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Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need to Know Arlington, Virginia October 2006

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Page 1: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

Using Linked Datato Track Participation in the Medicaid Buy-In Program

Using Linked Datato Track Participation in the Medicaid Buy-In Program

Henry T. IreysSu Liu

The Future of Disability Statistics:What We Know and Need to Know

Arlington, VirginiaOctober 2006

Henry T. IreysSu Liu

The Future of Disability Statistics:What We Know and Need to Know

Arlington, VirginiaOctober 2006

Page 2: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

2

Goals of the PresentationGoals of the Presentation

Describe process of building an integrated database using administrative data from several agencies

Illustrate how the database can be used to address key policy questions related to the Medicaid Buy-In program

Describe process of building an integrated database using administrative data from several agencies

Illustrate how the database can be used to address key policy questions related to the Medicaid Buy-In program

Page 3: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

3

The Medicaid Buy-In ProgramThe Medicaid Buy-In Program Encourages work by allowing individuals

with disabilities to “buy into” Medicaid without giving up higher earnings or assets

Optional state program under Medicaid

Currently offered by 31 states

More than 160,000 individuals have enrolled, as of December 2005

Encourages work by allowing individuals with disabilities to “buy into” Medicaid without giving up higher earnings or assets

Optional state program under Medicaid

Currently offered by 31 states

More than 160,000 individuals have enrolled, as of December 2005

Page 4: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

4

Number of States and Participantsin Medicaid Buy-In Program, 1999-2005

Number of States and Participantsin Medicaid Buy-In Program, 1999-2005

7

1316

23 2427

30

6,980

16,173

22,940

45,481

69,218

76,645

61,985

0

5

10

15

20

25

30

35

1999 2000 2001 2002 2003 2004 2005

Nu

mb

er o

f st

ates

0

10,000

20,000

30,000

40,000

50,000

60,000

70,000

80,000

90,000

Nu

mb

er o

f p

arti

cip

ants

States with a Buy-In finder file Enrollment as of December 31

Note: Arizona and Mississippi also had a Buy-In program, but were not required to submit a finder file; Missouri’s Buy-In program was eliminated in August 2005.Data Source: Buy-In finder files from states

Page 5: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Examples of Policy Questionsand Related Data Sources

Examples of Policy Questionsand Related Data Sources

How many individuals participate in the Medicaid Buy-In program?

– Finder files from state Buy-In programs

How many have earnings and what are their average earnings?

– Finder files from state programs– SSA’s master earnings files (MEF)

How many individuals participate in the Medicaid Buy-In program?

– Finder files from state Buy-In programs

How many have earnings and what are their average earnings?

– Finder files from state programs– SSA’s master earnings files (MEF)

Page 6: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

6

Policy Questions and Data Sources (continued)

Policy Questions and Data Sources (continued)

How do earnings vary by participant characteristics: demographics, disabling condition, prior program participation, and medical expenditures?

– Finder files from states– SSA’s MEF– SSA’s Ticket Research File (TRF)– Medicaid Statistical Information System

(MSIS)– Medicare eligibility and claims files

How do earnings vary by participant characteristics: demographics, disabling condition, prior program participation, and medical expenditures?

– Finder files from states– SSA’s MEF– SSA’s Ticket Research File (TRF)– Medicaid Statistical Information System

(MSIS)– Medicare eligibility and claims files

Page 7: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

7

Medicaid Statistical

Information System

Medicare eligibility and claims

Ticket Research

File

Integrated Individual-Level Analytical File

Data Integration ProcessData Integration Process

Masters Earnings

File

MBI participants finder files from

states

CMSdata systems

SSAdata systems

Page 8: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

8

Patterns of Enrollment in the Medicaid Buy-In Program

Patterns of Enrollment in the Medicaid Buy-In Program

13,104

31,601

31,126

31,193

16,214

23,433

46,673

63,770

0 10,000 20,000 30,000 40,000 50,000 60,000 70,000 80,000 90,000 100,000

2001

2002

2003

2004

Year

Number of Buy-In Participants

First Time All Others

Total 94,963

Total 29,318

Total 55,034

Total 77,799

Source: Buy-In finder files from 27 states Data Source: Buy-In finder files from 27 states

