PowerPoint Presentation

PROMs and PREMsThursday 14th November 2013Chris Graham (@ChrisGrahamUK)A not-for-profit organisation that makes patients views count in healthcare We: build & use evidence to champion the best possible patient-centred care work with patients, professionals & policy makers to strive continuously for the highest standards of patient experience for all their patients

www.pickereurope.org

Picker Institute Europe2Why conduct patient surveys?Because to measure is to know & if you cannot measure it, you cannot improve it1 To see through the patients eyes2To put patients at the heart of healthcare3Patient experience is the most powerful lever [for choice and quality] and will be used for service improvement 4

1: Lord Kelvin, 18832: Gerteis, M., 19933. NHS Plan, 20014: Lord Darzi, 2008

3

PREMs: patient reported experienceExperience satisfaction OR outcome

Focus on specific, reportable events

Measure what matters to patients

Results identify areas for improvement

and allow comparisons/benchmarkingWhat do patients want?

Effective treatment delivered by provided professionalsFast access to reliable health adviceContinuity of care and smooth transitionsInvolvement in decisions and respect for preferencesClear, comprehensible information and support for self-careInvolvement of, and support for, family and careersAttention to physical and environmental needsEmotional support, empathy and respect910PREMs examples

PREMs examples

Good outcome, poor experience?29 y.o. 2nd trimester pregnancy: admitted from A&E after severe abdominal pain.Ovarian cist - initially misdiagnosed as miscarriagelost confidence in doctors Never saw my surgeon & wasnt told the outcome of surgery until two months laterBut... Im just fine now as treatment definitely fixed the problem13Experience and effectivenessLimited published evidence

Doyle, Lennox, & Bell (2013):patient experience is positively associated with clinical effectiveness and patient safety the three should be looked at as a group and not in isolation. NB: particularly strong evidence re: link b/w patient experience & adherence to treatment

PROMs and PREMsComplementary approaches: give patient perspective on outcomes and experiences

Easy to measure simultaneously

Users views on experience & effectiveness

Move towards more routine collection