registries presentation

8/9/2019 Registries Presentation

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Registries


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Introduction

2,500 years ago

•

Hippocrates (460 - 377 BC) – occurrence of disease

– environmental influences

•

Distinguis !et"een diseases tat are – #visited upon# a population (epidemic)

– #reside "itin# a population (endemic)$


3/15

%at&s a 'egistr

• *n organi+ed sstem for te collection, storage,

retrieval, analsis, and saring of information on

persons "o ave a disease, a condition tat

predisposes to te occurrence of a ealt-related event, or prior eposure to su!stances

(or circumstances) .no"n or suspected to cause

adverse ealt effects$ – use for surveillance and researc – purel descriptive and no intervention

– not a data!ase or medical record


4/15

'egistries and HI/

• HI/CH *ct of 1002 – *merican 'ecover and 'einvestment *ct

– *ccelerate te adoption of ealt information

tecnolog (HI/)

• C – use te most advanced ealt information

tecnolog – use te electronic ecange of ealt

information


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Benefits of 'egistries

• 5agnitude of a pro!lem

• Incidence of disease

• /rends of disease over time• Identifing groups at ig ris.

• Healt effects of specific eposures

• ource of clinical trials and

conducting researc


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CAIR~SDIR

ecure and confidential& saring of an

individuals immuni+ations

8atient, parents, and doctors can see info%at sots tat person as received

%ic sots are needed


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'egistries and 5eaningful 9se

Stage 1 - Menu Objective

– Capa!ilit to su!mit

electronic data to

immuni+ation registries

– 8erformed at least one

test of certified H'

tecnologs capacit to

su!mit electronic data

to immuni+ationregistries

Stage 2 - Core Objective

– Capa!ilit to su!mit

electronic data to

immuni+ation registries

– uccessful ongoing

su!mission of

electronic immuni+ation

data from Certified H'

/ecnolog to animmuni+ation registr


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'egistr tandards

• Immuni+ations – H:7 tandard

• vaccines administered

– H:7 Implementation pecifications• immuni+ation messaging

• ffice of te ational Coordinator for

Healt Information /ecnolog&s (C) – ffice of Interopera!ilit and tandards (I)

• meaning, structure, transport, securit, services


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Companies;tandards


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Barriers and Callenges

• Compleit and acceptance of tecnolog

• Developing te managerial and tecnical

capa!ilit to implement

• 'elia!ilit of te data

• "nersip of te data

•

:egal issues• ecurit and accessi!ilit

• Cost of implementing and maintaining


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'egistr =uture /rends

• Better patient and outcome trac.ing

• Improved "or.-flo" efficienc

•

Higl functional, multi-disease tools• Data from eisting H'

• 9se registries for proactive population

ealt management• 8atient-centered interactions and

participation


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Defense and >eterans Brain In?ur Center

• 'egistr and trac.ing militar personnel

and veterans "it /BI$

• Clinicians report to a central registr$

• 5edical centers collect emergenc

department and outpatient visits$ – o!tain appropriate services

– receive follo"-up clinical contacts, and

– receive appropriate educational materials$


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/a.ea"as

• *n organi+ed sstem for te collection, storage, retrieval,analsis, and saring of information – not a data!ase or medical record

– use latest and most advance HI/ @ HI

– source of clinical trials and conducting researc

– secure access for patient, parents, and doctors

• 5eaningful 9se – successful ongoing su!mission of electronic data

• tandards – meaning, structure, transport, securit, services

• Callenges – developing te managerial and tecnical capa!ilit to implement


14/15

:in.s

HH$gov• Department of Healt and Human ervices

HealtI/$gov

• Healt Information /ecnolog

C5$gov• Centers for 5edicare @ 5edicaid ervices

H' - 5eaningful 9se (


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mpo"ering 8atients

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