Page 9: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Percent of Buy-In Participants withReported Annual Earnings by State, 2004

Percent of Buy-In Participants withReported Annual Earnings by State, 2004

Data Source: Buy-In finder files from 27 states and SSA’s Master Earnings File

0

10

20

30

40

50

60

70

80

90

100

IL MI KS ME LA NE MN OR SC VT WA IN WV CT NH NJ NY MA UT CA PA WI AK AR NM IA MO

Page 10: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Annual Earnings Among Buy-In Participants with Reported Earnings, 27 States, 2000-2004

Data Source: Buy-In finder files from 27 states and SSA’s Master Earnings File

Total Earnings in Dollars

Average Earnings in Dollars

6,600

6,800

7,000

7,200

7,400

7,600

7,800

8,000

8,200

2000 2001 2002 2003 2004

0

50,000,000

100,000,000

150,000,000

200,000,000

250,000,000

300,000,000

350,000,000

400,000,000

450,000,000

500,000,000

2000 2001 2002 2003 2004

Page 11: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

11

Demographics of High Earners, 2002Demographics of High Earners, 2002

61

47 45

20

0

10

20

30

40

50

60

70

Percent age 21-44 Percent non-white

Participants with top 10% earnings All 2002 participants

61

47 45

20

0

10

20

30

40

50

60

70

Percent age 21-44 Percent non-white

Participants with top 10% earnings All 2002 participants

Data Source: Buy-In finder files from 27 states and SSA’s Master Earnings File

Page 12: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Other Characteristics of High Earners, 2002

Other Characteristics of High Earners, 2002

76

2317

3239

25

0

10

20

30

40

50

60

70

80

Percent with no SSDI orSSI

Percent mental illness Percent with lowest 25%medical spendings ($312

PMPM)

Participants with top 10% earnings All 2002 participants

Data Source: Buy-In finder files from 27 states, SSA’s TRF and MEF, MSIS and Medicare eligibility and claims files

Page 13: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Benefits of Linking Datasets Benefits of Linking Datasets

Chief Benefits

– Able to address a wider range of questions compared with data from one agency alone

– Responsive to needs of multiple stakeholders

Chief Benefits

– Able to address a wider range of questions compared with data from one agency alone

– Responsive to needs of multiple stakeholders

Page 14: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Challenges of Linking DatasetsChallenges of Linking Datasets

Addressing differences in populations, time periods

Managing lack of data overlap

Establishing close collaboration between agency staff and researchers

Assuring data confidentiality

Gaining inter-agency collaboration

Addressing differences in populations, time periods

Managing lack of data overlap

Establishing close collaboration between agency staff and researchers

Assuring data confidentiality

Gaining inter-agency collaboration

Page 15: Using Linked Data to Track Participation in the Medicaid Buy-In Program Henry T. Ireys Su Liu The Future of Disability Statistics: What We Know and Need

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Available at www.mathematica-mpr.com:

– How Much Are Medicaid Buy-In Participants Earning? William E. Black, Su Liu, Henry T. Ireys. June 2006 (first in a series of issue briefs)

– Participation in the Medicaid Buy-In Program: A Statistical Profile from Integrated Data. Su Liu, Henry T. Ireys.  May 2006

– Understanding Enrollment Trends and Participant Characteristics of the Medicaid Buy-In Program, 2003-2004. William E. Black, Henry T. Ireys. January 2006.

Available at www.mathematica-mpr.com:

– How Much Are Medicaid Buy-In Participants Earning? William E. Black, Su Liu, Henry T. Ireys. June 2006 (first in a series of issue briefs)

– Participation in the Medicaid Buy-In Program: A Statistical Profile from Integrated Data. Su Liu, Henry T. Ireys.  May 2006

– Understanding Enrollment Trends and Participant Characteristics of the Medicaid Buy-In Program, 2003-2004. William E. Black, Henry T. Ireys. January 2006.

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