swaziland psychosocial curriculum adaptation report

43
2 Table of contents Table of contents ................................................................................................................... 2 Acknowledgements ............................................................................................................... 3 Executive summary ............................................................................................................... 4 1.0 INTRODUCTION ........................................................................................................................ 6 1.1OVERVIEW ........................................................................................................................ 6 1.2 PREVIOUS RCQHC/ANECCA TECHNICAL ASSISTANCE TO EGPAF-SWAZILAND ........... 7 2.0 RATIONALE / OBJECTIVE FOR RCQHC/ANECCA TECHNICAL ASSISTANCE............................ 8 3.0 CONSULTANCY PROCESS: ....................................................................................................... 8 3.1 DESK REVIEW OF THE AVAILABLE DOCUMENTS ............................................................ 8 3.2 MEETING WITH EGPAF & SNAP-HTC OFFICIALS ............................................................. 9 3.3 CURRICULUM ADAPTATION WORKSHOP .................................................................... 10 3.4 DRAFTING OF THE TRAINING CURRICULUM................................................................ 16 3.5 STAKEHOLDERS MEETING ............................................................................................. 17 3.6 TRAINING OF TRAINERS ............................................................................................... 23 4.0 ACHIEVEMENTS: ...................................................................................................................... 37 4.1 LESSONS LEARNT .......................................................................................................... 37 5.0 RECOMMENDATIONS/NEXT STEPS ........................................................................................ 38 Appendix 1:Curriculum adaptation schedule 11th- 13th July 2011 .................................... 40 Appendix 2: Stakeholders meeting schedule....................................................................... 41 Appendix 3:TOT Schedule ................................................................................................... 42 Appendix 4: Peer review form ............................................................................................ 43

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Page 1: Swaziland Psychosocial Curriculum adaptation report

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Table of contents Table of contents ................................................................................................................... 2 

Acknowledgements ............................................................................................................... 3 

Executive summary ............................................................................................................... 4 

1.0 INTRODUCTION ........................................................................................................................ 6 1.1OVERVIEW ........................................................................................................................ 6 

1.2 PREVIOUS RCQHC/ANECCA TECHNICAL ASSISTANCE TO EGPAF-SWAZILAND ........... 7 

2.0 RATIONALE / OBJECTIVE FOR RCQHC/ANECCA TECHNICAL ASSISTANCE ............................ 8 3.0 CONSULTANCY PROCESS: ....................................................................................................... 8 

3.1 DESK REVIEW OF THE AVAILABLE DOCUMENTS ............................................................ 8 

3.2 MEETING WITH EGPAF & SNAP-HTC OFFICIALS ............................................................. 9 

3.3 CURRICULUM ADAPTATION WORKSHOP .................................................................... 10 

3.4 DRAFTING OF THE TRAINING CURRICULUM ................................................................ 16 

3.5 STAKEHOLDERS MEETING ............................................................................................. 17 

3.6 TRAINING OF TRAINERS ............................................................................................... 23 

4.0 ACHIEVEMENTS: ...................................................................................................................... 37 4.1 LESSONS LEARNT .......................................................................................................... 37 

5.0 RECOMMENDATIONS/NEXT STEPS ........................................................................................ 38 Appendix 1:Curriculum adaptation schedule 11th- 13th July 2011 .................................... 40 

Appendix 2: Stakeholders meeting schedule ....................................................................... 41 

Appendix 3:TOT Schedule ................................................................................................... 42 

Appendix 4: Peer review form ............................................................................................ 43 

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Acknowledgements This report is the summary of the consultancy process to adapt the training curriculum on HIV

counseling and psychosocial support for children and adolescents in Swaziland. The adaptation

process involved different officials both from MOH- SNAP and Partners in Swaziland whose

dedication, hard work and commitment made this exercise possible.

ANECCA/RCQHC would like to extend sincere appreciation to the organizers MOH- SNAP

EGPAF – Swaziland for continued support and commitment towards responding to children’s

needs. In special way I would like to thank the leadership and all staff of EGPAF-Swaziland for

providing valuable support towards curriculum adaptation exercise. Your coordinated

communication, timely organization and participation kept the process moving.

Sincere thanks goes to HTC – SNAP officials for being able to empathetically engage in the

process with high level commitment and dedication from the beginning to the end. I’m indebted to

this team for going out of their way to put aside their office work they had planned and

dedicated one full month to the curriculum adaptation exercise.

Many thanks goes to HTC-ETWG that participated in first workshop to discuss gaps and needs at

National and facility level as far HIV counseling and psychosocial support for children and

adolescent is concerned, developed draft curriculum chapters, units and objectives .

I wish to thank the stakeholders from different institutions of higher learning in Swaziland, MoH

and partners who opened their hearts to give credible information to input the training curriculum.

I thank them for the valuable inputs and open sharing that helped improve the curriculum content

and lay out.

Finally I would like to acknowledge the valuable contribution from the trainers who attended the

training of trainer’s course for thier inputs to the curriculum. The group went an extra mile on top

of the busy course that included preparing for micro teaching to give their honest feedback to the

curriculum and shared feedback on the general usability of the curriculum.

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Executive summary This report presents information on the process of the consultancy for curriculum adaptation

exercise for Swaziland. The curriculum adaptation process was very participatory and inclusive of

different partners in Swaziland that include MOH-SNAP, EGPAF, ICAP, URC, BAYLOR different

universities in Swaziland, Clinton Foundation and others; while ANECCA gave the technical

guidance.

The developed training curriculum will be used to train Health Care Providers in Swaziland in HIV

counseling and psychosocial support for children and adolescents.

HIV counseling and psychosocial support for children is a key gap area in the care process by

most health care providers due to limited knowledge and skills and more importantly limited

resource materials including specific curriculums to cover counseling and psychosocial support for

children and adolescents.

The overall objective of the consultancy was to offer technical assistance to develop a National

HIV counseling and psychosocial support for children and adolescent adapted from the ANECCA

psychosocial care and counseling curriculum. RCQHC/ANECCA was also requested to Train

Trainers using the developed psychosocial National HIV counseling and psychosocial support

curriculum to build capacity at national level and in turn facilitate the roll out of the program

throughout the country.

