suggestions on diabetes care

Children with Diabetes

Jeff HitchcockMarch 2010

CWD Teens at Friends for Life

www.childrenwithdiabetes.com

CWD History … or 15 years in 30 seconds

• Children With Diabetes (CWD) began in July 1995• First “Dear Dr. Hitchcock” email Nov 1995• Chat rooms 1996• First poll October 1998 (what glucose meter?)• First conference in June 2000• Quilt for Life 2002; DC June 2006, again August

2008• CWD Teen visit to Italy in 2004• Presentations in Dubai in 2007• Friends for Life 2007 hosted 2,500 people• Toronto 2007, first international conference• Now hosting over 25,000 visitors per day from over

155 countries monthly• April 2008 – CWD joins the Johnson & Johnson

Family of Companies• First Friends for Life UK conference in August 2009


CWD


Who Uses CWD?

• No registration, so all data is from polls asking users to describe themselves

• From Online Poll:– Parent of child with type 1: 69%– Adult with type 1: 9%– Teenager with type 1: 8%– Parents with type 1 & child with type 1: 3%

• Traffic from over 160 countries• Clear focus on type 1 diabetes


What’s Inside CWD?

• Over 33,000 pages• People

– Stories, polls, surveys, chat rooms, forums• Clinical information

– Diabetes basics, products, care suggestions, school & 504 plans

• News– “What’s New,” research updates, links to stories

• Email lists– Parents, geographical most used


CWD: Kids’ Stories


CWD Forums

• Giving users a voice– > 6,780 users– > 49,000 threads– > 559,000 posts

• Interesting discussions about daily care and social support issues

• Posts have an impact

Recent Poll – Nighttime Monitoring (non-CGM)



Conferences—the Heart of CWD

• Four to six conferences each year– “Friends for Life” annual

international conference in Orlando in July

– “Friends for Life” conferences in UK & Canada

– Two regional conferences, spring and fall

– January conference in Florida• World class faculty• Latest research and management

strategies• Most companies involved with

type 1 diabetes• Extensive social activities and

support• Scholarships through the

Diabetes Scholars Foundation (www.diabetesscholars.org)


CWD’s first “conference” – Orlando 2000

All the kids who had diabetes … about 65

Kids at Orlando 2000


Orlando 2001—The First Real Conference


Pasadena 2002—First West Coast Event


Orlando 2003—Will Cross Motivates


LA 2004—Douglas Cairns


Orlando 2005—Back to Orlando For Good


Orlando 2006—Chris Dudley


Orlando 2007—Louis


Orlando 2008—Faculty Posters, 1000 First Timers


Orlando 2009—PJ the Dog and More Grandparents


Friends for Life UK


http://www.childrenwithdiabetes.com/activities/uk2009/i/JH_20090815_DSC_5837.jpg


From around the world


Families


Scenes from Friends for Life


Quilt for Life

• Collection of 3’ quilt squares,

• 709 as of September 2009

• Shown at CWD’s Friends for Life conferences and in Washington, DC

Marco Island—CWD’s Slice of Paradise



Upcoming CWD Conferences

• 2010 – Friends for Life Annual International Conference 2010 at the

Marriott World Center Resort in Orlando, Florida (June 30 - July 4, 2010) – Friends for Life Canada 2010 at the Renaissance Vancouver Hotel

Harbourside in Vancouver, BC, Canada (August 27-29, 2010) – CWD Focus on Technology at the Renaissance Charlotte Suites Hotel,

Charlotte, North Carolina (September 3-5, 2010)– Friends for Life UK 2010 at the Beaumont House, Old Windsor,

Berkshire (October 29-31, 2010) • 2011

– CWD Family Support Weekend at the Marriott Marco Island Resort, Marco Island, Florida (Dec. 30, 2010 - January 1, 2011)

– CWD Focus on Technology at the Marriott Cincinnati North, West Chester, OH (March 25-27, 2011)

– Friends for Life Annual International Conference 2011 at Disney's Coronado Springs Resort in Lake Buena Vista, Florida (July 6-10, 2011)

– Friends for Life Canada 2011 at the Marriott Toronto Downtown Eaton Centre, Toronto, Canada, July 29-31, 2011

– CWD Focus on Technology at the Renaissance Seattle Hotel, Seattle, Washington (November 18-20, 2011)

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