AdvAncing QuAlity of lifethe next PcfA national conference, Advancing Quality of life, will be convened on the gold coast from friday 6 to Sunday 8 August 2010. Bringing together leading Australian and international speakers, the conference will showcase the latest developments in prostate cancer research, management, health promotion, treatment and support.

The conference will have designated streams for scientific research, clinical developments, support group instruction and healthcare professional training. Confirmed key international speakers include:

• DrJohnMulhall,amicrosurgeonandspecialistinsexualandreproductivemedicinefromMemorialSloan-KetteringCancerCentre.DrMulhallistheauthoroftherecentlyreleased book Saving Your Sex Life: A Guide for Men with Prostate Cancer.

• DrPeterScardino,asurgeonwhoistheheadoftheProstateCancerProgramattheMemorialSloan-KetteringCancer Centre, who along with other colleagues has pioneered the use of statistical models to predict the natural progression of prostate cancer and how it will respond to treatment.

• MrVirgilSimmons,founderofProstateNetintheUSA,whose innovative approaches to health promotion (using barbers and other networks to convey health messages) have been used as models in numerous countries around theworld–includingAustralia

ThecombinedmeetingoftheAustralianCanadianProstateCancerResearchAllianceandtheAustralianProstateCancerResearch Centre, Queensland will be held as a satellite to the main conference.

“Weareveryexcitedattheprospectofconveningaconference that could deliver so much value across a range ofareas,”saidPCFACEO,AndrewGiles,

“AsthepeakAustralianbodyinprostatecancer,wefeelveryprivileged to be in a position to facilitate a meeting among key stakeholders in research, healthcare professional education, support groups and health promotion.

“In 2008 we brought all these players together for the first time. In 2010 we will be using the meeting as an opportunity to map a way forward for dealing better with prostate cancer in Australia.”

Register online by following the links at www.prostate.org.au, emailingconference@prostate.org.auorcallingthePCFAConference Hotline – 1800 668 137.

ProStAte newS March 2010

41ISSUE

Chairman – graeme Johnson

Deputy Chairman – david Sandoe oAM

Finance Director – chris Hall

Research Chairman – Professor John Mills

Medical Specialists – Associate Professor Phil Stricker, Professor tony costello

Support and Advocacy Committee Chairman – david gregory

Rotary – John Palmer

State Chairmen – tony Sonneveld (nSw), david curtain, Qc (vic), Jim freemantle (wA), Jim Hughes (Qld, SA, tAS)

Independent Directors – Professor dexter dunphy AM, Anita Ziemer, Patricia watson, Jim o’ryan

David GregoryNationalBoardMember

DavidGregoryarrivedinSydneyfromBritainin1965andspenthiscareerinvarioushigh-levelsalesrolesinthefoodserviceindustry.Afterbeingdiagnosedwithprostatecancerin1999he successfully underwent a radical

prostatectomyinFebruary2000.Adecadelater,therehasbeenno apparent recurrence of the disease.

Afterthislife-changingexperience,in2001DavidretiredtoHobart, although he soon emerged from retirement to work at a friend’s food brokerage until 2008. He then decided to offer his servicestotheCancerCouncilTasmania,andinDecember2008heattendedaconferenceofPCFA’sVictoria/Tasmaniachapter.SincethenDavidhastakenonthepositionsofconvenoroftheHobartSupportGroup,DeputyChairoftheVictoria/TasmaniaChapterCouncilandTasmania’srepresentativeontheSupportandAdvocacyCommittee(SAC).

‘I’mpassionateaboutPCFAbecauseitneverlosessightofthereasonsforitsexistence,whicharetosupportmensufferingfrom prostate cancer and their families, to increase awareness of the disease and to raise funds to further prostate cancer research,’saidDavid.

InJanuary2010DavidwaselectedasSAC’sNationalChair,which involves keeping communication lines open between PCFA’ssupportgroups,statechaptersandnationalboardtoensure the needs of support groups are met. ‘The most rewarding thing about being involved in support groups is to see men come to their first meeting and realise they’re in a roomful of people who have gone down the same pathandthatthereissupportavailabletothem,’Davidsaid.

froM tHe ceo

2PROSTATENEWS

nAtionAl BoArd

2010 got off to a flying start with thevisitbyDrCharles‘Snuffy’Myers.PCFAwashonouredtobeabletobringDrMyerstoAustraliato provide new insight into how we should be approaching treatment for advanced prostate cancer. Close to 1,000 people attended the three public seminars givenbyDrMyers,whoalsomet

withurologistsandoncologistsinSydneyandBrisbane.

