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Parent chest = the new care space

Page 9: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Prom ot ing factors for im plem ent ing FFC Thernst rom Blom quist Y, Acta Paediat r 2012

- Early start

- Space - place, pr ivacy, environm ent

- Staff at t itude and care culture - Support (parental leave, social network)

Page 10: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

The staff - new roles as guide,

coach and educater

Infant: 25 w, 2 days

5 days

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Coaching of a m ot ivated pupil

Page 12: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Take part or part icipate?

Page 13: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Blood sam pling

Page 14: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Examinations

Page 15: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Phototherapy

Page 16: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Feeding

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… and of course breast feeding

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Vent ilat ion, m onitor ing, feeding, keeping

warm ...

Page 19: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Som ething to do…

Reading, handicraft , radio, dvd, m p3, internet…

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Mobilit y in a ” top”

Page 21: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

Sleeping

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Siblings are im portant too..

Page 23: Uwe Ewald, Uppsala, Sweden - bnfbd.com. Prof Ewe Ewald_processed.pdfUwe Ewald, Uppsala, Sweden “Today it is routine that parents are together with their child in the hospital”

…. and granny

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Early discharge

Support from home-visiting team from the unit

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Thank you!