The curriculum adaptation process started by desk review of available curriculums followed by

workshop attended by HTC-ETWG (HIV Testing and Counseling –Extended Technical Working

Group in Swaziland) to determine curriculum content, objectives and general lay out. A smaller

editorial team composed of HTC- SNAP officials worked hand in hand with the consultant to put

together the draft curriculum that was presented to the stakeholders. The stakeholders helped to

input the curriculum and thereafter a training of trainers’ course was facilitated using the adapted

curriculum.

Deliverables

• Swaziland National training curriculum in HIV counseling and psychosocial support for

children and assessment

• Training slides for all the chapters in the curriculum

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• A training schedule

• Course assessment tool.

• Twenty two health care providers trained as trainers in HIV counseling and psychosocial

support in children

• Work plans based on the four regions in Swaziland were developed following the TOT

and will be instrumental in facilitating the roll out HIV counseling and psychosocial support

in children and adolescents.

Next steps

• Supervision of trainings .ANECCA to offer post training mentorship support to the trained

health care providers while carrying out in Country trainings.

• ANECCA to offer mentorship to health care providers on disclosure at facility level for

knowledge and skills development since it was still mentioned as a challenge even after

the trainings.

• ANECCA to offer technical support to develop tools/ job aides on disclosure, adherence,

Pre and post test counseling, psychosocial assessment to EGPAF- Swaziland and SNAP –

HTC for easy use in counseling rooms and ensure offering of standardized and quality

psychosocial support to children and adolescents

• Impact assessment of the pediatric and adolescents psychosocial program in Swaziland

by ANECCA, document success and best practices and plan the next steps

• ANECCA will need to plan and offer technical support through adolescents trainings to

EGPAF- Swaziland and SNAP- HTC in establishing adolescent HIV care program since

most children are growing to adolescent stage. The adolescent program will cover training

on Transitioning, depression, mental health, reproductive health, adherence and disclosure

among adolescents. This so because adolescents are different and unique

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1.0 INTRODUCTION

Elizebeth Pediatric AIDs Foundation (EGPAF) invited RCQHC/ANECCA to provide Technical

Assistance in the adaptation of the curriculum on HIV counseling and Psychosocial support for

children and adolescents in Swaziland between July 10th and August 11th 2011.

This report therefore provides overview information, rational/objective for RCQHC/ANECCA

technical assistance and previous engagements between EGPAF – Swaziland and

RCQHC/ANECCA, the curriculum development processes and activities including training of

trainers’ course as well as recommendations/next steps.

1.1OVERVIEW

HIV and AIDS inevitably cause psychological and social suffering for children who get infected.

During the past few years, low and middle income countries have made good progress in building

the capacity to provide prevention, care, support and treatment for children. As many children

infected with HIV at birth continue to grow to adolescent stage; the health care providers

capacity to provide psychosocial is weak and limited. While most trainings have concentrated on

skills building of different cadres of healthcare workers for pediatric HIV prevention and

treatment; most counselors are trained to counsel adults, there have been fewer capacity building

efforts for pediatric HIV counseling and psychosocial support yet psychosocial care aspects are

closely linked to treatment care outcomes.

General psychosocial support is an integral part for comprehensive care for HIV infected children

and adolescents and their families. Psychosocial care does not only facilitate positive coping

among children and adolescents infected with HIV and AIDS but also improves adherence to long

term medication, enhances disclosure, reduces self stigma and further helps in provision of the

much needed Pre-and post test counseling. However one key gap area has been limited number

of Health care providers with knowledge and skills to offer psychosocial care and HIV counseling

in children and adolescents. As earlier mentioned; most counselors are trained to handle adults.

There are also limited and standardized materials to guide Health Care providers on HIV

counseling and psychosocial support to children and adolescents.

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There have also been limited efforts to develop curriculums that are specific for pediatric and

adolescent psychosocial support and HIV counseling. This situation has left major gaps in

psychosocial care for HIV infected children and adolescents to compliment the medical care

offered.

There is therefore need to develop training curriculums for capacity building of Health Care

Providers to ensure comprehensive and quality pediatric HIV care.

In an effort to further eliminate this gap EGPAF- Swaziland requested RCQHC/ANECCA to

provide Technical Assistance to develop the Swaziland National Psychosocial curriculum adopted

from the RCQHC/ANECCA Psychosocial curriculum. The National Psychosocial curriculum is

expected to be instrumental in building the National capacity to offer the much needed

psychosocial care and counseling. RCQHC/ANECCA would also orient Health Care providers in

TOT skills in an effort to build their capacity to roll out the HIV counseling and psychosocial

support for children and adolescent trainings throughout the country.

1.2 PREVIOUS RCQHC/ANECCA TECHNICAL ASSISTANCE TO EGPAF-SWAZILAND In February 2007, RCQHC/ANECCA provided technical assistance to EGPAF- Swaziland in form

of 4-day training during which 20 healthcare providers from EGPAF supported sites were

oriented in pediatric and adolescent HIV counseling skills. The course was an ‘excerpt’ from the

ANECCA Pediatric and Adolescent HIV Psychosocial Care and Counseling Training Curriculum/

Course initially designed to be conducted over a minimum of 12 days. At the end of this course,

consensus was reached between the two organizations that there was need for more capacity

building of a similar nature for staff of EGPAF-Swaziland supported sites. It was on this premise

that EGPAF- Swaziland engaged RCQHC/ANECCA, in 2009, to provide 12-day training for 20

facility-based service providers in pediatric and adolescent HIV psychosocial care and counseling,

in preparation for a new EGPAF programmatic initiative to expand pediatric testing and

diagnosis in the country’s health facilities. Trainees were equipped with the necessary knowledge

and skills and facilitated in developing results-oriented action plans aimed at guiding them in

implementing their newly acquired skills. The plans were also to serve as a benchmark for support

supervision exercises to strengthen and consolidate the trainees’ knowledge and skills.

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2.0 RATIONALE / OBJECTIVE FOR RCQHC/ANECCA TECHNICAL ASSISTANCE

EGPAF and the Swaziland Ministry of Health are collaborating in the next phase of the project

aimed at building national capacity in pediatric HIV counseling and requested technical assistance

from RCQHC/ANECCA with an objective to offer technical assistance to develop a National HIV

counseling and psychosocial support for children and adolescent adapted from the ANECCA

psychosocial care and counseling curriculum. RCQHC/ANECCA was also requested to Train

Trainers using the developed psychosocial National HIV counseling and psychosocial support

curriculum to build capacity at national level and in turn facilitate the roll out of the program

throughout the country.