InthelastweekofFebruary,PCFAwasdelightedtoassistwiththelaunchbyGeneralPeterCosgroveACMC(Retd)ofthethirdeditionofAssociateProfessorPremRashid'sProstatecancer:YourGuide.Thebook,whichwaslaunchedinpartnershipwithAndrologyAustraliaandtheUrologicalSocietyofAustraliaandNewZealand(USANZ),aimstoreducelingeringuncertaintyaboutthedisease, testing and treatment options and to help families cope with a diagnosis.

Thefirsttwomonthsof2010alsosawPCFAbenefityetagainfromtheCommonwealthBank’sHittingCancerforSixcampaignwherethebankdonates$1,000foreverysixhitinthe2010cricketseries,tobedividedbetweenPCFAandtheBreastCancerInstituteofAustralia.Astheseriesdrawstoaclose,over$49,000hasbeenraisedfromthematchesagainstPakistanandtheWestIndies.SincetheCommonwealthBanklaunchedthefundraisingprogramin2006,morethan$105,000hasbeendonatedtoeachorganisation – along with a fantastic increase in awareness.

With three such high profile events in the first two months,2010isshapingasamajoryearforPCFA–thehighlight being our 2nd International Conference on 6–8 August.

I hope to see you there.

AndrewGiles

Men’se-HealthNetwork(MEHN),aunique,interactiveAustralianwebsitewhichfocusesspecificallyonmen’shealthissues,waslaunchedinJanuarytohelpAustralianmenfindaccurate health and lifestyle information and seek support when they need it.

TheprogramhasbeendevelopedbyPCFAandtheVarioHealthInstitute(VHI)atEdithCowanUniversity,throughfundingfromtheAustralianGovernmentDepartmentofHealthandAgeing‘HealthyActiveAustralia’CommunityGrant.

AccordingtotheVarioHealthInstitute’sDirector,ProfessorRobNewton,it’snotsomuchthatAustralianmenareindifferenttotheirhealth,butthathavingmedicalcheck-upsissomehow, a sign of weakness. ‘They won’t go to see a doctor untiltheyarefairlyill,andbythentheconsequencesareoftenmuch worse,’ he said.

‘In this way, men’s health really lags behind women’s health. Women pay attention to what is happening with their bodies and they have regular health checks – that’s how you notice when something has changed – and that’s one of the main reasons women live longer than men. Health problems can affect anyone, but early detection is essential for the best outcomes.’

Statisticsshowthataroundfivemaledeathseveryhourarepreventablebymakinglifestylechanges.ThenewMEHNwebsite aims to reduce this by making it easier for men to

access the best and latest healthcare advice on the full range of men’s health issues, from drugs and alcohol and weight problemstoprostatecancerandsexualhealth.Asidefrominformationonhealthchecks,exercise(includingwheretofind local facilities), nutrition and mental wellbeing, there areexerciseprograms,self-organisationtoolsandahealthassessment and health check log book, as well as opportunities to talk with other men who are doing the same thing.

‘Menknowhowimportantitistoserviceacar,tofindproblems before they cause damage. This works the same way. With the log book you register your height, weight, whether you have gone for regular blood tests and other checks. The website tracks your progress. Importantly, it can also put you in touch with other men who are also trying to have better health andabetterqualityoflife,’saidProfessorNewton.

ThemainaimoftheMEHNwebsiteistogetmentoincreasetheir activity levels, enjoy healthier diets, speak out about troubling issues and consult a healthcare professional when they need to. ‘The greatest advantage of an online resource like this is that it overcomes barriers like cost, opening hours, inconvenient locations, transport, as well as men who may be embarrassed or don’t like to be seen getting help. It’s especially helpful for men in rural areas who find it hard to get to a doctor or allied health professional.’

TheMEHNwebsitewillalsohelpdelivernewresearchintowhat impact online resources can have on men’s health. ‘The statistics we get from the website, which are made anonymous to protect the privacy of anyone who uses the site, will also tell us a great deal about how men use the site and how we can improvethisservice,’saidProfessorNewton.

