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Support Groups (P21)
Torbay Disability Information Service Torbay and South Devon NHS Foundation Trust 4th Floor, Union House Union Street Torquay TQ1 3YA Tel: 0300 456 8373 Email: [email protected]
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This is a controlled document. It should not be altered in any way without the express permission of the author or their representative.
On receipt of a new version, please destroy all previous versions.
Document Information
Date of Issue: 2 March 2020
Next Review Date:
April 2020
Version: 19
Last Review Date:
April 2017
Author: Christine Evenden, Disability Information Service
Directorate: Operations
Important: Please ensure that you are using the latest version of this information sheet. To check this, go to our information sheets page on the Trust website at www.torbayandsouthdevon.nhs.uk/disinfosheets or call the Disability Information Service on 0300 456 8373.
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Contents Subject Page
About this sheet 3
Who is this information sheet for? 4
Disability and long-term condition groups 6
Carer support groups 23
Patient support groups at GP surgeries 32
User involvement groups 33
Other titles in this series 35
Further information and advice 36
Feedback sheet 37
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About this information sheet This is one of a series of regularly updated local information sheets that aim to meet the most common information needs of people with disabilities and carers in Torbay. Where possible, we try to keep our information up to date. However, we cannot guarantee that all of our information is constantly up to date - details change often and there may be changes to services of which we are not aware. If you know of a change to any of the services listed please advise us of this so that we can amend the details. The information should be used as a guide only, as it may not cover all the organisations that can help with your needs. Torbay Disability Information Service (part of Torbay and South Devon NHS Foundation Trust) cannot guarantee the accuracy of the information or the quality of service provided by the organisations. No liability can be accepted for loss, damage, or injury arising out of any contract made by a private individual with any of the organisations listed. Details change often, so please make sure you are using the current edition. Latest copies of the sheets are published on the following website page: www.torbayandsouthdevon.nhs.uk/disinfosheets
If you do not have Internet access, you can ask for single copies from our office. A full list of our other information sheet titles can be found at the end of this sheet.
Information can be made available in other formats and languages. Please let us know what your needs are. Torbay Disability Information Service 4th Floor, Union House Union Street Torquay TQ1 3YA Telephone: 0300 456 8373 Email: [email protected]
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Who is this information sheet for?
This information sheet is for anyone who wishes to find out about groups in Torbay that provide support to:
• People with specific disabilities and /or long-term health conditions
• Patients of GP surgeries, that provide practical voluntary services
• Unpaid carers looking after adults (or children) with disabilities The information sheet also provides details of local user involvement groups.
What do support groups do?
Disability support groups There are a number of helpful organisations, both in Torbay and beyond, that support people with disabilities, but the focus of this section is support for specific conditions. An effective support group should be easily contactable and offer the following:
• A membership willing to participate in the group’s administration
• A welcome for anyone with an interest in the condition supported
• Meetings within reasonable travelling distance
• Self-help and peer group support
• Accurate and current information (leaflets, booklets, etc.)
• Speakers
• Newsletters
• A social element
Most groups offer refreshments and you can normally expect to pay a membership fee to cover expenses. Some groups will be linked to national organisations and some may also be involved with local health and social care services to develop self-management approaches to long-term conditions. If you cannot find a local group, why not start your own? There are local meeting venues for hire, free publicity channels (including this information sheet) and other support. If you need advice please contact us at Torbay Disability Information Service on 0300 456 8373. If you do not wish to get involved with a local group, you will find good advice and information is available from national organisations. The website, www.patient.co.uk provides full listings. Contact us for details if you do not have internet access. Patient Support groups These groups, attached to some GP surgeries, offer practical services to patients of the practice who find it difficult to undertake everyday tasks. Some
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may also include a social element. They are normally reliant on volunteers to keep the group going and cannot help everyone. Carer Support Groups These groups exist to provide an opportunity for unpaid carers to get together to chat about how they are managing, benefit from the experience of other members and find out about appropriate services and support. They generally only cater for carers, as part of their remit is to offer a break from caring. Please note that specific condition support groups for children and young people are also included in this section, including those that provide activities for children/ young people. Do you organise a group? If your group supports people in Torbay and is not listed here, we would be interested in hearing from you so that it can be included in the next update. Symbols For ease of reading, the sheet includes the symbols below:
= telephone = web address = email address
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Disability and long-term condition groups The following alphabetical index indicates if a local group exists. Condition Supported Local Organisation
Acquired Brain Injury Headway. See also Carer Support section
ADHD See Carer Support section
Autism See Carer Support section
Alzheimer’s Disease Alzheimer’s Disease Society, Devon and Torbay
Arthritis Arthritis Care, Torbay
Asperger’s Syndrome Dimensions for Autism. See also Carer Support section and information sheet P33.
Cancer Lodge Cancer Support Centre, Marie Curie Devon Helper Service, Prostate Support Association
Cardiac Happy Hearts and Heartbeaters Support Groups
Child conditions See Carer Support section
Crohn’s and Colitis Torbay Crohn’s and Colitis UK
Dementia Alzheimer’s Disease Society, Memory Cafes, Singing for the Brain, Filo Project. See also Carer Support section.
Diabetes Diabetes UK, South Devon Voluntary Group
Deafness Parents of Deaf Children
Also see ‘Leisure’ information sheet (P28)
Down’s Syndrome Down South
Dyslexia See Carer Support section
Dystonia Dystonia Society – Torbay and Exeter Support Group
Eating Disorders Torbay Eating Disorder Support Group
Eczema Eczema Support - Torbay
Epilepsy Epilepsy Action - Torbay Coffee and Chat Group
Huntington’s Disease Huntington’s Disease Association – Devon
Laryngectomee South Devon Laryngectomee Club
Learning Disabilities Mencap Society, Torbay See also Carer Support section
Lung Disease Breathe Easy
Marfan Syndrome Marfan Association UK
ME/CFS ME, CFS and Fibromyalgia Support Group, Torbay
Memory Problems Memory Cafés (Alzheimer’s Society and Torbay Dementia Action Alliance )
Mental Health
Bravo Café, Fresh Hope, Torbay Bipolar Group, Torbay Bravo Help and Hope Groups, Triumph over Phobia
See also Carer Support section and Torbay Mental Health Directory
Motor Neurone Disease Motor Neurone Disease Association
Multiple Sclerosis (MS) Multiple Sclerosis Society, South Devon
Myasthenia Gravis Myasthenia Gravis Association – South Devon
Parkinson's Disease Parkinson's UK – Local Support Groups & Information
Pituitary Disorders The Pituitary Foundation – Plymouth, Exeter and Truro
Pre & Postnatal Illnesses Torbay PANDAS
Sight Loss VisualEyes Torbay (Macular Society), Devon in Sight
Stoma Devon Ileostomy Association
Stroke Different Strokes, Torbay Stroke Support
Stroke Association: Torbay Stroke Recovery Service
Tourette Syndrome Tourettes Action.
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A - Z of Groups
Group details can change frequently, so please confirm details with organisers before attending an initial meeting.
Addiction Support For details of support for people with alcohol and drug addictions and those who support them, please refer to our information sheet ‘Caring for Someone with an Alcohol or Drug Problem’ (P31).
Alzheimer’s and Dementia Support Alzheimer’s Society - Devon and Torbay Provides information, advice and support, including a Dementia Adviser Service, to people with Alzheimer’s disease and other forms of dementia, their carers and families. Offers personal one-to-one emotional, telephone and peer support, including regular drop-in Memory Cafes around Torbay and a regular Singing for the Brain session (see below). The Alzheimer’s Society also provides a range of education packages for carers and for people living with a dementia.
