psc research network a collaborative application with google health
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PSC Research Network
A Collaborative Application with Google Health
![Page 2: PSC Research Network A Collaborative Application with Google Health](https://reader035.vdocuments.mx/reader035/viewer/2022062423/5697bfc31a28abf838ca56ac/html5/thumbnails/2.jpg)
Barriers to PSC Database
•Most patient databases are University Hospital based
•Limited access outside of urban areas
•Limited number of PSC Research Centers
•Requires referral from community providers
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Internet-based Patient-Centered Database
• Pros
• Accessible to patients regardless of location
• Optimize linkage between patients and researchers
• Inexpensive
• Cons
• Accuracy/Completeness of patient-entered data
• Acceptance by patients
• Privacy/Security/Administration of Data
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4T. Hill, PSC - Google Project, Jan. 2010
PSC-RN - Purpose and Goals•Purpose : To establish a robust collaborative community for PSC researchers and patients, using Google Health and Google Apps Engine to build new applications software
•Goals:
•To discover definitive factors in a researcher – patient collaborative community
• Identify necessary services for patients to participate in the research process (trial design, recruitment, participation, monitoring)
•To characterize the most productive interactive services between patients during the research process
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PSC-RN
•Patients
• Demographics, specific symptoms, history, tests results
• Upload scanned files
• Notification of clinical trials (via ClinicalTrials.gov)
•Researchers
• Search aggregate data
• Download de-identified data
•Administrator
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Project Status
•Proposal approved by the TIDES Foundation Grant Awards Panel – Dec. 2009
•During 1st Half of 2010, needs requirement specification written.
•Design specification completed and programming started June 2010.
•Prototype by Oct 31st of this year.