roke project by henna kosunen
DESCRIPTION
Developing the Availability and Quality of Diet Consultation for Coeliac Patients (ROKE Project ) 2009 – 4/2012TRANSCRIPT
Developing the Availability and Quality of
Diet Consultation for Coeliac Patients
(ROKE Project )
2009 – 4/2012
THE NEED FOR THE PROJECT
Problems with the Availability of Diet Consultation
1/3 newly diagnosed coeliacs do not have access to diet consultation
Variable Quality of Diet Consultation
– Content and methods of consultation
– Customer oriented approach?
Coeliacs want more information about gluten-free cooking, baking, hidden sources of gluten, eating out, travelling,adjustment to the disease ja effect on the life quality
Dietitians long for more information and support for the counselling
AIMS OF THE PROJECT
Influencing every coeliac patient must have access to diet consultation
– Good Treatment Guide: cosultation should be given twice during the first year, then if needed
Developing the Know How of dietitians
- Content, quality and customer oriented approach of the consultation
Reducing the risk for complications
- Preventing and mending poor diet therapy
Prevention of big national diseases
Producing tools to support professionals and coeliacs
- A guide for diet consultation, a brochure of a healthy gluten-free diet
AREA, WAYS AND TIME TABLE OF
IMPLEMENTATION
• A nationwide project for 2009 – 2011
• Influence targeted on the healthcare sector
• 2-day regional training sessions for dietitians
• Production of written and electric material
• Development of Diet Consultation Model together
with dietitians
RESOURCES AND COOPERATION
• Dietitian as a project manager
• Cooperation with regional dietitians, doctors and
psychologists (training days, production of materials)
• Cooperation with other patients’ organisations
(influencing work)
• Project funding from the Slot Machine Association
RESULTS
Developing the quality of consultation:
10 training days to update know how of dietitians and
coeliac nurses around Finland
Diet Consultation Model for the Coeliac Patient, 250 pcs
and 8 implementation sessions for dietitians in 2012
Brochure of healthy gluten-free eating
Similar consultation in all healthcare units
Nutrition Committee guidelines and
recommendations
230 dietitians using the extranet service for
dietitians
Cooperation increased with consulting dietitians
The Impacts of the Project in terms of
Quality
23.4.2012 Henna Kosunen/Finnish Coeliac Society
RESULTS Developing the availability of consultation:
Report on diet counselling of coeliac patients in
healthcare
4 audiences to hospital districts where dietitian’s
services are scarce
Seminar of the importance of diet therapy/counselling
for the decisionmakers
Lecture at the Parliament’s Coeliac Disease Network
Proposal to have diet counselling reimbursed by the
Social Insurance
Media coverage 12 articles in newspapers and
journals
Working Togehter with Patients’ Organisations to Improve
the Availability of Diet Consultation
23.4.2012 Henna Kosunen/Keliakialiitto
P2090588
23.4.2012 Henna Kosunen/Keliakialiitto
http://www.keliakialiitto.fi/liitto/toiminta/projektit/roke/
23.4.2012 Henna Kosunen/Keliakialiitto