the movement disorder society and movement disorders: a modern history

Download The Movement Disorder Society and Movement Disorders: A Modern History

Post on 15-Jun-2016




0 download

Embed Size (px)


  • The Movement Disorder Society and Movement Disorders:A Modern History

    Christopher G. Goetz, MD1* and Anne McGhiey, CAE2

    1Rush University Medical Center, Chicago, Illinois, USA2Executive Director, Movement Disorder Society, Milwaukee, Wisconsin, USA

    ABSTRACT: The Movement Disorder Society(MDS) developed out of a merger with two short-livedorganizations, the Movement Disorder Society, primar-ily organized to develop a journal for the subspecialty,and the International Society of Motor Disturbances,primarily organized to develop international con-gresses. The formal merger of the Movement DisorderSociety and the International Society of Motor Distur-bances into the Movement Disorder Society took placeat the 2nd International Congress of Movement Disor-ders in Munich, Germany, in June 1992. Whereas thejournal, Movement Disorders, and the annual Interna-tional Congress of Parkinsons Disease and Movement

    Disorders remain the anchors of the society, the goalsnow include the development of regional symposia, re-gional sections, Web-based educational programs, andoutreach efforts to include young investigators, wideinternational membership, and inclusion of non-neurol-ogists, including basic scientists, neurosurgeons, andnonphysician health professionals. Movement Disor-ders has a continuingly growing subscribership andrising impact factor. VC 2011 Movement Disorder Society

    Key Words: Movement Disorder Society; MDS; Move-ment Disorders; movement disorders; neurological history

    Introduction: Movement DisordersAnd Neurological Societies Prior to

    the Mid-1980s

    Whereas the 19th century can be viewed historicallyas the century that established neurology as a specialtyin medicine, the 20th century, specically the secondhalf, marked the evolution of movement disorders as adistinct neurological domain. The World Federation ofNeurology (WFN), founded in 1957 under the impetusof Ludwig van Bogaert, MacDonald Critchley, Perce-vil Bailey, and other world leaders, gathered neurolo-

    gists together to form an international body ofneurological focus. Even in its early years, however,the WFN fostered special interest groups, termedResearch Commissions. The rst of these bodies con-cerned Geographical Neurology, Statistics andEpidemiology (1959), and Neurochemistry (1959),but thereafter other groups formed. In this process,subspecialty groups evolved into Research Groups,including one devoted to extrapyramidal disorders,organized by Melvin Yahr in 195960, and one onHuntingtons disease, founded a few years later byAndre Barbeau. Membership to these groups involvedan application submitted to the ofcers of the exist-ing group, which voted on admission. Although thesize of these bodies was small, occasionally largersymposia were sponsored that allowed largerparticipation.1

    At the American Academy of Neurology (AAN),the concept of sections was developed in 1980, andthe Section of Neuropharmacology was the secondsection to be formed.2 Organized largely under thedirectorship of Thomas Chase, this group allied clini-cians, researchers, and industry representatives withshared interests in clinical neuropharmacologicalissues largely linked to movement disorders. This

    ------------------------------------------------------------*Correspondence to: Dr. Christopher G. Goetz, Rush University MedicalCenter, Suite 755; 1725 W. Harrison Street, Chicago, IL 60612, USA;

    Relevant conicts of interest/nancial disclosures: Christopher G.Goetz received a stipend from MDS as Co-Editor-in-Chief of MovementDisorders from 2004 to 2010. Anne McGhiey is a full-time employee ofExecutive Director Inc., which has the management contract with MDS.Full nancial disclosures and author roles may be found in the onlineversion of this article.

    Received: 15 October 2010; Revised: 17 January 2011; Accepted: 24January 2011Published online in Wiley Online Library ( 10.1002/mds.23689

    R E V I E W

    Movement Disorders, Vol. 26, No. 6, 2011 939

  • group was replaced by the AAN Section of Move-ment Disorders, which developed in 1995.

