The Prostate Net Regional Prostate Cancer

Symposium Series

An Educational Initiative for Patients and Healthcare Professionals

May - October, 2010

National Healthcare Quality Report - 2007

•“Preventive healthcare lags significantly behind other gains in healthcare.”

•Access to care and information varied widely between racial/ethnic groups and by socio-economic status

• Source: www.ahrq.gov

Concept

Provide access to information and thought leaders to promote best standards of care

dual-track format to maximize interaction

Provide a faculty of world-class clinicians and researchers who set the standards of care

Meeting Objectives Patients:

understand role of biomarkers of diagnosis/progression describe current treatments and emerging drug protocols discuss the importance of effective patient/doctor

dialogues

Professionals: identify best standards of care Define the impact of treatment on co-morbid conditions Discuss the advances in therapeutic and drug protocols Describe the appropriate use of novel therapies Evaluate the information’s applicability to practice

management

Secondary Regional Goals Rutgers: Impact of Healthcare Reform on Public

Health Policy Georgetown: Support for Pca Research Funding Clark Atlanta: Minority Population

Epidemiological and Clinical Research University of Florida: Global Prostate Cancer

Impact on Black Men Northwestern: SPORE Research Expansion New York: Total Spectrum of Disease

Management

Listening to the Audience:ARS initiative

In all Symposia an interactive individual computer polling device is

used to measure audience demographics and responses to key

“Need to Know” questions

Rutgers Symposium AgendaTime Patient Track Professional Track 8:00 Registration / Breakfast 8:30 Program Overview

Virgil Simons – Founder & President – The Prostate Net John Andrews

Judith Kichhoff, PhD – Rutgers School of Public Affairs and Administration 8:45 Welcome

Marc Holzer, PhD – Dean of the School of Public Affairs and Administration

9:00 The Impact of Prostate Cancer in New Jersey Daniel Rosenblum, PhD – Essex County Cancer Coalition

9:15 Prostate Cancer 101: Testing and Treatment

Stanley H. Weiss, MD Ihor Sawczuk, MD

Managing Treatment Side-effects/ Palliative Care

David Shin, MD Biren Saraiya, MD

10:00 Restoring Quality of Life: Managing Side-effects / Pain

Control David Shin, MD

Biren Saraiya, MD

Current and Emerging Biomarkers for Disease Management Michael Karellas, MD

10:30 Break

10:45 Advanced Stage Disease Management

Michael Karellas, MD

Managing Hormone Sensitive, Non-Metastatic Relapse / Castrate Resistant

Metastatic Prostate Cancer Biren Saraiya, MD

11:15 Emerging Treatment Protocols / Importance of Clinical Trials Virgil Simons

Biren Saraiya, MD 12:00 Keynote Luncheon

Critical Issues in Public Health Policy Clifton Leaf

1:00 Prevention Strategies Stanley H. Weiss, MD

1:30 Health Care Reform and Public Health Policy Frank Thompson, PhD

2:00 Patient Û Doctor Communications / The Spouse/Partner in Disease Management

Shlomo Mizrahi, PhD Diane Johnson – Editorial Director – The Prostate Net

2:30 Feedback Summary

Registered Attendance Patients/spouses, Advocates, Caregivers

On-Site: 81 Patients - 64 Caregivers - 17

Follow-on distribution - 202: Through NJ OCCP Coordinator Training, Gilda’s Club, ACS - 129 Barbershop Initiative/NJCEED educational sessions - 73

Professionals Doctors: On-Site

Medoncs - 16 Radoncs - 8 Primary Care - 13 Urologists - 6

Public Health Agencies On-Site: Physicians and medical assistants - 9 Community outreach workers - 7

Follow-on distribution - 38: RadOncs - 3; NP/PAs - 8 Medical Centers/Public health agencies - 27

Lombardi/Congressional SymposiumTime The Prostate Net

Congressional Awa reness Symposium June 16, 2010

10:00 Meeting Set-up 12:00 Buffet Lunch

Rayburn House Office Building Room B-338

12:00 Program Overview Virgil Simons – Founder & President – The Prostate Net

12:10 Health Policy in the Era of Healthcare Reform Congressman Steven Rothman - Invited

12:20 Prostate Cancer 101: Problems and Resolutions Lucile Adams-Campbell, PhD – Georgetown / Lombardi Cancer Center

12:30 Genetic Causation for Mortality Disparity among Young A frican-American Men

Isaac Powell, MD – Karmanos Cancer Center 12:50 Research and Cost Reduction in Federal Health Programs

Howard Scher, MD – Memorial Sloan-Kettering Cancer Center 1:10 New Biomarkers for Disease Detection / Disease Progression