Dementia Adviser Service, 0300 123 2029 (Monday to Friday, 9.00 am - 5.00 pm) [email protected]
Alzheimer’s Society Memory Cafés in Torbay and Singing for the Brain
Alzheimer’s Society Memory Cafés Free drop-in services for people with dementia, their carers, family and friends. Memory Cafés provide advice, support, stimulating activities, occasional talks and the opportunity to meet others and have a coffee and a chat. They are run by volunteers and supported by a co-ordinator. Dementia Advisers often drop in for people who may be worried about their memory to talk with, or to arrange further help.
Brixham Memory Cafe: Brixham United Reformed Church, New Road Times: Wednesdays, 1.30 pm - 3.30 pm
Please note that this section does not include:
• Groups for people with disabilities that meet primarily for social purposes, e.g. social clubs for deaf or visually impaired people. See ‘Leisure and Day Opportunities’ sheet (P28)
• Fitness support for people with disabilities. See ‘Gentle Exercise’ sheet (P22)
• General disability or age-related groups
• Telephone helplines
Contact our office if you are not sure what you are looking for.
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Paignton Memory Cafe: Sacred Heart R.C. Church, 24 Cecil Road Times: Thursdays, 1.30 pm - 3.30 pm
Torquay Memory Cafe: St Annes Hall, 143 Babbacombe Road Times: Tuesdays, 1.30 pm - 3.30 pm
Singing for the Brain is a fun session, using familiar and new songs to evoke memories and challenge and extend skills in a relaxed social environment.
Venue: Christ Church Hall, Torquay Road, Paignton Times: 2nd and 4th Friday of the month, 2.00 pm - 4.00 pm
Wendi Bennett, 07712 301467 or Dementia Adviser Service, 0300 123 2029
Purple Angel Day Centre A dementia day centre for those with mild to moderate short-term memory loss. The Centre, which provides support from fully trained care staff, offers lunch, refreshments, art and craft activities, chair exercise, games, music/singalong, live entertainment and peaceful walks in the gardens. The fee is £12.00 per hour (includes 2-course lunch). Offers a free 2-hour trial session. NB. Help with funding may be available, based on a means test, if you are eligible for social care support or your carer has ‘enhanced’ eligibility for a break. Torbay Adult Social Care is on (01803) 219700
Venue: Rowcroft Hospice, Rainbow House, Room 1, Avenue Road, Torquay TQ2 5LS Times: Fridays 10.00 am - 2.00 pm
Bridie, 07805 984340 [email protected] www.dementiadaycare.club
Purple Angel Memory Café A new free café run in conjunction with the Torbay Dementia Action Alliance. The café is for anybody who has any memory, cognitive problem or a diagnosis of dementia and provides a safe, welcoming, non-judgmental environment. Sessions include tea and coffee, games, talks, music and dance. NB. All attendees must be accompanied by a carer at all times. The café is open to people living anywhere in Torbay, and beyond if required.
Venue: Barton Baptist Church, Happaway Road, Barton, Torquay Times: Every Saturday afternoon except the first Saturday of each month, 1.30 pm - 3.30 pm.
Elaine, (01803) 459290 or 07707 048595
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The Filo Project Provides small group day opportunities in hosts’ own homes for people over 60 who are socially isolated, most of whom are experiencing symptoms associated with moderate dementia. The service includes transport to and from the group, lunch, activities and conversation. Sessions are largely dictated by the preferences of group members. All hosts are carefully selected and referenced. They are subject to enhanced DBS clearance as well as being trained in Emergency First Aid, manual handling and food hygiene. The fee is £67.50 a day if funding privately, including all transport, lunch and refreshments. NB. Help with funding may be available, based on a means test, if you are eligible for social care support or your carer has ‘enhanced’ eligibility for a break. Torbay Adult Social Care is on (01803) 219700. NB. The Filo Project has taken over the ‘Days Out’ project, which was run by Age UK Torbay.
(01392) 982138 [email protected] www.thefiloproject.co.uk
Arthritis Care, Torbay Support, information & training courses for people with all types of arthritis. Meets monthly. Can provide small grants for equipment to help people with arthritis gain an improved quality of life. Campaigns on relevant issues and offers help with independent living skills, befriending, telephone support and getting equipment.
Meeting venue: Livermead House Hotel, Torquay. Times: Second Monday of each month (except Aug and Jan), 7.00 pm for 7.30 pm. Peter or Philippa Grantham, Secretary and Chair, 07505 305332 (please leave a message).
Bravo Café (Mental Health Support Group) A community run café that offers a safe space for mental health service users. The café is open to everyone and offers an informal, welcoming space for people who are affected by mental health issues, their families and carers, giving them the opportunity to get together and offer each other support in a fun and friendly environment over a cup of tea or coffee and cake. A small charge is made for refreshments (50p in January 2017).
Meeting venue: Paignton Parish Church Hall, Church Street, Paignton Times: Every Wednesday, 11.00 am - 1.00 pm. Katherine, 07796 173048 or Lorrie Layne, 07771 806870
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Breathe Easy Torquay An affiliated group of the British Lung Foundation, offering support to people affected by lung conditions, including their friends, family and carers.
Meeting venue: Kenneth Court, Collaton Road, Shiphay, Torquay Times: Last Wednesday of every month, 2.00 pm - 4.00 pm. Helpline, 03000 030 555 www.blf.org.uk
British Acoustic Neuroma Association (BANA) The UK’s only national charity providing support and information for people affected by acoustic neuroma and interrelated conditions. Provides online forums and area support groups (currently there isn’t a group in Devon). Contact BANA or visit website for details of local groups.
(01246) 550011 www.bana-uk.com
Devon Ileostomy Association Offers advice and support to anyone with a stoma or about to undergo surgery for a stoma - Ileostomy, colostomy, urostomy.
Meeting venue: Various venues in Devon – contact Association for details. Times: Usually meets four times a year - contact Association for details. Martin Hornby, Secretary, (01458) 251095 [email protected] www.iasupport.org
Devon & Cornwall Lupus Group Local branch of national charity LUPUS UK. Offers regular meetings, support and information. Membership of the Group is open to Lupus patients, families, friends and others with an interest.
Meeting venue for local group: Palace Hotel, Paignton Times: Bi-monthly on 3rd Wednesday of the month at 10.30 am Mrs Mayne Sundewall-Hopkins, Secretary, (01803) 203318 [email protected] www.devonandcornwalllupusgroup.org
Different Strokes Exercise and Support Group Different Strokes is a national charity that provides information, advice and support, including exercise when needed, around the UK, for younger stroke survivors. This local group gives stroke survivors between 18 and 65 the opportunity to meet other younger stroke survivors, plan regular active and social activities and share experiences, information and advice in a welcoming environment. Friends, family and supporters are welcome to attend. The venue is accessible.
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Meeting venue: Rushbrook, Station Road, Totnes TQ9 5HW Times: First Thursday of every month, 11.00 am - 12.30 pm Sue Kirtley, (01803) 459866 [email protected] www.differentstrokes.co.uk National Strokeline: 0345 130 7172
Dimensions for Autism (DFA) Contacts: Trish Darke: [email protected] Matt Grimsey: [email protected] Heidi Slatter (for Torbay group): [email protected] www.dimensionsforautism.life
Social and support groups for autistic adults living in Devon or Torbay who don’t have a learning disability, including adults who have Asperger’s Syndrome. No referral is required. If you are interested in going along to a group meeting and have had (or are waiting for) an assessment please contact Trish to find out more or to be added to the Dimensions for Autism mailing list. If you don’t have access to email, please call the Disability Information Service for alternative contact details.