3.0 CONSULTANCY PROCESS: This section discusses the consultancy process and details of how the work was executed

3.1 DESK REVIEW OF THE AVAILABLE DOCUMENTS Five days were dedicated to reviewing the available materials to form the basis for curriculum

development while still in Uganda from 4th – 8th July 2011. Below is the list of different related

materials that were reviewed. Some of the materials were sent from Swaziland EGPAF office and

SNAP HTC office to help do ground work before proceeding to Swaziland.

• Swaziland HTC Guidelines 2010

• Provider Initiated HIV counseling and Testing trainers manual MOH Swaziland

• ANECCA Psychosocial care and counseling curriculum for children and adolescents living

with HIV and AIDS

• Swaziland Pediatric HIV management guidelines October 2010

• Standard operating procedures and best practices Baylor College of Medicine

Foundation- Uganda/Pediatric Infectious Disease clinic (PIDC)

10th July 2011

Consultant travelled to Swaziland

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3.2 MEETING WITH EGPAF & SNAP-HTC OFFICIALS A working meeting was held at EGPAF offices on 11th July 2011 to discuss the curriculum

development process, the work schedule and requirements to make the work a success, in

attendance was:

Meeting with EGPAF- Swaziland officials

• Dr. Caspian …….. Director of Clinical services

• Zandile Nhleko- Community linkages officer

• Rose Nasaba – Pediatric and Adolescent Psychosocial Advisor ANECCA

From this meeting EGPAF further pledged their support and full participation for smooth running

of the whole process. The need to fully involve HTC leadership and team from SNAP was

discussed and emphasized to ensure addressing actual needs and gaps as far as psychosocial

support and general counseling of children living with HIV and AIDS is concerned. It was also

noted that there was no much materials in Swaziland to review as far as children counseling is

concerned. In addition, the team noted that much has been done in adult counseling, however very

minimal has been done as far as in children and adolescent counseling materials is concerned. The

team agreed to meet with HTC focal person Ms Phumzile Mndzebele to get her on board and

charter out the way forward.

Meeting at SNAP- HTC office

In attendance of the meeting at SNAP-HTC offices were:

• Phumzile Mndzebele-HTC Focal Person- SNAP

• Lenhle Nzibanze- HTC Technical Advisor

• Rose Nasaba- ANECCA

• Zandile Nhleko- Community linkages officer- EGPAF

• Dr. Caspian Chouraya- Director Clinical services- EGPAF

The meeting with HTC focal person at SNAP further discussed and agreed on the process and

time lines to execute the work. The HTC focal person assured the team of her availability and full

participation to ensure good outcomes. She also informed the meeting that she invited the HTC

ETWG to participate by attending a 2day working meeting on curriculum adaptation at EGPAF

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12th-13th. It was also agreed from this meeting that 28th July 2011 the draft curriculum would be

presented to the stakeholders for their input and 1st- 5th August 2011 a TOT would be facilitated

using the developed curriculum materials for further pretesting and orienting the trainers on the

content and assessing the usability of the materials.

3.3 CURRICULUM ADAPTATION WORKSHOP The workshop comprising of HTC team from SNAP including other technical partners and EGPAF

officials (HTC-ETWG) took place at EGPAF offices- board room from 12th -13th July 2011. The

workshop aimed at defining actual gaps and needs as a basis for determining curriculum content,

discuss and determine curriculum content including name of the curriculum, lay out and objectives.

See the three day time table in appendix 1:

Below is the list of Participants who attended the three day curriculum adaptation workshop.

HTC –ETWG ( HTC- Extended Technical Working Group)

Name Organizatio

n

Position Phone

number

Email

1. Zandile Nhleko EGPAF Community

Linkages

76060923 znhleko@p

edaids.org

2.Phumzile

Mndzebele

SNAP HTC focal person 76122036 Phumtswa2

gmail.com

3. Lenhle Nsibandze SNAP HTC Tech officer 76051103 lenhlep@y

ahoo.com

4.Gciniwe Dlamini PSI Counsellor 76643771 gciniwed@

yahoo.com

5.Scelile Zwane NERCHA Ass -Cordinator 76449886 scelilez@n

ercha.org.s

z

6.Maphangisa

Dlamini

EGPAF Community

Linkage

76137132 maphangis

[email protected]

om

7.Rose Nasaba RCQHC/AN 2567726035 rnasaba@r

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ECCA 09 cqhc.org

8. Dr.Hailu Aliala Bailor E.D Baylor 76023942

9.Sifundo Mkandhla URC HTC Cordinator 76032837 sifundom@

urc-sa.com

10. Nosipho Storer ICAP

Advisor

APSCL 76148279 ns267@col

umbia.edu

11. Makhosazane

Dlamini

PSI HTC Coodinator 76065728 [email protected]

z

12. Dr. Caspian

Chouraya

EGPAF Director Clinical

Services

13.Gugulthu…. SNAP

12th –July 2011-First day of the Workshop

This was the first day of meeting the HTC –ETWG after introductions and overview remarks by

the HTC – coordinator SNAP – Ms Phumzile Mndzebele, participants were divided into two

groups to identify actual gaps at National and Facility level in Swaziland as far as counseling

and psychosocial support for children and adolescents is concerned. While group one discussed

and presented gaps and Needs at National Level, group two discussed and presented on needs

at facility level. This was aimed at coming up with the curriculum that addresses the actual needs

and gaps. Further still the discussion outcomes formed a basis for determining actual curriculum

content.

Pictorial representation of HTC-ETWG during discussions and presentation during curriculum adaptation meeting

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Below is the table showing the discussions outcomes of the gaps and trends at the national and

facility level in Swaziland.

National level- GROUP 1 Facility Level- GROUP 2

Weak co-ordination of counseling services

for children and adolescents

No child friendly facilities

Weak collaboration- Each partner has a

different style

Health care providers lack the proper skills

to counsel children

Poor follow ups – Health care providers

who were trained have not been followed

up

Lack of documentation in the facilities

Lack of support structures for the children

and adolescents

Lack of educational toys

Standardization of the curriculum Lack of policies

Poor dissemination of the rights and child

guidelines

In adequate personnel

No proper tolls and referral hospital for

children and adolescents

Lack of team work

No enough trained counselors to offer

counseling support to children and

adolescents

Disclosure to children is still a challenge

Poor proper screening for those who will be

doing the pediatric counseling

Few trained Health care providers to

handle children and adolescents

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After presentation of the above gaps; participants highlighted the issues below for further

discussion

• The issue of consent which is said to be too high

• There are neither standardized materials nor curriculum on HIV counseling for children and

adolescents in Swaziland.

