shining a light on epilepsy epilepsy awareness
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Shining a light on epilepsy
www.epilepsy.ie
Epilepsy AwarenessEpilepsy Awareness
Shining a light on epilepsy
www.epilepsy.ie
• Epilepsy IrelandEpilepsy Ireland• EpilepsyEpilepsy
–DefinitionsDefinitions–Epilepsy FactsEpilepsy Facts
• Seizure ClassificationSeizure Classification–TreatmentTreatment
• First Aid for SeizuresFirst Aid for Seizures
Shining a light on epilepsy
www.epilepsy.ie
Epilepsy Ireland
•Founded in 1966•To provide information & support•Head office – Dublin + 10 regional offices
Shining a light on epilepsy
www.epilepsy.ie
SERVICESSERVICES INFORMATION– Booklets– Leaflets– Information Packs
Shining a light on epilepsy
www.epilepsy.ie
SERVICESSERVICES
SUPPORT– One-to-one consultation– Support Group Meetings
Shining a light on epilepsy
www.epilepsy.ie
Sign up for our Epilepsy Online Support Groups:
http://support.epilepsy.ie
SERVICESSERVICES
Shining a light on epilepsy
www.epilepsy.ie
AWARENESS• Information Stands
– Conferences– Health Promotion Events– Shopping Centres
SERVICESSERVICES
Shining a light on epilepsy
www.epilepsy.ie
EDUCATION• Epilepsy Awareness Presentations
– Schools– Employers– Health Professionals
SERVICESSERVICES
Shining a light on epilepsy
www.epilepsy.ie
• Specialist Nurse Telephone Helpline
Telephone Helpline(01) 4554133 Monday’s 9:30a.m.—1:00p.m.
SERVICESSERVICES
Shining a light on epilepsy
www.epilepsy.ie
• EpilepsyEpilepsy–DefinitionsDefinitions–Epilepsy FactsEpilepsy Facts
• Seizure ClassificationSeizure Classification–TreatmentTreatment
• First Aid for SeizuresFirst Aid for Seizures
Shining a light on epilepsy
www.epilepsy.ie
Definitions:Definitions:
Epilepsy - A tendency to recurring seizures which originate in the brain
Shining a light on epilepsy
www.epilepsy.ie
Definitions:Definitions:
Seizure: - A brief and temporary malfunction of normal brain activity
Shining a light on epilepsy
www.epilepsy.ie
Epilepsy Facts:
• 1 in 20 people have a single seizure during their life • In Ireland 1 in 115 people have some form of epilepsy• Epilepsy is more common in people with an
Intellectual Disability• Up to 70% of people can achieve seizure freedom with
preventative treatment• Sudden Unexplained Death in Epilepsy (SUDEP)
Shining a light on epilepsy
www.epilepsy.ie
Epilepsy Facts:
Causes –
40% - Structural damage• birth trauma, infections of the brain, injury, tumour, stroke
60% - No identifiable cause
Shining a light on epilepsy
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Partial
Generalised
AbsenceStaring and blinking
MyoclonicBrief jerking movements, usually of upper body
Tonic-clonicGoing stiff and falling – followed by convulsions (jerking movements)
TonicGoing stiff and falling but without convulsions
AtonicFalling limply to the ground
SimpleActivity while person is alert
ComplexActivity with change in awareness
Secondary generalisedActivity begins in one area and spreads
Shining a light on epilepsy
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Primary Treatment Options• Anti epileptic drug therapy
• Surgery
Secondary Treatment Options• Vagal Nerve Stimulator
• Ketogenic Diet
• Psychological
• Complementary therapy
Shining a light on epilepsy
www.epilepsy.ie
Some Factors which can Trigger Seizures•missed medication
•illness/infections - such as urinary tract/respiratory tract infections
•lack of sleep
•stress – including stress caused by constipation/pain
•heat
•boredom
•alcohol
•photosensitivity
•missing meals
Shining a light on epilepsy
www.epilepsy.ie
Dealing with a seizure situation:
• You can’t stop the seizure• Protect the person from any real or potential danger• If injured in any way administer first aid
Shining a light on epilepsy
www.epilepsy.ie
Dealing with a seizure situation:
Tonic Clonic Seizure Tonic Clonic Seizure - - DuringDuring
DODO• Note the time• Clear the space• Cushion the head
DON’TDON’T• Put anything in the mouth• Restrain movement• Move unless in danger
Shining a light on epilepsy
www.epilepsy.ie
Dealing with a seizure situation:
Tonic Clonic Seizure Tonic Clonic Seizure – – AfterAfter
• If person is still unconscious /drowsy put in the recovery position
• Stay with the person until fully conscious
Shining a light on epilepsy
www.epilepsy.ie
Dealing with a seizure situation:
When to call an ambulance• If it’s the person’s first seizure• If the seizure lasts longer than normal• If the seizure lasts longer than 5 minutes (when normal
duration is not known)• If one seizure follows another without recovery in between
Shining a light on epilepsy
www.epilepsy.ie
Dealing with a seizure situation:
When to call an ambulance• If you suspect head injury/concussion• If you suspect person has inhaled water• If you are worried about person’s colour/breathing• If directed by organisation
Shining a light on epilepsy
www.epilepsy.ie