‘Eventhoughit’sonlybeengoingsinceJanuary,we’rereallyheartened by the rate of men signing up to use the service and by the way they are talking with other men online. In the end, if themenwhousetheMEHNwebsitejustgototheirGPtwicea year, that would be a great outcome.’

Visitwww.mehn.org.au

NB:ProfessorRobNewtonisamemberofthePCFAResearch Committee.

PROSTATENEWS3

new Men’S e-HeAltH network

Men’s eHealth Network

Get info here

Register here

Funded by Australian Government Department of Health & Ageing Active Community Grant

Take charge of life

to join the MEHN Community

exerciSe to wArd off tHe BlueSAnyonewhodoesregularexercisewillbefamiliarwiththestress-relieving benefits of a good workout. In recent decades, those instant mood-boostingendorphinsfromphysicalactivityhavebeenproventohavelong-termadvantagesformentalhealthandwellbeing.

DepressionisacommonhealthproblemthataffectsoneinsixpeopleinAustralia.Itaccountsformoredaysoflostproductivitythan any other illness – including cancer and heart disease – and can seriouslyaffectthequalityofaperson’slife.Researchshowsthatregular physical activity can reduce the risk of developing depression and improve low mood.

There is no single cause of depression and although certain people are more at risk of developing it (ie those with a family history of mental illness or people with a chronic illness), it can occur in any person at any time. The good news is, with effective treatments such ascounsellingand/ormedication,mostpeoplerecover.Thereisalsostrongresearchevidencethatconfirmstheimportanceofexercisefor the prevention of depression.

AccordingtoDoctorNicoleHighet,apsychologistanddeputyCEOofbeyondblue: the national depression initiative, ‘When people exercise,endorphinsarereleasedinthebrain,whichhaveapositiveimpact on lifting mood. In addition to improved mood, people who exercisereaptheoverallphysicalbenefits,asenseofachievementand potential social benefits from meeting others at a gym or through sportsorfromexercisingwithfriends–allofwhichplayanimportantrole in preventing depression.’

Formoreinformation,see‘KeepingActive’-FactSheet8,at www.beyondblue.org.au or phone1300224636.

Quick fActS• Regularaerobicandstrength-trainingactivitiesoflightormoderateintensitycanresultinuptoa50%reductioninsymptomsofdepressionandanxiety.

• Jogging,weightlifting,walking,stationarycyclingandresistancetraining (pushing or pulling weights with arms and legs) have all been found to be helpful in preventing or treating mild to moderate depression.

• Inolderpeople,regularexercisehasbeenfoundtobeashelpful as antidepressant medication or social contact in treating depression.

• Theeffectsofphysicalexercisecanhelpmentalhealthinanumber of other ways, including healthier sleep patterns, an increase in energy and increased social contact.

With beyondblue and the Rural Health EducationFoundation,PCFAhasproduced an accredited education program for health professionals which willbebroadcaston18MayacrosstheRuralHealthEducationFoundation’ssatellite network of more than 660 sites.Theone-hourprogramaimstoassist health professionals to identify the links between depression and anxietyandprostatecancerandtoprovide information about how best to support families and carers of men with prostate cancer. It is also available via video web streaming and audio podcast at www.rhef.com.au.

Formoreinformation, visit www.rhef.com.au, www.beyondblue.org.au or www.prostate.org.au.

4PROSTATENEWS

PROSTATENEWS5

Movember2009wasarunawaysuccessasmenaroundtheworld gave their razors a rest and grew their moustaches to raisemoneyandawarenesstosupportmen’shealth.Nowinitsseventhyear,Movembercontinuestoencouragementotalkabout their own health issues, while helping to further the vital workofPCFAandbeyondblue in fighting prostate cancer and male depression.

In2009therewereover125,000registeredMovemberparticipantsinAustralia,contributingtotheamazingtotalofover255,000participantsworldwide.DuringthemonthofNovember,Aussie‘MoBros’andthewomenwholovethem(alsoknownas‘MoSistas’)helpedthecausebyhostingMoTownandMoOfficepartiesandencouragingtheirfriends,familiesandcolleaguestodotheirpart.Andasalways,thecelebrationsconcludedwithhugeGalaPartiesineachAustraliancapitalcity,asMovembersupporterscameindrovestoshowofftheirwildcostumesandinnovativemo-growingefforts.