• There was a general consensus that health care providers still lack required knowledge

and skills to offer HIV counseling and psychosocial support to children infected and

affected with HIV and AIDS

• Integration of services and building capacity of all health facilities to offer HIV counseling

and psychosocial support to children and adolescents infected and affected with HIV and

AIDS

• There are poor linkages and referral systems for HIV infected children and adolescents to

access services in the country.

• The issue of the trained people to be followed up, mentored and supervised was brought

out and workshop recommended for a clear strategy to be put in place on how it is going

to be done.

Discussion conclusion:

The group agreed that the training curriculum will address the knowledge and skills gaps

including specific issues like referrals and linkages.

After this the facilitator refocused the discussion on determining curriculum content. Participants

further worked in two groups to define the chapters that they want to comprise the curriculum.

Both worked on similar assignment. Their discussions were further processed to agree as one

group and come up with chapters the whole team deemed very important and relevant.

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Pictorial representation of HTC-ETWG-during group discussions

Below is the list of chapters that the combined working group came up with by close of the day.

1. Over view of HIV infection in children and adolescents

2. Understanding children and adolescents

3. Counseling children and adolescents in HIV

4. Disclosure

5. Referral and Linkages to HIV Prevention care and Treatment in children and

6. Adherence

7. Palliative care

8. x. Grief and bereavement in children and adolescents

9. Ongoing care and support

10. Care for the Carer

11. Legal and Ethical issues in pediatrics

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Presentation of the draft curriculum chapters by the two working groups

Processing of the presented draft chapters for consensus by the whole group

Main Highlights

• The group agreed not to put a separate chapter on adolescents. They felt it should cut

across.

• The group also agreed on chapters instead of modules.

13th August 2011

The day started with reviewing the chapters that were developed the previous day. The group

embarked on discussion of the units under each chapter that was agreed upon the previous day.

For full participation the work was done in two groups in which one group discussed and

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presented units for chapters with even numbers and second group discussed and presented units

under chapters with odd numbers. The presentations for each group were eventually presented in

plenary to come up with the agreeable units upon which to develop content. The group further

discussed and developed draft training curriculum goal and objectives as well as curriculum name.

The developed chapters were distributed among the participants based on individual choice and

expertise to participate in developing the draft content to be sent back to the editorial team by

Monday 17th July 2011.

Pictorial representation of the HTC-ETWG-that developed the first draft of the HIV counseling and PSS

support curriculum for children and adolescents Swaziland at EGPAF offices

3.4 DRAFTING OF THE TRAINING CURRICULUM Drafting of the training curriculum and putting it together involved receiving draft content from the

HTC-ETWG and putting it together to make it ready for presentation to the stakeholders for their

review and inputs. This activity was carried out at SNAP – HTC offices and EGPAF offices

The team that worked tirelessly to accomplish this was composed of Phumzile, Lenhle and Rose.

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Pictorial representation of the editorial team

.

3.5 STAKEHOLDERS MEETING The Stakeholders meeting took place on 28th July 2011 at Bethel Courts. The meeting started with

the word of Prayer by a volunteer followed by introductions –names and place of work. This was

followed by official welcome remarks by Phumzile Mndzebele HTC –Cordinator SNAP. She

welcomed everybody and appreciated their commitment and taking off time from their busy

schedule to come and attend the stake holders meeting ( See schedule- appendix 2)

In her remarks she noted that they have been overlooking HIV counseling and psychosocial

support for children and adolescents and emphasized that as a Country they have embarked on

scaling up HTC for children and adolescents for better ART treatment out comes.

She further explained that as a country they need to go beyond comprehensive care for the

Mother but more importantly respond to holistic needs of children and adolescents for better out

comes.

She highlighted to the group that most Health Care Providers are ill equipped to handle children

and adolescent. HIV counseling before testing and after is often given to parents or guardians on

behalf of children though children are of age and seem to be understanding. She further noted

that as a country there are no materials and specific curriculum on HIV counseling and

psychosocial support for children and this has translated into limited capacity among health care

providers to offer quality and comprehensive HIV counseling and psychosocial support for

children and adolescents.

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Only one session was put in the provider Initiated counseling training manual and experience has

shown that this is very little and not enough to develop health care provider capacity and skills to

offer HIV counseling and psychosocial support to children and adolescents. She therefore called

upon Stakeholders for their full participation and in put to the draft curriculum.

She concluded by thanking EGPAF for the financial support to the whole process and appreciated

ANECCA for the Technical leadership in the process.

The HTC- SNAP coordinator giving opening remarks at the stakeholders meeting

Presenting the draft curriculum to the stakeholders: By Phumzile Mndzebele,Rose Nasaba,

Lenhle Nsibhanze

Overview

• No standardized children and adolescent HIV/AIDS counseling curriculum in the Country

• Many trainings but no harmonized training materials and no standard guidelines

• Just a chapter in Provider Initiated HIV Testing and Counseling which takes up only one in

the training – Not sufficient for skills development

• Health Care Providers fear to talk to children and adolescents

• Earlier Trainings done using ANECCA curriculum

After giving this important overview she presented an outline of the draft curriculum: Below is an

outline of what she presented in power point format.

• Title

• Purpose

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• Objectives

• Target group

• Course Duration

• Training and Learning Methods

• Selection criteria for Trainee participants

• Training duration- Schedule

• Chapter outline

o Overview of HIV infection in children

o Understanding children and adolescents on HIV and AIDS

o Counseling children on HIV

o Referrals and Linkages to HIV prevention care and support.

o Disclosure of HIV infection in children

o Adherence

o Palliative care in children and adolescents

o Grief loss and bereavement

o Facilitating Resilience and coping among children living with HIV and AIDS

o Legal issues

o Care for carers

After this presentation Stakeholders were requested and encouraged to give their views and

comments in preparation for next discussions and presentation. Hard copies with detailed

information of the draft curriculum were distributed to stakeholders from which to give their

detailed inputs and comments.

