public health data standards consortium

Public Health Data Standards Consortium http://phdatastandards.info

http://phdatastandards.info/

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PUBLIC HEALTH DATA STANDARDS CONSORTIUM ~ 2005 BUSINESS MEETING OF MEMBERS ~

May 24, 2005, Washington DC

Report on the Consortium’s Activities

Anna O. Orlova, PhD

Executive Director

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PHDSC – Membership StructureFederal Agencies (22%)

State and Local Agencies(22%)National ProfessionalOrganizations (17%)Other ProfessionalOrganizations (9%)Academia (9%)

Supporting Members (9%)

Individual Members (12%)

Federal Agencies (16%)

State and Local Agencies(19%)National ProfessionalOrganizations (13%)Other ProfessionalOrganizations (16%)Academia (6.5%)

Supporting Members(23%)Individual Members (6.5%)

2004

2005

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PHDSC Activates on Electronic Health Record

(EHR)Dec-March 04PHDSC Ad Hoc Task Force on

Electronic Health Record-PublicHealth (EHR-PH) to validate Health Level 7(HL7) EHR Functional

Model

July-Dec. 04 Pediatric EHR – Public Health Perspectives. Contract from HRSA

Jan-Feb. 05 Demonstration of Interoperability Across Clinical and Public HealthSystems via EHR, HIMSS-2005

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WHITE PAPER on Electronic Health Record: Public Health

Perspectives(EHR-PH)

March 2004

Purpose: (1) to communicate to the public health community

a need for broader involvement in the national effort to standardize clinical and public health data and information systems, and

(2) to describe public health perspectives on the EHR.

PHDSC Ad Hoc Task Force on

Electronic Health Record-Public Health (EHR-PH)

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Goal is to contribute to the definition of and development of the pediatric EHR from public health perspectives (PEHR-PH).

The PEHR-PH is seen as a two way clinical and public health information interchange for the purpose of providing the best health care service to children.

PHDSC Project on Pediatric Electronic Health Record-Public Health (PEHR-PH) Funded by HRSA

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PHDSC Project on Pediatric Electronic Health Record-Public Health (PEHR-PH) Funded by HRSA

Pediatric EHR-PH Timeline

-9mo

Birthday

2w 2mo 6mo 1y 5y 21y

Healthcare Visit Data

Health Report to Dept. of Education

Project Timeline

Children with Special Needs CareNewborn Screening

Immunization

Growth & Development

Chronic Disease Care

Public Health Data

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Cross-mapping of Clinical and Public Health Data

ROUTINE VISITS OF WELL CHILD CARE; AGE 0-6mos and at 5y

8 CLINICAL FORMS (Hospital of Birth; Outpatient Pediatric Clinic – Johns Hopkins Hospital)

7 PUBLIC HEALTH FORMS (State Health Department – Maryland State Department of Health and Mental Hygiene)

1st Newborn Metabolic Screening Hearing ScreeningImmunizationBirth Defect FormVital Registration2nd Newborn Metabolic ScreeningChild Health Inventory (5 years of age)

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Cross-mapping of Clinical and Public Health Pediatric Data

Clinical system is a significant source of data for pediatric public health systems

59% data concepts used in clinical care maps to public health data needs

Significant redundancy can be overcome if EHR systems will populate public health programs

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Current Workflow for Data Interchange between Primary Care and Public HealthPatient Health Care Provider Public Health Agency

Newborn Screening Registry

Receive the form

Verify data on the form

Enter data to PH DB

Verify data entry

Manage data in PH DB

Analyze data

Create the formPatient Record

Record data on the form


Enter data to PH DB

Verify data entry

Manage data in HCP DB

Generate reports

Create the form

Immunization Registry

Receive the form


Enter data to PH DB

Verify data entry


Generate reports

Create the form

Hearing Registry

Receive the form


Enter data to PH DB

Verify data entry


Generate reports

Create the form

Communicable Disease Registry

Receive the form


Enter data to PH DB

Verify data entry


Generate reports

Create the formGenerate reports

Analyze data

Analyze data

Analyze data

- Actions related to services

- Actions related to data management

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EHR-based Workflow for Data Interchange between Primary Care and Public Health