Torbay Venue: Kinda Café, Preston Sands Hotel, Marine Parade, Paignton TQ3 2NU Times: Last Monday of each month, 2.30 pm – 4.30 pm. Devon Venues: The Burdett Building, Wolborough Street, Newton Abbot TQ12 1LJ Exeter Phoenix, Bradninch Place, Gandy Street, Exeter EX4 3LS Times: Thursdays 2.30 pm - 4.30 pm The group meets at various venues for social events/activities on the second Thursday of the month. Meetings on other Thursdays are held in Newton Abbot. New DFA groups in Exeter include an Exeter University group, a ladies’ group and an Intercom Trust group. Contact Trish Darke for further information.
Dystonia Society - Torbay and Exeter Support Group Local branch of national charity, offering regular meetings, support and information.
Meeting venue: Room 13, 1st Floor, Paignton Library, Great Western Road, Paignton Times: Second Saturday of every other month, 1.00 pm – 3.00 pm David Lowe, 0845 899 7105 www.dystonia.org.uk [email protected]
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Eating Disorder Support Group, Torbay (Recoverers Group) A group for anyone with an eating disorder or issues with food and body image. It’s not just for people with anorexia or bulimia, but also those with binge eating disorder, body dysmorphia or any other eating disorder, even if there is no diagnosis. It aims to give people living in Torbay and other areas of Devon a place to meet others with similar struggles and share their experiences of living with an eating disorder, in the hope that this will help recovery. The group is free to attend but donations are welcome to cover the room hire. NB. For details of Carers and Supporters Group please refer to Carers Support section.
Meeting venue: Endeavour House, 228 Higher Union Street, Torquay Times: Fortnightly on Thursdays, 6.00 pm - 7.00 pm www.torbayedsupport.com [email protected]
Eczema Support - Torbay The National Eczema Society provides support and advice to adults and children with eczema. Visit the website or contact the helpline for advice, or for information about local support.
www.eczema.org National Helpline: 0800 089 1122
Epilepsy Action - Torbay Coffee and Chat Group Epilepsy Action advised us that this group ‘provides a friendly meeting place, offering people affected by epilepsy a chance to meet others in a similar position, in an informal setting. They provide a warm welcome and an opportunity to chat. All they ask is that you bring some change for your coffee and a willingness to say hello!’
Meeting venue: The Abbey Sands Hotel, Belgrave Road, Torquay Times: Second Wednesday of every month, 7.30pm – 9.00 pm Simon, 07974 803256 www.epilepsy.org.uk National Helpline: 0808 800 5050
Fresh Hope (Mental Health Support Group) Provides monthly support meetings for those who have, or have had, emotional and mental wellbeing issues. The group is open to anyone. It offers a safe place for people to share their stories and gain mutual support. Part of the work of the pastoral care group, the group includes professional doctors and nurses with experience in this area of ministry. Individual support is also available. Please contact the Church Office for further information.
Meeting venue: Upton Vale Baptist Church, St. Marychurch Road, Castle Circus, Torquay Times: Every third Wednesday evening of the month Church Office, (01803) 400403 www.uptonvale.org.uk [email protected]
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Happy Hearts Support Group Support group affiliated to the British Heart Foundation that helps cardiac patients in the Torbay area. The group offers a weekly gentle exercise and relaxation session run by a qualified instructor, coupled with friendship/peer support for patients and their families. For further details and to arrange to attend a session, contact Lorraine Lloyd.
Meeting venue: St George’s Church Hall, Goodrington. Times: Wednesdays, 10.00am - 12.00pm. Lorraine Lloyd, 0790 233 0253
Headway Devon Provides support services for adults with acquired brain injuries (ABI).
• Support Centre Rehabilitation service for people with acquired brain injuries, providing activities and support. Attendance by arrangement only. Access mainly by professional referral but anyone interested in attending is welcome to call Headway Devon to discuss their needs. Venue: Acorn Centre, Lummaton Cross, Barton, Torquay Times: Thursdays, 10.00am – 4.00pm
• Outreach Services One-to-one support for individuals and their families and carers in their homes and also in the community. Services can be accessed via referral by self or others, and are provided on the basis of assessment. Support is tailored to the individual, and aims to maximise independent living skills and help with social inclusion. Services often include help with housing issues, budgeting, advocacy and getting into work as well as help and support with day-to-day tasks and leisure activities.
Headway Devon, (01392) 211822 National Helpline: 0808 800 2244 www.headwaydevon.org.uk [email protected]
Healthy Lifestyles Support (including stop smoking services) The Healthy Lifestyles Team offers a wide range of free or subsidised health living programmes and advice. They can help people to quit smoking, get more active, eat more healthily, lose weight and improve wellbeing. Their team of specialists includes dietitians, health trainers, physical activity specialists and experts in quitting smoking. Their programmes include personalised, local one-to-one support, group sessions, drop-ins and workshops, and the ongoing encouragement and motivation to help people make positive lifestyle changes and to keep going when others give up. For full details of venues and times, call the Healthy Lifestyles Service or visit their page on the Trust website.
Venue: St. Edmunds, 2nd Floor, Victoria Park Road, Torquay TQ1 3QH 0300 456 1006 [email protected] www.torbayandsouthdevon.nhs.uk/healthylifestyles
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Huntington's Disease Association - Devon Local branch of national organisation, giving support and advice to families/carers and people with Huntington’s disease, as well as health care professionals. Contact Head Office or visit Devon branch website for information about local support.
Head Office: 0151 331 5444 www.hd-devon.org.uk (Devon branch website) www.hda.org.uk (national website) [email protected]
Hypermobility Syndromes Association (HMSA) A charity that provides support and information to those affected by Hypermobility Spectrum Disorder and other hypermobility related conditions, such as Ehlers-Danlos syndrome, Marfan syndrome, Osteogenesis Imperfecta, etc. As well as advice, the HMSA has a selection of booklets and leaflets available to order from its online shop or by writing to the charity at the address below.
National contact: 49 Greek Street, London W1D 4EG 03330 116 388 (mornings and 24-hour answering machine - aims to reply to all messages within one working day). http://hypermobility.org South West England local group contact: Donna Wicks [email protected]
Lodge Cancer Support Centre An informal drop-in service and helpline for people in South Devon who are affected by cancer. Offers free confidential information, practical advice and emotional support. Available to patients, families, friends and carers, as well as health care professionals. Services include information on all aspects of cancer, help with some application forms (for those with a terminal diagnosis of cancer) and some advice and signposting on benefits, and the following services by appointment only: monthly genetics clinic, weekly wig fitting service, monthly relaxation classes, beauty pamper sessions and complementary therapy. The Lodge is also able to provide help with applications for Macmillan patient grants.
Venue: The Lodge, Torbay Hospital Annexe, Newton Road, Torquay. Times: Drop-in, Wednesday to Friday, 9.00am - 4.00pm. (01803) 617521 Centre Manager: Jenny Daly
Marfan Association UK Supports those with Marfan Syndrome and their families.
(01252) 810472 – there is currently (March 2017) no local contact. www.marfan-association.org.uk [email protected]
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Marie Curie Devon Helper Service, South Devon
A Marie Curie Helper provides companionship and support to adults living with a terminal illness in South Devon by matching them, based on their background and interests, with a trained Marie Curie Helper volunteer. A Marie Curie Helper volunteer will visit people living with a terminal illness in their homes, offering companionship and support for up to three hours each week. The role involves helping with activities such as reading, making short trips to the shops, providing information on local services or just being there to listen and provide a friendly ear. If you are aged 18 or over with a terminal illness, or if you’re looking after someone who is terminally ill, contact the service for further details or to make a referral. The service is free of charge and available in Devon.