Remarks by EGPAF Country Director

After presentation of the draft curriculum outline, Dr. Madhi- Executive Director EGPAF was

invited to give short remarks

In his remarks Dr.Madhi, welcomed everyone to the adaptation exercise aimed at developing a

curriculum to offer HIV counseling and psychosocial support to children and adolescents in

Swaziland. He stressed that this exercise is important because it addresses the needs of children.

He further noted that offering pre and post test counseling services to children has been a

challenge especially when it comes to issues like consent, disclosure and adherence.

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He noted that the curriculum will sharpen Health Care Providers skills in the country. He further

highlighted the collaboration between EGPAF and ANECCA since 2008 that has materialized into

adaptation of the curriculum to facilitate roll out of trainings throughout the Country. He thus

requested the stakeholders for their input and active participation and asserted that “If we

succeed we succeed together and if we fail we fail together” .He explained to the group that this

exercise will be followed by a TOT using the adapted curriculum and there after move on with

trainings

He concluded by thanking the Core team for their great commitment and dedication exhibited so

far and encouraged them to continue. He concluded by thanking MOH under the leadership of

Phumzile –HTC coordinator for their commitment and good collaboration, he further appreciated

ANECCA for sending Rose their top consultant to guide the process and thanked everyone for

making time to come and wished every one fruitful deliberation.

EXECUTIVE DIRECTOR giving opening remarks at the stakeholders meeting

Stakeholders were consequently divided into 4 groups, given hard copies of the draft curriculum

and each group allocated two chapters based on their expertise to discuss and present to the

whole group.

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Pictorial representation of stakeholders group discussions

This activity was very beneficial as each group came up with their inputs and presented to the

bigger group for consensus building.

Main highlights from the discussions

-Need for consistency

-Course duration was discussed and consensus reached

-Discussion on the purpose and objectives of the curriculum corrections made

-Discussion and agreeing on category of trainee participants

-Training methods and activities

-Need to include a separate chapter on psychosocial support since it appeared in the title.

-Need for a stand lone chapter on communication with children and adolescents

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Pictorial representation of the stakeholders meeting

29-30 July 2011- Integrating inputs and comments from the stakeholders- Rose, Phumzile,

Lenhle

This core group developed a chapter on psychosocial support and incorporated it in the whole

curriculum. This was a result of the stakeholders meeting highlighting the need to talk about

psychosocial support since it is an integral part of counseling and more so the curriculum “tittle”

contains the word psychosocial thus need to give it a chapter.

A separate chapter on communication with children and adolescents was also developed and

incorporated instead of living it as a unit under understanding children and adolescent chapter. In

addition, the core working group discussed and agreed to merge resilience and coping chapters

as units under psychosocial support chapter and merge referral and linkages for prevention, care

and treatment chapter for children and adolescents as a unit under HIV counseling for children

and adolescents.

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3.6 TRAINING OF TRAINERS

1st- 5th August

Venue: Bethel Court Vineyard Hotel, Ezulwini Valley. Swaziland Training dates: 01-05 August 2011 Training methods used: Lectures using power point presentations

Group work Buzz groups Brainstorming Role plays Experience sharing Demonstrations Teach backs/microteaching Reflection exercise.

Pictorial representation of the different teaching methods used during the TOT

Group discussions

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Group discussions and presentation by TOT participants

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TOT facilitators

The training of trainers course was facilitated by Rose Nasaba from ANECCA- Uganda and co-

facilitated by Fortunate Shabalala - Swaziland

DAY ONE: 01-08-2011

The day started with a word of prayer followed by introductions in which participants were

asked to state who they were, where they work and their expectations of the training from the

training. This was followed by welcome remarks by the National HTC Coordinator who welcomed

everyone and stated that the training was organized in response to a need identified by HCW

themselves where they felt that they lacked the skills and competencies needed to implement what

was expected of them in the pediatric guidelines.

The Coordinator mentioned that the HTC office has been able to put together a draft training

curriculum to train HCW on HIV counseling and psychosocial support for children and adolescents

with financial and technical support from partners especially EGPAF and ANNECA respectively.

She continued to note that the training curriculum has gone through stakeholders for their input

and the TOT is to provide forum to pretest the curriculum while also developing trainers who will

roll out the training to their respective regions. She concluded by saying that participants need to

feel free to make inputs to the curriculum and encouraged active participation throughout the

training.

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Pictorial representation of the HTC- Coordinator giving opening remarks at beginning of the TOT

Participant’s expectations

1. Gain more knowledge and understanding on caring for children who are not adherent to ART

and do not have primary guardians or carers

2. Gain knowledge and confidence to train fellow health care providers

3. Acquire knowledge and skills to organize a training for children

4. Gain more knowledge on disclosure of HIV status to children (who should disclose, how should

disclosure be done and when should disclosure be done).

5. Learn how to motivate HCW to help children living with HIV

6. Gain more knowledge and skills that I can pass on to HCW working with children

7. Know how to motivate caregivers to disclose their status to their children

8. Learn more about counseling and psychosocial support in the context of children and

adolescents

9. Learn more about effective counseling skills on ART for PMTCT

10. Gain knowledge on how to help guardians or families to bringing children to health facilities

access services, especially for children living with HIV

11. Get expertise on psychosocial issues affecting children and how disseminate the information to

carers

12. Gain skills on how to train HCW on PSS and pediatric counseling

13. Understand how to empower HCW on when, how, and what to disclose

14. Gain more skills to assist in disclosure for children already on ART

15. Be enlightened on how to work collaboratively with social workers in assisting children living

with HIV and AIDS

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27

16. Gain more knowledge on how to ensure continuity of support for children living with HIV and

AIDS

17. Gain consensus on strengthening ongoing supportive counseling, referral and linkages for

children

The lead facilitator processed the expectations and clarified and by presenting the training

overview and course objectives and distribution of the course schedule ( See TOT cource schedule

appendix 3) Course aim

The primary aim of this course is to equip participants with knowledge and skills about teaching

and planning training programmes on HIV counselling and psychosocial support for children and

adolescents. This Teaching Skills Course aimed at addressing issues concerned with teaching and

adult facilitation skills.

