plot-it force2015

PLOT-IT Public Led Online Trials

Amy Price Amanda Burls and Su May Liew

PLOT-IT AIMS


Public Led Online Trials


Ways the Public Collaborates

With PLOT-IT

PLOT Prioritize

choose, supply

Research Questions

Living Systematic

Review

Project Planning, Recruiting

Steering group, Peer Advocacy,

Crowd-source Teaching &

Funding

Design, Develop &

Test Platform and Protocol

Analyse, interpret and disseminate

How Participants Can Help


ThinkWell

Application Requires Preparation

The application of

what we know already will

have a bigger impact on health

and disease than any drug or

technology likely to be

introduced in the next decade.

Sir Muir Gray.


How Learning Changes Function

The world will not

evolve past its current

state of crisis by using

the same thinking that

created the situation.

- Albert Einstein,

scientist (1879-

1955)

1 2


The Public SpeaksThe first thing we need is a list of those things that make people feel

powerless and a set of limited achievable objects to start removing

the barriers to people taking control of the health science process.


What I learned From Qualitative Research

Shame slows the Train


Paralyzed By Shame & Not Lack of Information

The miracle is not that I finished but that I had the courage to start J

Bingham


Understand Behavior


The Public Helping Themselves

Can Methods Mentoring Help?Amy Price Amanda Burls and Su May Liew

Perspective Matters

It doesn’t have to be comfortable to work


Pattern recognition can float your boat

or sink your ship

Behavior is more than knowledge


Quality Clinical Trials Online

By the people for the people:


Does drinking water reduce

headaches?

Join study My data Contact usLearn more

H2O Study

ThinkWell


Where The Public Decides Research Priorities

DO IT TOGETHER YOUR WAY!

Choose topic

Hands On

learning

Do The Research

• Bio-

Feedback for

Pain

• Aging

without

Alzheimer’s

Disease

• Drinking

water is it a

weight loss

tool?


We find solutions together


Tell us about you

Trial information

Consent

Tasks

What’s in it for me

Consent for observational data, no randomization

yet Each layer separate sections


12

43

5

7

6

8

Should we drink

extra water?

And if so, how

much? Join in

research

to find

out!

You expressed interest

in headaches

and drinking extra water

Amy Price Amanda Burls and Su May

Liew


NHS

CHOICESNHS

CHOICESNHS

CHOICESNHS

CHOICESNHS

CHOICES

Email

details

Complete

24 hrs 48 hrs

.5

1

5 76 8

Join in

research

to find

out!

How much water do I drink?

2

2

2

1

3 4

1 3 4

Forgot? Drink the extra

when you remember

=500ml

=120ml

=1L

=2L


Record fluid intake

Personal Dashboard

Record intake and report

outcomes

daily

Not done

Reminders

Day to Day Trial Activity

H2O For Headaches PLOT Flow Chart


The public is smart enough to master risk, odds and ethics while conducting

research. They have untapped potential for improving decision-making,

education, policy and advocacy. Join us to provide them with training and a

voice

24

The most under-realized resource is the participant.


Got Online Trials?

You can build them: We can help!


Find us at

http://ithinkwell.org

[email protected]

http://ithinkwell.org

We Can Change Research Practice With Your Help!


plot-it force2015

Healthcare