qof life nmd
DESCRIPTION
ERCA Stressa 3-4 April 2009TRANSCRIPT
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“Neuromuscular disorders - how to improve quality of life in patients with neuromuscular disease”
Joan Escarrabill MDMaster Plan of Respiratory Diseases (PDMAR)
Institut d’Estudis de la Salut
Barcelona
Stressa, April 4th 2009
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MJA 2003; 179: 253–256
“more expert” patients To develop common ground. Patient autonomy: “fully informed choice”
...re-organising healthcare systems to maximise the partnerships of patients and doctors in managing chronic disease.
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Health care system
Direct access to the team
Waiting time
Fragmentation
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Working for patients on home mechanical ventilation
Organized by: With the contribution of:
Welcome Benvinguts Bienvenidos
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Technological innovation
Care & organization
Real life
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Quality of life
Autonomy: to decide
Mobility
Social networks
Caregiver support