patient support groups on facebook

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Social Media in Healthcare Overview and Current Realities Ed Bennett University of Maryland Medical System e-Patient Connections Philadelphia, PA | September 20, 2011

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Presentation at e-Patient Connections 2011

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Page 1: Patient Support Groups on Facebook

Social Media in HealthcareOverview and Current Realities

Ed Bennett

University of Maryland Medical System

e-Patient ConnectionsPhiladelphia, PA | September 20, 2011

Page 2: Patient Support Groups on Facebook

How Hospitals Use Social Media

Customer Service

Community Outreach

Education

Public Relations

Crisis Communications

Recruitment

Brand Monitoring

Page 3: Patient Support Groups on Facebook

Hospital Social Media Types

Page 4: Patient Support Groups on Facebook

Rapid Growth: YouTube and Twitter

Page 5: Patient Support Groups on Facebook

Hospital Values Social Media Values

Risk averse Risk taking

Information from authoritative sources

Network Reputation

Privacy and security regulated Anyone can publish anything

Data tightly controlled Information freely distributed

Tight intellectual property Use licenses with few restrictions

Page 6: Patient Support Groups on Facebook

Special Issues for Healthcare Professionals

HIPAA / PHI

Professional vs. Private presence

Appropriate use

Social Media access on hospital networks

Professional Guidelines / HR policies

Finding answers in the “grey zone” “The Placenta

Incident”

Page 7: Patient Support Groups on Facebook

Patient Support Groups on Facebook

University of Maryland Medical Center currently has four groups:

Post Liver Transplant

Digestive Diseases

Hepatitis C

Trauma Survivors

First group launched in March 2011 – between 10 and 40 members

Page 8: Patient Support Groups on Facebook

Patient Support Groups on Facebook

Requested by our patients

Restricted to our patients

Outgrowth of traditional IRL groups

Managed by the same group leader

Set up and Sanctioned by the UMMC Communications Department

Page 9: Patient Support Groups on Facebook

Patient Support Groups on Facebook

Mix of Closed & Secret Groups

Members must be approved by Moderator

Posts are private to the group

Secret groups are invisible, do not show up in FB search results

Reviewed and approved by UMMS Legal

Page 10: Patient Support Groups on Facebook
Page 11: Patient Support Groups on Facebook
Page 12: Patient Support Groups on Facebook

Patient Support Groups on Facebook

Results:

Activity level varies by group

Support, knowledge exchange

“Does this happen to anyone else?”

Mix of health and other topics

Events and projects like a group luncheon

Page 13: Patient Support Groups on Facebook

Ed Bennett

Director, Web & Communications TechnologyUniversity of Maryland Medical System

Phone: 410-328-0771Email: [email protected] / [email protected] Web: umm.edu - ebennett.orgTwitter: @edbennett

Presentation and resource links:

http://ebennett.org/ePatientConnections