Patient Health Care Provider Public Health Agency


Analyze data

Retrieve Data from EHR DB

Generate reports

Create the form

EHR System

Record data on the form


Enter data to HCP DB

Verify data entry

Manage data in HCP DB

Create the form


Create the form

Hearing Registry

Create the form


Create the form

Analyze data


Generate reports

Analyze data


Generate reports

Analyze data


Generate reports

- Actions related to services

- Actions related to data management

Generate reports

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Public Health Vision for Interoperability across

Different Systems:

Building EHR-PH System Prototype Public Health

Newborn Screening Program

Hearing Screening Program

Immunization Program

Clinical Care

Communicable Disease

Reporting Program

EHR-PHDATA

EXCHANGE


Hearing Screening Registry



PatientPersonal Health Record

Health CareProvider 2



Laboratory

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Clinical Care

ADT-Birth Record

Newborn Screening Test

HearingScreening Test

Immunization Administration

External Laboratory

Hospital of Birth

HL7 2.4

HL7 3.0

HL7 3.0

HL7 2.4

HL7 2.4

Public Health

EHR-PHInfo

Exchange

NewbornScreeningRegistry

Hearing

ScreeningRegistry

ImmunizationRegistry

CommunicableDiseaseRegistry

State Health Department

HL7 3.0

HL7 3.0

HL7 2.4

J2EE

PHDSC EHR-PH System Prototype for Interoperability of Clinical and Public Health Systems, HIMSS-2005

Source: Orlova, et al. HIMSS 2005,Dallas TX, February 13-17, 2005

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EHR-PH System Prototype for Interoperability in 21st Century Health Care System

Our Prototype illustrates how interoperability between healthcare systems can be achieved with a standards-based infrastructure Is built upon existing systems in clinical care and public health programsEnables electronic data reporting from a clinical setting to multiple public health systemsEnables translation of customized standards into HL7 3.0 messaging standardLinks clinical and public health systems to provide a continues view of the patient record across the systems involved

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EHR-PH Demonstration: Partners

DESIGN

DEPLOYMENT

w w w .m d l o g i x .c o mM edica l D ecision L ogic, Inc.

LDM

O G I XT M

Slide 15

¤ NEWBORN SCREENING

¤ HEARING SCREENING

¤IMMUNIZATION

¤COMMUNICABLE DISEASE REPORTING

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EHR-PH Demonstration: Design Development

Laboratory

NEDSS Comparability

CDC

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Acknowledgements

Dr. David Ross, Director, Public Health Informatics Institute

Health Resources and Services Administration (HRSA) Ms.Jessica Townsend and Dr. Michael Millman, Office of Planning and

Evaluation & Dr. Marie Mann, Genetic Services Branch, Maternal and Child Health Bureau

Technical Panel Dr. David Hollar, University of Tennessee Graduate School of Medicine Dr. Harold Lehmann, Dept. of Pediatrics, Johns Hopkins Medical Institutions Dr. Christoph Lehmann, Dept. of Neonatology, Johns Hopkins Medical

Institutions Dr. Susan Panny, Director, Office of Genetics and Children with Special

Needs, Maryland State Department of Health and Mental Hygiene Dr. Phillip Gioia, President, Children Health Specialists, Inc., and Cayuga

County Health Department Dr. Paul Biondich, Regenstrief Institute, Inc. and Department of Children’s

Health Services

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Acknowledgements

EHR-PH Demonstration

Ms. Michelle Williamson, National Center for Health Statistics

Dr. Michael Higgins and Mark Dunnagan, Oracle Dr. Allen Tien and Steven Beales, Medical Decision

Logic, Inc. Drs. Terese Finitzo and Ken Pool, OZ Systems Mr. Todd Watkins, Science Technologies Corporation

Special Thanks to Dr. Steven Steindel, Centers for Disease Control and

Prevention Dr. Eillen Koski, QuestDiagnostics, Inc.

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RESPONSE TO THE REQUEST FOR INFORMATION

on the Development and Adoption of a National Health Information Network

from the Office of National Coordinator for Health Information Technology (ONCHIT),

Department of Health and Human Services;

Released on November 15, 2004

PHDSC Committee on a National Health Information Network

Submitted to ONCHIT on January 18, 2005

public health data standards consortium

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