Course objectives

At the end of the course, it is expected that participants will be able to:

1. Apply the main principles of adult education to a training course while facilitating on

psychosocial support and counselling for children and adolescents infected and affected

by HIV and AIDS;

2. Describe and utilise different methods of teaching and demonstrate competence in

different teaching methods

3. Outline the key steps involved in conducting a training needs assessment, developing

curriculum and training materials and evaluating training programmes;

4. Identify their own key skills and abilities in facilitating adult training courses, identify

areas where development is needed, and suggest strategies to achieve these goals.

5. Organise and facilitate teach backs in HIV counselling and psychosocial support for HIV

infected children and adolescent for skills development.

TASKS

To ensure smooth and enjoyable workshop, participants volunteered to take on the below listed

tasks:

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• Team Leader (the overall seer and maintain respect for each other and discipline within

the group): Clara Mujaya

• Time Keeper: Lucia Maseko

• Matron (to take care of lodging and food issues): Lungile Simelane

• Spiritual Leader: Nokuthula Maseko

GROUND RULES

These were set by the participants:

• Respect for each other

• Keep mobile phones on vibration, silent or offline mode. Respond only to very important

calls

• Keep time all the time

• Raise hand if you want to say something while sessions are in progress

After presentation of the goal and objectives of the workshop and setting of ground rules,

participants were given a pre-test to do.

Pre –Course assessment

Participants were given course assessment exercise comprised of questions derived from TOT

topics that comprised the course content. The pre- course assessment was given to the participants

on the first day of the training to help in assessing how much they knew before the training so as

to form a basis of measuring change in the knowledge levels and acquisition at the end of the

training through post course assessment (See –course assessment results)

Presentations of the day included introduction to adult learning which focused on the explaining

how adults learn, the principles and variety methods useful in teaching adults and the levels of

learning. The day ended with a presentation on training needs assessment and an evaluation of

the day. DAY TWO: 02.08.2011

The day commenced with a word of prayer led by the Spiritual leader of the group. A

presentation on Planning a training session and training materials development followed through

to break, after which another presentation on training in the community and session planning was

done.

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Pictorial representation on teaching in the community session by participants

Teaching in the community session was also one of the interesting sessions in which participants

were divided in three groups and tasked to use creative methods of teaching illiterate mothers at

community level aimed at equipping them with knowledge and skills to generate innovative ideas

of teaching at community level in preparation to teach backs the next morning.

The afternoon was dedicated to assisting participants prepare for their microteaching to be

conducted the following day. Participants were paired and each pair tasked with a chapter from

the draft training curriculum on HIV counseling and psychosocial Support for children and

adolescents. Each trainee developed a teaching plan including deciding on appropriate teaching

methods and materials to be used suitable for particular given topic. In addition to carrying micro

teaching participants were requested to note down gaps and give comments on each chapter

given to input the curriculum.

DAY THREE AND FOUR: 03-04.08.2011

These two days were dedicated to microteaching in the morning and evaluation feedback in the

afternoon. Participants presented their training plans to facilitators prior to the teaching. This

assisted in evaluating if they were:

• On time as planned

• Used the methods planned

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• Materials planned for the training

Besides the use of evaluation forms for self and peer evaluation, participants were video-

recorded and this formed part of the evaluation of the micro-teaching where participants got

feedback from peers, facilitators as well as the video plays.

Both days ended with an assignment where participants were asked to develop regional training

plans. Participants were to meet as regions and develop the plan. The plan was to be presented

the following day. An evaluation of the progress was done, where all participants stated that

they enjoyed the sessions, that the micro teaching was very useful and had sharpen their

facilitating skills .In addition participants shared having gained confidence and that the feedback

they got both from peers and in watching the video was helpful though hectic.

Pictorial representation of some participants carrying out micro teaching exercise

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Each participants exhibited innovative methods of teaching that enable adults to learn best. This

was a very interesting exercise that encouraged creativity among participants while facilitating.

DAY FIVE: 05.08.2011

The day was opened with a word of prayer followed by a post test and evaluation in the form of

written forms.

Participants asked each one to share what he/she has learnt from the course on top of the

evaluation forms they had filled and below is list of what they shared:

Lessons learnt.

• Presentation skills

• Have gained confidence in facilitating trainings.

• Skills in carrying out a TNA

• Making a lesson plan

• Characteristics of adult learners

• Difference between a teacher, tutor and facilitator

• Skills on how to train at community level

• Use of humor to make the session interesting and enjoyable

• Timing of a session using a lesson plan

• Importance of relating content to objectives

• Importance of being knowledgeable about subject matter

• Presentation ( dress code)

• Role of a co facilitator

• Practice is important

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• How to manage difficult participants

• Importance of using different training methods

• Ways of evaluating a training

• Role plays as a teaching method

• Teaching methods to relate to a topic

• Different roles of a facilitator

• How to make a simple lesson plan

• Group dynamics and how to deal with difficult characters

• Importance of a check list while preparing for trainings.

The lead facilitator sought for inputs on the curriculum and this was done through brainstorming.

Participants then refined their follow up training plans for their respective regions.

OFFICIAL CLOSURE

Directed by the National HTC Coordinator, the workshop was officially closed by the Deputy

Programmes Manager from SNAP on behalf of the Programme Manager. Prior to delivering his

speech, the participants’ representative thanked the MoH for allowing them to attend such an

informative and transforming workshop and the first of its kind in Swaziland. She mentioned that

they are going back to their workplaces as change agents and will implement what they have

learned through the training plans they have developed, resources permitting. She pleaded for

continued mentorship support from the MoH and EGPAF and ANECCA.

The Country Director of EGPAF stated that the Foundation is committed to advancing the plight of

children affected and infected with HIV. The Director mentioned that while there has been

considerable advance in HIV, this has mostly been directed towards adults with pediatric issues

still lagging behind. He said that as the mandate of the Foundation is to curb pediatric HIV,

EGAPF will continue to fund initiatives such as this that are directed in increasing children and

adolescents’ access to preventive, curative and supportive HIV services. He thanked the MoH for

allowing trainees to participate in the workshop and ANNECCA for providing technical expertise

during the training. He concluded by asking participants to share the information they have

gathered widely as the training was responding to an identified skills gap among Health Care

Providers on child counseling and PSS.