Movember’ssuccessislargelyduetoitsfunandinclusiveapproachtoraisingawareness.Manymentaketheirhealthforgranted and are often reluctant to talk about their health issues orseekmedicaladviceonanyproblemstheymaybefacing.Andwithover18,000Australianmendiagnosedwithprostatecancereveryyear,andoneineightmenexperiencingdepressionduringtheir lifetime, these issues are simply too serious to ignore.

‘OneofthehighlightsofMovember2009formewastheinspirationaleffortofParalympianKurtFearnley,’saidLukeSlattery,co-founderofMovember.‘WhilesportinghisMo,Kurt

crawledtheentirelengthoftheKokodaTrackwithfriendsandfamilyalongsidehim.Notonlydidheraiseasignificantamountofmoney, but he also gave men’s health an unparalleled awareness boost and demonstrated what can be achieved when men help and look out for each other.’

In2009anumberofAussiecelebritiesgavetheirtime–andtheirmoustaches–tohelptheMovembercause.CricketlegendsandMoMentorsMaxWalkerandDennisLilleeledthechargeandencouragedsportsstarsfromrugbyleague,AFL,A-Leaguesoccer,basketballandhockeytoparticipate,whileotherhigh-profilesupportersincludedV8supercardriverPaulDumbrell,surferTomCarroll,membersofrockbandPowderfinger,formerChoirboysfrontmanMarkGable,andEricRipper,WesternAustralia’sLeaderoftheOpposition.

‘We’re incredibly lucky with the support we receive from our ambassadors each year as they are invaluable in helping us to raise much needed awareness in the fields of business, music, sport,politicsandthemedia,’saidLuke.

‘EveryoneinvolvedwithMovemberisreallyproudofwhatwasachievedin2009,’Lukesaid.‘ThehundredsofemailsandcallswereceivedleaveusinnodoubtthatMovemberishelpingtomakeadifferencetolives.Menofallagesgetinvolvedeachyear and, alongside fathers, sons, brothers, colleagues and mates, are beginning to talk about and deal with their health in a more proactive way. Witnessing this change in behaviour each yeariswhatMovemberismostproudaboutandwhatwearedetermined to keep growing.’

MoveMBer StrikeS AgAin!

new AdvAnced ProStAte cAncer guidelineS

dr ‘Snuffy’ MyerS SPeAkS on AdvAnced ProStAte cAncer

PcfA congratulates all the national Men’s Health Ambassador Speakers who have contributed to the stunning statistic of speaking to 30,000 men and women across Australia on prostate health and continence health awareness. the national Men’s Health Ambassador Speaker program is sponsored by the Australian government department of Health and Ageing and has surpassed its target of reaching 19,200 people by June 2010.

QueenslandNationalMen’sHealthAmbassadorSpeaker,TrishSorbello(centre)inagreat community partnership withBreastScreenQueensland(LizPrestonleft)andQueenslandBowelCancerScreening(RobynNikolskyright),raisingawareness of prostate, bowel and breast cancers at theMackayPoliceStation.

Prostatecancersurvivor,QueenslandNationalMen’sHealthAmbassadorSpeaker,RossGomersallispassionateabout spreading the message of prostate health and continence health toallmeninAustralia.

Alongwith10otherAboriginalmen,MickPittman,lastyearcompletedtrainingtobecomeaNationalMen’sHealthAmbassadorSpeaker,alongwithhisroleasaNSWAboriginalLiaisonOfficerforWorkCover.HispersonalexperiencewithprostatecancerhelpsMicktoeducatemenaboutprostatehealth and continence health.

AMBASSAdorS SPeAk to 30,000 PeoPle AcroSS AuStrAliA!

InlinewithNationalHealthandMedicalResearchCouncil(NHMRC)ClinicalPracticeguidelines,weatPCFAbelievethatconsumers should be informed progressively on all stages of advanced prostate cancer and the treatments appropriate for each stage, to allow us to be better informed about treatment options and to participate meaningfully in making choices that are right for us.