0800 304 7412 [email protected]
ME, CFS and Fibromyalgia Support Group - Torbay Provides information and support to people with Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) and Fibromyalgia, as well as to carers, family or interested parties. Telephone support line. Quarterly newsletter. Fully accessible parking at meeting venue.
Meeting venue: Jasmyn House, 1 Midvale Road, Paignton Times: Last Thursday in each month, 12.30pm - 2.30pm, except August and December Co-ordinator, (01803) 554724 or 0844 887 2470 [email protected] www.actionforme.org.uk
Mencap Society - Torbay Provides advice and information to parents of children and adults with learning difficulties.
Stephen Marks, 07968 853273 [email protected] or [email protected] www.mencap.org.uk
Motor Neurone Disease (MND) Association Support and information is available from the helpline or website (see below). Local fundraisers are welcome to send donations made payable to the MND Association via local contact Sue Masters on (01803) 855788. These donations will go towards funding specialist equipment or adaptations required for individuals living with MND in the Torbay and district area.
MND Connect Helpline, 0808 802 6262 [email protected] www.mndassociation.org
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Multiple Sclerosis Society - South Devon Provides local social and support groups for people with Multiple Sclerosis (MS) and their families and carers. The branch also offers individual support via its helpline, a regular newsletter and exercise classes with a physiotherapist in attendance for people in South Devon.
Coffee mornings:
Torbay: Grand Hotel, Torquay Times: Third Monday of each month, 10.30 am - 12.30 pm
Teignbridge: Passage House Hotel, Hackney Lane, Kingsteignton Times: Last Wednesday of each month, 10.00 am – 12.00 noon
NB. If you are attending for the first time you may wish to contact the Helpline to arrange for someone to look out for you.
Helpline, 0845 602 0805 [email protected] www.mssociety.org.uk/southdevon
Myaware (previously Myasthenia Gravis Association) - South Devon Provides advice and information about Myasthenia Gravis to sufferers, their carers and/or families.
Meeting venue and times: Contact Secretary for details Liz Rayment, Secretary, (01803) 327091 www.myaware.org
Paignton Heartbeaters (Support) Group Support and social exercise group for ex-cardiac rehab patients and people who do not have a heart problem, but seek gentle exercise and social activity. Classes include light exercise, relaxation and refreshments. There are also monthly social events and occasional talks.
Meeting venue: St. Paul’s Church Hall, Preston, Paignton Times: Wednesdays, 2.00pm - 4.00pm Cost: £2.50 per class (includes free raffle, tea and coffee) Ron Thomas, (01803) 472954
Parkinson's UK - Torbay and District Branch A branch of the national charity offering a varied programme of events and the chance to talk to people who are in a similar position. The branch holds regular support meetings where people get together for a chat and a coffee, which are sometimes attended by a Parkinson’s nurse – please visit the website or contact the branch for further details. It also runs activities for patients and their carers, including an exercise group, arts and crafts, tai chi, pilates and sailing in the summer, in conjunction with the Disabled Sailing Association. Occasional coach trips, theatre visits and Christmas lunch are also organised.
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Torbay Parkinson’s & District Branch Meeting Meeting venue: The Riviera Suite, Esplanade Hotel, Sands Road, Paignton Times: Last Tuesday of each month (except January and August), 2.00pm.
David Brown, Chairperson, (01803) 361294 Activities: Terry Benbow, (01803) 520277 or [email protected] www.torbay-parkinsons.co.uk and also on Facebook. [email protected]
Parkinson’s UK – Torbay Branch Support Worker Provides information and support, including:
• up to date information on Parkinson’s Disease
• emotional support to those who have Parkinson’s Disease and their families
• information and help with benefits
• information about, and links to, local services
• links to other Parkinson’s UK services. Karen Safe, 0344 225 3699 [email protected]
The Pituitary Foundation (Torbay, Plymouth, Exeter and Truro) This group is open to anyone from any area with a pituitary problem, along with their partners, family and carers. Meetings are rotated between four Endocrine Centres: Torbay, Derriford, Wonford and Treliske, each of which hosts two meetings a year, which are addressed by a member of the Centre’s Endocrine Team. For further details, including meeting dates, visit the website or contact the Area Co-ordinator.
Mike Luxton, Area Co-ordinator, (01872) 501375 [email protected] National Patient Support and Information Helpline, 0117 370 1320 [email protected] www.pituitary.org.uk
Prostate Support Association - Torbay Raises awareness of prostate cancer in the local community (eg. by giving talks to local groups), provides help and information (particularly from personal experience) and raises funds. Support includes three-monthly talks by various speakers, including consultants, a Buddies Scheme and newsletter. They also offer support to men who have been diagnosed.
Meeting venue: Redcliffe Hotel, Paignton and other venues. Times: Various Peter Hosking, President, (01803) 363028 or Darrell, (01803) 292171 Helpline: [email protected] Information: [email protected] www.tpsa.org.uk and also on Facebook
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Riviera Heartbeaters (Support) Group An affiliated group of the British Heart Foundation, offering support and exercise to ex-cardiac rehab patients with agreement from their GP. Group liaises with Cardiac Rehab at Torbay Hospital. Contact Brian Summers to find out more or drop in to join a session.
Meeting venue: Barton Baptist Church, Happaway Road, Torquay Times: Mondays and Thursdays, 10.00am. Cost: £1.50 per session, paid on the day. Brian Summers, Chairman (01803) 328508
South Devon Laryngectomee Club Registered charity that provides support for people with laryngectomees and their families. The group is run by people with laryngectomees, with professional support through the attendance of a speech and language therapist, and head and neck specialist nurse, helping to ensure that advice, aids and equipment are provided quickly. Members receive the national magazine, 'Clan' four times a year.
Meeting venue: The Lodge, Cancer Support Centre, Torbay Hospital Annexe Times: Every 6 – 8 weeks, 2.00 pm – 4.00 pm, contact Club for further details. Daphne Carpenter, (01803) 654949
Stammering Support Groups Support groups may be available, according to interest and need, for adults and children who stammer. Please call The Fluency Service for further information.
The Fluency Service: Jane Baker (adults and children): 07887 822204 or Emma Drummond (children): 07825 935368
Stroke Association – Torbay Stroke Recovery Service
Torbay Stroke Recovery Service provides practical advice, emotional support and information following a stroke. Whether you are a stroke survivor, carer or family member, the Service will work with you to identify and address your physical needs through a personalised plan, and support you to rebuild your life after stroke. Please contact your local Stroke Support Co-ordinator for further information.
Cathryn Keeler, Torbay & South Devon Co-ordinator, 07717 275848 or (01392) 447363 [email protected] National Stroke Helpline, 0303 3033100 www.stroke.org.uk
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Torbay Stroke Support A charity that provides free peer support to survivors of stroke, their carers and those at medical risk of stroke. Support offered includes support from other stroke survivors and carers. Please see below for details of the Hub and groups. For further information please contact: [email protected] 07946 298914
Torbay Stroke Hub: a weekly peer support and information drop-in for stroke survivors, carers and those at risk. This group is for many attendees a first stop after stroke and it aims to help build confidence and share knowledge and understanding. Guest speakers help educate and inform as well as signpost opportunities that help recovery and communication. Free and open to all. Coffee/tea is available at the library café for those who want to stay. Venue: Paignton Library (Room 13, full access for disabilities) Times: Mondays, 11.00 am – 12.00
Torbay Stroke Computer Group: A free weekly group where the focus is on offering computer-based support, including help with accessing the internet, locating forms, sending emails, etc. Skills that may have been lost post stroke can be relearned. Meeting venue: IT Suite, Paignton Library (fully accessible) Times: Thursday afternoons, 1.00 pm – 3.00 pm
Torbay Stroke Support Peer Support Groups for Men and Peer Support Groups for Women Weekly peer support groups - one for men and one for women – who meet to chat and socialise. The groups are for working aged people who have had a stroke and who meet to share experiences in a relaxed, informal and mutually supportive setting. Free. Refreshments charged for by the hotel.