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In his closing remarks the Deputy Programmes Manager, thanked EGPAF for funding the

workshop and ANNECCA for allowing the facilitator to come and share their technical expertise

in the area of PSS for children and adolescents. He said as MoH and SNAP particularly, they

uphold on the value of prevention in the absence of a cure for HIV disease. He appealed to

participants to consider positive prevention as well as they go about imparting knowledge and

information to colleagues and service consumers. He particularly made emphasis on making sure

that all means possible be made to reach the hard to reach areas, saying that there are still

pockets of society that hardly access services because they are geographically inaccessible.

The Deputy Programmes Manager shared initiatives with participants that MoH through SNAP is

engaged in one of which is a tripartite between SNAP, UNISWA and Morehouse Medical School

in the US where they are working with prison populations to bring preventive services there.

Secondly he shared that the MoH prevention thematic group is at the verge of establishing a

“think tank” which will assist in carrying out activities such as research, evaluations to inform and

advise planners and implementers on progress being made from time to time in the prevention of

HIV.

He concluded by appealing to those willing to be part of the think tank to submit their CV’s for

consideration, stressing that this would be completely voluntary as there will be no monetary

benefit. He closed the workshop by handing certificates of attendance to all participants.

The workshop was closed at 13:45 with a word of prayer that was preceded with the singing of

a chorus.

Pictorial representation of officials from MOH- SNAP, EGPAF-Swaziland at the official closing of the

TOT course

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COURSE ASSESSMENT METHODS

Various methods were planned and used to assess whether learning had taken place and these

included: Pre and post course, End of day evaluation and case studies, question and answer

during the training, final course evaluation, Micro teaching/teach backs for every participant,

lesson planning and preparation, videotaping and playing back for plenary feedbacks, peer

review and self review and feedback sharing after teach backs

a) Daily evaluation: Each participant was given a form to fill at the end of each day, indicating

personal lessons learnt from the day’s topics, what was easy to learn, what was hard to learn and

make recommendations for improvements. This exercise was instrumental in identifying challenges

faced by participants during class and how best they could be helped to catch up.

Facilitators used comments from end of each daily response to identify the learning gaps and

therefore plan what to emphasize during class the following day to make sure that learning takes

place

b) Morning recap& quiz. Participants worked in groups and were tasked to develop questions

addressing the major themes from the previous day’s topic and important lessons learnt. The

developed questions were given to the whole group for answering the following morning. This was

done every morning before beginning the day’s sessions to assess the level of knowledge

retention and further still encourage participants to revise their notes and put in more effort in

what was being taught in class.

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Pictorial representation of morning recap/quiz as an evaluation method

c) Micro teaching/teach backs

Micro teaching/teach backs were planned and incorporated in the course for participants to

practice presentation skills, explanation of the content, use of different methods of teaching that

aid adult learning, developing lesson objective etc . Participants were given topics from the

adapted HIV counseling and Psychosocial curriculum and tasked to prepare a twenty minute

presentation that covers the most important message from the topic given and can fit in 20

minutes. Fellow participants were given Peer review forms (See Appendix 4) to note the strength

and offer feedback after.

From the participants feedback to the facilitators, teach backs were a very unique exercise that

enhances their capacity to prepare excellent presentations, give quality content to adult learners ,

widen their scope to use different methods of facilitation that is appreciated by learners

Pre and Post course assessment exercise

This was given at the beginning of the training to assess the knowledge levels and the end of the

training to assess change in knowledge levels:

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Pre and pNo. 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22

Scores

post course aPr35504525354040452545504050402050354035

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20

30

40

50

60

70

80

90

100

s in %ages

Pre 

assessment Tre 5 0 5 5 5 0 0 5 5 5 0 0 0 0 0 0 5 0 5

0

0

0

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and Pos

TOT Swazilan

4 5 6 7 8

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nd Post 70 95 85 95 95 90 95 90 80 85 80 85 90 95 80 85 75 70 85 80 70 80

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OT

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Post course assessment results showed great improvement compared to scores participants got at

the beginning of the course. Other than improvement in the scores participants boasted of having

acquired unique skills to be good trainers and facilitators not only in HIV counseling and

psychosocial support for Health Care providers but also as general trainers since the skills and

knowledge acquired can be replicated to other trainings/courses.

4.0 ACHIEVEMENTS: • Successful adaptation of the training curriculum for Health Care Providers in HIV

counseling and psychosocial support for children and adolescents in Swaziland

• A training schedule accompanying the training schedule was developed. PowerPoint slides

for all the curriculum topics were developed.

• The draft curriculum was presented to the stakeholders who in turn provided their

constructive input to the curriculum during a one day stakeholders meeting.

• The adapted curriculum was pretested during a TOT and its usability ascertained and

gave their input that was incorporated in the curriculum.

• Twenty two Health Care Providers were trained and passed as Trainers of Trainers in HIV

counseling and Psychosocial Support for children and adolescents. This group is expected

to be instrumental in rolling out the training throughout the Country.

• The TOT participants developed work plans based on the four regions to facilitate step

down trainings.

4.1 LESSONS LEARNT • Disclosure of HIV positive test results to children is still a challenge to health care providers

including those who were trained in psychosocial care and counseling for HIV infected

children and adolescents. The TOT participants decried own fear and uneasiness in

facilitating disclosure of HIV positive test results to children despite appreciating the

importance of disclosure including adherence to medication. During their sharing the HCP

noted that parents/ guardians cited stigma and discrimination at family and community

level as another barrier to disclosure in children. Failure to involve school teachers and

weak community structures that aggravate stigma and discrimination were some of the

bottle necks towards disclosing to children their HIV positive test results.

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• The participants further noted that most children learn of their positive sero status

accidentally and unprepared a situation that is likely to affect their coping mechanisms.

• The TOT participants in addition pointed out that offering Pre – test counseling in children

is still a challenge and a big gap. Counseling is often given parents/ guardians on behalf

of the children irrespective of developmental and understanding level a situation that

limits children’s participation into their care.

• Weak follow up support structures were pointed as bottle neck to knowledge and skills

development at facility level

5.0 RECOMMENDATIONS/NEXT STEPS • Follow up technical mentorship support to the trained Health Care Providers at facility

level by ANECCA within 3 months after the training to ensure knowledge and skills

development and there after handover to EGPAF and SNAP to continue with mentorships.

• Need for onsite mentorship support for Health Care Providers on Disclosure of HIV test

results to children and adolescents by ANECCA and HTC-SNAP.