John Isaacs, PhD – Johns Hopkins Cancer Center 1:30 Men’s Health Initiative

Scott Williams – Men’s Health Network 1:40 Feedback Summary

Registered Attendance On-Site - 93:

U.S. Congressman - 1 Congressional Legislative Staff - 26 Patients/Advocates - 25 Healthcare Professionals:

Medical Oncologists - 4 Urologists - 3

Cancer Researchers - 23 Pharmaceutical Industry - 7

Follow-up plans: Meetings being scheduled with Congressional Members of:

Appropriations Committee Ways and Means Committee

Partnering with Dept. of Defense Research Grantees to present evidence for increased research funding and preventive education programs

Clark Atlanta SymposiumAGENDA

Time Clark Atlanta University

Center for Cancer Research and Therapeutic Development Prostate Cancer Symposium

July 17, 2010 8:00 Registration / Breakfast

8:30 Welcome and Program Overview Shafiq Khan, PhD Joseph Silver, PhD

Virgil Simons 8:45 PSA Testing : Making Sense of the Rhetoric /

Patient / Doctor Communications James Mohler, MD /

Mary Anderson 9:30 Prostate Cancer Treatment:

What’s Best for You Urologist TBD /

Radiation Oncologist - TBD 10:00 Restoring Quality of Life: Managing Side Effects

Ulka Vaishampayan, MD / Rudy Lombard, PhD

10:30 Break

10:45 Managing Hormone Sensitive, Non-Metastatic Relapse and Castrate-Resistant Metastatic Prostate Cancer

Ulka Va ishampayan, MD/ James Mohler, MD

11:30 Q/A & Community ARS Discussion Follow-up Presentation Questions / Impact Issues

12:00 Keynote Luncheon Jean Bonhomme, MD

1:00 The Research Paradigm: Scientific Agenda vs. Patient Needs CCRTD Researcher /

Virgil Simons 1:30 Prevention Strategies / Emerging Trends and Issues

MD - TBD/ Research Speaker - TBD

2:00 Closing Comments and Program Summary Shafiq Khan, PhD

Registered Attendance Patients/spouses, Advocates, Caregivers

On-Site: 68 Patients - 54 Advocates - 14

Follow-on distribution - 107: Through Georgia Men’s Health Coalition Prostate Net Barbershop Initiative™

Doctors: On-Site: 17 Medoncs - 8 Radoncs - 1 Primary Care - 0 Urologists - 8

Public Health Agencies On-Site: 59 Nurses and medical assistants - 22 Community outreach workers - 37

Cancer Researchers On-Site: 22 Center for Cancer Research and Therapeutic Development - 17 Morehouse School of Medicine - 3 Centers for Disease Control and Prevention - 2

Follow-on distribution - 56: Urologists - 26 Medoncs - 3 RadOncs - 3 NP/PAs - 8 Medical Centers/Public health agencies - 16

University of Florida SymposiumSaturday, August 28, 2010 7:30-8:00am Continental breakfast 8:00 – 9:40am Opening Plenary Session – Grand Ballroom (A&E)

8:00 – Folakemi Odedina – Program Overview 8:05 – Virgil Simons – Founder & President, The Prostate Net

8:15 - Senator Anthony Hill Sr, Florida State Legislature 8:20 – Dr. Vickie L. Shavers, National Cancer Institute 8:25 – Mr. Charles Griggs, 100 Black Men of Jacksonville 8:30 - Dr. Paul Okunieff – Cancer Center Director, University of Florida Shands 8:40 – Dr. Rick Kittles – Introduction of Keynote Speaker - John Carpten, PhD

8:45 - Keynote: African American Hereditary Prostate Cancer Study Network: Where are we 9:15 – 9:30am - Transition to Symposium Rooms for Patient, Provider, or Researcher Symposium

Time Patient/Survivor Symposium Provider Symposium

Researcher Symposium

Adjourn to Room ____ Adjourn to Room ____ Adjourn to Room ____

9:30 – 10:00 Prevention and Diagnosis of Prostate Cancer Dr. Brian Stone

Current and Emerging Biomarkers for Disease

Management Dr. Elisabeth Heath

10:00 – 10:45 Prostate Cancer Treatment: What’s Best for You

Dr. Winston Tan Dr. Stephen Ko Dr. David Thiel

Oral Presentations Bio-behavioral Model of Prostate Cancer Etiology

Chairperson: Matt Freedman (US)

10:45 - 11:00 Break Transition to Plenary Session

11:00 – 12:00 Symposium Plenary Session Efficacy of PSA Screening for Prostate Cancer Among Elderly African

Americans: A Case-Control Study Dr. Paul Godley

12:00 – 1:00 Keynote Luncheon Emerging Trends, Issues & Treatment in Late-Stage Disease