Men’s Peer Support Group venue: Grand Hotel (Torquay), bar area (accessible) Times: Every Wednesday 11.00 am – 1.00 pm.
Women’s Peer Support Group venue: The Palace Hotel (Paignton), bar area (accessible) Times: Every Tuesday, 10.30 am – 12.30 pm.
Torbay Stroke Survivors and Carers Group A weekly small group, peer led by those who have had a stroke. The group meets to discuss stroke matters and is for those who would find larger groups off-putting. Free. Refreshments charged for by hotel. Venue: Grand Hotel bar area (accessible)
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Stroke City Torbay Walking Football Offers physical and social therapy to help movement and well being. This is a slower version of football for fun and exercise. Venue: Paignton Community School (by Paignton Zoo). Disabled access available. Times: Every Friday, 4.45 pm – 6 pm.
Torbay Bipolar Self-help Group Support and information for people with bipolar disorder, friends, carers, and partners. Self-referral. Meetings include speakers on topics that help with the management of bipolar. 5-day recovery and self-management courses available. Information can be sent on request, including newsletter and leaflet on courses.
Meeting venue: Central Church, Tor Hill Road, Torquay TQ2 5RF Times: First Thursday evening of every month, 7.00pm – 9.00pm. Co-ordinator, 07490 183404 [email protected]
Torbay Bravo Help and Hope Groups ((Mental Health Support Groups) Mental health peer/social support groups. Carers welcome. Refreshments available. Also holds a weekly walking and coffee group at various venues in Torbay from 11.30 am - 1.30 pm. Please contact Ron or Anne for further information about any of the groups (see below for contact details). Paignton: Paignton Library, Great Western Road Times: First Friday of each month, 11.30 am – 1.30 pm
Torquay: Cool Therapies Offices, Cottage Café Building (first floor), 5 Lymington Road, Torquay Times: Third Friday of each month, 11.30 am – 1.30 pm
Brixham: Brixham Library, Market Street Times: Launch date: Friday 15 December, 11.30 am - 1.30 pm. Contact Ron or Anne (see below) for further dates and times.
Ron, 07791 004864 or Anne, 07712 821136 [email protected]
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Torbay Crohn’s and Colitis UK - Local Group Part of Crohn’s and Colitis UK. Holds regular meetings and social events, and provides members with the opportunity to get involved with raising awareness and fundraising. Also publishes a regular newsletter and has a national contact number that people can call if they have any queries. Works closely with the Gastroenterology Team at Torbay Hospital. Meeting venue: Members Room, Torbay Hospital (near Bayview Restaurant) Times: Last Monday of every month (except June, August and December), 7.00 pm. (Any changes to time or venue or cancellations are published on the local group’s website.)
0300 222 5700 [email protected] www.crohnsandcolitis.org.uk/torbay
Torbay PANDAS (Pre & Post Natal Illness Support) Peer support group for families who have been affected by issues surrounding mental health and anxiety during and after pregnancy. No GP or medical referral needed. Women are invited to pop along to these informal gatherings to meet others who have had similar pre and post-natal illness experiences and they can also bring others with them for support. Children welcome.
Meeting venue: Zig Zags Children’s Centre, Market Street, Torquay Times: Every Tuesday during the autumn term (from 6 September), 9.30 am – 11.30 am). Lindsay Coulson-Day, 07572 842386 [email protected] www.pandasfoundation.org.uk
Tourettes Action The UK’s leading support and research charity for people with Tourette Syndrome and their families. To find out about or join a Tourettes Action group in Devon (there is currently a group that meets in Plymouth) or to start up a local group, contact Emma, Volunteer Manager for the South West area, on [email protected]
Helpline, 0300 777 8427 [email protected] www.tourettes-action.org.uk
Triumph Over Phobia (TOP UK) Charity provides UK-wide network of self-help therapy groups, offering help for sufferers of phobias, obsessive compulsive disorder (OCD) and other related anxiety disorders. A group meets locally in Torquay - contact TOP UK for details and/or to apply to join the group.
(01225) 571740 or 07763 826618 www.topuk.org [email protected]
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Veterans Peer Support A charity that supports veterans and serving personnel who suffer from PTSD and associated mental health issues by peer to peer outreach. It works in association with Devon Partnership NHS Trust, and all its volunteer outreach workers are trained to recognised standards. All volunteers have served, or had strong links, with the military and many are PTSD sufferers themselves. The charity runs free coffee drop-ins all over Devon - please contact them for details about local support.
Dan Fielding (CEO), 07769 902688 or John Pattison, 07812 218324 [email protected] www.veteranspeersupport.co.uk
VisualEyes Torbay (formerly Brixham Blind Club) A charity for sight impaired people of all ages which is affiliated to the Macular Society and represents them in Torbay. Provides peer support groups in Torbay (as below) as well as a wide range of social and leisure opportunities. NB. Offers transport within Torbay to meetings at a cost of £5 for a door-to-door return trip (in August 2018).
Brixham: United Reformed Church, New Road Times: First Monday of each month, 2.00 pm - 4.00 pm
Paignton: Rooms 10 & 11, Paignton Library Times: First Wednesday of each month, 10.30 am - 12.30 pm
Torquay: Upton Vale Church, St. Marychurch Road Times: First Friday of each month, 10.30 am – 12.30 pm
Chris Sumner, 07951 659514 www.visualeyestorbay.org.uk [email protected]
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Carer Support Groups
The groups listed below primarily support unpaid carers, including those for children with particular conditions. Remember that disability support groups also welcome carers and can offer advice and information.
A – Z of Groups Acquired Brain Injury Parent Information Group Friendly and informal support group for parents of children and young people who have an acquired brain injury. The group helps members to learn to understand the effects of ABI and how to manage them successfully. It sometimes has speakers and social events. It also gives members the opportunity to share successes and helps to raise general awareness of ABI.
Meeting Venue and times: Contact Penny Weekes for details.
Penny Weekes, Occupational Therapist, 07929 265225
Acquired Brain Injury Teenager Groups Social and rehabilitation groups for young people with ABI/stroke - contact Penny Weekes (see above) for details.
ASrUS Torbay Youth Group (autistic spectrum disorder/ASD) Provides peer support for all families or carers affected by ASD, even if a diagnosis has not been confirmed. ASRUS is a friendly environment where children and young people with ASD can socialise with their peers and siblings. The group supports young people aged 9-18 who are on the autistic spectrum and their families throughout Torbay. The emphasis is on promoting life and social skills through physical and mental stimulation like football, arts and crafts, cooking and music in a fun nurturing and empathetic environment where playworkers are present to support the children and parents are there to offer peer support to other parents. SENDIASS are also sometimes available to offer signposting and advice for parents/carers. Young people who attend the group must be accompanied by their parent(s) or carer(s) and are welcome to attend with siblings and other family members. The group is run and facilitated mainly by unpaid volunteers, all of whom have personal experience of how autism impacts on families. ASrUS is also currently supported by Play Torbay who have raised money to provide experienced playworkers to further develop the club.