WiththeAustralianCancerNetwork(comprisingmorethan70 interest groups from basic science through medical and nursingcaretopublichealth),theAustralianProstateCancerCollaboration and health care professionals, members of the ProstateCancerSupportGroupshaveworkedtoproducethenewAdvancedProstateCancer:aguideformenandtheirfamilies.ThissupplementsLocalisedProstateCancer:Aguideformen and their families which was first released in 2001.

This very comprehensive publication is available online at www.pcfa.org.au. It will assist men and their families or carers who have an interest in understanding prostate cancer and its progression; treatment choices for locally advanced and metastaticprostatecancerandmakingchoicesthatmaximisetheirqualityoflife.Itisnotmeantformendiagnosedwithlocalised prostate cancer.

6PROSTATENEWS

InJanuaryandFebruary,DrCharles‘Snuffy’Myers,oneoftheworld’sleading oncologists and a prostate cancer survivor gave a series of talks on new treatment approaches for advanced prostate cancer.

DrMyerswasbroughttoAustraliabyPCFAandtheStVincent’sProstateCancerCentretoprovidetheAustraliancommunitywithnew insights in the field, including the importance of adapting and tailoring treatment options to suit each individual case of advanced prostatecancertoimprovequalityoflife.

Withover250researchpapersoncancerandotherdiseasestohisname,DrMyershasmadesubstantialcontributionstothedevelopment of new treatments for men living with prostate cancerofallstages.HeopenedtheAmericanInstituteforDiseasesoftheProstatein2001toprovidemenwithcomprehensivetreatmentofallstagesofprostatecancer.DrMyersistheMedicalDirectoroftheInstitutewhichdrawspatientsfromallovertheworld.HeisalsoPresidentoftheFoundationforCancerResearchandEducationandeditoroftheProstateForumandhaswrittenseveral books on prostate cancer.

DVDcopiesoftheseminarcanbepurchasedthrough www.menshealthmatters.com.au

PROSTATENEWS7

new continence AidS PAyMent ScHeMe

From1July2010,theAustralianGovernmentDepartmentofHealthandAgeingwillintroducetheContinenceAidsPaymentScheme(CAPS).Underthenewscheme,peoplewith permanent and severe incontinence will receive an annualpaymentofupto$489.95directfromMedicareAustraliatomeetsomeofthecostsoftheircontinenceproducts.ForinformationvisittheDepartment’sBladderBowelWebsitewww.bladderbowel.gov.au,emailcontinence@health.gov.auorcontacttheContinenceAidsandAssistanceSchemePolicyLineon1800807487.ForcontinenceinformationyoucanalsocallthefreeNationalContinence Helpline (1800 330 066) which is staffed by professional continence advisors who can provide information and referral advice to people affected by or caring for someone with bladder or bowel conditions.

tAlk to SoMeone wHo HAS Been tHere Menwithprostatecancerandtheircarersareneedednowtojoinnewtelephonesupportgroups.PCFAandbeyondblue: the national depression initiative have funded the groups to bedeliveredbyCancerCouncilVictoriainpartnershipwithMensLineAustralia. ProstatecanceristhemostfrequentlydiagnosedcancerinmenlivinginAustralia,withanestimated20,000newcasesdiagnosedeachyear.Witharoundtwothirdsofmenexperiencingurinaryincontinence in the 12 months after prostate surgery and the risk of depression a concern, this new service gives people the opportunity to talk to others who understand the issues. The confidential telephone groups are available for:- Menwithadvancedprostatecancer

- Youngermendiagnosedwithprostatecancer

- Familyandcarersofmenwhoarefacingday-to-daylifewiththe disease.

The groups will be delivered via teleconference (for the cost of alocalcall)andprofessionallyfacilitatedbyexperiencedhealthprofessionals.Sixtoeightparticipantswillmeetweeklyforaroundanhouroveraperiodofsixweeksandcanusealandlineor mobile to participate.

Joinagrouptodaybycalling131120(Viconly)or0396355000forinterstateenquiries.Alternatively,email csg@cancervic.org.au

BAtHurSt tieS uP tHe town On11FebruaryBathurstbecameaninternationalPCFAfocalpointwithaGuinnessWorldRecordattemptforthe longest continuousness rope of neckties. This was the brainchildofBathurstCouncillorsBobbyBurkeandIanLawswhoplannedtotie13thousandnecktiestogethertogoaroundMountPanoramaasanopenertotheBathurst12HourRace(12-14February),Australia’slongestandtoughest track test of performance and production vehicles.