• Develop an appropriate Swaziland grown disclosure strategy, implement and assess its

impact.

• ANECCA to offer technical support to SNAP and EGPAF – SWAZILAND to develop tools

on disclosure, adherence, Pre and post test counseling, development and understanding of

children, psychosocial assessment, to guide health care providers at health facility level

while handling children. The tools will work as job aides and guide health care providers

while offering HIV counseling and psychosocial support to children and adolescents.

• Carry out impact assessment after the trainings using the adapted curriculum to measure

impact, assess what worked and did not for future focused planning and replication in

other programs

• ANECCA to offer Technical support EGPAF-Swaziland to develop and establish an

adolescent focused HIV program and services at health facilities Swaziland. This will

involve training Health Care Providers on Transitioning, Reproductive Health, Mental

Health, Life skills, HIV care in adolescents, Depression, disclosure and adherence, stigma

and discrimination. This is so because most children living with HIV are growing into thus to

prepare them for transitioning, SRH etc.

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• ANECCA and EGPAF Swaziland need to plan for operational research in psychosocial

support and counseling in Swaziland following the trainings already carried out for

quality improvements and replication in other Countries.

LIST OF TOT PARTICIPANTS Ref. Name Sex Organization Address

1. Hlengiwe Ntshalintshali F MoH Sithobela Health Centre

2. Sihle Tsabedze F MoH SNAP

3. Phumzile Mndzebele F MoH SNAP

4. Lenhle Nsibandze F MoH SNAP

5. Eunice Maziya F MoH Mkhuzweni Health Centre

6. Phumzile Mhlanga F MoH Vuvulane Clinic

7. Zandile Nhleko F EGPAF Mbabane

8. Julia Ziyane F

9. Clara Mujaya F EGPAF Lubombo Region

10. Sinqobile Matsenjwa F MoH KSII PHU

11. Nokulunga Dlamini F MoH Mbabane PHU

12. Nokuthula Maseko F EGPAF Mbabane

13. Nobuhle Mthethwa F RFMH RFMH

14. Nomsa Dlamini F MoH Hlathikhulu Gov. Hospital

15. Lucia Maseko F MoH Mankayane PHU

16. Lungile Simelane F EGPAF Mbabane

17. Nikiwe Shabangu F MoH Mbabane VCT

18. Thabsile Fakudze F MoH Health Promotion Unit

19. Phumlile Mkhabela F MoH Mbabane VCT

20. Lomalungelo Dlamini F MoH Wellness Centre

21.

22.

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Appendix 1:Curriculum adaptation schedule 11th- 13th July 2011 TIME  Day One ‐11th July 

2011 Day Two ‐12th July 2011  Day Three‐13th July 

2011 8:30am‐9:00am    Introductions & expectations9:00am‐10:30am   

Planning  meeting with EGPAF 

Why are we here, actual gaps and trends at National & facility level Group work and presentation 

Presentation on curriculum development process   

10:30am‐11:00am  Break  Break 

11:00am‐1:00pm   Meeting with HCT  coordinator‐ SNAP & EGPAF, agree on the process, strategy and schedules 

Review of available curriculums Group discussions  and presentations on summaries from the review  

Developing curriculum goals and objectives (Group work discussions 

1:00pm‐2:00pm  Lunch break Lunch break Lunch break2:00pm‐4:00pm  Continued Determine content and modules( 

Group discussions) .Plenary presentations  and agreeing  on modules and content 

Presentation and agreeing on objectives and goals.  Next steps and the process.  

4:00pm‐5:00pm    Cont’d

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Appendix 2: Stakeholders meeting schedule

SNAP Children and adolescents curriculum Meeting 28th February 2011- Bethel Court

(Agenda) Program me Director: Lenhle Nsibandze 08:30 Registration Lenhle Nsibandze 09:00 Introductions Lenhle Nsibandze 09:10 Welcome remarks Phumzile Mndzebele 09:20 Remarks from EGPAF Country Director 09:40 Overview of the children And adolescents HIV psychosocial Phumzile Mndzebele Curriculum 10:00 Tea/Coffee break 10:40 Group work Rose Nasaba

11:40 Presentations and Discussion Group Participants 12:40 Wrap –up and way forward Phumzile Mndzebele 13:00 LUNCH

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Appendix 3:TOT Schedule August 2011 1st -5th Mbabane Swaziland: Time Day One Day Two Day Three Day Four Day Five Recap Recap Recap Recap 8:30- 10-30 am

Welcome remarks Introductions Expectations, aims and objectives & course assessment exercise

Developing training materials Session planning continued

Micro teaching Microteaching Post course assessment Presentation of work plans

10: 30 am B R E A K 11:00 -1:00pm

Introduction to adult learning. Approaches to adult education, including experiential learning.

Teaching in the community & Presentation skills, managing group behaviors

Micro teaching

Micro teaching: Presentation of work plans and training plans.

1:00-2:00pm

L U N C H

2:00-3:30 pm

Method of teaching Training needs assessment.

Assessment. Preparation for micro teaching

Micro teaching.

Micro teaching:

Final review of the program/ evaluation

3:30-3:45pm

B R. E A K

3:45-4:45:00pm

Developing training program/course

Preparation for micro teaching continued

Micro teaching Micro teaching Official closure and awarding of certificates

4:45-5:00pm

Questions and answers plus days evaluation.

Continued Microteaching: Preparation time (work plans)

Close close close close

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Appendix 4: Peer review form TEACHING EXERCISE

Peer Review Form Presenter’s Name__________________________________________ Topic/Content_____________________________________________ Use the scale below to provide a score for each of the items below.

1 = Very poor 2 = Poor 3 = Average 4 = Good 5 = Excellent

Item 1 2 3 4 5 Comments

Room preparation

Equipment/resource preparation

Introduction was interesting and caught my attention

Clear aims and objectives were

Appeared to be well-prepared

Demonstrated that she/he was knowledgeable about topic

Attempted to involve all participants

Used visual aids skillfully

Developed good rapport with class

Use of voice

Minimum distracting gestures

Stayed to time

Checked if learning had taken place

Session was easy to understand

Overall Evaluation 1 2 3 4 5

Was the lesson interesting and taught well?

Was the content relevant and useful to you?

Did learning take place?

The main thing I learnt from this session was:

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Assessor’s Name ________________________________ Date________________