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UNITED HOSPITALS NHS FOUNDATION TRUST. 8 th ANNUAL CANCER CONFERENCE TUESDAY 20 OCTOBER 2009 NHS IMPROVEMENT DIRECTOR CANCER. The title for this section . Survivorship: What is it? A Review of the National Cancer Survivorship Initiative. INTRODUCTION. - PowerPoint PPT Presentation


<ul><li><p>UNITED HOSPITALS NHS FOUNDATION TRUST</p><p>8th ANNUAL CANCER CONFERENCE</p><p>TUESDAY 20 OCTOBER 2009</p><p>NHS IMPROVEMENT DIRECTOR CANCER</p></li><li><p>The title for this section Survivorship: What is it?</p><p>A Review of the National Cancer Survivorship Initiative</p></li><li><p>INTRODUCTION</p><p>NHS Improvement role as an organisation?My role?Plan today for this session?</p></li><li><p>What does the term survivorship mean?</p><p>Anyone who is living with or beyond a cancer diagnosis .. at Day 1 a patient becomes a survivor</p><p>Source: The Cancer Reform Strategy, Chapter 5 &amp; NCSI Vision Document</p></li><li><p>Background </p></li><li><p>How did this term originate &amp; what is the story so far?</p><p>Key initiative of the Cancer Reform Strategy (December 2007)National Cancer Survivorship Initiative launched in September 2008 </p></li><li><p>The aim of the NCSI is, by 2012, to have taken the necessary steps to ensure that survivors get the care and support they need to lead as healthy and active a life as possible for as long as possibleSource: NCSI Vision working document Sept 2009</p></li><li><p>What is the NCSI in practical terms?A 5-year national initiativeIn partnership with the DH, Macmillan &amp; NHS ImprovementNCSI has a National Steering Group chaired by Professor Mike Richards, National Clinical Lead and Ciaran Devane, CEO, MacmillanNational Clinical Lead identified for the clinical workstreams, managerial lead and a nominated chairperson for each of the workstreams</p></li><li><p> 7 workstreams with a specific focus on:-Children &amp; young people-Assessment &amp; care planning-Long term consequences of cancer &amp; treatment-Active &amp; advanced disease-Workforce &amp; finance-Self-management-Research</p></li><li><p>The Children &amp; Young People WorkstreamNational Clinical LeadAdam Glaser, Clinical Oncologist, LeedsManagerial LeadPatricia Morris, NHS ImprovementChair of CYP Steering GroupCarole Easton, formerly CEO CLIC Sargent</p><p>Clinical Reference GroupGill LevittLondonAdam GlaserLeedsProf Mike HawkinsBirminghamLouise HookerCAT/SouthamptonBeverley HorneLeedsRod SkinnerNewcastle upon TyneElaine SugdenOxfordAndy ToogoodBirmingham</p></li><li><p>Working relationships</p></li><li><p>Important elements of the CYP workstream:</p><p>Safe Risk StratificationEvaluating patient experienceResearch &amp; evidenceProviding the evidence to validate the testing work</p></li><li><p>CYP Workstream - Four PrinciplesPrinciple 1personalised, risk-stratified care</p><p>Principle 2a shift to informed self-management</p><p>Principle 3easy access to universal and, where necessary, specialised services appropriate to their needs</p><p>Principle 4realistic/evidence-based/cost effectivemodels of care </p></li><li><p>What are our objectives?Test out models and evaluate models of care that will inform future policyTo improve clinical support and careTo enhance efficiencyTo promote information sharingTo ensure inclusive approach to living beyond cancerTo provide robust evidence to convince wider NHS change is needed</p></li><li><p>Who is involved?</p></li><li><p>The test sites so far17 test sites focusing on adult services10 test sites focusing on children and young people 27 projects</p><p> although working in parallel at this stage the pathway/transition needs to be smooth</p></li><li><p>Summary of progress so far-Patients/carers involvement at national and local level-Clinical leadership-Identified what is important to survivors as basis for testing-Measures established-Care Plan launched in September-Safe Risk Stratification exercise ready to start-Review of clinical evidence underway</p></li><li><p>What are we aiming to achieve by March 2010?Summary of expected outcomes by March 2010:</p><p>Survivorship care plan framework tested/ready to roll outTangible/measurable outcomes for IT system work in LeedsCase studies produced demonstrating progress from each test siteEmerging principles for new models of careIdentification of issues for cancer survivors in non-clinical areas in partnership with DH and charitiesEvidence !!!</p></li><li><p>Some of the challengesMaintaining focus and momentum to make change happenSticking to timeframesEnsuring we have the evidence to persuadeMaking sure that we build on existing good practiceEffectively sharing informationEngaging key individuals and groups that can support this initiativeEnsuring we link with work in adult workstream</p></li><li><p>Early themes &amp; learning emergingCare plans, shared widely, are basic requirementIt is important to use technology to best effect when designing follow-up for patientsNeed to reduce meaningless follow-up appointmentsNo one size fits all!A shift is needed in terms of the language used in relation to individuals living with and beyond cancerEvidence needs to be meaningful to the current health economy</p></li><li><p>Key messages so far</p><p>Real commitment to make change happenTest sites are enthusiastic with a clear focusSuccessful change is never straightforwardThe results will be immensely rewardingThis work has the ability to influence future services</p></li><li><p>Thank you very much for listening</p><p>patricia.morris@improvement.nhs.uk</p></li><li><p>Now let us hear from Rachel Cox, Clinical Lead for the CYP Survivorship testing work in Bristol</p></li></ul>


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