NecktiescameinfromacrossAustralia,includingmanyfromPCFAsupportgroups.Therecordwasachievedwiththe assistance of more than 200 local community members andthesupportofBathurstCouncil.PCFAwastheofficialcharityattheBathurst12HourRace,withaMen’sHealthpitstopoperatingontheSaturdayandthePCFAlogowascarriedontheAlanEastMotorSportscar,whichcamesecond on the day.

AlanEastandmembersofhispitteamwithWendyFarrow.

THANK YOU TO ALL OUR DONORS, PARTNERS AND SPONSORS FOR YOUR GENEROUS SUPPORT

MEN’S HEALTH PARTNER: MOVEMBER FOUNDATION

BLUE DIAMONDPARTNERS

SAPPHIREPARTNERS

PLATINUMPARTNERS

GOLDPARTNERS

ABBOTT AUSTRALASIA

ASTRA ZENECA

AUSTRALIA POST

BRAMBLES

BONDS

BUNNINGS WAREHOUSE

EAT MEDIA

ELI LILLY

SANOFI AVENTIS

SHELL

SOUTHERN CROSS EQUITIES

TOUR DE CURE

SILVER PARTNERS ANGOVE FAMILY WINE MAKERS • DAVINCI • FARMOZ • PRIME MEDIA • VOLLEY

TOPAZ PARTNERSALLENS ARTHUR ROBINSON • AMERICAN MEDICAL SYSTEMS • AUSTRALIAN RUGBY UNION • CHARITY GREETING CARDS • FOSTER’S GROUP • GRAY-NICOLLS SPORTS • HARLEY DAVIDSON • HOYTS • NATIONAL BREAST CANCER FOUNDATION • PARAMOUNT • RSVP • SCARBOROUGH WINE CO. • SIMSON • WALKINSHAW

Matrix for PNEWS print Feb '10.indd 1 18/02/2010 1:07:39 PM

THANK YOU TO ALL OUR DONORS, PARTNERS AND SPONSORS FOR YOUR GENEROUS SUPPORT

MEN’S HEALTH PARTNER: MOVEMBER FOUNDATION

BLUE DIAMONDPARTNERS

SAPPHIREPARTNERS

PLATINUMPARTNERS

GOLDPARTNERS

ABBOTT AUSTRALASIA

ASTRA ZENECA

AUSTRALIA POST

BRAMBLES

BONDS

BUNNINGS WAREHOUSE

EAT MEDIA

ELI LILLY

SANOFI AVENTIS

SHELL

SOUTHERN CROSS EQUITIES

TOUR DE CURE

SILVER PARTNERS ANGOVE FAMILY WINE MAKERS • DAVINCI • FARMOZ • PRIME MEDIA • VOLLEY

TOPAZ PARTNERSALLENS ARTHUR ROBINSON • AMERICAN MEDICAL SYSTEMS • AUSTRALIAN RUGBY UNION • CHARITY GREETING CARDS • FOSTER’S GROUP • GRAY-NICOLLS SPORTS • HARLEY DAVIDSON • HOYTS • NATIONAL BREAST CANCER FOUNDATION • PARAMOUNT • RSVP • SCARBOROUGH WINE CO. • SIMSON • WALKINSHAW

Matrix for PNEWS print Feb '10.indd 1 18/02/2010 1:07:39 PM

8PROSTATENEWS

i want to help find a cure for prostate cancer.Please find enclosed my donation of $Name:

Address:

Postcode: Phone: () Email

Pleasesendme,inconfidence,informationonhowIcanhelp

theProstateCancerFoundationofAustraliathroughmywill.

Alldonations$2andoveraretaxdeductible Please mail to: PcfA Po Box 1332, lane cove nSw 1595

Pleasemakeyour

Cheque Moneyorder

payabletoProstateCancerFoundationofAustraliaor

Pleasedebitmy

VISA MASTERCARD AMEX DINERS

CardNumber________________

Expiry:__/__

Signature

✁

thank you for your support

tHAnk you to All our donorS, PArtnerS And SPonSorS for your generouS SuPPort.

Australia’s BIGGEST National Fishing Competition...

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