Meeting venue: YMCA, Dartmouth Road, Clennon Valley, Paignton. Times: Weekly on Wednesday evenings, 6.30pm – 8.00pm. Cost: £2.00 per child and 50p per adult Play Torbay, (01803) 850157 [email protected]
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Auchid A non-profit organisation run by parents of autistic children that offers support for families of autistic children (any age), including coffee mornings, social events and occasional trips. Informal coffee mornings are held in Exmouth and Tiverton but people from anywhere in Devon or Torbay are welcome to attend or to start up a group in their own area. The young person(s) needs to be accompanied by a responsible adult, either a family member or an enabler. Siblings are welcome. Auchid is open to all those who have a child(ren) with a diagnosis (including working) of a condition on the autistic spectrum.
Karen, 07985 037624 [email protected]
Bliss (premature babies) UK charity for parents, families or carers of premature and sick babies. Provides free and confidential advice, support and information.
Family Support Helpline, 0808 801 0322 [email protected] www.bliss.org.uk
Brunel and Chilcote Surgeries Carers Time Out Group Offers carers information, opportunity to meet other carers, speakers and complimentary cup of tea or coffee.
Meeting venue: Anchorage Hotel, Aveland Road, Babbacombe, Torquay (venue may vary – please contact group for current details). Times: Third Thursday of each month 1.45pm - 4.15pm Michele Glanfield, (01803) 312233 or Amanda Thomas, (01803) 316333.
Carers 4 Carers Telephone Line This confidential telephone line service is available between 5pm and 9pm on Tuesday evenings for unpaid family carers who are, or care for, a Torbay resident. It offers either a one-off call or regular calls for a friendly chat/support from a trained volunteer who is also a carer or ex-carer.
Val Shute, 07596 103291 or your local surgery Carer Support Worker.
Cerebra Gives support to families and carers of children up to the age of 16 with brain related and neurological conditions (brain injuries, neurological disorders, learning disabilities, global development delay and conditions on the autistic spectrum – Aspergers, ADHD, etc.). Services include personal one-to-one support, a grant scheme, parent support helpline, a sleep service, publications and specialist help and advice. Offers help with welfare and legal issues,
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including a legal project which provides free legal advice to parents who struggle with issues in regard to services like health, social care or education.
Parent Support Freephone Helpline, 0800 328 1159 [email protected] w3.cerebra.org.uk
Chilled Out (Mental Health) Carers Support, Torbay and South Devon Offers help and information to family carers, service users and others affected by severe and enduring mental illness in South Devon and Torbay. Carers support includes a carers support worker and a carers support group.
Meeting venue: Chill’d Out Youth Café (next to One World Café), Abbey Park, off Belgrave Road, Torquay. Times: Wednesdays, 11.00 am – 1.00 pm. John Davidson, 0300 555 5000 or 07909 873275
Contact a Family Charity that gives support, advice and information to families with disabled children. Services include a freephone helpline, parent guides, downloadable publications on the website and the Contact a Family online Directory, which is a guide to hundreds of medical conditions and disabilities, and related support. Parent advisers in the South West run information and outreach sessions - see the website or contact the Helpline for further details.
Helpline, 0808 808 3555 [email protected] www.cafamily.org.uk
Deaf Children's Society (Exeter and South Devon) Provides support to deaf children and their families. Organises trips for nominal fee. Raises money for technical support items, e.g. teletext TV, videos and decoders. Funds signing courses and anything else to help hearing impaired children.
Meeting venue and times: Contact Deaf Children’s Society for details. Mark Hale, (01803) 552018 www.esddcs.co.uk
Dementia Carers’ Support Group Group offering practical and emotional support for carers of people who have a diagnosed dementia.
Meeting venue: Chadwell Centre, Torquay Road, Preston, Paignton Times: first Friday of each month, 1.30pm - 3.00pm. Ele Morgan, Carer Support Worker, (01803) 546470
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Down South Group for children and adults with Down’s Syndrome and their carers living in Torbay, South Hams and Teignbridge areas. Affiliated branch of the Down’s Syndrome Association for the South Devon area. Provides support and advice to families and professionals, holds information meetings with invited speakers and has regular social events. The group runs regular coffee mornings for families and discos/bowling events for teenagers and young adults. Promotes awareness and understanding and lobbies to improve services to meet families’ needs.
Meeting venue: Members’ homes. Times: Contact for details. Mobile, 07972 789095 [email protected] www.downsouth.org.uk
Eating Disorder Support Group, Torbay (Carers and Supporters Group) A group for carers and supporters of people struggling with an eating disorder or food and body image. The group aims to provide a mutually supportive and confidential environment for people living in Torbay and other areas of Devon, where lived experiences can be shared with people in a similar situation. Meetings are free to attend but donations are welcome to cover the room hire. NB. For details of Recoverers Group please refer to main A-Z Groups section of this information sheet.
Meeting venue: Lounge Bar, Brixham Rugby Club, Astley Park, Rea Barn Road, Brixham TQ5 9ED Times: Fortnightly on Wednesdays, 7.00 pm - 8.00 pm www.torbayedsupport.com [email protected]
HITS (Worldwide) Family Support Network HITS is a support network set up for families by families to offer support to those affected by HI (Hypomelanosis of Ito Syndrome). Support offered by the Network includes:
• Linking families together to enable them to gain mutual support and friendship (eg. with contact via email, telephone, Yahoo Groups, Facebook, Pinterest and Twitter)
• Liaising with the medical profession to communicate the group’s existence and to share medical information available to the group
• An annual newsletter
• An annual or bi-annual family event.
• Families are currently participating in a research project specifically looking at HI
Terri Grant, Chair: 07940 114943, unmanned helpline: 020 8352 1824 Torbay contact, Sandra Field: (01803) 401018 www.e-fervour.com/hits [email protected]
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Mid-Age Carers Group Group for carers aged between 40 and 60 (a little flexible), offering meetings at various locations around Torbay.
Times: Monthly on the second Thursday of the month, 2.00 pm - 3.30 pm Val Shute, 07596 103291
National Autistic Society Please note that there is currently (August 2018) no branch in Torbay. For advice and information, please visit the website or contact the national helpline.
Autism Helpline: 0808 800 4104 www.autism.org.uk
Paignton Carers Support Group Group is for all carers, no matter what the age, illness or disability of the cared for person. Meetings usually include speakers and sometimes entertainment, depending on carers’ preferences. A small charge applies for this group as well as for the carers coffee mornings and afternoon teas (see below).
Meeting venue: Carers Centre, Room 17, Paignton Library, Great Western Rd. Times: Last Thursday of each month, 2.30 pm – 4.00 pm. Cost: £2.00 per head (in March 2018) Sally Corbishley, Carer Support Worker, 07531 947687
Paignton Carers Coffee Mornings (run by Paignton Carers Support Group) Meeting venue: Carers Centre, Room 17, Paignton Library, Great Western Rd. Times: Second Thursday of every month (except August), 10.30 am - 12.00. Cost: £1.50 per head (in March 2018) Sally Corbishley, Carer Support Worker, 07531 947687
Paignton Carers Afternoon Teas (run by Paignton Carers Support Group) Meeting venue: Carers Centre, Room 17, Paignton Library, Great Western Rd. Times: Usually third Friday of each month (except August), 2.30 pm – 4.00 pm. Cost: £1.50 per head (in March 2018) Sally Corbishley, Carer Support Worker, 07531 947687
Parents of Pre-school Deaf Children Support Group Supports any parent in Torbay with a pre-school deaf child, providing advice and peer support. No referral required.
