uncertainty in illness theory

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    Uncertainty in Illness TheMerle H. MIshel

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    Credentials and Backgro

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    Credentials and Background

    Born in 1939, in Boston Massachusetts

    She Graduated from Boston University with 19!1

    "eceived her M.S. in #sychiatric nursin$ fromUniversity of %alifornia in 19!!

    %om#leted her M.. and &h.'. in social #sycthe %laremont Graduate School, %alifornia in19)*, res#ectively.

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    Her dissertation research, su##orted +y an i

    national research service award, was the deand testin$ of the #erceived am+i$uity in Illlater renamed the Mishel Uncertainty in IllneMUIS-. the ori$inal scale has +een used afor the followin$ three additional scales/

    community version MUIS-% for chronically ill inwho are not hos#itali0ed or receivin$ active care.

    measure of #arents #erce#tions of uncertainty re$ard to their childs illness e2#erience.

    measure of uncertainty in s#ouses or other famwhen another mem+er of the family is acutely ill

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    4arly in her #rofessional career, Mishel #rac#sychiatric nurse in acute care and communsettin$s, while #ursuin$ her doctorate, she wfaculty in the 'e#artment of 5ursin$ in the %State University at 6os n$eles, risin$ from

    to full #rofessor. She #racticed as a nurse thera#ist in +oth co

    and #rivate #ractice settin$s from 19(3-19(

    U#on com#letion of her doctorate de$ree in #sycholo$y, she relocated to the University

    %olle$e of 5ursin$ in 19)1.

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    She served as division head for mental healtfrom 19)7-1991.

    She received numerous intramural and e2traresearch $rants that su##orted the the contidevelo#ment of her theoretical framewor8.

    She was inducted as fellow in the merican of 5ursin$ in 199*

    Became #rofessor at the University of 5orth School of 5ursin$ in 1991

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    as awarded, :enan &rofessor of 5ursin$ %h1997

    Given the "esearch Merit ward in 199(

    "eci#ient of Si$ma ;heta ;au International S%ha#ter 5urse "esearch &redoctoral ellows

    19(( to 19(9 and received the Mary =#al "esearch ward in 19)!.

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    She is a mem+er of merican cademy of 5Si$ma ;heta ;au International, merican &syssociation, merican 5urses ssociation, SBehavioral Medicine, and =ncolo$y 5ursin$

    Served as $rant reviewer for the 5ational %a

    Institute, 5ational %enter for 5ursin$ "esear5ational Institute for $in$ and was a charteof the study section on human immune de>virus HI? at the 5ational Institute of Menta

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    Theoretical Sources

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    Theoretical Sources

    hen Mishel started her research into unce

    conce#t had not #reviously +een a##lied in and illness conte2t.

    Her ori$inal Uncertainty in Illness ;heory M19)) drew from e2istin$ information-#rocesmodels ar+urton, 19(9 and #ersonality rBudner, 19!@ from #sycholo$y disci#line, wcharacteri0ed uncertainty as a co$nitive staresultin$ from insuAcient cues with which foco$nitive schema or inter#ersonal re#resentsituation or event.

    She attri+utes the underlyin$ stress-a##rais

    ada#tation framewor8 in the ori$inal theory

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    The unique aspect was her application of thframework to uncertainty as a stressor in thof illness, which made the framework particmeaningful for nursing.

    ith the conce#tuali0ation of the theory, Mi

    199* reco$ni0ed that the western a##roacscience su##orted a mechanistic view in its on control and #redicta+ility.

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    By usin$ critical social theory, Mishel reco$n+ias inherent in the ori$inal theory, an orientoward certainty and ada#tation. She incor#tenets from chaos theory, and +ecause of itso#en systems, allowed for a more accurate

    re#resentation of how chronic illness createsdiseuili+rium and how #eo#le ultimately caincor#orate continual uncertainty to >nd newin illness.

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    Major Concepts & Defnit

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    Major Concepts & Defnition

    Uncertainty

     ;he ina+ility to determine the meanin$ ofrelated events, occurrin$ when the decisiuna+le to assi$n de>nite value to o+Cectsor is una+le to #redict outcomes accurate

    Cognitive Schema

    Is a #ersons su+Cective inter#retation of itreatment, and hos#itali0ation

    Stimuli rame

    Is the form, com#osition, and structure ofstimuli that a #erson #erceives, which are

    structured into a co$nitive schema

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    Symptom !attern

    Is the de$ree to which sym#toms occur wsuAcient consistency to +e #erceived as #attern or con>$uration

    "vent amiliarity

    Is the de$ree to which a situation is ha+it

    re#etitive, or contains reco$ni0ed cues "vent Congruence

    "efers to the consistency +etween the e2and the e2#erienced in illness-related eve

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    ST#UCTU#" !#$%ID"#S

    re the resources availa+le to assist the #the inter#retation of the stimuli frame

    Credile 'uthority

    Is the de$ree of trust and con>dence a #ein his or her healthcare #roviders

    Social Supports

    Social Su##orts inDuence uncertainty +y the individual to inter#ret the meanin$ of

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    C$()ITI%" C'!'CITI"S

    re the information-#rocessin$ a+ilities ofreDectin$ +oth innate ca#a+ilities and situconstraints

    I)"#")C" "efers to the evaluation of uncertainty us

    related, recalled e2#eriences

    I**USI$)

    "efers to +eliefs constructed out of uncer

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    'D'!T'TI$)

    "eDects +io#hysical +ehavior occurrin$ w#ersons individually de>ned ran$e of usu+ehavior

