tourettes – whats that?. have i got tourettes? what is tourettes? ps... shes got ts you must have...

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“tourettes” – what’s that?

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Page 1: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Page 2: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Have I got ‘tourettes’?

What IS ‘tourettes’?PS ...

“She’s got TS”

“You must have tourettes“

“He’s got tourettes”

Page 3: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

tourettes =

Tourette Syndrome (TS)

Page 4: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

What is it?

People with Tourette Syndrome have tics

Tics mean you make sounds and do movements you really can’t control

You have them for at least a year to be diagnosed with TS

Page 5: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

What it’s not

Tourette Syndrome is not a mental illness

Tourette Syndrome does not affect how intelligent you are

You can’t catch it - it’s not infectious

Page 6: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

What are tics?

Muscle movements or noises which the person can’t help doing

Tics are fast

They happen again and again

People with Tourette Syndrome are not doing them on purpose

Page 7: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

twirling

Some examples of tics

Blinking

sniffing, sn, sn ,, ,, ,,, hair flicking,,,,,,,, clicking, AHEMclearing your throatAHEM saying the same word over and over over and over over and over over and over over and over over and over over and over over and over over and over over and over over and over over and over over and over over

and over over and over AND OVER AND OVER AND

OVER AND OVER AND OVE

Shrugging

jumping

touchingCoughing

Page 8: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

The swearing tic(the one everyone knows about)

It’s very uncommon in children with TS

It’s uncommon in adults with TS

In fact ...

... only one person in ten with TS has it

The medical name is “coprolalia” cop – row – LA – lee – ya

Page 9: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Tics wax and waneThey come and go

They change in how severe they are

And how often they occur

He didn’t do that last week ...

He’s doing it all the time

now.She’s just putting it

on. People with Tourette Syndrome are not doing their tics on purpose.

Page 10: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

But People with TS can stop their tics for a short time if they concentrate hard.

This sometimes confuses teachers

She IS just putting it on.

And maybe other pupils ...?

Page 11: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

People with Tourette Syndrome are not doing tics on purpose

Stop doing that! It’s driving me mad!

But I can’t help it...

Page 12: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

How do you get it?

?Tourette Syndrome is an inherited condition.

Scientists don’t yet know the exact causes.

They think is it probably a mixture of different things; genes and environment.

Page 13: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Who has TS?

I do!About 300,000 to 330,000 children and adults in the UK

Page 14: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Who has TS?

I do!One in a hundred school children has TS.

Page 15: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Who has TS?

Three times as many boys as girls have TS.

I do!

Page 16: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Who has TS?

I do!Tics often get stronger and more obvious around the ages of 10 to 12.

Page 17: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Who has TS?

I do!Tics often reduce and in some people disappear by the age of 18.

Page 18: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

Famous people with TS

Footballers – like Tim Howard, Everton goalie

Musicians – from Mozart to Pete Bennett

Lots of cool people!

Page 19: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

How do you treat TS?

There are some tablets and pills that may help the signs of TS.

Therapies such as cognitive behavioural therapy which tries to alter the way we think, and habit reversal training can help some people.

Doctors try to tell young patients that they are not alone. Many other young people have TS.

Page 20: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

If someone has Tourette Syndrome

Don’t tease them about their TS

Stand up for them if they are bullied. Tell an adult.

Let them alone to release their tics in private, if they want to

Help them join in - don’t leave them out

Page 21: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

THANK YOU!

PS: You now know more about Tourette Syndrome than most adults!

Why not test your mum or dad at home?

Page 22: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes

“tourettes” – what’s that?

If you’d like to know more about Tourette Syndrome you can contact

Ring the free Helpline 0300 777 8427

or email [email protected]

There is also lots of information on the website

www.tourettes-action.org.uk

Page 23: Tourettes – whats that?. Have I got tourettes? What IS tourettes? PS... Shes got TS You must have tourettes Hes got tourettes