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SBHANA Fall 2018 Newsletter

Hello SBHANA Members,

Happy Thanksgiving!! I hope that you have a wonderful turkey weekend filledwith relaxation, good food and great company.

I have an exciting announcement to make! We have set up the option to doInterac e-Transfers now with the SBHANA TD Bank account. This will makerenewing membership and paying for things so much easier in the future. Youjust need to use the email: info@sbhana.org to send the e-transfer to.

Also, I have been in the process of switching our mailing address over to ourOffice Address this past year. If you could make a note that our new mailingaddress is #400, 11010 - 101 Street Edmonton, AB T5H 4B9 when yousend in any future correspondence, then that would be more than appreciated.

We had a very successful fundraising season this year! Our raffle tickets werecompletely sold out and we brought in just under $10,000 to help supportSBHANA programming and services. Also, our Hope Classic this year broughtin around $19,000 after expenses were taken into consideration. Thank you'sgo out to SBHANA Summer Student, Geneva Coulter, and each and every oneof our SBHANA members who played such a big role in making this happen!You are absolutely amazing individuals!!

Sincerely,Spina Bifida and Hydrocephalus Association of Northern Alberta

YOU ARE INVITED tothe

SBHANA's AnnualFamily Christmas PartyWhen : Saturday, December 1,

2018 from 5:00 - 9:00 pm

Where : Kensington CommunityLeague (12130 - 134A Avenue

Edmonton)

What : We will have a deliciousChristmas dinner, a visit fromSanta, Christmas crafts and

activities, face painting, greatdoor prizes and socializing

followed by a dance.

Click here for ChristmasParty Invitation

2018 Volunteer Opportunities

KMS Tools Smokie SaleDate: November 15, 16 & 17, 2018

We will require volunteers to helpwith the barbecuing, serving, and

donation collection. All proceeds goback to the SBHANA!!!

We raised $1,400 from this smokiesale this past June, and thank you to

all of those who helped volunteer.

Please contact Danielle in theOffice at info@sbhana.org if you

are interested in helping volunteerat the November Smokie Sale.

SBHANA Family Christmas PartyDate: December 1, 2018

Volunteers are needed to helpprepare the meal in the kitchen, craftroom volunteers, welcome table andhosts, photographer and assistant,candy guess volunteer, and set up

and clean up.

If you would be interested in helpingout in one of the above mentioned

positions, then please contactDanielle at info@sbhana.org.

President's Messageby Cindy Smith

There are a few quotes that I findinspiring:“The root of happiness is altruism - thewish to be of service to others.” - DalaiLama“The best way to find yourself is to loseyourself in the service of others.” -Mahatma Gandhi “The world tells us to seek success,power and money; God tells us to seekhumility, service, and love.” - PopeFrancis

Life has been especially challengingfor me this past month, and it istempting for me to look inward and getsucked into a downward spiral ofdespair and self-pity. There are

certainly times when a good cry istherapeutic and it helps to talk aboutour problems. However, I find that themost sure way for me to lift myself outof depressing situations and difficultcircumstances is to have an outwardfocus. Opportunities to help others areall around us. We can participate inorganized efforts, like the picture hereof my kids volunteering as part of afood drive for the Strathcona FoodBank, or look for our own opportunitiesto help someone else in need. One ofour SBHANA members had beenrecovering from their own surgery atthe U of A Hospital and when theylearned that I was at the hospital withmy son, Daniel, for his first surgery,they popped down to day surgeryrecovery to say hello.

The smallest acts of kindness canmake the biggest difference: beingpatient with an overwhelmed storeclerk, being understanding of anexhausted nurse, a kindly said hello orsmile, a positive comment or like onsomeone’s Facebook status. The keyis looking outward. Something magicalhappens as we forget ourselves andthink of others.

Best Regards, Cindy Smith, President

Office Update

Program Manager - Danielle Schmidt

October has now graced us with her presence. Thechanging leaves are so breathtaking this time of year and italways just makes my heart so happy to see! As I take amoment to reflect back on the hecticness of summer, Irealize that I have now been working for the SBHANA forthree years now. Where has the time gone? It has been avery rewarding three years meeting all of you and getting toknow our SBHANA members better. We had quite thesuccessful fundraising summer with our smokie sale, sellingout all of our raffle tickets and having such a great Hope Classic event this year.Thank you all for making that possible!