Meeting venues: Watcombe Children’s Centre and Oldway Primary Sure Start. Times: Once every half term – contact Denise Tudor for dates and times. Denise Tudor (01803) 208248 or 07768 068288 [email protected]
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Positively Autistic A local support group for people caring for children or adults on the autistic spectrum but that also welcomes anyone else with a caring role. The group is currently mainly attended by parents with children or young people on the spectrum but all carers are welcome.
Meeting venue: Hannah’s at Seale-Hayne, Howton Lane, Newton Abbot Times: Last Monday of the month (except if it’s a bank holiday), 7.00 pm 07854 355659 [email protected]
Riviera Carers Provide support, information, a helping hand and a listening ear for carers of people with mental health conditions. Contact John Davidson for details.
John Davidson, 0300 555 5000 or 07909 873275
South Devon Aspergers Group Self help group giving help and support to Torbay, Teignbridge and South Hams families and their children with ADHD, Aspergers and Autism. Meetings provide guest speakers, an opportunity for group discussion and mutual support for parents, while children can take part in play/group work sessions.
Meeting venue: Kingsteignton Youth Centre, Broadway Road, Kingsteignton Times: Every Tuesday, 4.30 pm – 7.00 pm (during term times) for families with children aged 5 - 18. Cost: £5 per family per week. Claire, 07719 414729 www.asperations.co.uk
South Devon Dyslexia Association A Saturday morning Dyslexia Workshop for children and young people aged 7-18 with literacy difficulties. The workshop has been held for almost 40 years, and was founded by the late Trevor Ford, an Honorary Fellow of the British Dyslexia Association who was awarded BEM for services to special needs. The workshops are tailored to the individual’s abilities, following an initial assessment. The Association uses non-traditional methods of teaching and specialised educational software, Dyspell. The classes consist of small groups of four or less, can be taken for one or two hours and offer continuous encouragement. Please contact the Association for further information, including details of prices. Meeting venue: The Courtenay Centre, Kingsteignton Road, Newton Abbot Times: Saturday mornings, 9.00 am -12.00 noon (01803) 853190 [email protected]
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Stammering Support Groups for Children Groups for primary and secondary school children who stammer, giving them help and support. Please contact the Fluency Service in the first instance.
The Fluency Service: Jane Baker (adults and children): 07887 822204 or Emma Drummond (children): 07825 935368
Tissues and Issues (SEND Parents Support Coffee Mornings/HUB) Coffee mornings that provide an opportunity for parents, grandparents and carers who care for children who have additional needs or disabilities to get together and chat with others in a similar situation. It’s also a chance to make new friends and for your children to make new friends. The coffee mornings are open to parents, grandparents and carers living in Torbay and Devon, and the children they care for do not need to have received a diagnosis yet. There is a crèche and siblings are welcome. The group, which is supported by Torbay Parent Carer Forum, can be found on Facebook (please see below).
Meeting venue: Central Church (Morgan Avenue entrance), Tor Hill Road, Torquay TQ2 5RF Times: Usually second and fourth Tuesday of each month 10.00 am - 12.00. Please note that meeting dates vary - contact Jackie for details. Jackie, 07796 470009 https://www.facebook.com/groups/1998466853749511/
Torbay Children’s Centres - Special Needs Parents Support Groups Provides parents with emotional support in an informal setting and an opportunity to gain information and signposting advice. Also gives parents a chance to share experiences and reduce isolation. The children with a disability and their siblings are provided with a positive, stimulating and sensory play environment to enjoy and explore, helping children to achieve more.
Paignton venue: Parkside Children’s Centre, Victoria Park, Paignton Times: Fortnightly on Wednesdays (term time), 10.30pm – 12.00 noon
Torquay venue: Watcombe Children’s Centre, Moor Lane, Torquay Times: Fortnightly on Thursdays (term time), 1.00 pm – 2.30 pm.
(01803) 210200 (contact for bookings and further information) www.torbay.childrencentres.org
Torbay Mental Health Carers Support Group An informal group for carers and relatives of people with mental ill health. Offers emotional support, help in establishing social contacts and activities.
Meeting venue: The Chadwell Centre, Torquay Road, Paignton Times: Second and fourth Tuesday of every month, 5.00 pm - 7.30 pm. Dave Baker, Carers Development Worker, 0300 555 5000
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Torbay Older Family Carers Initiative (learning disabilities) Support for people aged over 60 caring for someone with a learning disability. Offers emotional support, help with accessing services and establishing social contacts and activities. Regular ‘tea and cakes’ meetings are held in Paignton, which include speakers on subjects relevant to caring and learning disability, as well as weekly drop-in sessions.
Meeting venue: Jasmyn House, Midvale Road, Paignton Times: Second Wednesday of every month, 10.30 am – 12.00 noon
Drop-in venue: The Carers Centre, The Drummond Suite, Paignton Library Times: Every Friday, 9.30 am - 12.30 pm (call in any time for coffee and a chat) Caroline Saunders, 07939 880092 [email protected]
Torbay Saturday Club (learning disabilities) Provides varied programme of activities & outings for children and young people with learning and physical disabilities. Covers ages 8-10 years and 11-17 years. 12 places a week available. By referral from care managers, health or other agencies.
Meeting venue: Torbay School, Paignton Times: Saturdays fortnightly (check with Co-ordinator for times) Sue Thompson, Co-ordinator, (01803) 206286
Torbay Young Carers Service Gives young carers (under 18) a break by working in an empowering and supportive way through group and individual activities (e.g. crafts, sport and play). Provides young carers with a range of services, including support at universal youth nights, young carers drop-ins around the Bay, befriending, activities, family events, one to one in-school support and school lunch clubs. Contact Torbay Young Carers for further details or to make a referral. NB. Self-referrals are accepted.
(01803) 208657 or 07786 856139 [email protected] www.torbay.gov.uk/young-carers
Torbay Young Adult Carers Provides advice, support and social activities for adult young carers – these are people aged 16-25 who are caring for, or helping to care for, someone who has a long term illness, disability, frailty, mental ill health or drug/alcohol problems.
(01803) 208455 [email protected] www.torbayyac.co.uk
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Torquay Carers Support Group The group is for all carers, no matter what the age, illness or disability of the cared for person. It offers a varied programme of events throughout the year, including a cream tea, bowling, trips out and occasional beetle drives. A small charge applies.
Meeting venue: The Olive Centre (back of St Edmunds), Victoria Park Road, Plainmoor, Torquay and other venues – contact Sally Corbishley for details. Times: Second Monday of each month, 2.30 pm – 4.00 pm. Sally Corbishley, Carer Support Worker, 07531 947687
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Patient Support Groups at GP Surgeries GP patient support groups generally rely on unpaid volunteers to provide their services. Services may therefore be subject to the availability of volunteers and limited to people in most need. The descriptions below offer an indication only of what may be available. You must be a registered patient of Chatto Road and Corner Place surgeries to be eligible for their patient support services but Karing is able to provide services to people who aren’t patients of Pembroke Surgery. Please note that only the GP surgeries listed have patient support groups.
Torbay GP Surgeries offering Patient Support Chatto Road Surgery (Chilcote Care) 104 Chatto Road, Torquay TQ1 4HY
Services: Transport (eg. to surgery and hospital) and sitting service.
Lys Rolls, Co-ordinator, Mondays, 9.30am - 11.30am, (01803) 316333.
Corner Place Surgery (Corner Care) 46a Dartmouth Road, Paignton TQ4 5AH
Services: Transport (eg. to surgery and hospital), befriending and outings.