Dr. Oliver Sartor 1:00 – 1:45 Treatment of Advanced Stage

Disease Virgil Simons

Dr. Elisabeth Heath

Managing Hormone Sensitive,

Non-Metastatic Relapse Prostate Cancer Dr. Stephen Ko Dr. David Thiel

1:45 – 2:30 Controlling Therapeutic Side Effects / Pain Management

Dr. Stephen Ko Dr. David Thiel

Managing Castrate-Resistant Metastatic

Prostate Cancer Dr. Winston Tan

Dr. Elisabeth Heath 2:30 – 3:15 J oint Provider-Patient Symposium

Future of Prostate Cancer Research / Addressing Clinical Trial Barriers

Virgil Simons Dr. Elisabeth Heath

Oral Presentations Prostate Cancer

Population-Based Research: Answers on

Prostate Cancer Disparities

Chairperson: Alan Patrick (Trinidad & Tobago)

3:15 – 3:30 Program Feedback / Summary 4:00 – 5:30 Community-Academic Town Hall Forum

Mayor John Peyton, Jacksonville FL (Invited) Research Agenda for Black Prostate Health: Issues, Challenges & Future Directions

Facilitators: Camille Ragin (USA); and Angela Adams (USA)

Northwestern SymposiumAGENDA

Northwestern University

Lurie Comprehensive Cancer Center 303 East Superior Street

Time Patient Track Professional Track 8:00 Registration / Breakfast Registration / Breakfast

8:30 Welcome and Program Overview Steven Rosen, MD Chung Lee, PhD

Virgil Simons 9:00 PSA Testing: Is There An Answer?

Russ Gould: the Patient’s Perspective Otis Brawley, MD

William Catalona, MD 10:15 Patient / Doctor Communications

Terry Mason/ Thomas Kirk – Us Too

10:45 Break

Remain in Hughes / Baldwin Adjourn to Searle Room

11:00 Prostate Cancer Treatment: What’s Best for You

Terry Mason, MD/ John Kalapurakal, MD/ Charles Brendler, MD

Controlling Therapeutic Side Effects / Pain Management

Daniel Shevrin, MD/ Judith Paice, PhD

11:45 Restoring Quality of Life: Managing Side Effects / Pain Control

Judith Paice, PhD/ Daniel Shevrin, MD

Current and Emerging Biomarkers for Disease Management

Rick Kittles, PhD/ Charles Brendler, MD

12:15 Keynote Luncheon William Catalona, MD

1:00 Advanced Stage Disease Mgmt. Terry Mason/

John Kalapurakal, MD/ Daniel Shevrin, MD

Managing Hormone Sensitive, Non-Metastatic Relapse and Castrate-Resistant Metastatic Prostate Cancer

Gary MacVicar, MD/ Terr y Mason, MD

1:45 Prevention Strategies: Emerging Trends and Issues

Daniel Shevrin, MD 2:15 Feedback Summary / Q&A

The Prostate Net SymposiumOctober 2, 2010

AGENDA

Time New York University Kimmel Center for University Life

Prostate Cancer Symposium October 2, 2010

8:00 Registration / Breakfast

8:30 Welcome and Program Overview Allen McFarlane

John Andrews Virgil Simons

9:00 Health Initiatives in the Era of Healthcare Reform Senator Robert Menendez, NJ - Invited

9:15 Patient / Doctor Communications: The Trust Equation Mark Litwin, MD / Darryl Mitteldorf

9:45 Prevention Strategies: Environment, Diet and Lifestyle Stanley Weiss, MD

10:15 Break

10:30 Understanding New Drug Protocols: Managing Hormone Sensitive, Non-Metastatic Relapse /

Castrate-Resistant Metastatic Prostate Cancer Daniel Petrylak, MD/

Susan Slovin, MD, PhD 11:30 Finding Affordable Health Care: U.S. vs. Overseas

Arnon Krongrad, MD

12:00 Benediction Rev. Alfonso Wyatt

12:10 Keynote Luncheon “Invasion of the Prostate Snatchers” –

Managing Primary Therapy Mark Scholz, MD

1:15 Restoring Quality of Life: Managing Side Effects / Palliative Care

Susan Slovin, MD, PhD Arnon Krongrad, MD

2:00 Prostate Net Health Scholar Poster Winners Presentations

Mark Litwin, MD 2:30 Feedback Summary /

Q&A

On-Going Educational Reinforcement

Archives of all Symposium Presentations are accessible through an Information Portal at: http://prostatenet.com/page/

Data capture of viewer demographics for future targeting

Opportunity to poll database for response on key disease issues

Thank You!

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