    )"+ %I"+ $ *I"

    "efers to the formulation of a new sense

    resultin$ from the inte$ration of continuauncertainty into ones self structure, in wuncertainty is acce#ted as the natural rhy

    !#$B'BI*ISTIC T,I)-I)(

    "efers to the +elief in a conditional world

    the e2#ectation of continual certainty and

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    Major 'ssumptions

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    Major 'ssumptions

    Mishels ori$inal Uncertainty in illness

    >rst #u+lished in 19)), included seveassum#tions. ;he >rst two reDect howuncertainty was conce#tuali0ed ori$inwithin the #sycholo$y disci#lines info#rocessin$ models, as follows/

    Uncertainty is a co$nitive state, re#reseninadeuacy of an e2istin$ co$nitive schemsu##ort inter#retation of illness related ev

    Uncertainty is an inherently neutral e2#eneither desira+le nor aversive until it is a

    as such.

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     ;wo more assum#tions reDect the unctheorys roots in traditional stress and

    models that #osit a linear stress

     coada#tation relationshi# as follows/

    da#tations re#resents the continuity of aindividuals usual +io#hysical +ehavior andesired outcome of co#in$ eEorts to eitheuncertainty a##raised as dan$er or maintuncertainty a##raised as o##ortunity

     ;he relationshi#s amon$ illness events, ua##raisal, co#in$, and ada#tations are linunidirectional, movin$ from a situations #uncertainty toward ada#tation.

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    Mishel herself challen$ed these last two assin her reconce#tuali0ation of her theory, #u+199*.

     ;he reconce#tuali0ation came a+out as a recontradictory >ndin$s, when the theory was#eo#le with chronic illness.

     ;he ori$inal theory held that uncertainty, tya##raised as an o##ortunity only in conditio

    re#resent a 8nown downward traCectory. MIshel and others found that #eo#le also a#

    uncertainty as an o##ortunity in situations wcertain downward traCectory, #articularly, inchronic illnesses, and that in this conte2t #edevelo# a new view of life.

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    Mishel +ecame dissatis>ed with the traditionmodels that informed the ori$inal theory, shto the more dynamic chaos theory to e2#lain#rolon$ed uncertainty could function as a ca

    chan$e a #ersons #ers#ective on life and ill%haos theory contri+uted two of the followintheoretical assum#tions, which re#lace the stress  co#in$  ada#tation outcome #ortmodel as follows/

      &eo#le as +io#hysical systems ty#ically fu

    far-from-euili+rium states

    MaCor luctuations in a far-from-euili+riuenhance the systems rece#tivity to chan

    luctuations result in re-#atternin$, which

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    Because uncertainty #ervades nearly every a #ersons life, its eEects +ecome concentraultimately challen$e the sta+ility of the systres#onse to the confusion and disor$ani0atio

    +y continued uncertainty, the system ultimachan$e in order to survive

    Ideally under conditions of chronic uncertain#erson $radually moves away from an evaluuncertainty as aversive to ado#t a new viewthat acce#ts uncertainty as a #art of reality.

    >$ure @)-@

     ;hus uncertainty, es#ecially in chronic or lifethreatenin$ illness, can result in a new levelor$ani0ation and a new #ers#ective on life.Incor#oratin$ the $rowth and chan$e that ca

    from uncertain e2#eriences.

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    Theoretical 'ssertions

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    Theoretical 'ssertions

    Mishel asserted the followin$/

    1. Uncertainty occurs when a #erson cannot adeuately strucate$ori0e an illness-related event +ecause of lac8 of cues

    @. Uncertainty can ta8e the form of am+i$uity, com#le2ity, lainconsistent information, or un#redicta+ility

    3. s sym#tom #attern event familiarity, and event con$ruen

    frame increase, uncertainty decreases7. Structure #roviders %redi+le uthority, social su##ort, and

    decrease uncertainty directly +y #romotin$ inter#retation oindirectly +y stren$thenin$ the stimuli frame

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    F. Uncertainty a##raised as dan$er #rom#ts co#in$ eEorts direducin$ the uncertainty and mana$in$ the emotional arou+y it

    !. Uncertainty a##raised as o##ortunity #rom#ts co#in$ eEormaintainin$ the uncertainty

    (.  ;he inDuence of uncertainty on #sycholo$ical outcomes is the eEectiveness of co#in$ eEorts to reduce uncertainty a#

    dan$er or to maintain uncertainty a##raised as o##ortunit

    ). hen uncertainty a##raised as dan$er cannot +e reduced co#in$ strate$ies can +e em#loyed to mana$e the emotion

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    9.  ;he lon$er uncertainty continues in the illness conte2t, theunsta+le the individuals #reviously acce#ted mode of func+ecomes

    1*.Under conditions of endurin$ uncertainty, individuals may new, #ro+a+ilistic, #ers#ective on life, which acce#ts uncenatural #art of life

    11. ;he #rocess of inte$ratin$ continual uncertainty into a new

    can +e +loc8ed or #rolon$ed +y structure #roviders who do#ro+a+ilistic thin8in$

    1@.&rolon$ed e2#osure to uncertainty a##raised dan$er can leintrusive thou$hts, avoidance, and severe emotional distre

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    Mishel +elieves the most im#ortant #rher research #ro$ram is the return of8nowled$e to #ractice. ;oward the endare under way to move the theoreticaderived intervention into current #rac

    allowin$ nurses res#onsi+le for diEereof #atient #o#ulations