I wanted to share a bit about my summer holiday to Vancouver Island. I haven'tbeen out to the Island since I was a child when we went there for BC Summer

Swimming Provincials, so it was like I got the chance to experience this beautifulplace for the first time. We were lucky enough to arrive at Parksville and Tofinoduring low tide... Wow, it was just mesmorizing to see all of the different sea lifethat was stuck in the tide pools and on the bigger rocks. We found starfish, sanddollars, jellyfish, seashells, gooey ducks, mussels, crabs, sea anenomes, and somuch more. It was like I had the chance to become a child again for a week andjust take in all of these wonders. "I'm still a kid inside, and adventure is adventurewherever you find it." ~Jim Dale

SBHANA

2018 Alberta Sledge HockeyDevelopment Camp in partnership

with the SBHANA & WheelchairSports Alberta

Support Fund Thank You

I would like to express my most sinceregratitude for approving the cloth diapers

for Brianna to the SBHANA committee. Wehave already received a few and are

awaiting the rest of the order.

Picture below: Brianna modelling her mostwonderful gift.

Kind Regards

Marie

On behalf of Wheelchair Sports Albertaand its board, I would like to extend ahuge thank you to SBHANA for thegenerous donation in support of the2018 Alberta Sledge HockeyDevelopment Camp. Without yourfunds, this camp may have never run.We would have had to charge ourparticipants a significantly higherregistration fee to compensate for thecost of this event. This increase in costwould have been a deterrent for someregistrants.Some highlights of the week were ofcourse the amazing coaching team thatprovided high quality skill developmenttraining with two ice times a day for thejuniors and intermediates. We also hada great opportunity to accessmultisport wheelchairs to playbasketball, rugby, dodgeball, quidditch,tennis and more in wheelchairs! Thisweek was a great opportunity for ourparticipants. A lot was gained in termsof confidence and competence withfundamental and tactical skills.We are pleased with the event and arelooking forward to planning for thecamp next year.Kind regards, Jen Sales

11th Annual Hope Classic:Run/Walk/Wheel

Thank you to our Silver Sponsor:

Camp Freedom

A Huge THANK YOU goes out to theEdmonton Public Teachers Local 37 ofthe Alberta Teachers' Association foryour generous support in helping makeCamp Freedom this past summer areality!

We had 23 campers attend our 18thAnnual Camp Freedom held out atCamp He Ho Ha. There was quite ahandful of new campers who came outthis year to experience camp asSpies/Secret Agents for the week outat Camp He Ho Ha. The week wasfilled with lots and lots of swimming,staying up late, an amazing scavengerhunt, and making many new friends!

“During the summer time I’m extremelylucky to have the option of going toCamp Freedom. Although this was onlymy first year I experienced many lifechanging activities including boatingand solving an incredible mystery.Boating was not a new concept for mebut it was something I’ve never done.At camp, I had the oppertunity of riding

The 11th Annual Hope Classic:Run/Walk/Wheel took place on SaturdayAugust 11th, 2018 at Rundle Park. We had80 participants who walked, wheeled, ran,or cycled the 5 km and 8 km routesthrough Rundle Park. With all your supportwe have raised over $19,000 for SpinaBifida and Hydrocephalus! We are sograteful for all of your hard work andeffort! Thank you to everyone whoparticipated, donated, or volunteered atthe Hope Classic this year! We are deeplygrateful for your generosity and hope youwill continue to support us.

The top individual fundraiser for theHope Classic this year was TysonBurgsma who raised over $6,000 forthe SBHANA! The top team fundraiserwas NoLimits team who raised over$3,000! Thank you to everyone for thefundraising you did, every little bit helps usto reach our fundraising goals.

Additionally, we would like to thank oursponsors, without whom such an eventwould not have been possible. Thank youfor your generosity and support: TheRunning Room, Pure Water Connection,Davids Tea, Vertically Inclined, Famoso,Gateway Entertainment Centre, T & T

a boat AND driving one. Most treasurehunts at other camps are extremelysimple but at camp freedom it tookmultiple tries but it was a real challengethat put my whole team at the edge oftheir seat. In conclusion, if you are ableto attend camp freedom be sure to doso, it changed me as a person to bemore helpful and created new bondsthat’ll last a lifetime."

~Evan

SB&H Awareness Raffle

With the support of everyone helping selland purchase the SBHANA Raffle Ticketsthis year, we were able to raise just under$10,000 to help the SBHANA continue toprovide services and support to peopleaffected by spina bifida andhydrocephalus!!!

1st Prize (WestJet flight for 2): MeganGergatz-McMorran2nd Prize (Weekend Getaway in theRockies): Britten Snatic3rd Prize ($500 Prepaid VISA): Jansi Jones

Thank you to our amazing raffle prizedonors:

Supermarket Inc., Edmonton Eskimos,Cookies by George, U of A DevonianGardens, Fantasyland Hotel, Superstore,CTV, Holes Greenhouses, Bell Media, HQSalonspa, Councillor Dziadyk, CouncillorWalters, Councillor McKeen, MLA NicoleGoehring, MLA Estefania Cortes-Vargas,MLA Lori Sigurdson, MLA Marlin Schmidt,MLA David Eggen, MLA Bob Turner, FredKatz Fine Art Photography, The OldSpaghetti Factory, Snow Valley AerialPark, Now! Radio Trucksicle, The Keg,Bennett Jones LLP, Cobs Bread, City ofEdmonton, Save On Foods, GoodlifeFitness, MacEwan University Sport andWellness, UA Local 488, Eco MedicalEquipment, ATCO Gas, Edmonton FireRescue, Finning, Sobeys, Inception PhotoBooth, Re/Max Edmonton and AreaAssociates, YMCA of Northern Alberta,Ken Stefaniszyn, Crave Cupcakes, Cakesand Cupcakes by Nicole, and GatewayRotary Club.