07546 078822, Mondays to Fridays, 9.00 am - 4.00 pm.
Pembroke House Surgery (Karing Voluntary Group) Pembroke House Surgery, 266-268 Torquay Road, Preston, Paignton TQ3 2EZ Karing Voluntary Group, 260 Torquay Road, Preston, Paignton TQ3 2EZ
Services: Transport (eg. to surgery and hospital), social activities, events and outings for anyone who is older, frail or sick and lives in Paignton and surrounding areas. The charity is affiliated with Pembroke House Surgery but is able to offer services to people who are not patients of this surgery.
Monday to Friday, 9.00 am – 1.00 pm, (01803) 524799. [email protected] www.karing.org.uk
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User Involvement Groups Healthwatch Torbay Local consumer watchdog, influencing, responding, improving and monitoring health and adult social care services in Torbay. It provides local individuals and members of community and voluntary groups with a voice to influence the planning, purchasing and provision of these services.
Freephone 0800 052 0029 or write to: FREEPOST RTCG-TRXX-ZZKJ, Healthwatch Torbay, Paignton Library, Great Western Road, Paignton TQ4 5AG [email protected] or [email protected] www.healthwatchtorbay.org.uk
South Devon and Torbay Patient Engagement For an update on South Devon and Torbay Patient Engagement, please visit the website below or contact Jo Curtis for information.
http://www.southdevonandtorbayccg.nhs.uk/get-involved/Pages/participation-update.aspx
Jo Curtis, Patient Engagement Lead at CCG, (01803) 652475 [email protected]
SPOT (Speaking Out in Torbay) User-led group run by and for people with learning disabilities in Torbay.
07703 963358 or write to: SPOT, 2nd Floor, St. Edmunds, Victoria Park Road, Torquay TQ1 3QH
Torbay Dementia Action Alliance Alliance that is aiming to make Torbay a dementia-friendly resort by raising awareness of dementia amongst local retail businesses, the tourist industry, travel and public services.
Norman McNamara, (01803) 459290 [email protected] www.tdaa.co.uk
Torbay Dementia Leadership Group Peer group run by and for people with early diagnosis dementia, providing a regular forum for members to give their views on services and campaign for improvements where felt necessary. Membership of the group is by invitation through the Dementia Advisers.
Devon and Torbay Dementia Adviser Service, 0300 123 2029 (Monday to Friday, 9.00 am - 5.00 pm) [email protected]
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Torbay Older Citizens’ Forum (member of South West Seniors Network) An independent, voluntary, non-political watchdog group, which constantly monitors the local services that are available for older people (50+) in Torbay. The Forum holds regular meetings around Torbay to give members unique opportunities to present their views effectively. The group liaises with the local authority where there are concerns for older people and also lobbies councillors and MPs. Membership is free and new members are always welcome.
(01803) 212638 or write to TOCF, c/o Torbay Community Development Trust, 4-8 Temperance Street, Torquay TQ2 5PU [email protected] www.tocf.org.uk
Torbay Parent Carer Forum (previously Parent Participation Forum) The Torbay Parent Carer Forum works to improve the lives of children and young people in Torbay with special educational needs and disabilities (SEND). It consults with local parents and works in partnership with the local authority and Torbay and South Devon NHS Foundation Trust to improve provision for disabled children. 07773 929777 or write to PO Box 428, Paignton TQ4 9BJ [email protected] www.torbaypcf.org.uk
Torbay Voice A group of people who use, or have used, support services, involving them in service planning and selection. The group meets regularly at various venues around the Bay to feed back on the changes that they make to services.
(01803) 208128, 07917 265736 or 07810 654761 or write to: Torbay Voice, Tor Hill House, 2nd Floor South, c/o Town Hall, Torquay TQ1 3DS [email protected] www.torbayvoice.co.uk
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Other Titles in this Series Most sheets have many pages, and details change often. If you would like copies, please request no more than 5 titles at a time (further details on p.2).
Disability Support Series
Adult Abuse: how to raise your Concerns P35
Bathing and Showering P02
Computers P27
Continence Management P24
Domiciliary Care Agencies P05
Emergency Care For Pets P06
Equipment Centres P07
Equipment Hire and Loan Services (including wheelchair hire) P08
Family and Emotional Support Services P03
Finding Funding for Extra Needs P12
Gentle Exercise P22
Holiday Services (national contacts) P09
Home Maintenance Services and Building Adaptations P10
Home Visiting Services P23
Housework, Domestic Help and Laundry Services P11
Housing Options for Older People P25
Information, Advice and Advocacy Services P01
Keeping Safe and Warm at Home P13
Leisure and Day Opportunities P28
Meal Delivery Services P14
Motoring P17
Parking and Public Conveniences P15
Shop Delivery Services P16
Sitting Services P18
Sport and Outdoor Activities P34
Stairlifts and Vertical Lifts P19
Support for Adults with High Functioning Autism and Asperger’s Syndrome P33
Support Groups P21
Telecare (includes community alarm systems) P04
Transport Services P20
Caring Caring for an Adult with an Alcohol or Drug Problem P31
Care Home Series Care Homes - Day Care, Torbay C09
Care Homes: Dementia (residential and nursing), Torbay C06
Care Homes: Learning Disabilities, Torbay C05
Care Homes: Mental Health, Torbay C08
Care Homes: Nursing, Torbay C03
Care Homes: Paignton and Brixham C01
Care Homes: Torquay C02
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Further Information and Advice
Torbay Disability Information Service
Torbay Disability Information Service has been providing comprehensive information and advice to people in Torbay for over 21 years and we are a founder member of the Torbay Advice Network (TAN). Our service is open to any resident of Torbay affected by any type of disability. We also provide information to anyone working or caring for people with disabilities.
No referral is necessary. Simply call us on 0300 456 8373 or email us at [email protected] We offer:
• An enquiry desk service covering a wide range of topics related to disability support and independent living.
• Advice and guidance on disability-related social security issues, including benefit checks.
• Over 40 web-based information sheets covering the questions that we get asked most frequently.
• Appointments for help with social security forms (PIP, ESA, etc.) for people with diagnosed mental health conditions.
• An access point for the Mental Health User and Carer Involvement Worker (appointments only).
Opening hours: Monday to Thursday, 9.00am to 4.30pm; Friday, 9.00am to 1.00pm only.
Signposts for Carers
Signposts for Carers is Torbay’s dedicated telephone support service providing specialist information and advice to unpaid carers in Torbay. Contact Signposts in confidence to find out about services, equipment, benefits and rights. Support is available on a short or long-term basis. Opening hours: Mondays to Thursdays, 9.00am - 4.30pm. Fridays: 9.00am - 1.00pm.
Calls are diverted to a 24-hour staffed message taking service outside office hours. Your details and enquiry will be relayed to us and we will respond to your enquiry on the next working day.
(01803) 666620 [email protected]
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Was this information sheet useful?
We are keen to ensure that this information sheet is relevant to your needs and clear. We would be grateful if you would take a moment to answer the questions below and send your response to us either by email at [email protected] or by post. Our address is: Torbay Disability Information Service 4th Floor, Union House Union Street Torquay TQ1 3YA
Q: Where did you get this information sheet from?
Q: How old are you?
Q: Was the information easy to read and helpful? (Please tick one box only)
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Q: How might we improve it?
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Q: What local disability related support do you struggle to find out about?
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Note: Please contact us on 0300 456 8373 if you need help or have questions about the contents of this information sheet.
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Partners in Care Ref: DIS, P21 – April 2017
This document can be available in other
languages and formats. For more information telephone 0300 456 8373