    MODIS and ISMD

    The Movement Disorder Society (MDS) developed asa merger of two short-lived organizations, the Move-ment Disorder Society (MODIS) and the InternationalMedical Society of Motor Disturbances (ISMD). In themid-1980s, Stanley Fahn suggested that a society de-velop with the primary aim of publishing a subspecialtyjournal. In a 2000 interview, he recounted these rstconsiderations that emerged out of his friendship withC. David Marsden and his teaching experiences at inter-national meetings, especially the AAN, where video ma-terial was a pivotal teaching medium3:

    . . . [T]he idea came that we needed a journal. And Isuggested to C. David Marsden, if we were going to havea journal, instead of having a publisher or a publishingcompany own the journal and get all the prots, and weas editors just do all the work, we ought to found a soci-ety. And would he join me in organizing a society, sincehe was a leading European movement disorders expert atthat time? So I decided if he knows all the European neu-rologists and I knew a lot of the American ones, maybe,together, we could jointly found this society. So we calledit the Movement Disorders Society (p. 49).3

    His interview continued with further recollections:

    We developed a questionnaire at the time of an inter-

    national Parkinsons Symposium that was held in New

    York City in 1985.. . .and I asked people if they would be

    willing to join, would they be willing to pay dues. The

    purpose would be to have a journal. And it was over-

    whelmingpeople responded in favor of that, so we

    decided for the World Congress of Neurology in Ham-

    burg, Germany, to be held in September of 85, to hold a

    little meeting. I invited a few besides David and

    myself. . .to join us in my hotel room one evening as sort

    of the founders of this new society: Joe Jankovic and Ira

    Shoulson, who were the Americans, and Andrew Lees

    from London and Eduardo Tolosa from Barcelona, who

    were the other two Europeans.. . .Now, it turned out, Ira

    couldnt come that night. And he joined subsequently. So

    the ve of us were there and we decided formally to do

    this. We decided to hold a little organizational meeting

    the next day with people we respected. . .to discuss it and

    form a steering committee; I was appointed as the presi-

    dent or chairman of the steering committee. I was asked

    to negotiate with the publisher and get the thing started

    (p. 49; see Fig. 1).3

    Simultaneously, in 1985 at the same Hamburg meet-ing, Reiner Benecke gathered several colleagues to dis-cuss the formation of a society primarily focused onthe organization of international movement disordercongresses. The formation of the International Societyof Motor Disturbances was described as follows in theISMD Newsletter No. 1, Autumn 1987:

    The idea of founding ISMD sprang from the close sci-

    entic collaboration between the Abteilung fur Klinische

    Neurophysiologie, Gottingen and the Department of

    Neurology, London. An underlying aim of the close sci-

    entic cooperation between these two centers was to cre-

    ate a synthesis between pathophysiological mechanisms,

    which are detected primarily with neurophysiological

    methods, clinical symptoms, and various therapeutic

    approaches.. . .The founders of the ISMD were in agree-

    ment that the main objective of the society should be to

    bring together clinicians and scientists within the frame-

    work of international congresses.. . .One conclusion

    drawn from the rst congress was that combining a sci-

    entic paper with vivid videotape presentations is

    extremely effective (p. 1).4

    As is clear from the reference to Department ofNeurology, London, C. David Marsden was also amember of this organizing team. In a 2006 interviewfor the Movement Disorders Archives, Mark Hallett,an early member of both new societies, recalled nd-ing yers announcing two different societies. At areception, he encountered Fahn and Marsden together:

    I addressed my point to David. I said, David, what is

    that about two different societies? And Stan Fahn said,

    Two societies? And David said, Oh, yes Stan, I was

    meaning to tell you about that (p. 1).5

    The two societies carefully sculpted their missions inan overtly noncompetitive and supportive manner: theMODIS developed a society-owned video-based jour-nal, had a largely clinical research focus, and, althoughinternational, drew its largest membership from NorthAmerica; the ISMD developed international congresses,

    FIG. 1. Group photo from Hamburg meeting to establish the MODIS,1985. From left: Eduardo Toloso, Stanley Fahn, Andrew Lees, JosephJankovic, C.D. Marsden. All of these leaders have served as presidentof the MDS (Table 2).

    G O E T Z A N D M C G H I E Y

    940 Movement Disorders, Vol. 26, No. 6, 2011

  • had a strong physiological anchor, and drew its primarymembership from Europe.The leadership of the two organizations recognized

    an overall goal of international representation for both.The ISMDs presidents were European or North Ameri-can and served 2-year terms (Table 1). The MODIS wasrun by a steering committee composed of North Ameri-can and European leaders and chaired by Stanley Fahn.In 1988, MODIS held its rst Executive Committeemeeting with Stanley Fahn representing the MODISSteering Committee.6 The rst MODIS elections forpresident were held in 1991, and Stanley Fahn waselected to assume the post of the societys ofcial rstpresident with C. David Marsden elected simultane-ously to become the president-elect (Table 1).7

    The MODIS reached its primary aim of


View more >