TEN THINGS I HAVE LEARNEDAbout Health Data Monetization

cc: Ashim D’Silva - https://unsplash.com/@randomlies?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

Khaled El Emam

1. DATA SUPPLYcc: Nick.Warner - https://www.flickr.com/photos/39708982@N04

REAL WORLD DATA

cc: keith ellwood - https://www.flickr.com/photos/76377775@N05

2. VALUE OF DATAcc: Riccardo Annandale - https://unsplash.com/@pavement_special?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

INCREASING VALUE• Complement your data from

other commercial or public sources

• Commercialize information products not raw data

• Improve data qualitycc: Riccardo Annandale - https://unsplash.com/@pavement_special?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

3. VALUE TO PATIENTScc: Proctor Archives - https://www.flickr.com/photos/45469741@N05

RETURNS TO PATIENTS

cc: 401(K) 2013 - https://www.flickr.com/photos/68751915@N05

4. SOCIAL LICENSE

cc: Thomas8047 - https://www.flickr.com/photos/93482748@N02

1. Transparency

2. Data for good

3. Oversight on data uses

4. Pro-active engagement with regulators

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5. DATA QUALITY

cc: Carbon Arc - https://www.flickr.com/photos/41002268@N03

6. DATA MARKETS

cc: Jezael Melgoza - https://unsplash.com/@jezael?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

7. Privacy Enhancing Technologies (PETs)

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EXERCISE CAUTION

cc: Latente 囧 www.latente.it - https://www.flickr.com/photos/33423611@N00

Governancecc: Hc_07 - https://www.flickr.com/photos/82684220@N00

8. DATA OWNERSHIPcc: mikecogh - https://www.flickr.com/photos/89165847@N00

9. Nightmare Scenarioscc: mlibbe - https://www.flickr.com/photos/27901749@N04

10. ORGANIZATIONAL DESIGN

cc: Kay Gaensler - https://www.flickr.com/photos/36704819@N08

QUESTIONScc: an untrained eye - https://www.flickr.com/photos/26312642@N00

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

kelemam@ehealthinformation.ca