We would like to give a huge thank you toall our volunteers at the event; we couldnot have done it without you! Thank you:Kayla Gibb, Keaton Gibb, Chris Godbeer,Catherine Nowak, Dale Abraham, PatSchmidt, Ben Schmidt, Lynn Wade, RandyWolodchenko, Charlie Chupa, SamBiermann, Ben Biermann, Audra Bell, SofiaKhan, Salma Bamu, Kaleb Schmidt, DougMcEwen, Amy Nicolas, Fixihrie Dauti,Alyson Biem, Vanessia Baker, MargaretUshko, Axandra Coulter, LarissaHedstrom, Sophie Lawson, Monica Tungul,Teren Clarke, Cindy Stewart, SavannaStewart, Morgan Cathcart, Mark Ushko,Matthew Chevalier, Henriette Groeneveld,Kate Labahn, Natalie Buchsdruecker,Megan Gergatz-McMorran, ChrisMcMorran, Devon Rutledge, Ashton Selig,Debra Bosker, Alisha Ushko, JaniceCoulter, Andrea Lindemulder, ChadwellLoos, Jessica Laschuk, Gary Hung, andKen & Nicole Stefaniszyn.

A special thank you to Ashton Selig for thestunning pictures, Debra Bosker forleading a fantastic group warm up, and DJKris Gallinger for the awesome music!

SBHANA Summer StudentGeneva Coulter

2018 SBHANA ScholarshipRecipient

Congratulations Gbemiro Adegbuyi forbeing selected to receive the SBHANAScholarship this Fall. Gbemiro is in histhird year in the University of Alberta'sNutrition and Food Science Program.

"I hope to be involved in nutritionresearch on various topics such as theefficacy on community nutritioninitiatives, nutrition and cancer, as wellas agricultural aspects of nutrition."~Gbemiro

Updates & Opportunities

What does and ACCESSIBLECANADA mean to you?

Article from Current: The Magazine of

Hydrocephalus Canada Fall 2018.

Click the image to see the pdf.

Acknowledging Your Stress

Check out this article from Current: TheMagazine of Hydrocephalus CanadaFall 2018.

Click the image to see the pdf.

There is so much stress in the life of aparent of a child with special needs. This isnot news. We all are aware of how muchgoes in to just getting through every day.

Wheelchair Sports Alberta is putting on aWheelchair Curling Try It! Nov 3rd, 2018 atthe Avonair Curling Club in Edmonton!Enjoy a fun day of wheelchair curling andmeet two Canadian Olympic Medalists,Cheryl Bernard and Mark Kennedy.Instruction and games will be available andlunch will be provided for free!

Alberta Northern Lights WheelchairBasketball

Come out and Try: All people with andwithout disabilities welcome!

Contact Us:(info@albertanorthernlights.com), orcome to our Tuesday drop in practice.

Our wheelchair basketball programs are allinclusive and are generally broken downby age and playing experience.

We have athletes and coaches from theage of 5 to 55 and our programmingcovers all levels of skill, from developingathletes to Paralympic Medalists andWorld Champions.

Website:http://www.albertanorthernlights.com

SBHANA Buy & Sell

If you have any adapted items thatyou are looking to purchase or wouldlike to sell/donate, then you can send

in the information and we can helpget the word out there!!

SBHANA MembershipRenewal

Membership Fee: $10.00Memberships are for a period ofone year, from February 1st to

January 31st.

Please fill out the membershipform and send it back in to theSBHANA with your payment.

SBHANA MembershipForm

The SBHANA has now gotten with thetimes and joined the 20th Century.

We can now acceptInterac e-Transfers!!!!!!!!!

Just use the emailinfo@sbhana.org to send thetransfer.

No more having to figure out a way toget cash or cheques into the office,unless you would rather come stopby for a visit or get a stamp to send itin the mail.

The SBHANA's NEWMAILING ADDRESS:#400, 11010 - 101 StreetEdmonton, AB T5H 4B9

Spina Bifida & Hydrocephalus Association ofNorthern Alberta

#400, 11010 - 101 StreetEdmonton, Alberta

T5H 4B9

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